Calling all TNs

Curlyq1974

OMG WnyMom! Your timing could be any more perfect. My very dear friend was originally DX in 09 was just DX last week with mets to the liver. My parents came to my house to deliver that news to me. I felt like it was a significant blow to me. I have been a train wreck since and cannot seem to get my emotions back in check. I am devastated. I spent the night and part of today just crying. We can do everything right and this stupid disease can lurk and get you when you least expect it. I know, live for today, and all that other stuff, but it just sucks. I can't describe it. I am normally positive, upbeat, got this thing on the run, yada yada ya... but I'm out of whack right now, mentally. I know it is time wasted crying and pondering the what if's but my mind some times just goes there. Especially when stuff like this happens. UGH!!!! Stupid disease!!!

anotherNYCGirl

sorry to read the last couple if posts, especially as I nervously await blood test results re liver panel. My numbers were too high in early July, went back for retest last Friday. I jump every time the phone rings.

Hugs and BE WELL wishes to all here.

Luvmydobies

AnotherNYCGirl, I am hoping and praying your liver levels have dropped! Anxiously waiting with you hon! (((((HUGS))))) Let us know when you can.

slv58

I'm joining the circle to hold hands. We are with you, positive thoughts and prayers.

anotherNYCGirl

Thank you luv and shari!

Hope you are having a good day and feeling well!!

oxo

SA8PG

Sending my love & prayers as well!!!!

Xoxo

G

Teka

Good Numbers!!

Meadow

Welcome Wynmom, Murphy and Amy, and Curly, and to those who pop in. And hello to all the lovely people here.

WNYMom

Curlyq1974

I am so sad to hear of your friends DX. Many prayers for her ... and you.

I, too, am/was normally an upbeat and positive person. I have been shaken to my core. This disease thinks it's going to rob me of happiness. I have to remind myself to take one day at a time. Some days are easier than others. I hate being depressed and hate complaining about all of the side effects I have been left to deal with. I feel like sometimes I suffer in silence. I miss my mom and I wish I had a sister.

WNYMom

Hugs to you anotherNYCGirl. I will be praying for you.

anotherNYCGirl

Thank you all so much.

(No call from dr yet. I called a few minutes after 5 and the office answering machine came on. Maybe I'll hear tomorrow.)

OXO

shorfi

NYC girl...hoping you get good results. I got you in my pocket

wendeeB

Hello everyone. My first mammo since diagnosis is next week. I go between *knowing * everything is ok, to freaking out. I have scar tissue that I can't stop pinching and probing. Just here looking for wise advice on how to deal with the anxiety!!! I can't go to the spa (working right after). I never ask for it, but help.

greenae

anothernycgirl and wendeeB

I am thinking of you both and sending the Best Vibes. Oh, this is the hardest part. Sometimes, it's all good and sometimes the anxiety Sux! Just Keep thinking ...it will be Fine!

Love, arlene

anotherNYCGirl

Thanks Shorfi and Arlene.

(I called the dr's office this afternoon, and was told that the nurse would call me back with the results, - it is now after 9 PM here, - no call back. So, of course, I am thinking that it must be something that the nurse couldnt report, so the dr will call when not busy? ugh)

greenae

oh, anothernyc...I think they got busy and forgot? My former gyn forgot" to tell me an endometrial biopsy was normal, and GI doc never called to tell me that a polyp biopsy was fine. I am thinking they are quicker with the abnormal results, so yours must be normal.

Hugs!

Arlene

anotherNYCGirl

Thanks, Arlene! I hope that you are right!

How are you feeling? This weather has been much too hot for me, - the cooler forecast for later in the week sounds nice!!

Xjerseygrl

Hi all,

I joined BCO in July with DX of IDC and found out today when I saw my BS I am TNBC. So glad I found this forum as I did a good job of freaking my self out reading the doom & gloom. Reading all the positive posts has helped ease the anxiety along with some calming essential oils to my feet.

Next step is to meet with the PS to discuss reconstruction & schedule my Bi-Lat mx with the BS & PS. Originally was going to have BRCA text then wasn't. ..but back to yes I am. I am the 3rd of 4 siblings to be diagnosed with BC. I'm going with the Bi-Lat for peace of mind and also is my BS recommendation given family history. If BRCA + will be undergoing a little more surgery besides TEs then onto chemo and whatever else is needed.

greenae

Anothernycgirl,

Yes! It is too hot for me. I only enjoy the summer if I have my feet in the water, my butt in a sand chair and my brain in a good book...Or jumping in the Waves! This summer has felt very long, I guess because of finishing chemo, going back to work, then recon sx. I just can't wait to be more physically active. I still have a spot on my lollipop suture line, right reduced breast, that is a lil infected and open. So no weights or Spin, yet. But I will try to be patient. Yikes! Not easy for me. Lol. And I try to put most of the past months in a box, to open only when I want. Thinking about BC every day just makes me crazy, and anxious.

Can't wait to hear your good results, Another!

Arlene

greenae

welcome, xjerseygirl,

I am sorry you have to be here, but it sure is a good place to be to learn, be supported and even bi&ch, if you need!

I have only been here 7 months, and have found all on here to be so helpful and understanding. I have learned to for the most part, to stay off the internet when it comes to TN. Doom and gloom does not help, at all.

It's good you are having genetic testing. Knowing your BRCA status will give you info important to planning your treatment. It's a tuff road, but we are all here to support, answer questions and share info. When you start chemo, there will probably be a thread started for the beginning month, and you will be able to talk with people going to the "chemo bar" at the same time, and with some of the same chemo regimens. Know that TN responds well to chemo---one of the positives I learned on the internet. Lol

Hugs to you,

Arlene

anotherNYCGirl

Finally heard from nurse that my liver #s went back to NORMAL!! The earlier rise must have been from weeks of tylenol I had been taking after surgery! I do still have abdominal discomfort, so I may be having a sonogram (if insurance approves). Now, my potassium level is too high (?), so I have to go to primary care dr, but needless to say, - I am so relieved that the liver panel was ok!

THANK YOU, THANK YOU for your good wishes and for holding my hand while I was a nervous wreck! I love you all!

Xjersey, - as Arlene wrote, - this is the best place to be when dealing with this nonsense! You will get through it all, and everyone here will help!!

Hugs and BE WELL wishes to all!

May your news always be GOOD NEWS from now on!!

oxox

shorfi

Doing the happy dance for you anotherNYCgirl . I am so relieved and happy for you.

greenae

anothernycgirl,

YAYAYAYAYAYA!!!!!

Luvmydobies

Good news AnotherNYCGirl!!! WooHoo!! I've had off and on abdominal/pelvic pains for months and ultrasound and CT scans showed nothing significant. So try not to worry if they order one for you. Let us know what the doc says about your potassium. I'll be praying for that as well! But enjoy the good news! Man, what a relief

slv58

NYCgirl, yahooooooo! Now celebrate!

SA8PG

woohoo!!! Thank you God. So happy to hear this nycgirl. What a great way to start the day. 😊

Welcome to the new ladies. Stay strong, ask any questions you like & know we are here.

Have a wonderful week ladies & gents.

Hugs

anotherNYCGirl

THANK YOU, again, my sweet friends!! You are the BEST!!

OXOX

ALHusband

Xjerseygrl I'm an Xjerseyguy. I'm here because my wife, also an Xjerseygrl, was diagnosed with TNBC in 2013. We're in Alabama now, hence the AL in ALHusband. Welcome! Eevn though I'm sure there are far better things and places that you'd like to be welcomed to. This is a great group.

Tobycc

congrats congrats congrats AnotherNYC!!!!

Warm welcome and gentle hugs to all of the new comers. Everyone said it correctly: incredible group of strong women, full of advice, guidance, at any time.

My PS also thought I would just need radiation, or else I would have had mastectomy also. Oh well------

My hair is coming in nicely: going to go wigless finally at work, etc in September, the day of my first chemo

Prayers for all

Kath

Luvmydobies

First off, Mods, if this in the wrong place I'm truly sorry!

Guys I'm in desperate need of prayers. Also I know there are bigger worries on this board so please bear with me or skip over this post. Well, here goes. Ny husband comes in tonight and asked if I wanted to move back to TX where we moved here (NC) from. He's always wanting to go somewhere different because he hates being in one place long. Last week it was Myrtle Beach. Anyway I told him I wasn't ready and didn't want to move. He asked why which he knows why because I tell him every time he mentions moving! It's because I'm not comfortable changing Oncologists yet. Well he blew up and told me that wasn't a good excuse and not to tell him he doesn't understand! I told him anyway though. He then told me part of moving forward is leaving the place and doctor I'm comfortable with! My Onc is among the best in the nation by the way. I told him I was tired of him wanting to move somewhere different every week. Then he really got mad and told me to divorce him! So I'm in tears! I haven't said anything yet but am thinking of telling him that if I'm holding him back from doing something that makes him happy then we need to call it quits. We honestly haven't been happy in awhile. He thinks I should have moved past the fear and worry a long time ago. He's moved on and every time I express a worry he just gets upset and I end up cuddling my dogs or pillow since he won't hold me or anything. Sorry for letting it all out. I'm just hurt and scared. Anyway, thanks for reading and for any insight! XOXO