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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited December 2015

    Have been catching up on the many posts that I've missed.

    Ally, - I am with Arlene, - I have heard that a majority of people would find lung nodules if scanned, and most are nothing to worry about! Try to not let your imagination run away!! I, too, send hugs, and suggest that you have some chamomille (sp?) tea, or what ever you find calming! Keep us updated.

    Welcome to the newbies here. This board is the BEST!

    Congrats to those finishing treatment and procedures!

    Sending BE WELL wishes to all.


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  • LillieRose
    LillieRose Member Posts: 112
    edited December 2015

    SA8 and bchusband- thank you so much! I just feel like all the info I read for myself is bad... I know we are all individuals but it's just so scary. The fear is not stopping me from living or enjoying my life but it's always there... I'm hoping with time it will get better! I just feel like every little ache scares the crap out of me!


    Ally- I've never had any scans and my docs said it's because they always find benign lumps and bumps that create stress for no reason! I'm sure it's nothing but I'm so sorry you have to do the "wait and see". I have enlarged node in my armpit and they are doing the same with me. I had an ultrasound and it looked normal but the bump is still there... It's scary when they can't tell you but it's also better then them confirming something not so good!

    Robyn- I didn't have rads either and my tumor was around 2cm. Good luck!

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  • MicheleS
    MicheleS Member Posts: 937
    edited December 2015

    Lillierose--

    I was still nursing my toddler (not *literally* postpartum but close) and I'm still here.

    xxoo

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  • Mamiya
    Mamiya Member Posts: 432
    edited December 2015

    I have a lung nodule that we are just watching. If it is less than 6mm there isn't much to do other than watch, too small to biopsy.

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  • Allydp
    Allydp Member Posts: 520
    edited December 2015

    Thank you all so much for your replies!

    Notdoneyet - Thank you so much. How do you cope with the wait and see approach? Have your doctors indicated that it's most likely benign and this is just simply the protocol to ensure that?

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  • BanR
    BanR Member Posts: 289
    edited December 2015

    Ally... please let us know what the doctors say. As far as I remember you got complete PCR after surgery...It should be nothing!!

    Do you all do a PET/CT every year?? My onco doesnt recommend since they usually give false positive results and then it is an unnecessary chase and needless stress.

    I have noticed that whenever i present with a new problem ..they typically ask other questions like ..if i am eating well, hows my appetite, how are my energy levels..was there any weight loss in the past few days or months..i believe these give additional pointers to them since i clearly remember the first time i got diagnosed with the 1.4 cm big lump..i had suddenly starting shrinking ( not exactly losing weight though) and the general well being factor wasnt there, skin and hair started feeling coarse, energy stated going down etc and I started suspecting thyroid problem and it turned out to be cancer instead......rare for such a small tumor to start showing these effects but it did happen.

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  • jenjenl
    jenjenl Member Posts: 948
    edited December 2015

    Ally, take the scans to be compared wherever you normally go. What did your onc say?

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  • ramprat
    ramprat Member Posts: 12
    edited December 2015

    Hi ladies,


    I am new to this group, I was dx in June 2015 with TNBC, finished 6 rounds of chemo and had BMX on 10th of this month. My BS called me two days back that my pathology report looks clear and no signs of any cancer. Yay!! What a wonderful moment it was to hear her speak about this. I am schedule with BS and PS for a post-op visit next week.

    I was wondering what would be the next steps? Does any one know what oncologists do at this stage? should i join any trail group? or wll they give me any medicine ?

    Wishing all the brave ladies best of luck!!

    -ramprat

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  • Kayak2
    Kayak2 Member Posts: 8,561
    edited December 2015

    Ally, years ago (before cancer), I too had an incidental finding of multiple lung nodules, seen on a chest x-ray. The advice was to do scans every 6 months to monitor for changes (growth). After maybe 2 yrs of this (and no changes seen), I opted to stop further scans to avoid continued radiation exposure. When I got cancer (years after finding the nodues), I had the usual preliminary scans, and there still was no change in the nodues! So, take a deep breath and don't automatically jump to any bad conclusions. Easy for me to say, I know, but just saying....

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  • Allydp
    Allydp Member Posts: 520
    edited December 2015

    Thanks so much everyone. I'm waiting for my onc's nurse to call me back. The thing that worries me is that it's new. Or at least seems to be since I've had numerous scans and no one's seen it before. I'm trying to just tell myself it's nothing until it's something. Easier said than done though. If my onc doesn't seem concerned then I will do my best to put it out of my head. I'll keep you posted. Thanks again. xo

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  • SA8PG
    SA8PG Member Posts: 371
    edited December 2015

    Continued prayers Ally. Please keep us posted.

    Xoxoxo

    G

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  • ALHusband
    ALHusband Member Posts: 344
    edited December 2015

    Ally 3 years ago when my wife was going through chemo, as I sat there waiting at the cancer center I saw a sign that said if you smoked (which I did but quit), then you could get a lung cancer screening there. So I did. My scan showed a nodule about the same size as yours. Scared the blood out of me. They did a follow up pet scan and it didn't light up for cancer. The doctor told me they can come and go. He said they can even be a fungus! (sorry to be gross). I follow up with an annual scan "just to make sure" and that thing has been there every time and doesn't grow or do anything...it's just there. Of course you're anxious about it...as anyone would be. But just know that it could be absolutely nothing. As the others said, there is a high percentage of false positives with lung scans.

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  • Curlyq1974
    Curlyq1974 Member Posts: 144
    edited December 2015

    Ally,

    I have a lung "spot". We are taking the watch and see approach. The crazy thing that my MO told me is that scans do not "scan" 100%. They do it in so many mm... I'm not sure how many but I know it is like slices and so those slices may or may not pick up on stuff. My spot popped up during my initial scans. You may have had your spot but the slices were in a way that it didn't show. If that makes any sense. As with my spot, and the watch and wait approach - I am at the point that it is what it is.... I exercised like a maniac, watched my weight, did all the things I was told to do to be healthy and guess what... none of it mattered. I truly had to get back to a place of peace with God. He has a plan and I have to have faith that his plan is the best. I'm sorry you are going thru this anguish - especially at this time of year! BLAH!!! BIG BIG BIG BLAH!!! Hang in there! Keep us posted!

    Prayers,

    Janet

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  • JulieAggie03
    JulieAggie03 Member Posts: 71
    edited December 2015

    Anybody need a Friday funny??

    I only recently started wearing my wig to work. Long story short I've probably shared before but I started AC cold capping and had to quit thus I did not lose the majority of my hair until probably 6 weeks ago, plus I work in a food manufacturing plant and have to wear a hairnet so my "mad scientist" hair doesn't show most of the time. I am still getting used to my wigs. I don't know how many times this week I have gotten hot flashes (thanks chemopause), and I keep trying to take off my "hat" and have stopped myself almost pulling my wig off in meetings several times. My coworkers know what I have been going through but I think it would be a shock if I just whipped off my wig! For some reason I cannot get it through my head that it's not just a hat I am wearing, lol!

    Hope everyone has a good weekend! I plan on finishing the last few people on my Christmas shopping list and getting everything wrapped! Plus I'll be baking some goodies, a wise women (my mom) once told me to only eat the broken cookies so all the calories fall out!

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  • Allydp
    Allydp Member Posts: 520
    edited December 2015

    I hate that others are dealing with these wait and watch nodules!!! But it's definitely reassuring to hear how many of you have them. My onc's nurse said they have the scan image and written report in their hands. My onc and hospital radiologists will look and compare to my past scans. She told me to try and not worry but they plan to take this seriously due to my history. Of course this is all going down on a Friday, so hopefully I hear something Monday or Tuesday at the latest. Thanks again for the support ladies. I'm so blessed to be a part of such an amazing group of women. xo

    Julie - love your Friday funny! Thanks for sharing!

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited December 2015

    Ally, just wanted to say you're in my prayers! Hate all this for you, especially around Christmas. I've read that a lot of people have these nodules and they turn out to be nothing too. Here's hoping the same for you. Hang in there! Holding your hand, waiting with you. (((((HUGS))))

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  • Meadow
    Meadow Member Posts: 2,007
    edited December 2015

    Julie, thanks for the smile!

    Al, Curly. Kayak and all, thank you for your encouragement and info sharing for our Ally.

    ramprat, welcome! We are glad you are here with us.

    and all my friends love to you

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  • slv58
    slv58 Member Posts: 1,216
    edited December 2015

    Ally, thinking of you and hope your able to relax a little seeing how many people have them. Big hugs and know your not alone. We will all send our collective positive energy your way! Xxxx

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  • jlstacey
    jlstacey Member Posts: 277
    edited December 2015

    Hi Ally, I have two lung nodules. They were found when I got my scan to check blood vessels for my DIEP flap. I have had a follow up scan and nothing has changed. I will do another in March, but my oncologist isn't worried either.

    Does anyone know what is happening with the Mayo clinic TNBC vaccine trial?


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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited December 2015

    TNBC vaccine trial. "The clinical trial, which will enroll 280 patients at multiple clinical sites, is expected to begin early in 2016"


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  • megomendy
    megomendy Member Posts: 141
    edited December 2015

    I emailed them a while back and they have my info. I just wonder if they will call people or if we need to be persistent and keep calling them. I'd love to try it. I wonder if we'd need to go to a Mayo clinic several times a year or if we could go to a big cancer center closer to our homes if we get in.

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  • gljacob1
    gljacob1 Member Posts: 3
    edited December 2015

    Yes, My name is Gloria, I was diagnosed with stage 3 breast cancer, I had my surgery 07/19/2015, I am now on #5 of # 6 Chemo, my treatment is Taxol, it has been a roller coaster for me, # 2 damn near kill me # 4 I was about to say to hell with these treatment, but then I start reading some of you guys testament and I decide to hang on in here. Number 5 is tolerable, one more to go then it`s 5 more years on the Chemo pill, I sure hope the pills don`t have side effect. Taxol is a powerful drug, it make you feel as if you has the Flu, it even mess with the mind, sometime I think I am doing crazy, so I just pray about it and move on. One day we will look back on it all and smile, I will pray for all, love you guys. Is there any one here from Memphis TN., have a bless day!

    Heart

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  • StefLove
    StefLove Member Posts: 322
    edited December 2015

    i still haven't heard back about the trial, I'll be emailing them again today. thanks for the reminder!

    so I went to work today for the first time without my wig. I have a really short pixie cut right now. Leave it to two guys to tell you what they really think of your hair. :/ No one at work really knows about this whole cancer thing except my manger, his boss, and two of the girls in the office. Yes, it's different and SO much shorter than my really long hair and long wig but umm... whatever. Ugh.

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  • SA8PG
    SA8PG Member Posts: 371
    edited December 2015

    Stef

    I'm proud of you for wanting to take this step. I'm sorry that you weren't received with the kindness you should have been. Even if they don't know about the cancer you don't need their opinion. Geesh. I promise it does get better. My hair before this was super thick and long down to my back and I went without my wig pretty quick but it was hard to be called sir a few times. Seriously?!?! Lol. The most important thing is YOU do what you feel comfortable with. You rock the pixie cut and keep on smiling. :))

    Hugs this morning.

    G

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited December 2015

    BanR, how is your back? Did it get better with the muscle relaxants?

    Ally, I hope you hear from your doctor early today about your lung nodule. They do seem very common, so I'm hoping yours is benign.

    As TNBC gals, we don't need those kinds of scares.

    Wishing all a happy holiday.

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  • LillieRose
    LillieRose Member Posts: 112
    edited December 2015

    stef- good for you! I stopped wearing a wig about 2 months after chemo... And it is hard at first.... People are still saying things about my hair and a lot of people don't reconize me which is hard! I used to have long blonde hair to my butt... I have to say good hair ;) now it's a short Curley brown pixie... It's SO thick... I try and remind myself it's better than no hair and that people suck... Haha just keep doing your thing girl! I hear it gets easier!

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  • ALHusband
    ALHusband Member Posts: 344
    edited December 2015

    Ladies my wife has discovered a small lump. It is right on her incision line so I'm hoping and praying it's just scar tissue. She made an appointment with the BS tomorrow. Has anyone experienced anything similar right on the incision?

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  • greenae
    greenae Member Posts: 540
    edited December 2015

    Al

    I have a lump on my mx incision line, and a second lump at 11:00. They showed up after recon. They have been "felt" by BS, MO and Gyn. All saying scar tissue, and that they don't feel the way a mass feels. They will be checked at visits, but no MRI or US. Of course, they scare me, but I am trusting my docs. I am hoping your wife and I have FN or scar tissue!

    Arlene

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  • jenjenl
    jenjenl Member Posts: 948
    edited December 2015

    Al, i have two lumps. Had US and scar tissue. Thinking of you. xo

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  • Meadow
    Meadow Member Posts: 2,007
    edited December 2015

    gljacob, Welcome! So glad you are almost finished with your taxol. Yes, it is powerful stuff, It made me feel pretty crappy, Hang in there, I am proud of you for staying with it. And I am glad you are here with us.

    Al, keep us posted, thinking powerful positive thoughts.

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