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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited December 2015

    thanks meadow and Lisa. I do worry too much and do need to relax a bit as not to over stress. I feel as if I have been on a train since dx in May. Every step forward has brough more anxiety from genetic testing to surgery decision, positive margins, to hearing I really did need chemo to taking a loa from work. Now that chemo is over I am pause mode til rads start in 3 weeks. So I am scared if the chemo really did work to kill the cancer cells or not. I know reading on this board that there are long term survivors and hope to get there too. Thanks ladies you made me feel better tonite.

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  • LillieRose
    LillieRose Member Posts: 112
    edited December 2015

    hi ladies,

    I've been following but not posting much.. Trying to just act "normal" and enjoy the holidays...

    Ally- I'm sure your fine! Years out and a PCR are on your side! In glad your not to worried!

    NYinshock- welcome :( I hate seeing other young woman here and scared. I was 30 at DX with a 4 month old baby. I'm not far out of treatment but my period did come back... About 4 months post chemo. They have been regular and my docs think I will be able to have another baby... They told me to wait 3 years because with TNs it usually comes back fast and if I make it 3 years that is a good prognosis factor... Of course hearing them say that scared the crap out of me. I actually know 2 other young survivors from different groups who did get pregnant after treatment! It is possible! They both had healthy pregnancies and babies! Both ladies were tnbc too! Good luck to you 💛

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited December 2015

    Marsha, - the dr gave me samples of "IBgard" for irritable bowel symptoms. It is over the counter as far as I can tell. I love my gastro dr, and trust her judgement! Hope you feel better soon!

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited December 2015

    Yesterday my bs nurse called me to check how I was after my port removal surgery a week ago. She mentioned that I needed to see the bs in March after rads and get a script for a mammogram. She asked when my last mamo was. I told her oct 2014 for regular, both boobs (which found the left mass that they watched for 6mo), April 2015 for the diagnostic on the left (now cancer side), and an MRI of both breasts in July 2015. She said I was overdue for my mamo, and said the bs may write a script for the right breast to be checked before rads. I said doesn't the MRI check for more than a mamo? I also told her the bs said when he saw me before my port removal that I'd see him in March for mamo script. This nurse made me freak out worrying that there now is something growing in my right boob after just finshing chemo 3 weeks ago. She also said that I may need to have a mamo on the right one and a few months later have a mamo on the left cancer one, then have a mamo on both a few months after to catch both up to my regular mamo schedule. I was totally confused on hearing this.

    Did anyone have a mamo on the non cancer side before rads, or before their 3 or 6 month checkup? I see my mo in March for my 3 month, after I finish rads.

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  • Meadow
    Meadow Member Posts: 2,007
    edited December 2015

    Shopgal, have you checked out the threads here dedicated to lumpectomy? You might pose your questions there and reach more people with more answers. More in this case, is good!

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited December 2015

    thanks meadow!

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  • bluedog
    bluedog Member Posts: 212
    edited December 2015
    Happy New Year to all!!
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  • Mamiya
    Mamiya Member Posts: 432
    edited December 2015

    Happy new year to all my TN sisters out there!

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  • 6feetover
    6feetover Member Posts: 320
    edited January 2016

    all: Here's to a happy, stress-free, and "Big C"-free 2016! We SO deserve it!!! I'm so grateful to have found all of you; I'd probably have lost my mind without your love, insight, and support!

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  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2016

    Happy New Year, my sisters. Here's to health and happieness in 2016!

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  • Meadow
    Meadow Member Posts: 2,007
    edited January 2016

    Yes, Happy New Year!


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  • greenae
    greenae Member Posts: 540
    edited January 2016

    Happy New Year!

    Thank you all for being here!

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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited January 2016

    Happy New Year!!!!🎉🎉🎉🎉🎉🎉🎊🎊🎊🎊💥💥💥💥

    May we all have a happy & healthy new year.


    Marsha

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  • SA8PG
    SA8PG Member Posts: 371
    edited January 2016

    Happy New Year everyone!!!!! May 2016 be a year of expectation & hope for every person represented here and those they love.

    Xoxoxo

    G

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  • Mikie1956
    Mikie1956 Member Posts: 20
    edited January 2016

    hi, just found this forum. Triple neg, AC for four rounds 2 weeks apart, finished round 1 on dec 23, using PCC to minimize hair loss, afterAC will do 12 weekly rounds of Taxol. Meds for nausea, resulting constipation, neupogen shots for 9'days after chemo..keeping up with work and exercise which really helps with a positive attitude. Husband is a source of laughter so that helps.

    Happy to,have found this forum Nd the comments hAvebeen fantastic...thanks.

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    Happy New Year from Seattle (almost).

    image

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  • cassylou
    cassylou Member Posts: 52
    edited January 2016

    sending love to everyone on this New Year's Day. I congratulate everyone on their strength and resilience so far and wish everyone a bright and hopeful 2016. X

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited January 2016

    happy new year my new TN sisters. Thanks for the warm welcome in 2015. You all are pretty awesome. 🎉🎉🎉

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited January 2016

    Happy New Year everyone!!

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited January 2016

    Wishing all here a HAPPY and HEALTHY 2016!!

    With hugs and so much appreciation for your friendship and support!!

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  • slv58
    slv58 Member Posts: 1,216
    edited January 2016

    Wishing my beautiful TN sisters a New Years filled with love, support, optimism and good health! 

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  • Teka
    Teka Member Posts: 10,052
    edited August 2016

    Hi,

    New Year's Resolution............

    image

    BBL

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  • bluedog
    bluedog Member Posts: 212
    edited January 2016
    Welcome, Mikie, although sorry, of course, that you have reason to be here. Our stats are similar, and I had the same neoadjuvant chemo regimen. It's certainly no fun but hopefully you'll get through it without horrible side effects. Exercise and laughter help!!!
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  • Lou53
    Lou53 Member Posts: 81
    edited January 2016

    Hello all,

    I was wondering who has had radiation to the lymph nodes and if you experienced any problems. I just started chemo which has been rough for me but I don't see a lot of ladies with lymph node involvement and I am getting a little scared.

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  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2016

    I had radiation to my lymph nodes. Axcilliary, supraclavicular, chest wall, 25 plus 5 boosts. It's way easier than chemo! I was in the grey area for needing it, but decided to go for it because of my age. If you decide to get it, there are some great threads here that will tell you all about it.

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  • Lou53
    Lou53 Member Posts: 81
    edited January 2016

    Little, I really don't have a choice. I am a scheduled for 30 rads after chemo. They want to do under my collarbone as well as breast and lymph nodes. Worried about lymph node issues and chest. I don't want it near my lung. Did you have any problems

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  • Kayak2
    Kayak2 Member Posts: 8,561
    edited January 2016

    Lou, ask if your radiology center offers rads in the prone position, which many places do now, and which minimizes exposure to the lungs and heart. Even if they do, not sure if the location of the lymph nodes would be problematic, but certainly worth asking about. Good luck to you.

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  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2016

    I only finished up Oct 9, but no problems yet, knock on wood. My left side was radiated, so in order to avoid my heart, I expanded my lungs. My RO said your lungs can handle a lot more damage than your heart.

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited January 2016

    Happy New Year to all our ladies plus all our new ladies. Glad you found us but so sorry you needed to.

    Lou53 I had cancer in four nodes. When you go for your simulation appointment which is when they measure where the radiation is going to go they will do everything they can to make sure the heart and lung are not affected by the radiation. The radiologists are extremely experienced and know exactly what to do so you need have no worries at all. Also radiation for me was literally a walk in the park. I had no problems whatsoever other than a little bit of pinkness. It only takes about 15 minutes and that includes one minute for the treatment and getting undressed and dressed again. I was dreading it but it was really easy for me. Just remember to really layer on the cream afterwards, especially at night, to help your skin but don't put it on before a treatment as you will burn otherwise. Hope all goes well for you.

    It always seems odd to me that here in NZ we have Christmas before you and see the New Year in first. If I timed it right whilst on an airplane I could have two Christmas days. Would that mean double the pressies.

    Ally this is the year when all my prayers come true and you hold that wee babe in your arms. 2016 is going to be a good year for us all with no, dare I say that hateful word, recurrences. LUV you will get the house of your dreams and won't have to move again. Jan will not have any more fires in her beautiful mountain home, Mikes Kathy will have no problems and everyone else will do well. We gotta keep the faith ladies to help us through. Luv you all. xx

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited January 2016

    Cocker, we all love you sweet lady!! XOXOXO!!

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