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  • denjak
    denjak Member Posts: 36
    edited November 2011

    Hello Everyone:

    Bak94- Don't know why, but to see we have the same surgery date makes me cry. Glad you told me. I will be thinking of you.

    LeannaClem: You are at Vandy now and I know they will take good care of you. I too immediately went crazy with internet overload. That's how I landed here.

    I am working my way through my final visits to onc,surgeon, hospital and reconstruction surgeon. The amount of "visits" drives me nuts. My co-workers are sensational...

    Sending support to all. 

    December 1=denjak 2.0

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  • laurajane
    laurajane Member Posts: 321
    edited November 2011

    I have done the final chemo. Worked great for about 6 weeks. I'm now looking for a new alternative clinic to go to. Have any of you heard anything about any clinics in Mexico etc. It's so difficult to determine what is real and what is a joke. I haven't been on in a while and will try and catch up. I'm still seeing my healer. My onc has thrown her hands up and said there is nothing else. She and two other oncs tried to talk me in to some stage 1 clinical trials as a guinea pig but I'm selfishly not ready to give up. She has told me before that I have weeks maybe a couple of months before, she said it again yesterday. I have now thrown my hands up and am now in charge again. Thinking aboutyou all.

    Laura 

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  • christina1961
    christina1961 Member Posts: 736
    edited November 2011

    Laura, I am so sorry to hear this news.  This disease is horrible.  I don't know anything about alternative clinics but I know there is an active thread on this site and maybe the women there could direct you.  I so wished the eribulin had worked for you. I'm sending you a PM.

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited November 2011

    LJ---Do what feels right for YOU.  I do not have any info to share with you regarding trials, but as always, I have hope for you and all of us that there will be better days ahead and a good treatment is right around the corner.....better yet---- a cure.  Sending prayers and positve thoughts.

    Navy

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited November 2011
    Laura....my hope is that you find the right alternative treatment and that it works better than the conventional ones.  My thoughts are with you daily.  Sending you lots of good energy.  
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  • Babs37
    Babs37 Member Posts: 455
    edited November 2011

    (((((((Laurajane))))))

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  • Luah
    Luah Member Posts: 1,541
    edited November 2011

    Laura: So sorry to hear your news, but I can hear -- practically feel -- your spirit and resolve through it all. You are one smart, tough lady, and taking charge is a very good thing. While I can't offer any help on the alternative front, I do hope others can, and wish you all the best.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited November 2011

    Laurajane so sorry to hear your news.  I hope and pray the dr's are wrong and that you can find something that works for you!  Keep working wtih that healer, stay strong and keep us posted.

    ((((hugs)))) and positive energy! 

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited November 2011

    Hi Laurajane

    All I can offer is this Ayurvedic Institute in Alburqueque New Mexico where Dr. Vasant Lad practices out of.  Here is the link http://ayurveda.com/ .  It is one of the leading ayurvedic institutions outside of India.  Ayurveda is an ancient Indian healing system.  Dr. Lad has written a ton of books and is highly in demand.  Pancha Karma therapy is a way of cleansing out your system of all toxins and it is done there.  Some of my friends have gone there to get that done. They might have a cancer program.  Their phone number is (505) 291-9698.  If I was in your place, this is where I would go.  I saw Dr. Vasant Ladd in the 1990's.  He also does vedic astrology and took a moment to look at my palms.  He told me a few things about me and my son, and I was flabbergasted at his knowledge.  I am not sure if he is still practicing seeing patients, but he is an extremely compassionate man, maybe if you request that you be seen by him, they might make an exception.  I understand he lives 6 months here and 6 months in India.   Let me know if you have any questions on this alternative therapy.  I grew up with ayurvedic herbs, as my grandmother practiced this on her children and grandchildren and I must say that I grew up pretty healthy.  All Indians in India practice some part of ayurveda as many of their herbs are part of their daily diet.  It is mainly about balancing your air, water, and ether in your body. I wish you my heartfelt prayers and best wishes on this very difficult journey.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011
    LJ- I simply don't know what I can say, except that I think of you daily and wish you the best in whatever lies ahead. I'm not very good at expressing emotion in here... it just eats me up to think of what this disease does to people.
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  • gillyone
    gillyone Member Posts: 1,727
    edited November 2011

    LJ - sending positive vibes your way and hoping for success with whatever path you choose.

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited November 2011

    LJ - thinking of you and sending positive, healing thoughts your way. 

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    laurajane,

    You need a reputable breast cancer consultant for clinics.   I pray you're in remission come 2012.   YES, I pray.

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  • LRM216
    LRM216 Member Posts: 2,115
    edited November 2011

    LJ:  I can only begin to imagine how you must feel with the outcome of this latest disappointing chemo  - since it started off with what seemed such wonderful promise,  I pray for strength and insight for you, so that you may find yet another path that leads to something else that might help reverse this beast.  I can't let go of the belief that there is yet something else to try.  Unfortunately, I am not the least be schooled in any type of alternative meds, whether they be here in the states, or in Mexico.  Wherever you may go, whatever you may choose to pursue, please know that we are all here for you, praying for resolution and a reversal of this disease for you.

    Linda

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited November 2011

    Laura..you have the strength and knowledge to know what you need to do. I would think there might be somewhere on these boards some info on alternative clinics. Sending you hugs and peace and positive thoughts. I am so glad you are continunig to see your healer. I think of you daily.

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  • TifJ
    TifJ Member Posts: 1,568
    edited November 2011

    LJ- no words of wisdom. just a warm hug and good thoughts!

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  • Gator65
    Gator65 Member Posts: 72
    edited November 2011

    Teka - Thanks for responding

    Titan - huge Gator fan since I was a little girl. Congrats to your Bueckeyes because they sure made us look silly last night.

     Starting chemo on Dec. 1st and I am scared to death. I am already freaked out and today they tell me I have to come back the next day for a nueslasta shot? What doess nuelasta do and what should I expect as far as side effects from it?

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  • Titan
    Titan Member Posts: 2,956
    edited November 2011

    Ditto Heidi's post LJ...tho I talk alot about stupid stuff I have a hard time talking about when things need to be REAL...know that I think about you constantly..and worry too and try to will things to go your way..for once..dang..we need a miracle/cure/whatever here..

    I hate this f'ing disease..

    Will support you and whatever you choose to do from here...let us know..we are all behind you...

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited November 2011

    gator Nueslasta shot keeps your blood counts up, I however got mine the same day as chemo, my dr said their is no evidence that you cant do that, and I never got sick.  Take a claritan and aleve and you will feel no pain from it.  It pulls from the bone marrow.  you can google it.

    good luck! 

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited November 2011

    Gator.....Neulasta helps build up your white count.  It can cause some bone pain, but I did not have too much trouble with that.  You can do this!  Think of each chemo session as a bit of YOU time.  No phone calls or interruptions.  Take a project, magazine or good book with you to pass the time.  My posse enjoyed coloring books.  

    You will find the nurses to be the rockstars of the profession.  Very courteous and supportive.  I found myself looking forward to each week just to see my "friends" and relax, away from the rest of the world for a few hours.  You will do great! 

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  • Titan
    Titan Member Posts: 2,956
    edited November 2011

    Gator..oh....I thought it was a good game...the Buckeyes tried to give it away at the end..your Gators sure can shoot the 3!  My dh was yelling at the TV..I guess it helped..

    Oh..the nuelasta shot..I did hate that freaking shot but that was just me...most of us handle it quite well...I didn't like it..it felt like I had the flu..achy, my bones hurt...BUT..the shot did it's job..my white blood cell count was always very high so I was always able to have my treatments...and that was the important thing..to get those treatments over with....

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  • slcst12
    slcst12 Member Posts: 161
    edited November 2011

    hi girls. I haven't posted In age...but want to send a cyber hug to Laura Jane.

    After an 8.5 mo hiatus, my chemo pause is officially over. I don't know which was worse, the harsh and quite abrupt menopause, or the fact that I will get to do it twice... Should I live that long of course.

    my hair is finally coming back in. Last chemo was April 28.

    I  opted into the metformin trial. Is anyone doing that? I've read every journal article I could find, and it seems pretty promising. 

    My date of diagnosis was Nov 19 of last year. It feels odd to be coming up on 1 year. How the hell do you get back to your life without worrying about cancer coming back? Mostly I'm just hoping that the holidays will be much brighter this year than last. 

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  • lwarstler
    lwarstler Member Posts: 341
    edited November 2011

    LJ: (((HUGS))) so sorry about the latest...this disease really sucks and it just ticks me off that in this day and age there is no cure. Way to go though on taking charge of your care back and remembering that there is no experation stamp on any of us.

    Gator: I am having a similar experience with the neulasta as Titan. It did hurt. The Claritin and Aleve have helped for one of my treatments but not much for the other 2. However, I did get hydrocodone from my doctor that knocks it out an makes it doable. Also like Titan, my counts haven't gone down yet, so it is doing it's job. All this is really scary at first, but once you get through the first one and you know what to expect...it will be easier to handle. Hang in there. 

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  • mitymuffin
    mitymuffin Member Posts: 337
    edited November 2011

    LauraJane, I am holding you in my heart. Unfortunately, I have never heard anything good about the clinics in Mexico. You have a talent for living each day with joy and in my tiny opinon, that may be your best medicine.

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  • laurajane
    laurajane Member Posts: 321
    edited November 2011

    Thanks to all of you. I've been feeling a little guilty for not wanting to do this trial. My onc explained it could help others. This phase one trial would be the first humans to recieve this drug and they would try and determine dosing and human tolerance. It scares me. She explained that I would have less than a 10% chance of it helping me and basically since I was at the end I would be doing it for others. I selfishly want to preserve my body and make it strong again after all of the chemos I've done, actually I've done them all. That is a nice feeling to know I have tried them all. I've kind of felt like a guinea pig throughout all of this as I am sure many of you have felt the same way. I wish they could come up with a cure. Something simple like a shot in the arm to prevent any of us from ever getting cancer. I will follow up with my plans and I will be checking out the Ayurveda site in New Mexico that Lovely face mentioned. I will try and keep you all posted on my travels and experiences.

    Gator and others- I always took 1- Claritin and one Zantac (Heartburn med) 1/2 hour before my shot and did not have the pain that I had experienced prior to knowing about this. I hope it helps. My onc pharmicist suggested taking these and she was right.

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  • laurajane
    laurajane Member Posts: 321
    edited November 2011

    P.S. I get scanned tomorrow, funny but my tumor marker count had gone down. It was determined that the Halovan had stopped working due to new skin lesions and the reoccurance of tumors that had subsided a couple of weeks ago.

    I hope you all have a great day. The sun is shining here and life is great. Feel my smiles going out to all of you. 

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2011

    Hello Laurajane, i don't post often but you are an inspiration.  all my smiles are going out to you.

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    laurajane,

    Smile

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  • MBJ
    MBJ Member Posts: 4,352
    edited November 2011

    Laura:  I forgot to ask you yesterday if you ever got to see Solomon Wickey?  Also, I found an article on him that mentions a couple of other healers in the area:  http://www.roundaboutmadison.com/Inside Pages/Archived Articles/2008/03_08HealingHands.htm   Big hugs to you!!!

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  • Kymn
    Kymn Member Posts: 999
    edited November 2011

    Laurajane, your attitude and strenght is an inspiration to all, you have helped many woman already please do not feel at all selfish if you choose not to do this trial. Follow your heart, do what is best for you and trust your instincts. We all love you very much and support whatever you decide to do.

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