Calling all TNs

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  • greenae
    greenae Member Posts: 540
    edited December 2015

    And Julie and Sis, you two will Kick some Butt Together! Hugs

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  • cassylou
    cassylou Member Posts: 52
    edited December 2015

    best of luck SA8PG. I had my DIEP 4 weeks ago this Friday. The first week was the hardest but overall, it hasn't been as tough as I'd imagined. Just take all the help you can get, even if you feel you don't need it. I'm healing really well and I'm sure the reason why is because I was able to take it easy the first few weeks. If you have any questions, just shout X

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  • Meadow
    Meadow Member Posts: 2,007
    edited December 2015

    SA8 I wish I could be with you tomorrow waiting with you, but I will be waiting here instead to hear how you are. Prayers for tomorrow


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  • SA8PG
    SA8PG Member Posts: 371
    edited December 2015

    Thank you everyone so much. I woke up with peace in my heart & a smile on my face. Believing I will be fine & restored. Sending you all my love, prayers & warm thoughts. I honestly am so thankful to be here still to do more celebrations & enjoy the daily joy of my chaos.

    Love you all.

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  • Allydp
    Allydp Member Posts: 520
    edited December 2015

    Lots of prayers to you SA8 for a speedy and well recovery!

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  • jenjenl
    jenjenl Member Posts: 948
    edited December 2015

    SA8PG, good luck and i agree with others the 1st week is the worst. We are here for you. xo

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  • LillieRose
    LillieRose Member Posts: 112
    edited December 2015

    good luck SA8!! Sending you healing vibes and soft hugs

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited December 2015

    hi tn gals. I had my last chemo today; I actiually finished all of my DD taxol after debating whether to complete it. My MO decided to do 50% of the dose. He was supportive of either decision I would have made to either stop early or finish. I felt I needed to finish as close to complete to give myself piece of mind regarding reoccurrence.

    But quick question anyone wait to do rads? I got a letter from my employer that my Fmla exhausted and my job can be filled. I still am employed as long I am on long term loa but if I return at my scheduled time in Jan before rads they may either hold my job or give me lower position which would be considered a demotion. I have worked for them for 18 years so I'm sure they will find a spot for me. I am debating whether to return on time to get my old job back and work a bit before I start rads. Can anyone advise or had a similar experience? Mo & ro said I may be ok until last 2 weeks of rads. I would have to work a full 9 hr day plus travel time to work & rads before work. Plus working from home is not an option with my company. Thanks.

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  • Meadow
    Meadow Member Posts: 2,007
    edited December 2015

    Shopgal, rads are very do able...I know many people work through the rads treatment. You do get crispy at the end...so you would have to have some careful wardrobe planning. And yes there is fatigue, but not like chemo. And the treatment is super quick...after you are charted and tattooed, the actual treatments are like 15 min....in and out. I waited about 6 weeks to start, as I had chemo, then surgery, had to heal, then rads. I do not think it is recommended to wait an extended time.

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited December 2015

    thanks meadow. It's good to hear from gals who have been tnru this I still feel like such a newbie to TN. I am a size DD and worry about burns on my reexcised boob. My lx scar is at 5-6 o'clock on the underside of my boob and sits close to my chest wall. I asked ro about 3-4 week Canadian protocol but with TN she feels we need to hit it with the full 6 week 30 sessions whole breast. Anyone do rads a month after ending chemo and what was it like? How tired do you get? How long til I get my stamina back? It's like my mind wants to do things and my body can't always keep up. Or when I can I overdo it and am exhausted.

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  • jenjenl
    jenjenl Member Posts: 948
    edited December 2015

    rads is a walk in the park compared to chemo. I started a little less than 4 weeks after chemo. I had a hysterectomy in between. I had an increase in energy during radiation but the last week i was tired. Then once complete each week i got stronger.

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  • breastcancerhusband
    breastcancerhusband Member Posts: 85
    edited December 2015

    Hi Ladies (and the few gents!)

    Not posted for a while, so just checking in to say hi. I hope everyone is well or as well as can be expected.

    I was briefly over in the States last week, in Orlando for the ASH conference. Was so warm compared to London!

    http://www.cancernetwork.com/asco-2015-breast-canc...

    This was brought to my attention on the "calling all TN patients in the UK" thread and I think this is worth sharing here. Its some data presented at the recent ASCO meeting. Its looking at using a drug to lower copper levels and although this is data from a small study, the results are very interesting and I think rather promising.

    Love and hugs to all

    Tom

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  • QueenKong
    QueenKong Member Posts: 154
    edited December 2015

    Checking in to see how everyone is doing and offer words of encouragement. I am approaching the 3 year mark. I did have a secondary cancer unrelated to tn and beat that too, last winter. I am feeling pretty good and enjoying feeling normal, trying to keep it together for the holidays, so happy this winter is going to be milder. Last year was hell.


    Shopgal2 - The chemo was horrid but I found myself feeling pretty decent for the rads. You could try working for sure. Better to not give that job up if you can and squeeze out some more insurance coverage and other benefits. Try to get an early AM appointment for the rads so you can get it done and then go to work. Remember to use your creams as soon as you are done in the dressing room to help with the burning. Can you sit around topless at work with a fan blowing on you? That would help lesson the burning. Look for the radiation regiment video before you start.


    Feel free to PM me if anyone has questions





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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited December 2015

    Hello to All,

    Yesterday I was officially pronounced 3 year Cancer Free!!!!! I feel so blessed. Having to stop the chemo I was always so worried. I decided to quit worrying. Go out and live a little. I exercise, I do my yoga & I have hobbies. I feel blessed every day and I thank the Lord for it. Oh I have my down times as a matter fact I've got a scheduled counseling meeting but that issue will soon be put to rest I hope & pray.

    I read about every other day all you all have said. I don't post much but I continually pray for all of you, for your health and well-being.

    May we all have a joyous Holiday Season, no matter what your holiday is. And a very Happy New Year to everybody. God bless!

    Marsha

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  • StefLove
    StefLove Member Posts: 322
    edited December 2015

    QueenKong and Marsha, so glad to hear from both of you! Gives many of us going through this currently some hope :)


    breastcancerhusband, your link to the study caused me to go into a frenzy yesterday. I think I've googled almost everything I could to learn more about this study as well as ways to find and get prescribed copper chelators. Does anyone know of anyone that is trying to do this outside of a study?

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  • greenae
    greenae Member Posts: 540
    edited December 2015

    QueenKong and Lookingforward!

    Wonderful news from both of you!

    I am reading that we start counting from when we are diagnosed, so Big Cheers to you two

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  • bluedog
    bluedog Member Posts: 212
    edited December 2015

    QueenKong and Lookingforward, congratulations and thanks so much for letting us know how you're doing. Man, I'm definitely going to do that in a few years. I hope we'll all be doing so!

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  • JulieAggie03
    JulieAggie03 Member Posts: 71
    edited December 2015

    image

    Woohoo! Ready to move on!

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  • greenae
    greenae Member Posts: 540
    edited December 2015

    Congratulations, Julie!

    You look Great

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  • cassylou
    cassylou Member Posts: 52
    edited December 2015

    Queen Kong and Marsha. Congrats on your anniversary and thanks for sharing this wonderful, positive news.

    Julie - well done for making it through. What a Christmas present - no more chemo! What a great role model you can be for your sister.

    Happy weekend love to everyone else. I hope that whatever stage you're at, you're able to find enjoyment and laughterin the weekend. X

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  • Meadow
    Meadow Member Posts: 2,007
    edited December 2015

    julie, you are freakin' adorable!

    bluedog, did you update your avatar picture? so cute!


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  • bluedog
    bluedog Member Posts: 212
    edited December 2015
    Meadow, I did -- thanks so much! I wanted to show off my flowing locks.

    By the way, I noticed that you and a few others who post regularly are several years out from diagnosis yourselves. Congratulations to you, too, and thanks for staying here to support and inspire the more recently diagnosed!
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  • Meadow
    Meadow Member Posts: 2,007
    edited December 2015

    Bluedog you are so welcome! I feel good...I want others to know good health and a new normal is to be had.To all going thru treatment...hang in there!

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  • SA8PG
    SA8PG Member Posts: 371
    edited December 2015

    QueenKong & Marsha a huge hug and high five on 3 year mark. :)))))

    Julie I'm so happy for you. You look wonderful.

    Arlene both you & bluedogs new aviator pics are so cute. Your hair is coming in wonderfully. :))))

    Tom thank you for posting that. I know we all appreciate you leaving no stone unturned to help arm us in killing the cbeast forever.

    Well today I'm 5 days post op from the Diep surgery. It has been hard but doable. I had so many of you prepare me so I would know what to expect as each day passed. Either tonight or tomorrow I will be going home walking like a turtle but I get to be home so I'll take it. :)

    Hugs everyone


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  • slv58
    slv58 Member Posts: 1,216
    edited December 2015

    Julie, congrats on finishing chemo, I hope you celebrated! 

    Arlene, love your new pic! You look great :-)

    SA8PG, I'm so happy your on the other side of surgery- each day things will improve. I'm still in awe of what they can do and feel it was so worth it!

    Meadow, your always such a source of inspiration, thank you!

    Marsha, great to hear from you again! Congrats on 3 years!!! Yeah 

    QueenKong, congrats to you as well, hope you two celebrated the special 3 year mark!

    Tom, thank you for keeping us informed of new info (wish things didn't always seem to be so far off in the future) 

    Cocker and Luv, hope your both doing well!

    Sorry if I've missed anyone, I'm trying to just live this glorious life and don't contribute as often. Guess there comes a time when I just want to put this all in the past but think of all my TN sisters with love and positivity!

    Shari


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  • bluedog
    bluedog Member Posts: 212
    edited December 2015
    SA8PG, thanks!
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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited December 2015

    Well ladies my nursing stint is over thank goodness. I take my hat off to all nurses. If I hear the call "Nurse I need a drink" once more I will scream. But my old feller is now on the mend since his hernia op and things are getting back into shape.

    I have missed so many posts so welcome to all newbies but sorry you had to find us. Hopefully all of you are doing well and not having too many side effects.

    I'm off to get my house straight again as had to bring a bed down from upstairs as the old feller couldn't manage the stairs.

    Love to all and will catch up soon. Annie

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited December 2015

    QueenKong & Marsha, way to go on hitting the 3 year mark. That's a huge milestone! I'll be there in 231 days.

    (I actually have a "countdown app" on my phone that I use to count the days!)

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  • bluedog
    bluedog Member Posts: 212
    edited December 2015
    Simple, 2+ years is great, too. Congrats!!
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  • shorfi
    shorfi Member Posts: 791
    edited December 2015

    Simple...I have the same time as you. I hope and pray that we ALL reach that milestone and have many, many, many more years of good health!!!

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