Calling all TNs

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  • greenae
    greenae Member Posts: 540
    edited July 2015

    shari

    My anterior margin (10:00, near skin), was <1mm. A 3 mm margin is great. ASCO Accepts clear ink margins, so as far as ASCO, I am fine, but my BS going in to be safe. You shdnt have any worries with 3 mm. I just don't see how that crap was so close to the surface, and no one could feel it??. I also thought with an mx, I wdnt hav to worry about the margins.

    Thank you for your thoughts! Hugs!

    Arlene

  • kathyrnn
    kathyrnn Member Posts: 393
    edited July 2015

    YEAH COCKER! (Yes, bad pennies do pop up once in awhile)

    Hi to all the new ladies I haven't had the pleasure of meeting. Please know you are in a great group of women that won't steer you wrong.

    As you can see my feet are still on the right side of the grass. I have a PET coming up, so we'll see what it shows.

    Live is still chaotic. I'm almost at the end of getting this (*)(*&^*( house repaired. (Don't ask, don't even ask. Apparently I have developed a magnet for every defective product that has ever been produced. I have one bathroom in my house and had NOTHING IN IT for almost 6 months. I finally got a toilet after 8 months.) Here's a little life advice from me. If a tree ever falls and goes through your house, set the &*^%^ thing on fire!

    I am very grateful today. I have lived long enough to receive a little Karma in my life. My ex husband popped up on my doorstep after 10 years, to apologize. (We've spoken twice in that whole time). Apparently Karma is a woman and she is a real BITCH. I actually feel sorry for the poor guy.

    Mom is still in the nursing home, but doing well. My only goal is to outlive her (her doctor says she should have been dead 15 years ago, except that I keep taking good care of her), but at this rate "old woman" (my affectionate term for her, long story) may out last me. I watch her like a hawk and ship her off to the hospital every time she takes a decline. I was outside talking to God last time she was admitted and I ended up laughing like a hyena. I pray every day that God takes her before me so she won't be left alone. As I was talking to God, it struck me that he was up there saying, "I'm trying to answer your prayers BUT YOU'RE NOT HELPING!"

    Ladies, if you can give me an update on how you're all doing I'd appreciate it.

    *blows kisses*

  • Esmerelda50
    Esmerelda50 Member Posts: 21
    edited July 2015

    This group of ladies and a few devoted husbands looks like a fun place to hang out. I have to say when they told me triple negative, I thought great, no chemo. I actually thought it was a good thing. Needless to say, when I found out what it really meant, it scared me a little. This isn't my first time. Had lumpectomy, chemo, (ACT &H) and rads. 10 years ago. Had really bad lasting chemo brain and neuropathy last time, not to mention ptsd. Apparently this is a new case. This go a round had double masectomy with immediate recon on April 30, my first chemo (TC) on June 19th. The surgery recovery went amazingly smooth. So far worst SE from chemo was bone pain and headache but that only lasted a few days. Might try the In the chair again next Tues. For #2 of 4. I love all my doctors, feel I have been blessed with the best. Grateful for this board for support. Seems like a lot of ladies have been on here a while and that is so encouraging to me. I have a great faith in God and know he has it all under control. Have a great Wednesday, everyone!

  • slv58
    slv58 Member Posts: 1,216
    edited July 2015

    Welcome Esmerelda50, sorry that your circumstances have led you to join, but this is the best group of women and a few hubby's! They will support you,educate you, be there when you need them, make you laugh and give you a safe, unbiased place to vent when you need to!

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited July 2015

    Hello Shari

    I just wanted to wish you a happy Canada Day.

    Keep well.

    Sylvia

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited July 2015

    Hello Ella (ellamilana),

    I just wanted to say that I really appreciated your illustration about Don't Worry Be Happy. It makes such sense.

    I am a ten year survivor of TNBC.

    Best wishes.

    Sylvia

  • ALHusband
    ALHusband Member Posts: 344
    edited July 2015

    Esmerelda50 this is "the A Team" right here! No messin around! They know how to conquer this beast better than most Doctors! Good ladies to have on your side! A bunch of warriors that are not to be messed with! Period! So you're in the right place!

  • slv58
    slv58 Member Posts: 1,216
    edited July 2015

    Sylvia, thank you so much! That's so nice of you to remember. Unfortunately I had chemo yesterday and am utterly exhausted so no celebrating for me other than being in bed with my iPad! I'm finding this chemo very hard on blood levels and it's accumulative effects are leaving me with a tiredness that isn't relieved by sleep but it's worth it and I only have 4 more to go- that's my celebration!! Oh, and a frozen dinner for hubby and me do I don't have yo cook! Lol

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited July 2015

    Kathy, praying for you and your upcoming PET scan!

    Welcome Esmerelda! Hate that you have to be here but the women and men here are a great support system! Keep us posted and we're always here for you!

    Shari, hang in there dear! You're almost done! XOXO!!

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited July 2015

    Hello Shari,

    I was so sorry to read that you are having a hard time and I do hope that everything will get better for you. It must be so hard doing this a second time round. All you can do is rest and drink plenty of water to flush all these drugs through your body. I think keeping well hydrated is so important. There is coconut drink widely available now that has all the electrolytes in it that re-hydrate the body. If you are thinking of trying it get the one that says not from concentrate and zero sugar. I buy this water from time to time and feel it energises me.

    You will get to the end of this.

    Sending you fond thoughts. Best wishes.

    Sylvia xxxx

  • t100angel
    t100angel Member Posts: 54
    edited July 2015

    Hello all. I am still alive and kicking cancers butt. Tuesday was the fourth AC treatment. I get a three week break before starting Taxol, and hope to get a few things accomplished. Last treatment came with some nausea and more fatigue, but this time it doesn't seem as intense.

    I am staying out on disability until after surgery recovery, so I won't be back at work until December or January. I just hope to not go stir crazy in the mean time. There's only so much TV to watch, and my focus has diminished so reading isn't happening much either.

    Have a safe and sane Fourth of July!

  • Tobycc
    Tobycc Member Posts: 789
    edited July 2015

    Way to go angel! Keep it up and have a great weekend

    Kath

  • greenae
    greenae Member Posts: 540
    edited July 2015

    Go Angel!

    Hoping taxol will have less SEs!

    Keep feeling better


  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited July 2015

    Welcome Esmerelda50.  So sorry to hear you are going through this crap again and very sorry its chemo again for you but hopefully you will make it through and go 20 years or more this time.   I love all my Docs as well and have great faith in them. Keep up the good work with chemo and keep in touch.

    Shari keep fighting girl, only four more to go.  In your pocket and staying there.

    Hi Angel so glad to hear you are still alive and kicking.  Your time off work will help you heal well.  You could take up knitting, crocheting, painting, gardening or just plain relaxing or even dancing, think of all the possibilities while you are lucky not to have to work. Big hugs to you.

    A friend send me a post on Facebook of a wee girl which must have been during the ice challenge, she could only have been about 2 yrs.  She was sitting in one of those little kiddy beach chairs and was babbling away but we couldn't understand what she was saying because of her age.  Suddenly someone chucked a bucket of water over her, she jumped up and said F&*^&%^  Hell as clear as day.  It made me laugh so much, just wasn't expecting that.

    Have a great day ladies.        

  • slv58
    slv58 Member Posts: 1,216
    edited July 2015

    Thanks Cocker, I hope your doing well!

    An early Happy Fourth of July to my American sisters! Hope everyone can celebrate!

    image

  • greenae
    greenae Member Posts: 540
    edited July 2015

    Thank you, Shari!

    My poor dog Hates the Fourth of July! He's a 75lb scaredy cat. Lol. I have to stay with him on the 4th.

  • slv58
    slv58 Member Posts: 1,216
    edited July 2015

    Arlene mine is the same way, but she only weighs 9 pounds! A friend recommended 'thunder shirts' for dogs,it's a tight fitting stretchy jacket that makes them feel they are being hugged. It seems to help my fur baby. They come in xxl sizes as well

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited July 2015

    Arlene, I recommend the thunder shirts for dogs too. It helps calm all three of ours. I also give them Benadryl, recommended by my vet.

  • greenae
    greenae Member Posts: 540
    edited July 2015

    i have to check out the thundershirts!what dosage of benadryl do you use for ur doggies?

  • eileenpg
    eileenpg Member Posts: 467
    edited July 2015

    Happy 4 th everyone

    Angel= Keep up the good work. I agree with cocker. Use this time to do ANYTHING you want!!!

    Esmeralda= Welcome. Sorry you had to join this club of the most wonderful people in the world.

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited July 2015

    Arlene, my vet said it was safe to give one miligram of Benadryl per pound of body weight. Your dog weighs 75 lbs so you can give 75mg's of Benadryl. That's what I give mine. They're all in the 75 pound range.

  • kathyrnn
    kathyrnn Member Posts: 393
    edited July 2015

    Welcome Esmerelda. I think you're already a pro at this, but this will be a place of great support/

    Thank you Luvmydobies. I wasn't worried about my PET till today. When I was first diagnosed, a barn swallow decided to nest on the light fixture in the garage at my Mom's house.. It actually brought me some peace. I lost a friend, years ago, to BC and she happened to breed birds. I thought she had come back to visit and support me. I left the nest there. The next year Momma bird didn't come back. Then the next year there she was again, and two weeks later I found out I had relapsed and the cancer was back. Next year came and I took the damn nest down!

    I've been busy and haven't stopped at Mom's house for about a week. I stopped today, and there was the f*%^ing bird sitting on top of a brand new nest! I may not have had my PET yet, but my BIRD SCAN is now making me nervous as hell!!!

  • simplelife4real
    simplelife4real Member Posts: 563
    edited July 2015

    Kathrynn, I hope that darn bird scan is WRONG!

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited July 2015

    Kathy, try not to read too much into that bird! Just flip it the "bird" and go on! Haha! Praying for you! Keep us posted. We'll be in your pocket! XOXO!

    Shark Week starts today! Anyone else a fan? It may sound dumb to a lot of folks, including my hubby, but it helps take my mind off the bad stuff a little for a week

  • ALHusband
    ALHusband Member Posts: 344
    edited July 2015

    My wife and her best friend of 42 years or so, were diagnosed a day apart. My wife on 4/8/2013 and her best friend on 4/9/2013. The difference, however, was that my wife was diagnosed with Stage 1 TNBC while her friend was diagnosed with Stage 4 Lung Cancer (despite never having smoked even one cigarette in her lifetime). My wife, a warrior in her own right, having had cancer TWICE, will be running in the Central Pennsylvania Free To Breathe 5K run in August, to raise funds to double lung cancer survival by 2022 , alongside her lifelong friend and fellow warrior, who has already beaten the odds badly and is still battling her cancer day in and day out. Tough stock those two ladies. Tough stock!

  • Meadow
    Meadow Member Posts: 2,007
    edited July 2015

    Wonderful Al! Just got back from Gulf Shores by the way. Love Alabama!

    Hello all lovely peeps



  • slv58
    slv58 Member Posts: 1,216
    edited July 2015

    Group hug for Arlene- we are all thinking of you today for an easy quick surgery and recovery! We're in your pockets so Ihope your wearing something big enough!

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited July 2015

    Welcome back Meadow!!

    Arlene thinking of you, praying and also in your pocket!! XO!

  • SA8PG
    SA8PG Member Posts: 371
    edited July 2015

    Arlene

    Lots of prayers & hugs for you for a great recovery.

    Xo

    G

  • Allydp
    Allydp Member Posts: 520
    edited July 2015

    Love hearing all the good news around here!

    Arlene - sending you prayers for a quick recovery!

    Shari - Carbo was really hard on my counts too. I eventually needed a blood transfusion towards the end which helped give me some energy back. Hope you're getting through the worst of this round and feeling a little better. Hang in there!

    Hope everyone had a nice holiday weekend!

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