Calling all TNs

slv58

Thank you Cocker, the chemo is totally exhausting- my mind wants to do more active things, but after I do it (like vacuuming) I'm totally exhausted physically and have to rest. I did discover something yesterday, a friend had us over for a swim and being weightlessness in the pool was wonderful! I was able to swim a bit and just float- I had the best sleep last night. I can see this excess chemo weight is a big burden on my system and just hope it comes off half as easy as it went on. Two more chemos.

Thank you Arlene, I had a wonderful birthday week-end! My BF Came over and I picked out a half price tree (centre has a special on your birthday) to plant- she has a van so it was nice. Then we went out for lunch at a local marina and sat overlooking the lake! DH took me out for dinner- so is it any wonder I've put on so much weight!

Luv, thinking of you and hope you can enjoy your family's visit. Try not to get all worked up, it just robs you of 'today'. I took this pic 2 years ago, always loved the lighting. Then found the quote- it inspires me

Tobycc

Sylv-- My MO said give it two months and you will lose the weight. They were right on. I gained almost 20 also and have lost it now. I understand completely. I felt like a tic after chemo.

I am feeling better. The crisis around me seems to have calmed down. My faith is my ultimate weapon also.

Hugs to all

Kath

slv58

Thanks Kath! Had a good laugh with that tic comment- exactly!!

ALHusband

My wee bride went up to 152 pounds during chemo. She is now about 130. To me she looked great at both weights but she thought she looked like a house when she was 152. She lost weight rapidly after chemo. Went all the way down to 119 (which was too skinny).

MomMom

Shari,

May I say that I love your positive attitude. You have gone through so much, but you are upbeat, always looking for the positive rather than the defeating negative side of things. I think you're amazing and you are in my thoughts daily for strength to get to the other side of treatment. I'm sure you will do well!! Glad you had such a lovely birthday. You deserve it!

Paula

slv58

Paula, thank you so much! That is the sweetest thing to say, trust me though, I did have my 2-3 weeks of gloom and there are times going through this chemo where I get frustrated with the exhaustion, but in the end- who wants to live in fear and despair- each day is a gift. I try and put the long term future out of my head and live for now. It's not hard, there is always something positive to occupy 'the now'! 

I value the prayers and positive thoughts

Hugs, Shari

Cocker_Spaniel

Shari what tree did you buy. I have a lovely garden and I love plants. All along the front of our fence we have cherry trees and they come out in spring with huge big bunches of hanging down blossoms. I love them and I don't even mind when the blossom covers the ground. They are really pretty. I have lots of roses and sweet peas and I just love all the spring plants that come out and make you feel so much better. This year I am going to put lots of strawberries in hanging pots. I saw them on the TV on a cooking show and they are gorgeous. My grandchildren will be able to reach up and pick them and also they don't get bugs or pests if they hang in pots. We still have some in the ground but they looked so nice hanging down on the program.

As for the weight issue. I lost weight during chemo and radiation, lots of it. I think it was just worry and also being away from home and my family all week long for five weeks (I am a home body) but I needn't have worried I have put it all on again now. I am 64 kg so I don't know what that is in pounds. They told me at radiation not to lose anymore (as if I could stop it) because the radiation set up could differ each time.

anotherNYCGirl

Cocker, - your garden sounds beautiful! - It's no wonder though! You are such a caring and giving person that, like us, your garden appreciates it, too!

ALHusband

64kg is roughly 141 pounds. Perfect size!

slv58

Cocker I'd love to see your garden, it sounds like a slice  of heaven! I ended up getting a purple leaf sand cherry standard and it's planted just outside our bedroom window so hopefully I can see birds visit it! Last year when I discovered this garden's birthday special, I got a Korean lilac. It's blooms were amazing this spring, I pruned right after the spring bloom and I'm getting a second lesser lilac bloom now! Here is a pic of it in the spring on the left. 

Your cherry trees sound gorgeous, they are spectacular in the spring, there is a town in a South Korea that is well known or their cherry tree festival. Every street is planted with cherry trees. It is so beautiful.

anotherNYCGirl

Shari! That view is amazing!! What a beautiful, calm setting!!

shorfi

Shari, that is absolutely beautiful. Hope you are feeling a wee bit better.

sylviaexmouthuk

Hello everyone,

I was just wondering if anyone knows what has happened to Titan? She is special to me because we both started threads in 2010 for TNBC that still continue. I do hope she is fine and has perhaps moved on.

Shari, I do like your garden.

Cockerspaniel, your name is about the only name I recognise these days. Obviously a lot of women have moved on. I read your posts with interest as they are always full of wisdom.

Sending best wishes to all of you that are going through treatment. I have now passed ten years since diagnosis. You can get through this journey.

Best wishes to all from the UK.

Sylvia

SA8PG

Thank you Sylvia for all you do for us on here. Congratulations on going over 10 years. What a blessing. 😊

G

6feetover

Thank you for the words of encouragement, Sylvia!

*(Sorry, "delurking" here in the TN forums; I'm mostly over in the Chemo in July 2015 group, at the moment)*

simplelife4real

Shari, I'm sorry to hear that your chemo has been wiping you out so much. It's nice that there are only two left. Your garden is absolutely beautiful!

Tobycc

Shari, it is so calming: you did a wonderful job! Prayers for feeling better

Sylvia, so appreciate your post!!!

Almost Friday girls ---- day by day, week by week we do this, and WIN!!

Kath

Cocker_Spaniel

Another thank you for your kind words. If I can lift some lift someone's spirits or help them get through this journey then I will, just like you always do.

Shari your garden is lovely and peaceful and I love that you can see the water from your home, that is just perfect with your lilac bush. I love your gorgeous little humming birds you have in your country they are so lovely, I wish we had them here. I put out food for the birds every day with my hubby and they know now that we won't hurt them so they sit all around us waiting for us to drop the food. It's a good thing my cat is an old boy now and not interested in chasing the birds, he would rather sleep all day until dinner time. Only one more to get through but that view will help you to get there.

Sylvia thank you for your kind words and ten years out, wow that is just great encouragement for all of us on here. Congratulations. As for my beloved Titan she is out there LIVING. She has just run a 5km race and is doing great. Every time I see her she is surrounded by a group of great looking guys (the floozie) but seriously she looks fantastic and is doing very well. I just love that lady.

AL thank you. I am totally useless at maths. Did your Kathy manage to find out what was causing the pain in her pelvis?

Arlene hope you are feeling better and better and enjoying your exercise. Don't overdo it you have only just had your surgery but enjoy.

LUV hope your anxiety is not so fierce today and you are managing to get out and enjoy your day.

Jan you have gone AWOL again. I suppose you are sitting in that lovely leafy glen beneath the mountain reading a good book. I cleaned my house from top to bottom yesterday so today I don't have anything to do except enjoy a good book.

I haven't heard from Linda for a while. That's another lady that I just love. She is beautiful inside and out.

Shout out to Eileen and anybody I have missed. Hope you are all doing well.

Have a good day ladies. We have frost but sunny here so it should be a beautiful day.

JAN69

I don't post often, I can't seem to keep track of anybody or any thing, for that matter. But I do care about you all and remember so well that help I received when I was in active treatment. Cocker, yes I go AWOL now and then, but I am NOT sitting in any leafy glen reading a good book. We are in our 4th year of a drought and we are beyond dry. In fact, our little mountain town is trying to breathe through thick smoke from the forest fire. More than 2,000 fire personnel here and the fire just doubled today. DH and GF helped a friend haul out some important things as she was being evacuated. They put her things in our guest house. We are across a little valley from the hot spots, so we feel safe, well sorta. I had doctor appointment this afternoon down in the "big city." My car said it was 103 F. We are all praying for El Nino. Frost sounds good.

Cocker_Spaniel

Geez Jan that's a far different picture to the one you painted for me before. I hope they get those fires under control and you get some rain soon. Thank goodness you are safe. Hope your doctors appointment went ok. Keep well and safe my friend. Thinking of you.

relocatedtarheel

I all...I have very rarely posted here. I am almost exactly 2 yrs past diagnosis and my on found a lump on top of my tissue expander and scheduled an early f riday morning ultrasound for me. Says it is probably a fat nodule but she wants to make sure. Then the nurse comes in to go over the Friday scheduling and starts talking local recurrence and now I'm freaked out for Friday. This lump is the size of a freakin marble and is just about where my first tumor was. Anyone have any experience with this?

JAN69

Yes, my green mountain paradise has changed into a dry desert with mountains. Experts expect 50% of our trees will be dead by end of summer. The drought weakened the trees and then the bark beetle finished them up. And western US is having the worst fire season ever. Our pond serves about 6 or 7 homes in our area and it is just a mud puddle now. Helicopters used to be able to suck up water here, but no more. I leave tomorrow for a few days in Southern California and fun with my grandchildren. I want to take them to do some back to school shopping. I had a steroid shot in my knee this afternoon. Now it hurts to walk. I can't promise to write often, guess I've gotten lazy. (I do miss the "old" days). Jan

Cocker_Spaniel

I miss the old days we well Jan (just not the same). Have a great time with the grandchildren and hopefully it will rain whilst you are gone.

Cocker_Spaniel

relocatedta a lot of the ladies have fat nodules and it may well be that. At least your doctor is on to it quickly and she will know a lot more than the nurse. Take a deep breath and try not to worry until you have to. Sending big warm hugs for a good outcome and will be in your pocket.

shorfi

Relocatedta...Hoping it is nothing but fat necrosis. I've had many lumps also, and they were always fat necrosis. Hugs.

NavyMom

Just checking in to wave a big HELLO to everyone. I catch up on this thread every couple of days. And like Jan, I have a hard time keeping track of where everyone is on their BC journey. Pray every night for someone to find a cure and equally important, a cause for this dreaded monster.

Waiting patiently for my Navyson to return to the states (38 days to go) He has been overseas since January and as the young people say "I am over it!!" Miss his sweet face and can't wait to hug him. Had a wonderful long visit with my DIL and 2 grandsons. They are a true joy in my life.

I am feeling well for the most part. Although I have begun an additional medication for my heart. My Cardiologist feels that my resting heart rate is too fast and is affecting my heart muscle. I have lost some heart strength (decrease in ejection fraction). When I asked him if this were due to Adriamycin (red devil chemo) he said it very well could be. I see him again in December....I know he will up the dose....wants my Heart rate in the 60's and its still in the high 80's or low 90's. So its just one more thing......But I can deal with it. I am grateful to be here. Period.

Wishing everyone a pain free, worry free day. Don't forget to smell the roses.

ALHusband

Cocker...the PCP put Kath on an anti inflammatory medication (Mobic) which seem to be working! Thanks for asking.

greenae

oh this site makes me crazy! Just wrote a long post and lost it!

I just got back from 2 days at the beach---wonderful! New boobs in the sea water, as advised by PS to help clear up a small infection in suture line. And the cool water helped the neuropathy, too! A nice seafood dinner by the beach and 2 glasses of Pinot noir, hmmm--I felt almost Normal! Yaya! A good time with my good friend and sister. Am I getting my life back?!

Shari, don't worry...those pounds will melt right off. I went up 16 and am down 8, without diet, just a lil sta bike riding. So much was chemo/decadron fluid, I think? You will lose walking around that scenic yard, for sure!

Cocker, your garden must be wonderful, thoughtful and creative like you, I'll bet! And I thank you for the compliment. Lol, I haven't seen 25 in 32 years, but I remember it-ha!

Navymom, i hope the next 38 days go quickly, i know u ca't wait! My stepson is a Marine, we saw him in april, and he is to be deployed soon. He's a tank driver. Worried, but proud!

Relocated---hoping for some fat necrosis for you... Good news soon, I hope!

Thank you, Sylvia. Your words send strength.

And a shout out to simplelife, another, luv, alhusband and toby. I hope everyone is feeling good. I hope I didn't forget anyone!

3 weeks out from surgery, feeling good, can't wait til I can Spin and lift. I so appreciate all of you! Let's beat the crap outa this!!!

Love, arlene

CarolinaAmy

Hello everyone,

I'm brand-new here and wanted to introduce myself. I'm Amy, and I was just diagnosed last Friday after my "welcome to 40" mammogram caught something. Two days ago, I learned that in addition to being Grade 3, I'm also triple negative. I've learned just a tiny bit and just enough to realize that's an additional complication.

I'm glad to have found this board! I'm generally a positive person, but I'll admit that the diagnosis and additional information have me rather flattened. There's no history of gynecological cancer in my family, so this happening with my baseline mammogram was a shock. I have two young children (my baby starts kindergarten in two weeks) and we are in the process of trying to adopt our teenaged host orphan. This diagnosis could very well put that in jeopardy and leave her aging out in a Ukrainian orphanage. It's devastating on so many levels.

I have my first appointment with my surgeon on Monday the 10th. We'll be at the beach this coming week for our one vacation, and I'm hoping to enjoy it rather than wish the time away and find answers.

Looking forward to getting to know y'all and to sharing good news with one another!

Curlyq1974

Awwww CarolinaAmy, welcome to the group you never wished to join! You are with a great group of women, and a couple men, who have been a very reliable resource for just about anything you can think of as you embark on this trip.

I hope you have an enjoyable weekend at the beach. Remember to just breathe and we are all here if we can be of any help or answer any questions.