Fuzzy's Romp Room
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Hi girls. I got to the gym finally today. Yah! Afterwards I felt quite ill. It's just way too hot. I think they said the "feels like" temp was 106. I know I need to keep going to make it a habit, but I'm checking the weather first. The only other useful thing I did today was schedule my pre-op appt with my PCP. But I was very productive yesterday, so I'm cutting me some slack. I'm hoping to get more stuff done tomorrow. Oh yes. I did take the stuff for Goodwill to Goodwill. So now I am free to start another pile of Goodwill stuff. I will reclaim my house. It won't happen in a day or a week. But dang. It hasn't even been a month yet and there is a definite difference.
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I have my first follow-up on Friday and will see an ARNP. Suddenly tonight I'm nervous. No real reason to be, but I am. She's not going to do anything except look at my mx. No blood, tests, mammo, nothing. So no reason to be nervous, right?
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Wren...I'm in your pocket too!! Got big pockets? I'd like to bring snacks...
MamaV!!! Holy crap!! Welcome home darlin'! I'm picking up what you're throwing down...nothing is normal anymore and I can't even get into a "new normal"....WTF????
Started my pre-vaca vacation today. Met up with a few friends in the middle of Wisconsin...we hit a state park and it was amazing...and now I'm only 2 hours from my destination...dang cute motel I'm in right now. Its raining outside so I opened the window....freezing my tush off but Its been a really long time since its been cool or rained!! I picked the trip that was furthest from my house on the day it rains! -
Oops....wrong button on my phone!
I'll try to remember to get the critters in the welcome story! I wont be at a real computer for a while.
Does Toddlers and Tiaras irritate anyone else? Its kinda a love/hate thing I have going on....LOL yup. I'm a little bored right now....
Nancy....no worries sweetie! I'm Still just thrilled you didn't leave!! LOL -
I have some catching up reading here.
I still have my two darling drains in. I think they are becoming a part of me.
I got my first fill yesterday... 90cc's. I was surprised that I didn't feel anything. We're hoping the fill will help stop the fluid. Today I feel like a brick.
I'm in the pocket too!! Big hugs to everyone!
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Thanks for the welcome back!
At work today ... trying to live "the new normal" right Fuzz?
Ha!
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DUnes super-------progress and a sounding of fortitude
Nancy watch the burn he made like a hawk----if you need a reason I will tell you, otherwise check it twice a day, don't walk barefoot, keep a clean dressing or white cotton sock on it. report and changes immediately
Veggy---yay a fill, but don't let them put so much in the next time, unless PS is insistent. At a given point fills will hurt if pectoral muscle hasn't had enough time to stretch.
Wren you could ask to be seen by your doc if it gives you more peace of mind, but oncology arnp'S UNLESS THEY ARE GREEN, TEND TO SPEND MORE TIME WITH YOU THEN THE mo. (caps onlyb/c my finger strayed).
Fuzzy----a beginning-----hoping for no rain.
Mamav
Saw PCP today, I'm 61 getting the scoop on safe sex. Amazing what I learned. Especially useful for low immune states and yeast infections. Anyone want her info PM me.
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Thanks to everyone who spent the morning in my pocket today. I liked the ARNP better than the ONC. She's willing to switch me to tamoxifen to protect my bones if I want that. Checked my Vit D level also. I don't need to go back till Dec. and have a mammo in Feb. Glad it's over.
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I'm new to this thread and new to all if this for that matter. Bmx w recon w TEs jun 18th. BS called 18 days post op to tell me I needed ALND. She performed that tues jul 11th outpatient along with my port placement for chemo. The next morning I ended up in the ER with an 80% pneumothorax. Spent the next 8 1/2 days in the freakin' hospital. I was doing ok until that. Now I'm just feeling really pissed that I'm having to go through this. I'm finding myself looking at other women & asking why me? Why do they get to keep their soft, pain-free boobs while I have been in discomfort & pain for the last month (& that's just the beginning)! The ALND has seriously effed up my arm. The nerves are going crazy & it's practically useless. The complications & hospital stay postponed physical therapy, so I feel like I'm walking around like I'm crippled. I have 2 young kids (almost 6 & 3) who are tired of grandparents and a sex-crazed husband who I'm sure is feeling neglected & resentful though he wouldn't say it! I'm just mad as hell right now. Do you know what it feels like to be stuck in the hospital for 8 nights with no ability to shower? It's disgusting! I still have a 20% pneumothorax since they pulled my chest tube with hopes it will heal on its own; otherwise, more surgery. Dammit! My ribs & lung are sore. My appetite is crap, yet I know eating/drinking is so important.
My onc wants me to start chemo on tues, but I don't see how I will be ready physically or mentally, but it's already been postponed a week and I know it's good to get started (TC x 6). I'm just angry at the world right now. I want my old life back. I'm only 40 & I feel cheated. Sorry to ramble on, but I just needed to get this off my chest (no pun intended). I'm jealous of those who don't have to go thru this. This isn't the attitude I had in the beginning, but the lung collapse has thrown me. I'm in pain now and feel weaker than I ever have since this whole ordeal started. Just needed a place to vent.
Thanks for listening,
Tricia -
Thinking of each and every one of you...I read every day...Im stay with a friend who is a 29 yr.survivor.If I get down and there are times we all do I think of my friend who is goin throu this right now...She is 59 now.do the math.This turns my stomach....Why her?Why?suffered for 29 yrs.with all different diseases...all related to the dam cancer.
I always think of one of my dear sistas who always tells me SOMEONE OUT THERE HAS IT WORST...
When was the last time I told you how much I hate this disease?????????It suks!!!!!
Afew months ago I read on here of a 15 yr.old with bc....Why????
The only good thing that comes out of this friggn disease are the wonderful sistas you meet.I pray for each and every one of you that are on these boards.This site covers a lot of my sistas who I know a long time and have grown to love dearly.
Ducky----im gonna get you to come to meet me...bet on it!!!!
Veggy----You know im gonna see you for sure....Ducky im gonna have to drag kicking and screaming but im planning it after the summer.
gonna try to locate some of my other sistas...huggggggggggs K
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Tricia, Welcome. This is a safe place that lets you vent all you want. We all have different stories and problems from BC but we all have each other's backs. good luck with the chemo. Your are right , you do need to start as soon as you are able.
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Tricia, You have come to the right place to vent. This is great group. And the women here are wonderful at supporting each other, sharing experiences, information and tips.
I bet there are several of us that have experienced the no shower problem. Several years ago while recuperating from pancreatitis I spent 6 weeks in a nursing home and was only allowed to shower 3 times-- and one of them was on the day of discharge!
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Fuzzy - watching Toddlers and Tiaras on TiVo right now!
Tricia - vent, yell, scream, cry, kick, whatever you have to do! This is a safe place to do it! We all know it. We all feel it. BC totally sucks! It takes away so much! But you know what? Get it all out! Then pick yourself up! Your babies need a strong and healthy mama and your DH needs his wife! It's gonna suck for a while, but you'll be ok! We are here for you!
Vicky -
Wren...YEAH!!
25weeks....Tricia....I'm glad you found us. We can hook you up with your own special room if You like! You're going through a lot and we need to be allowed the freedom and compassion that you find here. No edits, no apologies. Wait? Those sound like "rules" so...cancel that....do whatever You want on this thread!! LOL I did laugh pretty hard (I'm so sorry...its probably not suppose to be funny) about your sexcrazed husband. I hope yours is as patient as mine...giggles again.
SOOOOOO....I was kicked out of my breast cancer retreat. Yes. Asked to leave....at 8pm...and I live near the southern border of Wisconsin. The reason? Because I listened to the messages last night, acted on them and "retreated". So...since I wasn't a puppet, since I wasn't in their control (which they repeatedly said that everything was optional), and because I am a free spirit I was removed. Of course, that's the short story but I wanted to leave last night....after the 5 hours of sitting on my ass listening to the coordinator enjoy her own voice and building her "proper prozac" etiquette. I have insomnia and missed all of the morning activities - pissed them off. Missed the morning activities as they changed the times...so...rented a moped, explored EVERY PIECE of that beautiful place...rubbed elbows with some super fun people, saw wildlife, live music, and played on the cliffs/in the water and lots of shore of L. Superior. I covered the trails of the State Park and got to travel through a forest....then, I lost myself enough to find something I needed back....
As she told me the bullshit reasoning for asking me to leave, I was already gone. I came back to the mainland...stopped at a few more shores....wrote my name in the sand and stayed true to me. I didn't need to get upset that the coordinator didn't listen to what I did or why...my DH took care of that; )
So....apparently I do not belong in a retreat. I knew that last night. Its not cancer that's beating the shit out of me....its ignorance. And...the staff are all survivors. Yup. And I fully believe their egos are way bigger than their hearts.
So my punishment is to head home...to my family....to my garden....my baby puppy (ok...he's family)...I was packed and on the ferry within 30 minutes... -
Nancy....too funny! I felt trapped...like they needed me leashed or something!! I wanted to go for a run last night and they gave me static. "Are you sure? Are you Sure?!" WTF...yes I was sure. The stars were so fantastic and I saw a wolf, several deer and bats....that's awesomeness in my book. Oh my music and fingers were both turned up! LOL. I just can't believe I got kicked out for having such an amazing day...
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Sounds like the location of that retreat is being abused and wasted by the organizors. I suspect they would find their efforts far more effective if they allowed time for participants to recharge their spirits in such a lovely setting.
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Tricia - I am so sorry you are going through all this. I am 7 years older than you and going through this crap for a second time. My BMX surgery was June 27th. I still have two drains and the tissue expanders feel like bricks. Daily I fight the feeling that I want to hide myself from everyone. I had a port the first time and had it removed. I have to go through that proceure again. I probably won't be starting chemo until September.
The sistas her are the best. They have endured my whines and sent me hugs to get me through.
Big hugs!
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TRISH, glad you're here and, wow, you're minding your own business and you wind up in the hospital with half a lung. I have heard of some of us ambulanced to the hospital for all sorts of nutty things, as if we didn't have enough to deal with already!
FUZZ, good grief, well one thing is for sure, you got the opportunity to visit a wonderous natural area and to just be free. I'm glad your EFF YEW component is still working. I remember I got mad at some hospital people after a morning surgery and by evening they wouldn't give me my meds yet, so I went into the hall and made an announcement that I was leaving, and if someone didn't come get this I.V. out of my arm, I was going to rip it out. Hahaha.
MAMAV, I'm enjoying seeing you again, so good to me during chemo. NANCY, now YOU'RE the funny one, "guards named Bubba." DUNE, I don't know what it is, but you are sooo delightful with your tentative steps towards recreating your home. My home needs a well-placed grenade to straighten it out. I remember reading a story one time about a guy who decided he wanted to rip out his concrete driveway, and after a few sorry hours with a jack-hammer, he came to the conclusion that his drive was a former test site for nuclear bombs.
People, I took a shower yesterday morning, which is when I wash my wrinkled gray hairs. I usually brush it out with some kind of bangs and side tendriles, but it looked so flat that way. It doesn't help that my face and neck are swolled from extra weight. Seems like there's a product where you can head-duct-tape your jowels back, but it would take springs the size of Chicago to hold mine back. SIGH. I guess today I'll brush it back, not quite ready for a ponytail, but I have a fake one in a dresser drawer somewhere...hmmmm. Always, GG
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Fuzzy - You had a wonderful trip! Sounds like you found wonderland and a dose of super self esteem strength to top it all off. When someone sits and talks endlessly all they are doing is draining energy from listeners. Yes, I have left many retreats, the egos, the lessons, the control never suit me. So when you were writing abouut your spectacular day, I wanted to go too. Still have to explore the coasts of MI all around, it is on our list to do when we leave this place.
Trish - am not going to advise, please forgive, but me, I know from hindsight that I would put the brakes on and get my strength. I was sent into surgery when I had walking pneumonia and did not know until I was heading in th edoor to dress for surgery. Yup. But I went and suffered later. The majority of docs I have dealt w/ have all wanted control of me --- all the while their sign on the door for the team says, I am the most important person on the team, but they actually didn't ever hear me or my concerns and I have paid the price. I have learned to say wait a minute. That's me, you do what you need. And rant all you need, the waves come and go over here, sometimes we are on top a few hours then someone crashes and we get scooped back onto the whatever the heck we are riding, me a pontoon, I guess.
GG Gail - I have taken to wearing summer hats, some are sun hats, some are funky. I love it. Need a colouring, need a summer trim, need some new shampoo, lol, but the hat works everytime.
Dunes - You need a batch of storage tubs to stack in acloset, yup, yup, yup, I am getting all this stuff on eBay and gues where it is. A box of antique soda bottles on the living room chair, a bok of tableclothes on floor by tabler here, a table full of stuff in garage and then today Hubby gave me his huge heavy tool cabinet to put my nice dishes and pic in, oh my yes he did. The man is a bastard, LOL, he gave me the other cabinet for all the paint stuff and craft stuff, and now this one too. Everytime he does something nice and I tell sister about it, she goes the bastard. He brings fan to garage for me and she says the bastard LOL. Yes, we all need more storage boxes.
Nancy - the to do lists are always a week behind or more, right? Today we cleaned the gaarage, with the heat for months, it was nicer today, so got a lot done but it was not on llist today, was on a month or three ago.
Veggy - GrannyDukes K - you are great sistas.
Sassy - I had the dog water bowl on the carpet at other house, but we owned that place, so to speak. Here there is a mudroom and bowl is in corner. Newfies - the huge black furry floppy faced 140+++ pounders have a way of drinking and sliming all over the floor and in their water then dripping all across the house. Everytime they get a drink they need a fresh bowl of water. If you don't then the slime sinks to the bottom of the bowl and is totally gross to wash. WORSE ---- After Danny Boy gets a drink he often comes to me and hugs me as he wwwwwwwwwwwwwwwwwwwwwiiiiiiiiiiiiiiiiiiiiiiiiiiippppppppppppppppppppppppeeeeeeeeeeeeeeeeeeeesssssssssssssssssss his floppy black face all over the front of me. omg, must love slime and it is always black slime. I try to always have a towel next to every chair and bed in the house. But sliding through it on a tile floor especially, you never get over that.
Good to read all the stories.
Rained here for hours night before last, hope we didn't use it all and a lot got to the east of us. Here the ravines are dry, the lakes so low, never seen them so low, but the crops and woods and all needed that rain and responded.
Here's that horn to gun shots I posted elsewhere, wwe were honking if you hate your onc and I really really did that day, wanted to kick him in face w Birkenstocks on. This relived some tension. Fuzzy - meditate on taking that car through the retreat.
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Loveliest of all the people in the world,
I made it home....back to my sanctuary, my castle, my babies, my boy and my puppy. I'm sitting at our fire pit with unconditional love (you all and Puppy ) and I decided to....well....make a special fire tonight and torched a few things....and as the smoke rises while the sun sets I think of each of you. Wherever you are as You read this, hold your beautiful face with both hands, close your eyes, and imagine me right there with you. That's what I did and it was magical....a real treat to be with my sisters, in my place, for a moment. -
This is what I call a spiritual journey into breast cancer.
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I "un-retreated". Thank you for being There with me!
I remember that women telling me, "...we will call and check up on you...." I hope she times That right cause right now it would sound something Like..."How are you...really? I ask because you were full of anger and resentment. You tell lies and try to manipulate bruised women. I ask because I learned from you that even the best intentions from bad people are still wicked and unwanted. I missed my sanctuary within hours of encountering your camp and releasing me was not only needed, but on your agenda from the beginning. You have forgotten that I am an individual and perhaps that you were one not so long ago. I ask because you may not know how you are....so suck on that for a while and lose my number."
Sincerely, THE FUZZINATOR!!
I over heard one of the coordinators say, "I only come here for the food." I believe her. Eat it. -
Fuzzy.........I could feel your hands all around my face........love you girlfriend................your the best............hugs.
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((((((((((((((((((Ducky)))))))))))))))miss you sista.....why dont you put your hands all over my face????I felt fuzzys now you go...comeon dont be shy.....you can do it!!!!!!!!!
do it for all of us...
I just did it.Did you feel mine.i have tiny hands but im sending gentle strokes.
huggggggs everyone..K
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Fuzzy, that retreat center wanted mindless automatons that they could program in whatever way they felt was best. It was the same thing for me when I went on retreat. I don't much like being sucked into a group and losing my sense of self. On the other hand, it feels really cool to meditate and reach that space where you are one with everything. I've only managed to do that on my own, though. I'm sure I couldn't be led there by somebody with an exaggerated sense of self-importance. I'm glad you were able to find a way to have fun and find what you needed to find despite the plans they had for you.
I didn't do anything with my house today, but I did go to the gym. It was a relatively cool day, so it felt pretty good. Yesterday I had to deal with ants in the kitchen. They had found a tube of cake decorating icing. So I emptied all my kitchen cabinets, cleaned them out, and then tried all the natural ant treatments I could think of. I tried borax. Then I tried tea tree oil. They still kept coming. I couldn't find where they were coming from, and I still don't know. Finally I was desperate enough to spray insecticide. Yeah, just what I needed. This morning some were dead. I figured that was good since the toxicity was probably killing me too. Oh yeah, and I washed the poison out and then sprinkled baby powder in the cabinets. Mom said ants won't cross the baby powder. Well . . . I have news for her. They were crossing over the baby powder. Admittedly, they did not seem happy about it. There are hardly any ants, just one or two now and then throughout the day. I hope they get the message soon that there are no goodies here for them . . . so I can put my dishes back in the cabinets. They are in the dishwasher, on the kitchen table, and on the steps.
In the morning I have to go to my appointment for SSDI. I'm all anxious about it. I don't know if I'm anxious because it is in the city and I am not familiar with driving in the city or if it is because I don't really want to be designated disabled. I just want to get my house in order, feel better, and get back to working. I don't know if that will happen, though, so I have to go through this. I am also anxious because there is a bc support group Wednesday evening. This will be the first time I have gone . . . if I do go. I guess I ought to warn them I'm coming. Then on Thursday I meet with the shrink that is holding up my retirement disability. I'm just worried that she will mess me up. Other plans for the week include cutting the grass, going to the gym, and arguing with Advanced Radiology about their bill.
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Dunes---ants and other critters>>>put blue Borax in the corners, Particularily look at window corners. As far as ssdi>>> your crazy and depressed AND unable to work. ANY other answer will get you a refusal. Dunes we are all trying to act normal, but we ARE crazy depressed and abnormal. That's why we are in the state that we are. Which state was that? If you try to seem normal , which you aren't, The SSDI folks are going to think your normal. I'm not saying lie. I'm saying, let it all out as to what is making you abnormal which causes you to be elligible for SSDI. We spend our lives seeking normal . Then we are hit with BC. We then find out that all we sought our whole lives was a lie. Then when we admit that we are abnormal, we somehow crazily try to prove we are normal. Let the crazy /abnormal/noncoping/life is too much/ can't handle/I'm no longer able to cope and I can't get anything straight mentally or physically staight/..............No lies here-------sweetie what have you been seeking from FRR. A safety net to hold onto so you don't loose your mind. There is no pretending--you are holding on. We all are, we cleve to each other b/c we are scared and wanting all this stuff to go away. We have lost our sense of control over life.
Each day we come here b/c of support from each other. BUT on the day you meet with SSDi folks show them why you are hurting and the damage that it has done to you. My Dad was a stoic, nothing was ever wrong--yet I knew otherwise, my last words to him were "Just please tell them it is the worst ever". He died the next day, he wouldn't have been even admitted if he didn't say those words. Odd, I spent the whole day teaching Advanced Cardiac Life Support--ACLS---to paramedic students and he arrested at 4:45. But to him nothing was wrong. WELL, we have plenty wrong as a result of BC------don't try to negate it. It rips at our being, its taken our minds, our strength, our beliefs We pretend each day. Our pretending keeps us alive. SO, those SSDi folks don't need to hear your okay, they need to know the truth of what you have been fighting L&H&P"S sassy
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Dunes said - "Oh yeah, and I washed the poison out and then sprinkled baby powder in the cabinets. Mom said ants won't cross the baby powder. Well . . . I have news for her. They were crossing over the baby powder. Admittedly, they did not seem happy about it."
Maybe she meant a huge hill of baby powder.
I hear that diamataceous earth works too, like the borax, but this scratches them, like it does fleas. Poor little ants, all they want is some frosting and cake. Make it, set it by their anthill andthey will stay there, not in your house, right?
Sassy - I have been self employed all my life, paid taxes co-filing w Hubby but never paid SS except when I was working part time or long ago when fulltime. But I cannot get SSDI, nothing, I cannot work, brain is screwed up, but I am trying. There seems to be no way to get help. I need five more quarters, 5 more credits, and I don't have ability or time to get them, I could die waiting on that one. Was told by Binder and Binder attorney consult that I had to close my business or sign it to someone and MAYBE I could get SSDI, but not to count on it. I don't want to give up my business, I maye be able to write and work one day, I spent yrs building it, it's on autopilot right now, no real cash flow that doesn't go back into business. If I act crazy, will that help? LOL Truly, we are selling everything we own to pay for my choice of treatment. Just wondering.
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Essa my Mom and dad had their own business and was refused by__?_ to be aloable for paying into soc security_so, it ended up mom got 300 $ FOR SOC SEC. Who could live on that, Mom lived with me for 13 years, then my sister for 5 years. Inadvertently, sister found out that there was a supplemental income for widows of WW2 vets. AND that ther was a supplemental stipend for caretakers for each. Dad only survived 7 months when he came to us, but Mom live with us for 13 years. Had we known , it would have helped. Sister received a caretaker supplement for the 5 years she live with her. Mom was a joy to have, but the extra money would have helped. It goes back to what I keep saying "talk to a Social Worker' I didn't ergo had no clue.
Don't know what to say about the credits you need---------in a country that was created by entrneurship(SIC) the entrepreneur is penalized in the end. Essa awful I so understand b/c my parents went throuigh the same thing, but they had children that would take them in------do you have kids?
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I don't understand how you haven't paid SSI taxes. I have been a self-employed tax preparer for 18 years and have paid them. Many of my clients are self-employed and they all pay "self-employment" taxes which are your social security and medicare taxes. The only difference from working for someone else is that no one else is paying the employer's share so you pay double, employer share and employee share of both.
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Granny................from my hands to your face.................love ya girlfriend..............
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