INSOMNIACS place to talk in the wee hours

sas-schatzi

Junie. DS Stephen is getting married on Feb 11th. So, we have two weddings going. Kathy's DD and my DS.

If you go to page one of the constipation thread, I have along explanation of diverticulosis. It's a combo of definitions, treatments and personal experience.

My Gi guy recommended after two bouts of divertic have the offending section taken out b/c it had shown that much malfunction/trouble etc. It indicated that worse trouble could happen i.e a blow out. That could mean a colostomy or death. I chose getting the offending section out based on that description.

sas-schatzi

Jazzy, I know your message was directed at Kathy. but please consider placing it here too. It's the Just Diagnosed-Get Prepared thread. It's a tagged thread by the Mods. Not huge traffic. But if fulfills a purpose. Your words in this post must be preserved. It is the essence of BCO

https://community.breastcancer.org/forum/5/topics/748296?page=11#idx_318

M0mmyof3

Up early enjoying coffee. Trying to figure out what I don't want to do today. lo

Jazzygirl

Good morning friends!

Sassy- done, post added to the other thread and edited with a few more things for the newbees. Hope it helps.

Mommy- ha ha, I already know the things I don't want to do today including picking up my messy house!

Guess who jazzy is gong to see tonight in concert?

Anonymous

Okay, I'm sitting here with tears rolling down my face, in a good way. Jazzy, you started it..your story and your words. I'm sorry for the loss of your brother. Your thoughts and insight are spot on, especially about long term SE's and the support without a timetable, and I'm grateful for this community.

Sass, Your concern and kindness really made the tears flow. The thought of disability has crossed my mind, but I have resisted. For one thing, I know there are others that are SO much worse than myself, and they deserve the funding. I see myself as strong, and wanting to provide for my children. Because my children were premature and have special needs, they receive SSI and I am part of a program that allows me to be their Personal Care Attendant. Instead of hiring someone to take them to their therapies and do my DD's tube feeding, for example, I get paid for these things. Each year we get assessed and a budget is set. My DS is improving in his daily living skills, like showering independently, so my budget will go down in 2017. (Because of these other income sources and a little child support, I'm able to work my part time lunch lady job, instead of something full time.) I already feel judged by some people because of the state assistance we receive, so it's hard for me to think of asking for more. But, I will think about what you said..that's how I roll..I have to absorb and ponder. I'll contact Bride this weekend. Thank you for caring!

Edited to add, I am NOT saying that those on disability are not strong, so I hope nobody thought that. In fact, it takes a strong person to say, enough..I need help.

Jazzy, I hope you have a fantastic time at the concert!!

Shep, Thinking of you as you recover.

I hope everyone has a peaceful Saturday. I'm doing laundry and then taking my kids to swimming lessons. They go to their dad's tonight and I'm planning to run a couple errands and then relax.

Jazzygirl

JazzyJune- the only people who want to talk to cancer people are other cancer people, and if you are lucky, a few trusted friends and family members. I told few people about my dx for professional reasons as I already know the hard way about people taking chit about others with their community. It even happened with someone who was a trusted friend and later confessed she had been discussing my health issues with a card group with people from a job where we once met. That was a game changer for me, and that friendship just dissolved after that. I used to have to listen to everyone else's cancer stories from her too. So that was a two fer release for me, sparing myself a gossiper and the endless C stories about everyone else. I was always waiting for the "and how are you doing?" but never got that. Don't miss that one at all. Life is too short to waste time with people who need to make everything about them, right?

I am very grateful that my mother taught me to "lean in" and help those in need, whether they are sick, old, disabled, etc. I have never been afraid of these things, one of the few that shows up in the worst of times. My parents were such good samaritans, liked to help others. I wish I could tell them now what a good lesson they taught me.

How is that hip doing and the Div too? Are you feeling better?

Loveroflife

Now you both made me tearful Jazzy and WildT.

Still waiting here also for ShepK to check in.

Ms. Sas, good thing you were (and still are a nurse). Yuck....all that blood. My first thought with the dead armadillo was rabies. Gosh, I would have a panic attack. You know it was not my foot in your face in Shep's pocket. It was probably Junie's. Talk about that. Miss JunieB, are you wearing your brace today?

I lov you ladies!!

Grateful for a new day.

Wren44

This is for Junie & Queenie and any other knitters out there. It was originally posted by ruthbru on the cats thread.

kathindc

Jazzy, I'm so sorry for all you've had to endure. Life's lesson are an eye opener.

Learned a long time ago how so called friends will abandon you. Made me very leery about accepting new friendships. Hubby, notice I don't use DH, did a complete turn around with my dx. Went from somewhat concerned to downright nasty. Was upset that my BS had me come for a six month and 18 month follow up. Thought it was totally uncalled for. And God forbid if I get a shooting pain, which still occasionally happens. I literally get, "you don't have cancer any more, get over it." To that I reply "No s..t Sherlock!" So many hurtful comments have been said to me by the one person who should have shown the most compassion. I use to love the cold, but since surgery four years ago, I don't tolerate it at all. I got, "You can't possibly be cold." It took forever telling him not to tell me what I feel. I don't look upon him as a support person for me any longer because too many times over these past four years things have come back to bite me in the a$$. That is one reason why I stay here on the boards. You ladies have been there, done that so you know what we are going through and show such compassion for each other, with no judgment I thank you for that plus, I learn so much, still

Loveroflife

Ms. Wren, very cute!

Kathi, I am sorry your hubby lacks the understanding of what you are going through. Here is an iron skillet to smack some sense into him. After you are done give it to ShepK to do the same to Stupid Fart Face for putting her through grief prior to surgery.

I know what you meant about not tolerating the cold and the shooting pain after MX. The coldness takes shorter time to hit me and I get uncontrolled shivering until I am warmed. I don't hear very many people complain about this. I thought it was just me about the cold until now.

Anonymous

I am alive! Went in for operation at yesterday at 1:45 p.m. or so. Procedures took 4 hours. All went well and no bonus parts or new injuries incurred. Post Op took 2 hours. Got home at 11 last night. Doing pretty good so far.....sore and woozy still. Pain isn't any worse than if I were having a really bad day. Doc said I should be noticing a big difference in my pain and hopefully numbness by tonite.

Sassy ~ My surgical team this go 'round was awesome! Anesthesia guy suggested I might like Toradol!!!!!! Remember Opiates don't work for me and only make me pukey? Fentanyl was only used in the IV to insert the breathing tube for surgery. After that they used a mix of Tylenol and a different drug (can't remember name) that was like Toradol but stronger. Big difference in recovery time! I wasn't so disoriented, pain was tolerable and only a little nauseous. Yay!

Thank you all for "being" with me - my pockets were bulging! Feeling all that squirming around was very reassuring. Naughty Loverly! Don't blame JunieB for poor Sassy getting kicked! And I won't say anything about the puddles of drool soaking through my pockets. My goodness there were some cuties on my surgical team - most all of them well under 30! I swear my two brilliant anesthesia guys were just out of high school 😱

Jazzy started it and ya'll added to it ~ I too have teary eyes - for each of your sorrows and also for all the shared wisdom, strength and the joys found in everyday. I love you all and am so honored to be part of the Owlie Sisterhood.

💜💜💜💜💜

Anonymous

Kath - Dang. Your husband is a PHH.......Pecker Head Husband 💩

(((hugs))) Sister 😟

magdalene51

I will try to take time to post at length soon. Right now typing feels too much like talking and talking hurts. My cousin brought home the best burgers in town and the mustard burned my mouth. One of my teeth has chipped and the sharp edge has worn a sore inside my upper lip. I had my latest CT scan yesterday and I'll see the oncologist Monday. Then I can make an appointment to work on the teeth. Hopefully.

Anonymous

Mags - Ouch..... Have you tried orthodontic wax to cover the chipped tooth? It's mainly used for braces to protect the inside of the mouth from getting cut. You could mold it onto the sharp tooth. Any drug store would carry it - Walgreen's and CVS do for sure. Sorry you are still in so much pain 😞

Eeyore07

ShepK: They didn't even let you stay for a night for spine surgery? Maybe we should not be so noisy in your pocket. So glad your are out of hospital so soon! You are back to the careing person for others. Bless you!

Lookforward

Shep good to hear you are home. I am surprised that they didn't keep you overnight, but sleeping in your own bed is always better. Funny how the doctors keep getting younger. My surgeons and anesthesiologist have all been women.

Loverly lol at the frying pan. Have to say ladies my husband is the exact opposite , he tends to smother and is a big time worrier, I have to talk him down on many occasions. My kids always joked before my diagnosis , that they hoped he would go before me, because he is going to drive them crazy. He passed out in the bs office when she said I needed a mastectomy, he is very upset when I go in for surgery. I prefer that he doesn't come toappointments with me, he tends to take over the conversation , he also tattles on me. We are total opposites , I like to get the facts, make a plan and move on.

Shep and Kath sounds like your DH resent you for being sick, who needs this. I bet everyone on this board who has had treatment or is in treatment would not react this way to another ill person.

Lookforward

Mags hope you get some relief soon, teeth problems are not fun. The wax Shep suggested sounds like a good idea. It is a little cool here today, tonight's supper is cabbage rolls, corned beef and perogies.

Loveroflife

Now did they really discharge you on the same day or you were booted for your mischief ? Well I am glad you are in the comfort of your home. May the Great Physician heal you.

Aw Mags...such misery you are in. Can't imagine having teeth pain day in and out. So sorry.

Forward, your DH tattles on you too? Hahaha. I have to admit my DH has been supportive from the beginning. He cried along with my surgeon on our first visit. I forgot why now? The only thing is he gets "jealous" when I am on BCO too long. Nobody is perfect

Loveroflife

Oh forgot to say that I am coming over for dinner, Forward. How are you doing?

ShepK, I know how you love the beach. Since you will be home bound for awhile...

susan3

mommy 2, condolences for you and your family . Hard times

Lover, have you tried raw dog food?? Some swear by it . Piercing....can't they think of another way to spread their wings...lol

Jazzyjune, poor hip...glad the brace makes you feel safer. Thanks for the knit pics link...

Queenie, you don't need anymore yarn. Remember I saw your collection..you are a store

Kathindc, wedding planning is fun and a good stressful. We did our daughters in a friends beautiful 5 acre land. Tree and ponds...it was picture perfect day. Good luck to you..enjoy

Sheps, yeah your home. Glad it went well. I was very quiet in your pocket...it wasn't me who got you kicked out in a day. They kept my hubby for 2 days.....it was a good thing. My coddling skills are lacking

Wildtulip, neuropathy , yuck. Have had it great 6 years. Different experience with different chemos. Uggs shoes help.

Jazzy, fun concert

Mags, good luck with mouth problems . Yuck.

Jazzygirl

Hi ladies- well certainly did not mean to bring the house down and make anyone cry. Those were just some of my experiences with a few. That being said, I had ALL kinds of help through the years through difficult times. Including through bc and then some. That is what I have learned to focus on through all the hardship who cares, who shows up, who matters in my life. I think some of you know who you can count on in your communities. Although I have the ability to forgive, I don't waste my time with people who don't care and never will once I have that figured out. Just step out of the way and let them walk on by. Life will present them their own lessons in time.

And ladies with the less than ideal DH's, I am sorry you are not better supported by your partners. Some men are just not good about others being sick. I am single so did not have to deal with that, but have had not great experiences with some of my men in the past during difficult times in my life. Its a crap shoot with the opposite sex sometimes.

Shep- good to hear you are on the other side of surgery. I hope you get some good painkillers that won't upset your tummy.

Mags- good to hear from you and sorry about the dental problems. The burgers sounded yummy. Wishing you a good apt on Monday with no progression.

It is a lovely day here and heading out to see my friend for adult beverages before the concert. Wishing you all a pleasant evening.

kathindc

Lover, yup that pan should just about do it!

Shep, take it easy. Can't believe they sprung you so quickly.

Jazzy, have fun tonight. Should be a good show.

Lookforward

Loverly I am doing well, I glad I had the surgery done.

Susan and WIldtulip I also suffer with neuropathy, it has not been great this week. Hot flashes make it worse, as well as exercising to a lesser degree. Have either of you tried acupuncture? I seem to go in cycles with the hot flashes this week they have been stronger

magdalene51

Kath:

Jazzy, the burger place makes one with roasted Hatch green chiles and pepper jack cheese. Had it a few weeks ago. Nearly killed me mouth but oh so good!

Shep, sending DH out to CVS right now.

Doc has increased pain meds to 10mg hydrocodone with 200mg ibuprofen. Acetaminophen does nothing for me. However, our local Walgreen's would not accept it and sent dh across town to a different one to get it filled. Sheesh.

Headache is raging tonight. It put me in bed about 4, I had a fitful nap and strange dreams, then woke up when dh came to bed. Now hurting again. Most of the mouth pain is not from teeth but from bone from the faslodex. Well, two more days.

Hope y'all get some sleep

Wren44

I'm happy to hear I'm not the only one cold all the time. I'm sitting in my heated house with a long-sleeved T, a hooded sweatshirt and a big piece of fleece wrapped around me. I'll be this way all winter probably. And it doesn't really get that cold here.

kathindc

Oh thank goodness, I thought it was only me. At times I can feel my spine in my neck or the bottom part of my right shoulder blade get cold. With my spine, it's like someone has taken an eye dropper of extremely cold water and it runs just the length of my neck, really weird. I never wore jackets until the temp went to 40 degrees, wore short sleeves year round and shorts in the house in the winter. I have nice, natural insulation (if you know what I mean). Now it's fleece-lined, long sleeved flannel shirts and fleece pants. Told my PC this and he looked at me like I was making it all up. At least I'm in good company with you ladies.

Lookforward

I miss being cold. A lot . I'm about 110F right now

JunieB

Sheppie! - Yeah, you're back from surgery. I am so glad you're doing well. You've been on my mind for the last 2 days. When do you get to go dancing? :0)

Wren - I love the pic of the kitties ordering yarn. I'll pass for now though. I have enough yarn to keep me busy for the time being. I am working on my 5th crib blanket and have yarn for another 5 or 6.

Susan - I hope you find some fun stuff on the knitpicks site.

Mags - Ouch!!! that even makes me wince. I hope you can get some of that wax that Shep talked about to protect your mouth until you can get to the dentist. Ironically, National Cheeseburger Day is either Sunday or Monday.

I like the frying pan pics too. Cute.

Loverly - Yes, I am wearing the brace. I REALLY want to avoid anyway I can any further dislocations. You know it occurred to me yesterday what the Ortho said. She said "that it is still wait and see", but if I do end up needing any further surgery it would be in January-February. My puppy is supposedly coming in December-January. I can't do surgery AND a puppy! This blasted hip had darn well knock it off.

Jazzy - How was the concert? That was Cyndi Lauper, right?

Sassy - I'd never kick you! It was way too dark in Sheppie's pocket, so you can't be sure who it was.

OMG! I just looked at the clock. It is 2:00 a.m. and I have to be up at 9:00 a.m. to get ready for Church.

Goodnight ladies. Until next time. Hugs & Kisses!

Jazzygirl

Hi ladies- the Cyndi Lauper show was fantastic! We were too far away to get good pics or videos with our phones to share with you. She did her new music (country featuring classics from Patsy Cline and others) and shared a lot of great stories with us. Total entertainment. Cyndi is 62 and there is a great article on her in the AARP magazine in the past month if you get that. She is teeny tiny and a powerhouse of energy. She did multiple encores and we both loved the concert! Such fun!

Mags- I eat a lot of turkey or black bean burgers with cheese and green chili. One of the staples of my diet!

Hope everyone has a good Sunday!

Anonymous

Shep, I'm so glad you are recovering. I hope the coming days bring you less and less pain each day!

Kath, I'm so sorry about your hubby. It makes me sad that he is treating you that way. My ex was emotionally distant, among other things, and I know how hard that is to live with someone that doesn't treat you well. Big hugs!!

Loverly, You, on the other hand, seem to have a good DH. Despite the fact that he doesn't like to share you with us. Loved the frying pan picture! I had just been out shopping last night and bought a frying pan for a gift, then read posts and saw the pic. Hopefully my mom will like the pan and I won't get hit with it!

Mags, I love a good burger..yum! I'm sorry for your mouth pain...sounds horrible. This summer I found that Oxycodone gave me horrible vivid dreams, asked for something different and it was better..ironically hydrocodone was better for me.

Susan, Uggs shoes..huh..I'll have to check hem out! Thanks for the tip.

Forward, Interesting you say hot flashes and exercise make the neuropathy worse. I have not tried acupuncture, but today I'm planning to buy some tennis balls and try rolling my feet on them at night. I'm at a point where I have to try to find something that will help, and I don't want to turn to drugs yet.

Junie, Good job wearing your brace!

Jazzy, How was the concert?

Hello to everyone else. Big hugs all around!

On the hot/cold topic..I toggle back and forth. Constantly. Ever since chemo last year. I'm cold, then a hot flash hits, then repeat. Just can't regulate.

Well, I've been up for two hours and all I've done is drink coffee, read and post, so I should get my butt moving. First I have to tell you that all the love and support I get here has actually motivated me. In the spring of this year, March - June I was exercising 5-6 days a week and lost 10 lbs. I was striving to be in good shape for my LD flap surgery in June and I felt better when I exercised consistently. Oh course I knew the surgery would set me back, but even after recovering I have been inconsistent and unmotivated. I've been in a funk. But, being able to share here...my pain and my emotions has helped, and now I'm ready to take action. I have a check up with my MO early Oct, and I'm sure he'll suggest a med to help with pain, but I want to try other things in the meantime. I also want to loose 5-10 more lbs to help with my blood pressure, which is borderline high. My plan is to try new shoes and stretching for my feet, overall exercise, and drink more water. Sounds simple, but not always easy for me to put my needs first. I realize now, though, I need to be a little selfish right now. So, off to exercise, shop, clean and catch a movie. I hope everyone has a good day.