Calling all TNs

Gator65

Thanks Ladies for answering me. I will be sure to take the Claritin/Aleve/Zantac.

 I had no idea about truncal lymphedema. When I saw my doc on Monday, he drained 350 cc of fluid from my armpit/side of breast. The swelling is back, left breast is tender and has hard spots. I thought it was from where the sentinel node biopsy was. It all makes sense now. Thanks!

From diagnosis to surgery, everything happened so fast, I feel like I know nothing. My Pet scan scans/MRI was back on Oct 12 and I had surgery on Oct, 18th. I feel like everything was a chinese fire drill and I missed a lot of information.

Cancer sucks....  That is all.............

Kelley41

Scheduled to have a lump removed from armpit area on 11/29 - thinking the worse and hoping for the best!

TifJ

Swanny and MBJ- The Naproxen did nothing to ease my frozen shoulder pain. All it did was make me sick to my stomach- even when I took it with food. MBJ- I hope you get some relief soon. So nice to be able to sleep in your own bed!!

Teka

Kelley41,

 My surgeon won't leave a lump even if benign )

riley702

Gator, it sounds like you're getting up to speed on this FBC quickly. I think we all have an 'internet degree in BC'. It will get better and less confusing; we all had to go through the same learning curve. You're doing fine.

Paintingmywaythru

Kelley 42....I am thinking the best for you. I hope you can enjoy the holidays.

AND IT"S MY BIRTHDAY and I finished radiation on Monday. So now to deal with all the emotional stuff arising out of finishing treatment. This is the gift that keeps on giving.

Hope everyone has a great day.

Susan

Teka

Paintingmywaythru,

Happy Birthday )   I hope you're side effect free after radiation.   I had severe radiation burn under (L) breast for 31 days.  

TifJ

HAPPY BIRTHDAY PAINTING!! Hooray for finishing rads!

MommaG

Hi!  I'm new to this site....just wondering if any of you have had issues with you nodes in your armpit swelling again after chemo?  I finished chemo 2 weeks ago and had slight swelling then but I also had a bit of a cold and my onc says that was all he thought it was.  I don't think it's right...although I am still fighting the cold and the swelling hasn't got much worse.  Just can't wait for surgery Dec. 2nd to get this crap out of me!!!!  I don't think I will ever stop worrying!

Teka

MommaG,

MO is going to let surgeon know about swollen nodes?   Welcome.

bak94

Happy Birthday Painting!!!! I hope you do something fun!

Kelley41

Paintingmywaythru - Happy Birthday - enjoy the day!

Titan

Happy Birthday Painting!  Try to celebrate a little ok?  and celebrate finishing rads too!  I know it is freaky being done with treatment but really...it's a good thing!  I don't miss it at all..lol.

Kelley..will be thinking about you on the 29th...understand completely how any lump concerns us.

MommaG...you will feel so much better once you get that crap out of you!  I absolutely hated "my" lump..I felt so much better emotionally..and yes physically too...after my surgery...I really felt that my cancer was gone at that point...whether that is true or not remains to be seen but that is how I felt at the time and I still feel that way.

MommaG

Teka - My surgeon knows about the swollen nodes....it had gone down during my chemo but is swollen again.  I go for my pre-op soon so I will definitely be telling them about it then. I will probably call my MO tomorrow to see if he says anything new....we'll see.  Thanks for the welcome!

Titan - I'm hoping I feel the same once my surgery is over....I can't wait to get this crap out of my body. 

MBJ

Swanny:  Thanks for the suggestion, however, Aleve just keeps me up at night and doesn't really kill the pain.  I was prescribed it before when I injured my neck in a car accident and it didn't really help me for this, either.  Glad that it worked for you!

MBJ

Tifj:  Thank you!  I am having it worked on 2 x a week.  What kind of excercises did they have you do and how long before it healed?  I literally can't even lift my arm.

kathyrnn

Happy Birthday Painting and congrats on finishing your rads. Now if you don't mind I'm going to go off and sulk for awhile, lol. We started treatment at the same time and I haven't even made it to rads yet!!, and having another surgery is only going to delay it until at least January.

mccrimmon324

Happy Birthday Painting. 

christina1961

Happy Birthday!!! Susan. I never appreciated birthdays like I do now.  I will be so glad to get to my next one - and to think I was kinda down at my last one (pre diagnosis!)

Fighter_34

Wishing everyone a Happy Holiday. I am cooking this year. Last year this time I was still in Chemo. Feels good to be able to resume most of duties.

So good to read many are approaching that 3 year mark. That is truly a milestone for us.

LJ I have thought about the Cancer Centers of America there is one in Philly. Take care and my thoughts are with you.

Teka

Survivor2Be,   (Honey Badger)

I am pleased that you're on the mend in the hospital.

mitymuffin

MBJ, When I was having strange post treatment pains, Zipsor worked for me when the normal pain relievers didn't. http://www.zipsor.com/ 

Teka

kathyrnn,

I hope tomorrow evening you're on the mend at home )

TifJ

MBJ- I did pulleys while sitting in a chair, wall climbs, resistance bands, lots of exercises while lying down and standing. Then she would stretch me for about 10 min., let me rest then 10 more minutes. I started this in March and have recently gone to once every two weeks and I just do the stretching. It is so much better, but not 100%! I sure hope it eases up quickly for you- it is just miserable!

MBJ

Thank you TifJ:  I can't do any of those things!  Can't even move my arm.  Glad to hear it's getting better.

hoppytrigger

Just found this site.  I was first diagnosed with TNS when I was 36.  Stage 2 no nodes grade 3.  Had a lumpectomy and did 6 rounds of AC with 5FU and 35 rads.  It has been 8 years and guess what?  I now have TNS on the other side.  So far they are staging it as Stage1  until surgery. 

 This time I will be doing a bi-lateral mastectomy with most likely 4 rounds of chemo.  Not sure which kind but they are going to do a gene test on the tumor (that wasnt available before).  Also got my BRAC test done today.  Not sure about radiation this time until we get pathology.  My head is spinning as I cant seem to find anything on new occurances as opposed to re-occurances.  According to my surgeon this is a new occurance and is staged seperately from before since it is in the other side.  The breast that was impacted 8 years ago is still cancer free but I figured why not remove both to help eliminate the problem.

Thanks

Titan

Hi hoppy..glad you found us..I read your post on the 3 yrs and out thread...from reading on here I think a new dx is better than a reocurrence....but sorry you have to go through this crap again after 8 freaking years...

I understand your wanting to have a bilateral...if this beast every shows up again in either breast they will be gone...hang in here with us..now that you have found us..we will be here for you..ok?

Titan

Fighter..I'm cooking too!  This is really the first time I have had my family over for Thanksgiving..I honestly don't think I could have handled it during chemo..or even last year...this year I find myself..maybe a little stressed but not so bad..I've got it handled..I think...I just want my house to look good and the food to be exceptional...!

bak94

Today I had a massage for my birthday, it was wonderful. Then I went shopping for mastectomy cammies. I am having major anxiety about my surgery next week, I think I am making myself sick!

Hoppytrigger-can't believe how much we are alike! My first diagnoses was when I was 36, stage 2, did lumpectomy chemo rads and now have a new primary in my other breast, 8 years later! I already did chemo and am now waiting for a bmx, Nov. 30. I am brca 1 pos.

hoppytrigger

Titan thanks for the kind words.  Taking it one day at a time.

bak94 it sure does sound similar except our course of treatment order this time.  My surgery is set for 11/29/11 a week from tomorrow.  Just did all my pre-op stuff today along with my BRAC test since I now have two occurances of TNS.  I'll be curious to see if somehow I have the gene as there is no history that I am aware of.  What kind of chemo did they give you the first time vs this time?