Calling all TNs

inmate4232010

survivor2be  i fel the same way about needles, surgeries and the like.  i figure whatever they are gonna do it won't kill me, have at it.  my favorite is when you hear "you're gonna feel a little prick".  like it need to be warned about that.  makes me giggle every time.  

thank you everyone for you words of support.  my birthday wish is for everyone to see how wonderful life is and enjoy each and every moment, even the shitty ones.  but i raise my glass to less shitty ones!

what can i say...it's early!  have a wonderful day!

OliveO

Sorry to hear about the difficult situations inmate and survivor ar going through.  I have gone through similar situation this year.  I figured after unilateral masc., chemo and rad in 2009, finishing rad in Jan of 2010, that I would be done.  Onc and supports were great and when all was done, "right now you are cancer free".  Skipped PET scan last year and this year decided to have PET scan.  Onc said it was a good idea.  Feb of this year pet scan lit up in same area as the lymph nodes that were removed.  In for lumpectomy in March, Dr. could not find it.  In May, had radiologyst insert wires before going into hosp, again for lumpectomy.  It was found.  I was diligent in my three month blood tests, but unfortunately, it did not help.  Not sure what is ahead.  I am done this year, no more tests for now, I need to focus on the Holidays and deal with it next year.

Teka

Survivor2Be and inmate4232010,

We so need to hold onto the good days )      HB inmate

Teka

OliveO,

My surgeon had radiologist insert wire to prevent repeat lumpectomy surgery.   However, I still ended up having 2 chemo port surgeries.   By the way welcome to this thread.  

OliveO

Thanks, just needed to vent.

denjak

OK---I have been waiting WEEKS for a surgery date. Am I just antsy or is this normal? I feel as if I want to do something...anything...not just wait. What is a "normal" wait? Thanks ladies....

Lovelyface

Three damned strong women, Survivor3be and Inmate and OliveO.  I can't even imagine what you are going through!  My hats off to all of you.  Teka is right, we have to hold onto the good days.

I would like to just add a little story which greatly inspired me today.  A very very popular, handsome as hell and highly famous Indian actor recently died. He was very famous in the 1970's.  Learned that he was going through dialysis and died of kidney failure at age 79.  Anyway, he was recorded a couple years back, saying "I go for dialysis 3 days a week and spend most of time at the hospital those 3 days, but I still get 4 days to spend as I wish,at home, having fun doing all the things I love to do.  I get more time to spend having fun, than the 3 days, and I am totally fine with it".  I thought he was such a positive man.  Being so popular, so handsome at one time in your life, and then your beautiful body deceiving you later in your life.  But yet he remained so positive till the end.  I am the kind who would have looked at my old movies, my handsome body and become highly depressed wanting to go back to those days.

I found it really inspiring.  All the days of our lives are not the same.  Even today as you face these horrible problems, it will not remain the same, it has to change, and it will change.  Sometimes change comes after some time, and the waiting is difficult, but just look back at our lives, we have gone through so many problems in our lives but things did change.

Hoping the best for each and every one of us who is on this unbelievably painful journey.

Suze35

denjak - what is the reason you don't have a surgery date? I apologize for not remembering, have you had chemo yet? If not, then it is time to get on the phone and not give up until they give you a date, they can absolutely schedule something. Have you met with a medical oncologist yet? If so, it may be time to get them involved in getting surgery scheduled. But this is YOUR health, do not be afraid to push them to set a date. If you aren't happy with the response, I would start looking for a second opinion. You will hear the old "a few weeks won't matter" argument, but TN is no lazy ER+ tumor, and the faster out in my opinion, the better. Good luck!



Olive - I'm so sorry you had to join us, vent away! It sounds like your recurrence was still local, which is good! What chemo did you do the second time? Hang in there, and stick around to vent whenever you need.



Lovelyface - what a great story, thank you for sharing. It is very true - I may have down days in the future, but as long as I have up days too, then I feel content. I can still hug my kids, watch shows and read with them when I'm down, take them out when I'm up... And who cares if I have to wear a scarf, or move a little slower? Not them! You are kindhearted woman, Lovely.



Inmate and Survivor - thinking of you two today, let's kick some cancer a**! Survivor, counting down the days with you...



Painting - that is so great about the house, wonderful! Keeping fingers crossed that all goes well. I'm going to go back and check out your latest painting in a few .



~~~~~



Had a great weekend with my BFF. We finally had time to really talk, without the kids around, and it was something we needed to do. The medium was very interesting! I'll write more about it later, but on a positive note, she feels I have more time than I think, and to keep up with the complimentary stuff I'm doing, it is the right thing. She feels I have a lot of living still left to do - and I agree! So it was a pleasant reminder for me to keep fighting .



I am sitting in the waiting room to have my CT done, but I probably won't hear anything until Wed morning when I see the doctor. I am expecting some progression, so I really don't mind waiting another day to hear. Amazing how I've learned patience in this journey, I never thought I ever would, lol.



Have a great day everyone!

Teka

denjak,

Today, you should push for surgery in November.   Do you live in the USA?   

JenC

Hope you are all doing well.  I had a big scar and went in for a bone scan because my hip had been really bothering me for a few weeks and my doc thought maybe bone mets.  Nope, just some arthritis.  I never thought I would say yea to having some arthritis at 38 years old, but compared to the alternative I will take it... 

Luah

JenC, I know what you mean. I am going for a bone scan tomorrow because of some back pain I've been having... and I'd love to hear it's arthritis!

denjak: yes, I agree with the others. Keep calling until you have a date.

Swanny

LauraJane.  Just read your past posts.  I am so VERY HAPPY for you.  You sound wonderful.  Continue the good work and that healer and your once are both miracle workers.  I am so glad you found them.

TifJ

JenC and Luah- I just went through that scare last month! Bone scan just showed I am getting old!! (46).

Survivor, Inmate and Olive- I'm sending you good vibes!! Hope they help!

Suze- glad you had a good time with your BFF and wishing for good, no GREAT CT results!

MBJ

Sorry I haven't been able to post more-I have been reading everyone's but not posting myself.  I highly recommend David, Laurajane's healer.  I haven't been able to move my arm since August and after 10 minutes with David and a long painful night of my arm regaining it's nerve endings, I was able to move my arm, do my stretches and not be in excrutiating pain.  He said I had "frozen shoulder" from the MX and recon and that everything else was just a re-injury.  Don't get me wrong-it still hurts but I have mobility and less pain.  He said if it doesn't resolve in a couple of weeks to come back.  I can't believe he lives 20 minutes from my new home!  And here I was worried how I was going to deal with having no insurance in Louisville.  

JenC:  I am so glad your scan showed nothing, though the arthritis sucks.  

For all of the newbies and for those of you struggling, we are all here for you! 

riley702

denjak, don't be afraid to bug the crap out of them until you either have a date or understand why not (labs, pre-op scans? Do they want you to do chemo first?). It took a month for me to go from seeing my primary care doc about the lump to starting chemo. (see my doc, get mammo and US, get a biopsy, wait for results, yes, it's cancer, make an appt with the surgeon, surgeon says you need chemo first, make an appt with the onc, sign up for a clinical trial, get a port put in and schedule first chemo - Whew!) My nurse navigator had to "talk me down from the ledge", I was crying and positive all this waiting was going to get me killed. (((hugs))) Let us know when you get a date, OK? 

GrandmaBubba

Dear Sisters - I'm visiting this thread with a sad update. Tysmom lost her battle yesterday. She was a brave and tough woman. She fought to the end, but God wanted her to be with Him. No more procedures, pain or tears. She will be missed dearly.

Teka

GrandmaBubba,

I am sorry that Tysmom lost her battle with BC.  Was she TN?

Lovelyface

Suze - thanks for the kind compliment.  I am glad you had a big heart to heart talk with BFF.  Can't wait to hear about what the medium said.  I already knew you have a long life ahead of you.

Luah - I also have neck/back pain, am in physical therapy and it doesn't seem to be getting any better.  Am getting worried now. It starts at my neck and goes down the spine.  I also have a lot of tenderness on the soft tissues under my left breast, the soft flesh/tissues, not the rib bone pain.  What the hell is that?  Is that lymphatic liquid or something which collects there or what?  I have always talked about this, maybe I am the only one who has this, and it seems to come and go. This one is actually lump like but I know it is not cancer, because it is very tender.  I massage for several days and it goes away, hoping that this one also goes away as it has in the past.

 GrandmaBubba - I am not sure if I saw any of Tysmom's posts here.  Maybe I missed them, but   I am so very sorry for your loss.

MBJ - Frozen Shoulder, wow!  Who would have thought that?

JenC - Happy to hear that it was arthritis (not really, but you know what I mean).

I know two people who recently got diagnosed at work.  One with lymphoma and one with BC, both our two top executives.  I am in disbelief today.  This is a plague, a great epidermic of our time.

LRM216

So very sad about Tysmom.  I am so very sorry to hear she lost her battle with this beast.  My sincere condolences to her family and loved ones. Yes, Teka, she was triple negative and posted on the Stage IV thread.  I believe she was diagnosed in early 2011, but then found it had already spread and was stage IV.   I hate the effing disease.  She was much too young to lose her life to this shit. 

Linda

Teka

LRM216,

So sad.

Suze35

GrandmaBubba, thank you for letting us know. My thoughts are with you and your family through this.



She was far too young, and only had seven months after her second diagnosis. The disease is just so cruel and uncaring, there is no meaning to it. I am so very sad.



Where is the cure? Where are the drugs to help US? How many more children have to lose their mothers and fathers?



You all are wonderful, thank you for being here.

Babs37

So sorry to hear the news about Tysmom.....................My thoughts are with her family.

MBJ

Such sad news and yes, much too young to die!  I hat f#@*ng BC!

ksmatthews

so sorry to hear about Tysmom.. condolances to the family...

BernieEllen

Hi everyone have been lurking for awhile.So sorry about Tysmom

mags20487

Prayers and hugs to Tysmom's family and friends...this disease sux!!

Maggie

mccrimmon324

So sorry to hear about Tysmom, so F'ing unfair! 

Sandlake

Heartfelt prayers to Tysmom's family and friends!

Paintingmywaythru

So very sad to hear about Tysmom, my thoughts go out to her family and loved ones.

BarbaraJo50

Sending love to Ty and all of Tysmom's loved ones.