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  • kathyrnn
    kathyrnn Member Posts: 393
    edited November 2011

    Thanks ladies, doesn't hurt, but I'm big breasted, would probably take a couple gallons to make me hurt, lol. I kid you not, I literally went and checked the toilet, because i thought the noise was the toilet running, heheheheh

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  • riley702
    riley702 Member Posts: 1,600
    edited November 2011

    Titan, I started to grow my hair out a little, but quickly got fed up with it and went short. I think I'll keep it that way. And my chemo curl is gone now. Cry

    Speaking of hair and issues, when I decided dyeing my hair wasn't such a priority anymore and stayed grey, my sister (3 yrs older) was downright... gleeful. Seems my dyeing my hair for the past 25 yrs has been sticking in her craw all this time. She belongs to a very controlling church and dyeing one's hair is frowned upon. And she has hated that her hair was greying and mine wasn't. When I realized what was going on, I just had to laugh. Amazing what petty stuff comes bubbling up sometimes.

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited November 2011

    Kymn - you look terrific!

    Count me in on the group who's keeping their hair short. I always had long hair (was just below my bra at the back before chemo).  However, I've been getting it cut every six weeks to keep it short and tidy.  I do not miss my long hair one bit. 

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  • gillyone
    gillyone Member Posts: 1,727
    edited November 2011

    I've been trying to grow my hair back to a bob for about ten months and do not like it. So getting a really short cut and color on Wednesday, similar to when it was growing after chemo, and I liked the sassy punk kind of look.

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  • Kymn
    Kymn Member Posts: 999
    edited November 2011

    Kathryn my boob did that too lol it goes away

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Short hair and grizzles of gray are me now. I love it--- takes ten years off my face. Who'd a thunk it?

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  • Titan
    Titan Member Posts: 2,956
    edited November 2011

    I was dyeing my hair blondish..I liked it but my family didn't..I wanted to look different..after all..BC did change me..I welcomed the new me..but I gave up dyeing and now am brown with some gray...I kinda like it...

    Of course maturity didn't come along with that..ha ha...

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  • Suze35
    Suze35 Member Posts: 1,045
    edited November 2011

    Kymn - you look faboosh!  Seriously, that cut works for you so well, I'd keep it!  And you carry the platinum blond off perfectly.  New life, new look!!!

    It is amazing how many people say "you carry the short hair look so well" once you actually have short hair, lol.  I will never go back to long - even if I could - just because I adore how easy it is, and I do think it can be very sexy.  I get a little side-burn thing going on, curl it a little, very cute.  And I've found some pretty fun wigs, so I'm okay with changing up my look that way now.  It has thinned considerably on the Abraxane, but that is slowing down so I am still able to get away with nothing for now.

    Titan and Heidi - I was super grey - silver really - the first round of hair that came back.  Then I colored it, and the new growth is much less grey.  Weird!

    kathrynn - sloshing boobs!  Hah!  Yea, I'd say that is a seroma.  Be sure to bleed those drains if you still have them.  I hated bleeding them, it hurt, but moved things along.

    Gilly - I like your short red hair!  I used to have a shoulder-length inverted bob myself, but as you know, things never grow in the same again, sigh.

    Reilly - that's funny about your sister!  I used to give my sister grief for keeping her hair blond and down to her tush (she's 46), but you know what?  It is her hair, and not my business!

    LauraJane - thinking of you.  Check in when you are up to it!!

    ~~~

    Hanging in there.  My dad and sister are coming to visit in two days.  I haven't seen him since my intial diagnosis, it is going to be difficult.  He doesn't do "emotion" very well, although he's come a long way since I was young.  He's afraid of what he will find here, but thankfully I still have my hair and look healthy.  I plan on really pushing him to come to terms with my health, and opening up with me.  It will be rough, but worth it.

    On a positive note - I am soooo happy for my older sister.  Me and DH introduced her to a co-worker of DH's a few month ago, and they are head over heels in love.  She has such a bad track record with men, and this guy is just amazing.  I am so blessed that I am finally able to see her happy and content (even if it doesn't end up lasting, at least she has now!). 

    Physically I'm hanging in there.  My cough doesn't seem to be getting any worse - maybe even a smidge better? - so I'm taking each day.  I wake up feeling good, have a few "fits" throughout the day, but that's about it.  I have to start taking something next week to prevent steroid pneumonia, as I have a small amount of fluid on my lungs (very minor), so that could also be causing some cough.

    Anyway, that was a book.  Just felt chatty today.  Hope everyone has a great day!  I'm watching NFL today - go Bengals - and my college team won their big rivalry yesterday (go FSU!), so I'm a happy camper!!

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  • christina1961
    christina1961 Member Posts: 736
    edited November 2011

    Good to hear from everyone!  Kymn, your hair is really cute!  I am headed toward the brillo pad look myself - mine came in its usual curly self but I think much grayer (don't really know because I've colored it since I was about 35.) Bought some Burt's Bees citrus facial scrub today to try to help my poor dry facial skin.

    The halaven (eribulin) is starting to kick my butt.  I think I remember reading that it has a longer half life - whatever it is, I can tell I'm going to have to cut back on my work schedule.  I didn't do anything yesterday but walk 2 miles and stayed exhausted all day. (And I didn't even have chemo Friday.) Today I just now got to the office.  I have walked two miles and made quick trip to grocery to get some fruit. I have so much work to catch up on that I feel rather defeated.

    My white counts are low, though, and I remain anemic - so I guess I deserve to be tired. The PT stretched my scar area yesterday and it felt fantastic - took away that "drawing" feeling.  He instructed me on a good stretch - yoga child's pose, then reach affected side's arm as far as possible up and over past the midline of the body.  The trial nurse thinks my white counts should rebound enough by next Friday to get chemo.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Yep, when my hair grew in it was the color of Jamie Lee Curtis, but had curl. Now, less silver and no curl :-(

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Here's a link to how my hair grew in, if anyone's interested.

    Photos were taken one week apart.

    http://albums.phanfare.com/isolated/xo6CSDik/1/4756842

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  • bak94
    bak94 Member Posts: 1,846
    edited November 2011

    I love all th hair stories and descriptions! I was surprised how much my husband liked my short hair the last time I went through this crap, but I grew it back out. I will probably keep it short this time if it comes back! I am now 2 weeks pfc and have hardly any hair growth, just these crazy wild sparse white hairs that are about a quarter of an inch long and a few dark stubbles. not attractive at all:)  I will probably always color my hair, I always get bored with my color and besides, it is what I do.

    Oh, I think the my work is having a benefit for me, I am not positive but it kinda looks that way. They scheduled a holiday party for clients and staff on my surgery date! I jokingly gave them a bad time about it. Then I was looking at the flyer and it was asking everyone to wear pink. The staff sign up sheet also had "pink" cupcakes on the list. They are collecting money for drinks, which we do every year for different charities. Maybe they are raising money for bc research. I kinda hope it is not for me, as my ssdi starts soon and when it does we will be ok financially and I would feel bad if they give me money when I may not need it. I am bummed about missing the party, it is always fun, some clients and friends bring items to sale, such as xmas decorations, jewelry, purses, alot of cool stuff.

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  • bak94
    bak94 Member Posts: 1,846
    edited November 2011

    Heidi, that was fun to watch as a slide show! What week pfc was the first picture?

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited November 2011

    Heide how far out are you?  I am almost 18 weeks and have almost as much as your last pic. 

    I am loving the short hair, just wish I could do something with it.  It is trying to curl, but not long enough yet so some just sticks straight out!   

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    bak- I don't really remember. I just looked in the mirror one day and said, "Hey, my hair's growing back!" Maybe 2-3 weeks after last chemo?

    ks- I'm *way* out (last chemo was Dec.7th 2009) but I did go through the same stage you are at now, where it wanted to stick out, so I freaked out my 20 something sons and punked it for awhile. Laughing

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  • BarbaraJo50
    BarbaraJo50 Member Posts: 108
    edited November 2011

    Kathryn,

    I actually heard sloshing too! This was after my drains were pulled. I went back in for fluid removal almost weekly after my most recent MX. My surgery was in May and by July I finally was able to stop going in for fluid removal.

    Did I read it here? "Some women are just juicier than others". Truely, at my age that is not where I wish the "juice" was! Ha!

    Kymn,

    Love that smile and the short hair! I have been thinking of you since I first read about how things are going for you...referring the x. One way of releasing some of that energy is to take a few of the things that you have of his/your life together and BURN THEM! I did this once and it was such a release...I visually burned my ties to him. Moving on after that was much easier.

    For all of us: an affirmation I often use for release. You know the women you thought were your friends until you got F*BC or as in Kymn's case an X...

    I release you and let you go to your highest good. The good of one is the good of all.

    PEACE  

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  • lwarstler
    lwarstler Member Posts: 341
    edited November 2011

    Riley: Thanks, I can eat ok, its just that my stomach is non-stop icky feeling. Sounds safe though and if it helped, I think I'll give it a try. 

    Kymn: You look so great!!!

    Heidi: Thanks for the hair pics...so looking forward to the day! 

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited November 2011

    Kathrynn,  I had the slosh too, mine ended up draining overnight in my bed, disgusting and FREAKED US out!!  Then it did it again and got infected.  Drs office had to open and let drain.  They told me to keep myself binded together.  It's caused by space, your body is just trying to fill.  If you keep your self smooshed together it should go away. 

    Hope everyone is doing well, Suze, very glad to hear cough may be getting slightly better. 

    Had a fabulous weekend at Epcot with BF and her daughter.  She calls me Aunt Heather (No siblings so no real nieces or nephews) and I got to buy her all kinds of crap she didn't need.

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  • Luah
    Luah Member Posts: 1,541
    edited November 2011

    Kathrynn: I would report it to your BS. I know sloshing is not uncommon, but it can lead to complications. My sister's surgical site opened up due to/or leading to infection... which led to 8 or 9 weeks of daily nurse visits to pack the wound until it healed; chemo was delayed. Not trying to freak you out, but complications can happen and it's helpful to report to your doctor so they can keep an eye on things. 

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  • kathyrnn
    kathyrnn Member Posts: 393
    edited November 2011

    Kymm. Teka, Riley, Titan, Suze. Luah, Barberajo, McCrimmon- thank you all for the advice! I called the BS, yesterday and she confirmed it is normal. ( I laughingly suggested that they might want to add the sloshing breast thing to their list of what to expect after surgery). I don't have a drain, but if it's not better when I see her in a week, I'll talk to her about draining it. It also dashed my hopes that the surgery didn't appear to leave a big divot, lol, it only appears that way because it's full of fluid!



    Kymm, you look so lovely!!!



    Riley, love the sister story!



    Suze, I hope your visit with your father goes well.



    Christina - rest!!!!



    Bak, I'm 5 weeks out of chemo and my hair is doing the exact same thing.



    Lwarstler. I think somebody mentioned it, but couldn't remember the name. They gave me Aloxi and Emend with chemo (Aloxi last for several days, then daily Emend for 2 more days. Had no problems with nausea, but Aloxi can cause severe constipation.



    Off to see Heidi's time lapse photos

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  • JenC
    JenC Member Posts: 382
    edited November 2011

    My heart goes ou7t to Tysmom and her family.  She will be greatly missed by many.  THIS DISEASE SUCKS....

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Some more humor:

    Medical distinction between Guts and Balls

     
    There is a medical distinction between Guts and Balls.  We've all heard about people having Guts or Balls. But do you really know the difference between them?
     
    In an effort to keep you informed, here are the definitions:
     
        GUTS - Is arriving home late after a night out with the guys, being met by your wife with a broom, and having the Guts to ask: 'Are you still cleaning, or are you flying somewhere?'
     
        BALLS - Is coming home late after a night out with the guys, smelling of perfume and beer, lipstick on your collar, slapping your wife on the butt and having the Balls to say: 'You're next, Chubby.'
     
     
    I hope this clears up any confusion on the definitions.
     
    Medically, speaking there is No difference in the outcome.
     
    Both result in death.
     
     

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited November 2011

    Very funny Heidi!

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    HI everyone,

    Today, primary doctor took over monitoring high blood pressure and other routine crap.   I'll be having shingles vaccine ($166.00) at the county health department next week.   Probably not covered by health insurance.   However, MO and PD feel that I would only have a mild case of shingles if the vaccine doesn't give full protection.   

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  • beccad
    beccad Member Posts: 326
    edited November 2011

    Teka,  That $166.00 sounds like a bargain.  I was told by primary doctor that the Shingles vavvine was around $300.00 here.  My insurance won't cover it until I am 60.  We have sent an appeal in advance to try to get them to cover it, but with my recon surgery coming up in about 3 weeks, if they approve it I will probably wait until thats done.  I would hate to have to postpone that surgery to get over a mild case of vaccine induced shingles.

    Sigh, I guess I just take my chances and hope I am not exposed by a patient at work.

    Becca 

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  • Titan
    Titan Member Posts: 2,956
    edited November 2011

    k..must have missed something here..why do we need a shingles vaccination?

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    beccad,

    I didn't mean to imply that the shingles vaccine could give me a mild case of shingles.   However, there is a possibility that the vaccine won't prevent, but lessen the severity of shingels.   I am now 8 months out from last BC treatment and should have no serious side effects from vaccine.

    Titan,

    Only someone who has had chickenpox   ---   or, rarely, has gotten chickenpox vaccine   ---   can get shingles.   The virus stays in your body, and can cause shingles many years later.   A single dose of shingles vaccine is recommended for adults 60 years of age and older.

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  • Gator65
    Gator65 Member Posts: 72
    edited November 2011

    Hi, I am new here. Diagnosed on 9/28, surgery on 10/18. Had a partial mastectomy with oncoplasty and a simultaneous breast reduction. They did a sentinel node biposy and port placement as a bonus. 

    I got a mild case of shingle 2 weeks sfter surgery and also found out that I am allergic to Vitamin E oil, Who knew?? LOL!  So does this mean when I start chemo that more than likely I will have shingles outbreaks at the same time?? If so, oh Joy! I also have had to go back to the plastic surgeon to have fluid drained. It was 350 cc. Crazy! At least I can hold my arm to my side now.

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Gator65,

    The jury's out on that one, but most experts say no.   Most people who seem to experience multiple episodes of shingles are probably having a recurring infection with a related herpes simplex virus, such as cold sores, and not true shingles.   Welcome!

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  • Angelice
    Angelice Member Posts: 1,739
    edited November 2011

    Hi ladies !! Haven't been on for while, although I get to read some of the post hope your well ? I don't and won't let me add photo some reason ,,,, I prefer my hair short now before Chemo I never thought I'd ever like shorter hair but I do how things change ,

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