INSOMNIACS place to talk in the wee hours

tangandchris

It's okay Susan....no one can be happy happy-joy joy all the time. I don't know what to say, just wish I could give you a big hug. ((hugs))

This is the best place to vent, cry, rage...whatever you need.

camillegal

I'm here, been seeping like crazy again????

Susan I'm so sorry u feel that way and I certainly can't give u any real advice, but if u feel that bad about this why don't u stay home instead---but then again they might talk about it for 5 mins and then other subjects will start coming up--(((BIG HUGS ))))

Aww Paw little Annie---I hope she's not in pain a lot--just hold her poor baby. When I saw the pic of the 2 dogs, one being blind, I almost cried--Our furbabies are better than some people.

camillegal

OK I'm back==work interrupted me--of all things.

Tang I love u'r picture and u'r smile is so happy and u learned how to do the pics.

And WTF Jump??? who's doing that around here. Didn't anyone learn from Chevy> She was still trying her poledancing and she broke her hip. I figured then everyone would be more cautious.

Hi Lee I don't remember u on this thread--Don't I know u tho? This is a 24/7 one--it's turned into a huge group and a good one too. In fact great.

Oh and I think it was 2nd who told me the name of that chemo----I of course forgot it by now, U'r just showing off, that's all.

OK I'm going back to sleep WTF is happening now-I'll probably be up all night.

Blessings2011

TANG!!!! 

Chevy - the Kinesio-Tape is good for SO many things (took away five months of swelling in Lefty after Exchange) but sadly, the Trigger Finger is back this morning. Saluting all my Owlettes!!!

((((((((Susan))))))))

Hope AnnieMae has a quick recovery from her surgery....

Anonymous

Tang, sorry I left you out on the last post, how did I miss your pretty face? you are looking great!

Chevy, where did you get the winky blinky smiley with the sunglasses?  That's cool!

Blessings, love that photo for Annie Mae.

Nettie, my Mac and ipad don't have control (for the underline using that and U) key, dad's laptop does but it doesn't work...

Susan, sorry you're going through a difficult day. Happy you feel safe enough to voice your feelings here. But what I'm learning is, BC or not, most of our crystal balls don't work properly.

Sassy-pants, hoping you're feeling better too.

 

tangandchris

Quick vent....it must be physically impossible for my dh to eat food without slurping and to drink something without crunching ice. I swear it's like nails on a chalkboard and he MUST be doing it on purpose. I literally have to leave the room tonight, I feel like I have PMS x100!!!! grrrrrrrrrrrrrrrrrr

susan3

tang...I figure it is part of a neuropathy problem. Neuropathy = nerve issues. It happens to me too. Usually at night...so I call it my over sensory nerve problem. My entire body including my hearing hears everything  and feels everything way to much......I am always giving him a look and he always says .....what.......  Then he stop eating and I take an Ativan...lol.    I blame everything I can on chemo...cause it certainly couldn't be my charming personality...lol.  Ha ha ha 

Hang in there....hope u have 2 bedrooms

FierceBluebird

Hugs, hugs and more hugs for Susan. 

Tang, you are beautiful! Rockin' the look! 

Pawprint, hope Annie is resting comfortably and you can relax a bit now that surgery is over. 

Tang, good luck tomorrow withT.a.T.t.B.a.B! You'll wake up and be a whole new you.

Sas, wait to you hear this one.  To recap, One month ago I was in the hospital with pneumonia. Ct scans and chest xrays show lots of radiation damage with the pneumonia and some suspicious areas.  Supraclavicle lymph nodes are swollen.  Doctor number one wants to do a lymph node biopsy, which is somewhat invasive because the lymph they want sits on my lung. Doctor number two says forget the lymph node, get a lung biopsy. (major surgery)  Doctor number three says, could be radiation damage, but talks to doctor number two (same hospital) and says go for lung biopsy. Doctor number four, (same hospital as doc #1) says lymph first, then lung if necessary. Sounds good to me but I get yet one more opinion with doctor I had already set up to talk about trials. Doctor #5 says he thinks it's radiation damage, but go ahead with lymph node biopsy since it was already set up.   (Okay, hope everyone was paying attention because there is going to be a quiz after this! )

Okay, so my lung lymph node biopsy is scheduled for today. It's a two hour procedure.  I'm on the table, gowned up, IV in, anesthesia prepped and ready to go, 10,000 forms signed and dated, and surgeon walks in. Feels my lymph nodes and there is nothing to feel!  After all the opinions, the lymph nodes have settled down and my lungs are clearing up. The surgeon steps into the hallway to call doctor #1 and tell him the news. I look at my husband and say with a frantic look, "WHAT SHOULD WE DO?"  My husband says, "I don't have a medical opinion!"  LOL!  The surgeon comes back in and says she's cancelling the surgery and I can go home. All the nurses and anesthesia people and we could hardly believe it but it was awesome! I got up off the table, got dressed and went home!

Ran away as fast as I could go before they changed their minds!  Nothing like a "get out of jail free card!"

Spookiesmom

Could be you both have fibro. I do. Sound sensitivity is one of the symptoms. Some nights the crickets make me nuts. 

Pawprint

First off, happy belated birthday Cami. You were the first person to talk to me on this insomniac thread on September 30, 2012 and I was complaining about the medication. 

Thank you 2nd for the beautiful story of the blind dog and friend who guides it around. Yes JWoo, dogs really are amazing!

Wren, no cone of shame on Annie Mae. She's just so weak and sleeping a lot. I have the cone but she hasn't needed it yet. Blessings, I love the pc of the dog hugging the Teddy Bear, thank you

And for all of the rest of you sending Annie Mae love, she and I appreciate it so much. She is on antibiotics, anti-inflammatories, and pain medication. Her eyes are swollen, she is sleeping a lot, eating a little food, and finally drinking water today. Oh, before I forget, thank you Nettie, for explaining how Cami did all that underlining ......you are all a wonderful group of caring women. 

tangandchris

What is T.a.T.t.B.a.B...I'm so confused. lol

I bet it is a nerve thing though...I know it's getting on my last damn nerve! haha....okay silly right?

FBB-that is an incredible story!!

susan3

spooks....your r right, could be fibro...but I refuse to have another label...lol    so staying with chemo se's. 

Pawprint...glad to hear things are going well. Bet you can't wait till she is up and around again

FBB....ok...that was weird.....I am glad I have one onc and one surgeon .  That was a who's on first skit. Is your brain still spinning ?    Mine is

Nettie1964

My big boy. 

Pawprint

What a beautiful dog Nettie )

Glad you got the get out of jail free card FBB....

Nettie1964

Ok, I have a question, sorry if I posted before, I know I posted in a hair thread. 

Have any of you experienced pain in your scalp/skull due to hair growth. I've got this weird pain that comes and goes andfof course I'm thinking the worse.  It's hard to use the two week rule because it comes and goes so much. But it really hurts when it's there.

Nettie1964

Ok...so where is everyone tonight?

susan3

Nettie...didn't respond cause I don't have an answer for you. Maybe cause the hair follicles are waking  up again, they are going to be sore. Mine is sore ever time it falls out...and I think it gets sore coming in too. But your hair grows cause of blood supply to your papilla. ( root).    So it would make sense that the blood is "waking" it up and maybe making it sore.  But that is just a guess. 

JWoo

Nettie- i know when my hair hurt going out and coming back in. My scalp was sore for weeks after it started growing. 

LeeA

Nettie, I had the pain like a hammer hitting the scalp when I started losing my hair but I don't recall anything when it came back in.  I see you started Aromasin in January.  I've experienced some weird sensations on Anastrozole.  Nothing in the scalp but some other weird feelings, i.e. motion after being in a car for several hours - kind of like sea legs.  I've never had that before in my life and I feel certain it was the Anastrazole and getting used to it.  

Wren44

Susan, Hugs. That would be a horrible conversation to sit through.

Paw, Annie Mae is probably sleeping from the pain medication. I know the one they give the shelter cats makes them very drowsy. At least she's not going to get up and clean the house or some other dumb thing like we do when we should be resting to recover.

FBB, You should send that one in to Saturday Night Live or equivalent.

2Ta, On the MAC it should be the key that either looks like an Apple or a little freeway exchange.

Holeinone

ok, I am here to do Ziggypop job....

Tangarang, F.B. Bird, was talking to 4sewwhat.....she is having her thigh fat, or muscle, made into a breast tomorrow. I know. Sounds painful & then she is feeding a army of people on Friday. She is a super woman, lots of teenagers, a DH, & she feeds 100s of people. I can barely feed myself...

4sewwhat, in your pocket....you are amazing...

Susan, I was so touched by your post, and dealing with social situations that are overwhelming...Everyday seems challenging, people I am comfortable with, it's hard. Folks that I do not want to interact with on  a good day, pre BC, ahhh....STFU.... I live in small town.. Your situation is obviously so much more difficult. I am so humbled by your honesty, thank you for sharing. You rock !

Going to post this cause....need to get water & pee

LeeA

I'm not sure if you ended up going, Susan, but I think I would have begged off - for the reason you gave about being around a lot of people but also, for self-protective reasons.  Earlier today I was thinking of a line from a BC blogger:  "I lost what my sister-in-law calls the luxury of careless living."  In my mind, carefree works in there as well.  

My thoughts are with you.  

camillegal

Just poopin; in literally the last 2 days. We had bad storms tonite my cat is hiding a lot.

Paw How is Annie now, poor baby.

Nettie I didn't have that but my cousin said her scalp hurt a lot and when it was growing back it was awful she couldn't wear things on her head, so maybe some people it does happen.

Blessings2011

Tang, my darling, what you have is completely normal: MISOPHONIA!!!!

http://www.huffingtonpost.com/2011/09/08/misophonia-annoying-noises-disorder_n_953892.html

I once broke up with a boyfriend because he insisted on talking with his mouth full. It was either leave him or beat the crap out of him.

DH will sometimes suck his teeth if he gets oatmeal stuck in the place where a tooth was removed. Do I have any sympathy for him? ARGHHHHHHH! I have to give him the hairy eyeball to remind him I cannot stand to hear that sound. I am NOT a sweet, DW at the breakfast table.

I once interrupted a final exam in college because the person next to me was smacking her gum so loud I couldn't concentrate.

God help the person who sits next to me whose nose whistles.

Shall I go on?

I've been this way for as long as I can remember. 

Mom always said I was a "sensitive" child..... 

sas-schatzi

Susan, Look at our meerkats up in the box. That's us, holding on. We're beyond asking why b/c there's no answer we're going to find here in the life we have. We cry when we need too. We scream. The hardest is to live in the moment and let the rest take care of itself. Close your eyes and feel are arms around you L&H&P's sassy

Anonymous

Blessings, ROTFLMFAO! A side to you I haven't seen before (especially after the wonderfully response you made on another thread which called me to task and almost (I said almost) made me feel ashamed.

FBB, incredible story! So happy it ended the way it did. Did you breathe a huge sigh of relief?

Nettie, beautiful furbaby. About chemo pain: can't help as I can't remember back that far (something like child birth)

Wren, thanks for the info,  not at home this evening, will need to check the Mac tomorrow. I used to be very PC proficient, no more PC/laptop, had to learn Mac on my own (that's what DH uses exclusively at work, do you think he could spend an hour or so giving me a tutorial? Hell, no, I'm left to figure it out on my own, most time don't even know that I don't know something)

4Sew, in your pocket tomorrow!! While you're there, please ask them to check your brain: what were you thinking about having to feed so many people right after surgery??? U must be crazy girlfriend!!

Pawprint, it you read this, please turn off the device and get some sleep. Annie Mae will probably sleep thanks to meds, you need to sleep too, my friend, you need your energy. How's Snugs with all this?

Watching DWTS, totally amazing finale.

 

susan3

blessings...oh my goodness..so I can't blame it on cancer and chemo....darn it...I to have what tang has. Maybe my hubby will understand more when he reads the article. He is snoring loudly next to me and I'm considering beating him With the pillow . No actually snoring doesn't bother me...it's other noise stuff. Very interesting.

Thanks for all your nice comments on my hang ups today.

LeeA ..no I didn't go out. Went back and forth about the guilty stuff...but I do agree I have to make boundaries for what I can handle. And be able to accept those and not beat myself up over them. As a hairdresser, I listen to a lot during the day...gotta get a break at times. And it's ok to have a smaller circle of people you r comfy with. It's nice to feel safe and unconditionally cared for by some people. Those are the ones I need to keep close. I used to be the one to set up all the get togethers and plan the fun. It is very interesting how it is hard for people to adjust when our roles change. We really don't realize how we all have a place with our friends, fam, and etc.  my role has changed, those who really live and our honest with their feelings, those who I can talk to, get it.  Those I hold dear and close to my heart .

It was a good night. All you guys made it better thanks......

Tomorrow chemo....Friday tests.......the fun never stops...lol

susan3

4ssss....GOOD LUCK with your fin tomorrow. Will be thinking about you...hugssssssss

sas-schatzi

FBB, Yes, run like hell when you can. Sure wish we could get these docs to be like the plumber or electrician. They fix it and it's done. The doc overload problem. Thursday, I'm asking my Mo for a referral to Moffitt. I have too many docs here. Each with their own body part. This whole thyroid thingy has pushed me over the edge.  Not negatively. I now realize I need a alpha doc for cancer. The words about the PCP being the center of everything is still true, but now I'm changing it a bit. Alpha cancer doc --everything will be directed by the Alpha. They set the plan. Don't talk to me, talk to my Alpha.

Locally that's the way it was suppose to be, but it wasn't/isn't. Sure wish I had this realization awhile ago.

-------

I had the computer go haywire yesterday for about 3 hours. After cable company tech--works the problem for awhile ---gives up and tells me to call HP. Instead I call my tech buddy that I pay for. We work forever. It turns out that I have a set of buttons at the top of the keyboard. The problem ---I had cleaned the screen an keyboard with a wipe. Turned off the internet button. Love my tech buddy they never give up

@nd thanks,

$$$$$$$$$in your pocket tomorrow. May the force and us Owlettes be with you

sas-schatzi

Blessings, I'll second Second. Did you take a funny pill tonight. I want some ROTFLOL. Gawd, I thought I was reading Chevy.

Nettie yes, and yes. But I did get a scalp infection when hair was coming in, all the flashing. Wet head. Soft pillow. Retrospect I set myself up for the infection, didn't know any better. Just check scalp for any bumps etc.      Very glad your Chiro and acu are working. 

$$$$$$$$$$4444444444444444444. I know you think you can't change Friday, but sweetie you are setting yourself up for seroma/hematoma.  Chit , LOL been there and did that one too.  I went home after a bx of a groin lymph node in +-1975. Had this mailer that said I had all my house plants in the wrong place. Moved them all. The little maybe one inch incision didn't like it at all. Next morning I was black and blue from knee to groin. Very embarrassing cuz I was working in sx. We changed in the locker room all at the same time. Boy did I get the ribbing. Some surgical nurse.

Hello LeeAhoot. welcome