Calling all TNs

jenjenl

I go tomorrow for the xray. I asked and they basically said xray is starting point. It hasn't been as painful yesterday and today so iim am hopeful.

Luv, i had some weird fainting spells last week. Left a restaurant fainted twice 5 minutes apart. Defiantly weird but hasn't happened again. I think it was a heat issue. Its been 100 degrees lately. I'll tell my MO in July when i see him.

ALHusband

Happy happy happy to report that we got bone scan results back...ALL CLEAR! No bone mets! Now we just have to find out why the pain. It may sound funny...but I almost don't care! Thanks so much to all for your prayers, kind words and support!

eileenpg

Yeah Al and spouse!!!! Whew!!!!

Allydp

Thanks so much everyone for the kind words and birthday wishes! I really appreciate them!

Shari - glad to hear you're finding peace with the fear. I agree, don't let it rob one more day from you! But I know how difficult it is...good days and bad for sure. Also glad to hear chemo is going well and you're half way through. Hopefully the next half goes by quickly and without incident!

Jenjen - so sorry your hip is acting up. Hope the x-ray gives you all the clear and peace of mind! And if you're still concerned push for the MRI for some added peace of mind.

Eileen - yay for good blood work!!

AL - awesome news!!

Love and hugs to all!

Luvmydobies

AL, so happy for your wife and you too of course!!!!

Jen, let us know what you find out. Saying prayers that the X-ray will give you some answers. I'd definitely mention the fainting spells to your Onc. The heat can do crazy things to us. I can't tolerate it well at all anymore.

JAN69

AL A big sigh of relief from here. Happy Dance.

Cocker_Spaniel

Al wonderful news.  I think you and your Kathy need to go and celebrate.

Jen, Shari and Eileen sending great with hugs with prayers for some good news for you all as well.

I go for my three month check up next Wednesday but at this stage I think all will be ok unless he starts ordering those darn tests which make me go weak at the knees.

Jan so cold here. In one county -21.  Here in Taupo we have -4.  So its a bit chilly round the willy so to speak.  I think I will come to you instead, got a good book for me.     

JAN69

Cocker, You will thaw quickly in our nearly 100F temps. So hot, so dry, so scarey with fires all around. Helicopters hover all day over the house with the nearby fires. I hate summers like this. Give me snow, but not that -21 or even -4. I've got a big stack of books to read and friends who own huge bookcases of books I might someday get around to reading. I have my 3 month appointment with my (not yet fired) oncologist tomorrow. I get twitchy just thinking about the appointment, Yes, dam tests. Then get up the energy to replace this MO. Don't know how to do this. Are you playing with cakes these days? We can do that when you come.

Luvmydobies

I've had a rough night! I've had a bad headache off and on since yesterday and my mind is going to brain mets. I woke up at 4:00 yesterday morning and took two extra strength Tylenol and took two more yesterday afternoon and it felt better last night. Well I got up just now (5:00) and it's hurting again. I got really hot, like too hot a couple of times at Myrtle beach last week on vacation. It is awfully hot and humid and I've been getting night sweats. My stomach has been rumbly/gassy too so I'm hoping it's all from heat and stress but I'm scared! Do you guys know if it always means something bad waking up at night with a headache?? I've done it before and didn't give it a second thought but it's worrying me now. I've had allergies and have sinus pressure. At least I hope the pressure is from allergies. Sorry for whining so much but my husband is gone and I'm alone. XOXO

MomMom

Al, So very happy for your great news!!!

Paula

ALHusband

Luvmydobies I don't know your personal situation or if this even applies...but I can tell you my wife went through this as well...headaches...night sweats. In fact, she continues with night sweats now and again. Sometimes they are so bad she actually has to get up and change her clothes. Headaches have subsided and pretty much gone away. Her mind went to the same place yours did...mets. When we asked MO about this he attributed it to menopause and hormone changes associated with her prophylactic ovary removal. Bottom line is it passed as time passed. Certainly important to let your MO know...but this is one example where similar symptoms were NOT mets.

slv58

Al, so happy to hear your good news!

Luv, please stay positive but let your MO know just as you would any new unexplained issue. I know I get headaches a lot but attribute it to steroids. Night sweats are a normal nightly thing for me after going through chemo pause 2.5 years ago. Let us know how your doing

Xx

Luvmydobies

Thanks AL and Shari! I forgot to mention I am in chemopause also! Sorry! I'm 39 by the way. I know it's warmer in the house at night and early morning because that's when the humidity spikes in NC where we are. I've mentioned the headaches before and my Onc said he didn't think it was Mets. He did a basic neurological exam in his office when I saw him in February. He also said night sweats aren't uncommon after chemo if it stops menstruation. I don't get drenching sweats. I just don't tolerate heat well and it pisses me off!! The headache feels better right now. I fell back to sleep at 7:00 and woke up at 9:00. I slept sound and now feel more groggy. I should've just got up when I first posted this morning and taken a nap later. Oh well. I guess I needed sleep. Haha. I've had headaches a lot even before cancer but it's just after cancer that I worry so much. My husband is mad at me because I don't want to move to Myrtle Beach so I'm sure the stress from that isn't helping the situation. I'd rather move to Alaska! Myrtle beach is too crowded and too hot!!

shorfi

Al I am soooooo happy for the good news!!!! What a relief

anotherNYCGirl

YAYYYYYYYYY Al!!

Luv, - I also have had headaches that scare me, - but I bet it's stress! ( and heat and humidity surely don't help!) I agree, - Alaska sounds wonderful!

Teka

AL, good news!!

I'm waiting for further good news........................

jenjenl

You asked for more good news and I can deliver. Xray shows degenerative changes (old at 36 - chemo and hysterectomy clearly were contributors) and a kidney stone!!! I'm shocked about the kidney stone, I only drink water and probably more than 8 cups a day. Told me to go to my PCP....can do!

Now I'm off to work on my cannon ball with my almost 8 yr old

PS - I don't get why all my treatment stuff isn't coming up anymore.

shorfi

Jen...Wonderful news!!! Now go and enjoy the rest of your day with your 8 year old

anotherNYCGirl

Jen, - sorry about the kidney stone pain, - but so glad that's the cause!

Luvmydobies

WooHoo Jen!!!!! So thankful it's not cancer! I've had kidney stones twice though, and that was a new kind of hurt!!!

jenjenl

I think its just an incidental finding bc I'm not in pain near my kidney, just lower right hip and back. When she said kidney stone I said "come again?" - I wasn't expecting that to be part of the xray or a finding.

I have to say this is the 1st time that I had pain that I didn't automatically think it was cancer, I thought 30% chance it could be. I am proud of the progress I've made mentally to get to this point.

Thanks for all the support as usual!

JAN69

Jen, I'll do the happy dance for you. As long as no one is looking. Jan

Luvmydobies

Jen, I never had pain near my kidney either. I hurt in the front lower right side. I thought it was my appendix at first, and then it moved to my groin and lower back area. I had to use a heating pad to help and I took Advil. It didn't take too long to pass if I remember correctly. I haven't given up soda completely but I have cut way down and drink a ton of water throughout the day. I drink between 64-75 oz of water a day. It's been over 15 years since I've had the stones, knock on wood!

Allydp

Yay for the kidney stone and degenerative changes, Jen!!! Only in our world are those a good thing!

Lookingforward66

hello all,

Great news ALH. So happy for you, Kathy & family.

Glad all seem to be doing good.

I got the results of my X-ray of left hip-femur-knee. And my PET scan.

All NED but welcome to osteoarthritis! And all the pain with it. Hip, leg, low back, & knee pain. The arthritis is doing just fine. Sad to say. I do the usual, exercise,water, glucosamine, etc. I take calcium & D3. So I just dealing with it.

About a year ago I was having continuous headaches. Was sent to A neurologist. She did brain scan, fluoroscope. All ok. She told me to take magnesium L-Threonate. 300 mg a day. I have been & much better now. Magnesium is hard to test in our bodies, but we are normally very low in it as we age. She said the chemotherapy may have done some things to it also. Has even helped my allergies. Why I don't know but not as bad this year.

Our weather is in the fry zone. They saying below average hurricane season. Ok but please some rain.

Next month have rented cottage on the beach on west coast of Florida. Going for a bit. Some family coming too. Others can't get away. Have done Seaworld Orlando, next Busch Gardens. I going to try & be Energizer Bunny. 69 in a few months. At one time thought that was a fantasy. Now just wanting to tick them off one by one.

Always keeping you all in my prayers. To all of us.......

NED FOREVER!!!!!!!!

Marsha

Luvmydobies

WooHoo Marsha!!! All this good news is awesome! All you ladies go and celebrate!

Interesting how the Magnesium has helped your headaches and allergies. I have both also. I may have to check into that

Tobycc

LOVING all this good news!!! Marsha, going to Sanibel? It is HOT here for sure!

Keep up the good work ladies: we can do this together!!!

Kath

SA8PG

Hi everyone

Had to say how very happy I am to hear such great news from everyone. Big smiles all around. 😊

I apologize for not posting on the boards for so long (I had you in my prayers & would check periodically on how everyone was doing).

I had my fifth surgery for this crazy infection 4 weeks ago. I've been on Iv antibiotics now going on almost 12 weeks & the oral ones too. Great news is that no new spots are showing up so I think I am climbing over the mountain now. Whew!!

Dr says November at the earliest for DIEP surgery. Honestly looking forward to that day although a bit nervous. This infection from the expanders has me a bit gun shy.

Sending hugs, love & prayers. I'll be posting more now that my strength is returning. Yippie!!!

G

BAT

A big hello to all.  Just thought I’d drop in and give some  positive news concerning my wife.  Yesterday she completed her 2^nd DD Taxol treatment and all is well this AM with her.  Tomorrow will be the defining day as Saturday is the day it hit her two weeks ago….Lots of bone pain and lasted about a week.  She has two more treatments left and I continue to pray that they go well.

With that said, her DD AC portion really did a number on the tumor and node.  I was recently reading the BS notes from his 16 June exam and he gave a run-down of the measurements from his physical exams of my wife.  In his notes it read t following:

4.8cm, N1 as of April

3.8cm, N1 as of 15 May

1.8cm, N0 as of 16 Jun

So besides the tumor shrinking, the BS and Chemo doc can no longer feel the node in her armpit.  My hope is Taxol continues the positive trend.  Anyone know if her tumor board will restage her after surgery or will she remain a 2b?

Many thanks to all of you….and may God bless you each and every day.

Vr,

BAT

Lookingforward66

Tobycc

Not to Sanibel. Indian Rocks Beach (Pinellas county) is our location. Right on the beach. Not duplex or apt style building. Individual cottage right on the beach, looking out on the Gulf. Lived in the area before married, eons ago. Relatives in the area....so made sense. I am just hoping no storms (hurricanes). Plan on going to Busch Gardens with grandson & daughter. Along with other places in that area. Also like the good seafood restaurants on the beaches up there.

Take care all,

Marsha