INSOMNIACS place to talk in the wee hours

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  • PurpleMinion
    PurpleMinion Member Posts: 165
    edited May 2016

    Hello! So, I have been sleeping! It is is strange. I suspect that I will revert to my usual insomnia in the next few days as the big post chemo steroid crash is almost done and I am feeling much more normal.

    Sas, The beta blocker is new and I hope temporary. I was on an immunotherapy trial for a few months and that tweaked my thyroid and induced hyperthyroidism (Hashimoto's). My resting heart rate used to be around 55bpm, now I'd say it's more like 64-65 after a year of being so sedentary, however with the hyperthyroidism my resting heart rate went up to around 95-100! So for now I take a beta blacker at bedtime and it is knocking me out!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2016

    Smarrty, DGS Looks great. Love that smile. .......PITA about the chicken pox. There should be a report to the public health depart. about the kid that was a vaccination failure. Not that anyone in your family should do it. The kids doc should do it. The public health dept. tracks that kind of thing. And then if your kiddos come down with it there docs should report it. I suggest they check in with her doc and ask what he suggests. Vaccinating the older ones now even if they have been exposed might allow the course to be less severe. I definitely suggest that Evie's Mom check in with her doc b/c being a premie her immune system isn't as developed. My memories a little faded, but they used to do a MMR titer at first visit when prego. Not sure if chickenpox titer on Mom is done with the others. If a chicken pox titer was done then maybe Evie's good. Especially if she breastfeed. But it seems something interfered with breastfeeding.

    The public health dept. takes vaccine failures very seriously, all the way to the top with notification of the CDC. Lot's of behind the scenes activity. Not sure at what point a public health advisory is triggered.

    When I was little folks would take their kids intentionally to some ones house to get them exposed. Times change :).

    Memory trigger--- from Labor & Delivery. When Preggers were admitted if MMR titer wasn't on the docs documentation a titer had to be drawn. NO IDEA if a chicken pox titer was added to the bunch. TOO many years ago LOL.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2016

    Purple, your avatar is so much fun. It just pops right out there and wakes me up.....Which Beta blocker? Is your dose extended release? If not, I have a concern. What kind of doc prescribed it? A beta blocker should have 24 hour coverage. Unless it's Extended release that's were my concern is based.

    This is a nice little study comparing the beta blockers. Regular and extended release. It borders on layperson >>professional. I think you could use it reasonably enough. At least the first page. The "full review" page flips into the professional side. I would store it for sure. It would give you a nice tool base to be able to discuss things with your doc.

    I'm going to look at two drugs that I wasn't familiar with BBL

    http://www.ncbi.nlm.nih.gov/books/NBK45571/

    Let me know if you think I'm a pin head about you being able to use the first page. I thought it quite good, but I used to teach these drugs to medics. Our perspectives are way different. I like the format they used to explain what drugs were applicable to each disease/ condition. Very nice. If I were teaching I would use this and make a outline thingy.

    Edit: the two I looked at had no application to you.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2016

    Oh Purple, I studied thyroid when I was dx with the ca. It's a pain in the ass. They're is the easy stuff that all professionals learn, and then it gets way crazy. Please, tell me you are reasonably well controlled? It's bitch of a study. I don't want to go there again (Hahah like you asked me too or sumpin). I'm the thread busy body if you didn't catch that. What's your Thyroglobulin and antibody levels?

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2016

    Ya know Purple, gonna bug you about this beta blocker thingy. Drugs are drugs. All drugs have consequences. Unusual to prescribe a beta blocker for what you describe. What was your BP? Any funny activity? Why wasn't conditioning i.e exercise suggested. So, try to put all my buzy body questions together. You can see I just drop them all over the place.

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  • PurpleMinion
    PurpleMinion Member Posts: 165
    edited May 2016

    Sas, I don't mind being bugged. First, be assured that it is an endocrinologist who has been treating me and working closely with the oncology team so I feel reasonably safe as far as they know what they are doing. I am only taking 25mg of atenolol once a day and that is just temporary until we figure out what I really need or (what seems to be happening) the problem resolves. I will check the lab values in a moment and get back to you - they are SO much better now than they were a month ago and we draw again on June 1.

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  • PurpleMinion
    PurpleMinion Member Posts: 165
    edited May 2016

    You can see, in April especially, that my T3 free was going up and TSH was going down, and my heart rate was going WAY up...

    Thyroid Peroxidase Antibody3.2 IU/mL
    Name

    Standard Range

    		1/25/162/15/163/30/164/25/165/9/16
    T3 FREE

    2.4-4.0 pg/mL

    		3.74.25.54.83.2

    Name

    Standard Range

    		1/25/162/15/163/30/164/25/165/9/165/9/16
    TSH, 3RD GENERATION

    0.40-4.00 uIU/ML

    		2.151.711.620.040.170.15


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  • PurpleMinion
    PurpleMinion Member Posts: 165
    edited May 2016

    image

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2016

    Smarty- saying little prayer for Evie she does not get the chicken pox!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2016

    Hey Y'all!

    Dang! So much going on......I need to catch up....

    JunieB!!!! Where are you? OMD, I hope you didn't get lost looking for that crib blanket! I've been so excited to tell you I "found" something that I misplaced a long time ago. I wasn't looking for it and hadn't even thought about it for quite some time. I was so happy! My first thought was, " I can't wait to tell Junie! She'll think it so silly that I lost this thing in the first place and so silly as to where I "found" it!" But....Marti's been sick, I overdid and crashed,plus I haven't been sleeping.....and now I don't remember what the hey diddly ho it was I found! All I remember is I found SOMETHING. ACK! 😾

    WenchLori ~ Welcome! Pirate hubby sounds sweet and fun :) I have a FFH ...fart face husband ;)

    PurpleMinion ~ Glad you found us! Awesome you have an endo working with your onc team. Wacky thyroid plus the SE's of meds and cancer can really knock you on your bum. I was on thyroid meds, before cancer dx, for about 7 years after being misdiagnosed with hypothyroid. No fun getting the doses sorted.

    Smaarty ~ DGS looks great! He must be so happy to be able to drive and be so mobile :) Pictures of the doggie please! Mixed feelings on the chicken pox vaccine. My kids all had it and we were glad to think they would never have to suffer with the pox. A few years ago a study was released stating that the vaccine wears off and that those vaccinated as babies should get a booster in their late teens. I wonder if having the actual chicken pox while young is better? Then there would be no worry of re-vaccination? Scary to think of all those ill informed parents who refuse to vaccinate their children at all. Private schools should be accountable for vaccination records - they have to comply with state/federal standards just like public schools. Hoping sweet little Evie stays safe from any and all bad stuff out in the world.

    BBL.......gotta 10 foot gator to catch! Here he is swimming leisurely in our community's front pond:

    image

    image

    Edited to add pic was taken from my inlaws side yard. Should be a good story to tell when all is done.....

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2016

    Purple have they done Thyroglobulin and autoantibodies? And an ultrasound of the neck?



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  • PurpleMinion
    PurpleMinion Member Posts: 165
    edited May 2016

    Sas, yes, I am certain that they have. I couldn't find the specific test results but the endo doc said she did all of those things and she is sure that I have no nodules on my thyroid, and that my numbers are now starting to look better. There was some concern that the thyroid was acting weird becauas of all the contrast dye I've had lately but she really thinks it was the immunotherapy drugs.

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  • JunieB
    JunieB Member Posts: 1,023
    edited May 2016

    Well Hello to Everyone!

    First, I need to apologize for disappearing for about 2 weeks I think. Please forgive me! I looked down to see how many pages I'm behind and my jaw dropped. I'll have to go back and catch up. I hope everyone is doing well and had a great Mother's Day.

    As I'd said before, I was extremely exhausted due to my blood counts being down & I've been off of the Ibrance for 2 weeks. Also, now my MCH is elevated (I've read that is due to a B-12 deficiency), plus my BA% (Blood Ammonia) is high. Some days have been a struggle to get a shower, get dressed and a meal fixed. The increase in my BA% may be related to my fatty liver disease, but waiting to hear from doctor. I've also had weekly visits with the vestibular therapist. My vertigo was really exacerbated by the low blood counts. Having to use the bus also increases fatigue as well.

    These issues, plus trying to get things done before my hip surgery in 3 weeks has been a challenge. I've spent the last few hours updating my medical info on the CareSync website. This is a company that compiles all of a patients medical information & history in one central place. Plus l looked in my file cabinet and found my old Will & contact list, and couldn't remember where I'd put the new one. Thankfully I found that and have shredded the old one. Paperwork is so time consuming and annoying, but so necessary.

    Heard from new breeder on Friday-May 13th. She wanted to know if I was ready to take the one male puppy her dog Poppy had had. I was so heartbroken to have to say no. She had originally told me Poppy wouldn't be in heat until May, so that would have meant the pups would be born sometime in July. But, NO! I'm beginning to think that I'll NEVER get a dog. I told her how disappointed I am and because I'm having surgery I could not take the puppy. Poppy will not be bred again for a year. Don't want to wait that long. Hello!, I have stage 4 cancer. While stable for now, we all know that can change at any time.

    Shep - How exciting! What did you find? I still haven't found that crib blanket. I found a pair of my glasses the other day and thought " oh cool", then went to put them on, but I already had a pair on. Geeez! How is Marti doing? Yikes! that alligator looks scary. The "No Swimming" sign is an excellent idea.

    Sensi - How are you feeling? Did your surgery go well?

    Sas - Hootie Hooo! 2 U 2.

    Hello! Purpleminion. Welcome.

    Smaarty - Your DGS looks great. So glad he has a furry companion and they are both so mobile. Pics of them together please. So cool.

    Loverly - How are you and your family & Mitzy doing?

    I need to go back and get caught up.

    Until later.




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  • Smaarty
    Smaarty Member Posts: 2,951
    edited May 2016

    image

    Here's Bobby, part Queensland terrier. Both missing left leg.


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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited May 2016

    Waiting to see if we get a thunderstorm tonight

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2016

    Junie, good to see you. Please, if you think you want a wine to catch up----NOOOOOOooooooooo...... elevated ammonia levels are not a good thing, and the worst thing would be to do is drink anything with alcohol. They will be wanting to check liver and kidney function from here to surgery. Could delay surgery. So, sorry about the delays with getting a pup. Bummer for sure.

    Smarrty, How did DGS find his friend? What is the dear dogs name? Backstory?

    Mommy, hope no storms for you tonight sweetie. Nice and quiet :)

    Purple, did you have Hashi's before this started? I think you sad no, but verifying. Plus, if you didn't, serial Thyroglobulins/autoantibodies are indicated. Not that I'm a know it all. I was a good nurse, who had a very nice nickname. It was started by my most respected doc. He would repeat it in front of staff and treat me with great respect. My boss hated it. He didn't even know who she was. Then it caught on it was embarrassing and nice at the same time. Anywhoos, serial TG/aa should be done. Been through it, and had to direct the ENT & endocrins work at finding a solution. Won't go to the end result yet.

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited May 2016

    the dog's name is Bobby. He came from a rescue group. Story is they think he was thrown from a moving vehicle. Damage leg so had to amputate. He now is with GS and another dog and 2 cats.



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  • JunieB
    JunieB Member Posts: 1,023
    edited May 2016

    Sas - I'm confused, I didn't say anything about wine in my post. Anyway, I do not drink any kind of alcohol. I've even given up soda. All I drink now is my morning coffee & iced tea that I brew with purified water.

    Susan - Sorry I forgot to address you earlier. Glad Elena is doing well.

    Smaarty - Very nice pic of your DGS and Bobby. Thanks.

    Mags - Beautiful pic of your Mom.

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  • PurpleMinion
    PurpleMinion Member Posts: 165
    edited May 2016

    Mommy, I wish we would have a storm here, I love a rainy night!

    Smaarty, that is one cute dog, love a dog with a deficit, a true underdog!

    Jazzy, I don't know if you said wine but now I want some (and can't have any of course)!

    Sas, I didn't have thyroid problems before. Thank you for the info, I will use it to grill my endo when I talk to ger in a couple of weeks.

    All: thanks for the welcomes.

    I have to leave the house at 6am for scans tomorrow (yes, on a Sunday!) so will try to sleep tonight. MRIs of spine and pelvis to look at bone lesions. Fun,

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  • trish1314
    trish1314 Member Posts: 50
    edited May 2016

    I've lived so isolated for 22 years by a controlling man that I can not find people to talk to especially at night because I barely sleep.

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  • JunieB
    JunieB Member Posts: 1,023
    edited May 2016

    Ok, I'm all caught up. Read all the pages I was behind.

    Sas - In regards to AnnieKay throwing away her DH, that wasn't the case. I had told her about a product called "Zen Pet" to help calm her Logan. She apparently went to the site and bought it, but then went to 2 other sites and bought some other items. So, she said that since I don't live with her DH, she was gonna throw me under the bus for her spending so much money. Oh Boy!

    Also, while catching up on my reading I clicked on the link you posted for the warm & fuzzy thread. On page 2 I saw the pic. of the owls who had taken something and I busted out laughing and got a charlie horse in the right side of my ribs. Toooooo funny!

    While I've been reading I've had the T.V. running in the living room on the DLIF channel. It has been playing recordings of people calling 911 with the most outrageous requests/demands. OMG!

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  • Lookforward
    Lookforward Member Posts: 392
    edited May 2016

    I spent the day gardening, just have the flowers to put in. It has been too cold at night to plant them. Last week we had the air on and this week the heat. It was a perfect day to work outdoors, not hot and no wind. I burnt my lips as usual, I put sunscreen on every thing else. I have two baskets with liners in them ready to go, some birds have been pulling them apart to build their nests, I keep moving them and they keep finding them, so in they came. Once they are hung it should be okay. We had a dead tree in the backyard that DH took down this week, his 93 year dad told him he was too old to be doing that, he was not impressed , especially since he just had a birthday a few days ago. I can't stop laughing.

    Sas it was a big helicopter , whether anything else was sent I don't know. Hope everything went well with your colonoscopy . You certainly looked tired lol.

    Shep no gators here just an over abundance of ants , they are ruining our front lawn. Dh was running around with ant powder, hope it helps.

    Smarty chicken pox, how serious is it for babies? Your DGS looks very happy.

    Junie have you thought of fostering dogs until you get a puppy.

    PurpleMinion yikes 6:00, I don't envy you. I could use a glass of wine, but it seems to make my hot flashes worse. Oh well who cares, you talked me into it.


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  • Lookforward
    Lookforward Member Posts: 392
    edited May 2016

    Ladies I have good and bad news. The good news is that my hair is now 5 inches long and the bad news is I have a mullet. Frankly I don't look good in a mullet.

    Mommy we desperately need rain, weather forecast is showing rain next week

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  • sensitivehrt
    sensitivehrt Member Posts: 359
    edited May 2016

    Sas- Drains are still in and draining slowly. Have an appointment on Monday at 11:30 to get them out.  I will be very interested in seeing what the MO has to say once we meet.  I'm hoping he/she has the same thoughts as my BS.  BS hadn't mentioned the triple negative before (or at least from what I remember).  These past 4 months have been a blur.  I will have some decisions to make if the MO thinks otherwise, but will cross that road when it comes.  Otherwise, still being super lazy.  Going for walks and moving my arms, but tire easy.  Can't wait till I can drive again, and be even more independent.

    Smaarty-Hoping that Evie doesn't get the chicken pox as well.  Love the pic of grandson and dog.  What areas do they do lawn care?  I need to hire someone again eventually for my front yard.

    Jazzy-My surgery went well.  I'm 8 days out and feeling pretty good besides tiring easily.  Pathology came back good and now just waiting for a first meeting with MO, to discuss if any other further treatment will be needed.  At only 8% ER positive, BS seems to think that will make me a triple negative and tamoxifen will be out.

    If I missed anything, I 'm sorry. Love reading all your posts but hard to keep up.  Goodnight all ;)



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  • sensitivehrt
    sensitivehrt Member Posts: 359
    edited May 2016

    image

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2016

    JazzyJune- good to hear from you and hope everything can come together for your surgery. I can see you are sad about missing out on getting a puppy. I hope the perfect dog will be there for you when you are past this procedure and feeling better.

    Sensitive- I am glad you are on the mend and hope you get some good direction from the docs on anything else you need to do.

    Smarty- your GS and the pup together both with a missing a leg is touching. They will help each other in so many ways.

    Lookingforward- oh no, not a mullet! Is there a salon that helps cancer patients with hair issues in your area? My sister did chemo and her stylist had experience with the hair growing back in after chemo and helped her to get back to a style she wanted. It must feel good to have the hair growing out.....

    Trish- welcome to our thread and sorry for your relationship troubles.

    Hoping everyone else is doing okay this weekend.


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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited May 2016

    Didn't get a thunderstorm last night. Woke up to sunny but chilly day.


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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2016

    image

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2016

    We have bipolar weather here in Northern California also. I would love to have thunderstorm at night while I am in bed under my cozy blanket. I miss the thunderstorms we often got when I used to live in Louisiana. I know it's weird. I love rainy night too. I don't miss the flooding though.

    Forward, wasn't the mullet in style back in the 80's? Would love to see pic of your garden when you are done. I would spend more time in mine if allergies wasn't so bad.

    Ms. Smarty, Nick looks so happy and the pair is such a sweet sight. Hope Evie is spared from the chicken pox. Her immune system is not mature yet.

    ShepK, where do your in-laws live? Florida?

    BBL, lunch is here finally

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited May 2016

    Went to the craft store to get yarn for a project I'm working on and am so bummed that I have to go again to get another color I forgot about. Why me

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