INSOMNIACS place to talk in the wee hours

PurpleMinion

I am flying high on dexamethasone today, all good! I did learn last time I did chemo that taking it easy would be smarter than listening to the dex, so that is what I did today. I feel good, and expect to until about Thursday when the crash happens

susan3

purple, be nice to yourself during the crash.....I get so mad cause I sleep all day...I am such a rock head. Just don't let anyone get pics of you drooling on your pillow

Holeinone

I sleep with those lozenges that keep your mouth moist. They sometimes will be partly there the next morning, along with drool all over from the excessive saliva that they produce. Caked on my face, lips.

I have been reading about the chronic fatigue that some chemos cause. The difference between fatigue & being tired. It's a slippery slide, I am more determined to MOVE ! My next crash will be in 9-10 days.

Loveroflife

Wish I could have a bit of your high. I'm dragging lately.

Spoke too soon. I pfffit today along with cramping. PCP ordered H. Pylori, Giardia, C. Diff, and I forgot what the others were. She talked about scope and I gave her an ugly face. Nope. I'm thinking about going Paleo, which requires discipline. Anything to avoid the scope.

Has anyone heard of functional medicine? Quite an interesting therapeutic approach to addressing chronic diseases ( cancer included). One of the goal is getting 8 hrs of sleep. Yikes! I'm short of 2 hrs every day. Better go night night then.

sas-schatzi

WenchLori

sas-schatzi, my ex-husband started the pirate thing when he decided it would be a good idea to "step-out" then I decided it would be a great idea to "throw-out" and I got a divorce. He told my now DH that he was a pirate and stole his lifetime treasure, it kinda stuck. My DH goes by PirateStu and I'm WenchLori and have been for over 30 years, Back before Pirates were cool!

WenchLori

sas-schatzi, I just want to pet him and hug him and call him my own! My DH gives me that look everytime I ask him for money! When I called to give him an update on insurance issues he said he just looked at the phone and wondered how much my call was going to cosrt him? He does spoil me rotten!

sas-schatzi

https://www.functionalmedicine.org/about/whatisfm/

"Functional medicine addresses the underlying causes of disease, using a systems-oriented approach and engaging both patient and practitioner in a therapeutic partnership. It is an evolution in the practice of medicine that better addresses the healthcare needs of the 21st century. By shifting the traditional disease-centered focus of medical practice to a more patient-centered approach, functional medicine addresses the whole person, not just an isolated set of symptoms. Functional medicine practitioners spend time with their patients, listening to their histories and looking at the interactions among genetic, environmental, and lifestyle factors that can influence long-term health and complex, chronic disease. In this way, functional medicine supports the unique expression of health and vitality for each individual. - See more at: https://www.functionalmedicine.org/about/whatisfm/#sthash.l8TAPH8M.dpuf "

Marcus Welby?

Anonymous

If I ever get chemo again, I want

this one.

Phyllis

sas-schatzi

At a point going through BC, brain tumor, thyroid cancer I felt my care was totally fractured. For decades I had seen care disintergrate into docs for every body part. But now I was deep into the system. I had hoped my Big Wig thyroid doc would be able to get a handle on the scenario b/c the cancers/brain tumor were all connected on an endocrine level. At least that's what my research had shown. To no avail.

My PCP is wonderful, she does much more than the average doc, but time is her enemy. She has such a following of patients b/c of her care, that over time her ability to spend the time she once did is now limited. Irony.

It's important to learn as much as possible about whatever is going on with yourself. Then following through. The ideal is to create a plan with your PCP. But if that isn't being done, you can actually create your own plan.

I created my plan, but have fallen off the timetable. The time change though isn't critical. I set my plan with all the work-ups to be done in January. That way if something popped up it could be handled timely. The only thing off schedule is the colonoscopy b/c of the shoulder injury. Positioning for the scope couldn't be safely done. I've worked at the tableside for scopes. To be done well, positioning is intrinsic to allowing the scopist to view the colon well.

What makes our lives very much more difficult than the average patient is our treatments create so many other problems. That one sentence is huge. Each cancer patient here understands the breadth of that statement. So, many women describe that they were well before the fateful day of diagnosis. Then we went down the rabbit hole.

sas-schatzi

Phyll, yummy Making a pot of coffee. Calling when it's ready

Loveroflife

So sorry ,Lori!! Forgot to welcome you. Where is me manner?

Oh Phyllis, thank goodness, the guy has pants on...well, at least in my imagination.

Watch, ShepK will try to post something to disturb my vision.

It is the truth, Ms. Sas? It's called the domino effect. Nah, I just made that up. Iatrogenesis is the monster under the bed I am afraid of because I have seen it in my line of work too often. We are not as advanced as we thought.

feelingfeline

Sas fractured is a very good word. We felt same about my late MIL. Here we have multi disciplinary teams (which I know exist in some US hosps) but not where MIL was in South FL. Multi-disciplinary means all your experts in one hosp, round table conferences with all the experts involved in your care talking to each other and sharing info. It is good.

feelingfeline

Wench love the story on the name.

Lookforward

sassy the fire is under control and most of the city is intact. Many homes have burnt down in theresidential areas. The evacuees have a long wait before they get to go home, if they have a home. Yes you have sent a military helicopter flying supplies to the sight.

Welcome to the new ladies. Purple, dexamethasone is certainly an eye opener and Phyllis I would take that chemo doc any day.

The baby pictures are wonderful, keep them coming.

Lookforward

this is so true

Anonymous

Lover - pants? Where did you get the idea that pants are involved? !

M0mmyof3

Class ended officially for me this past Monday. The last speech that we had to do was a memorial or eulogy. I did mine on my older sister. Got an A-, that was the best grade on all the speeches we had to do. Just waiting for grades now.

Loveroflife

Aww Phyllis, you are just as bad!

sas-schatzi

Congrats Mommy

Lookie, but.................then a hurricane struck! So, now she_________________-?

Purple do you know about warm and Fuzzies? it's our attempt to keep you amused when you are down and out. Very little talk. Pics and links

Warm & fuzzy owls, goats, kitties, dogs, birds ETC. PICS &LINKS

Wench, Eye, eye Matey! See link above

Junie?

Loveroflife

Hi, Mommy! Good job

Loveroflife

Wake up, JunieB! You ok?

sas-schatzi

Are we insomniacing? or is it too early?

Smaarty

Sas, not to early for you. Too early for us west folks.

sensitivehrt

How much longer do we have to stay up Smaarty?

How's everyone doing? Been lurking, but focusing on healing.  Had my first night alone last night and a good day by myself.  Am doing good.  No narcotics today, just ibuprofen. Hope everyone has a great Thursday.

Lookforward

Sensi good to hear you are doing well.

Loveroflife

Hey there, Sensi. Good to hear you are on the mend. Are the drains gone? Hated them because they pulled the skin plus I had a reaction to the tubing. The first shower after surgery was heaven for me.

sensitivehrt

Still have the drains. I'm between 30-40 cc's in each one. Doc said I can have them out once they are under 30'cc two days in a row. Day after I got home the R side stopped flowing, was told to keep an eye on it. Finally was able to get unclogged myself and put out over 50 cc's in two hours. The only thing tonight is the drainage seems to be a little darker again.  Will see how it is in the am.  I can't wait to sleep in my own bed again!!  Love that I am able to shower.  It feels so good.

M0mmyof3

Just sitting here trying to wake up while waiting for the coffee to kick in!

Jazzygirl

Mommy- I am glad your class is done and you did well. I remember you talked about loosing your older sister awhile back and how much you miss her. I am sure she was smiling from the other side as you remembered her to your class.