CALLING ALL STAGE I SISTERS

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  • jo1955
    jo1955 Member Posts: 8,543
    edited December 2010

    For all of those who are in the snow - stay safe and stay warm.  Don't get out in it if you don't have to.  Hope one on has to delay treatment because of the white stuff but if you do, hopefully it will only be one day.

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  • deborye
    deborye Member Posts: 7,002
    edited December 2010

    I just posted some pics on FB from out my back door.

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  • annettek
    annettek Member Posts: 1,640
    edited December 2010

    Thank you all for being so darn nice! It is hard to get out as my youngest (24) is autistic but then his big brother offered up hanging with his bro' for a few hours-Went out for lunch with my husband (almost didn't when he asked-realized I have bad habit of pulling back then feel bad for nobody loving me?!?!?) - it was just really relaxing-nothing fancy, dare say I felt normal (or as normal as I ever have felt) just a few minutes with a guy I still love after almost 35 years of marriage...You guys all rock! Be safe in the snow...

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  • ThereIsHope
    ThereIsHope Member Posts: 62
    edited December 2010

    I haven't been on the board for some time and I find that I now have a question.  I am over 6 months out of chemotherapy.  I found myself feeling much better with each passing month since the end of chemo...just as my oncologist told me I would.  What I have recently noticed, though, is that I am having increasing periods of that "low energy" feeling that often accompanied my chemotherapy for a day or two.  Gosh!  I am long since out of chemo!  What is this?  It scares me a bit.  I can remember also feeling this way just prior to the confirmation of my diagnosis.  Is there anyone out there who has experienced the same?  Is this normal?  Thanks for your comments.  Karen

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  • jo1955
    jo1955 Member Posts: 8,543
    edited December 2010

    annettek - Through out your treatments, always find time for yourself.  You deserve it.  Allow others to do things for you and DON'T feel guilty.  Treatment is time consuming and can be difficult if you have to shuffle lots of things around.  Try and keep to your normal daily routine as much as possible.

     

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  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    annettek....Welcome to our group.

    Good for you, you went out with your husband. sometimes we have to think about ourselves.

    I never forget the year I was DX my daughter was graduating from College and we were going on a vacation.......The first thing I said to my DD was how sorry I was about the vacation and she should be studying like nothing was wrong and graduate.

    You know what she told me.  <MOM you have to stop putting everybody before you and take care of yourself>

    Hugs

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  • Char2010
    Char2010 Member Posts: 532
    edited December 2010

    ThereIsHope - I finished chemo mid-June and radiation end of Aug.  Have been feeling more fatigue recently, especially in the morning, then when I was going through active treatment.  I am on Arimidex - and I think that fatigue is a side effect (not sure though).  Just had a follow-up appt with my oncologist and she added a test for iron to my labs - should get results soon.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    ThereisHope....Sorry i missed your question.

    With me it took a long time to feel myself again.

    But if its really bothering you mentally give your DR a call.

    Please don't put yourself in unnecessary anxiety mood.

    Hugs

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  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010
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  • deborye
    deborye Member Posts: 7,002
    edited December 2010
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  • jo1955
    jo1955 Member Posts: 8,543
    edited December 2010

    Char2010 - I was on Arimidex for a short period of time and I had the fatigue.  Had started it before rads.  Pretty sure it was from that.  

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  • ThereIsHope
    ThereIsHope Member Posts: 62
    edited December 2010

    Char2010 and Seyla...Thank you SO MUCH!  I've done so well in the "attitude" department and this really surprised me as to how it affected my positive outlook.  I feel much better knowing that this may very well be a SE from my Arimidex.  Appreciate your taking the time to help me.  Have a good evening!  Karen

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  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    granny....We missed you....Did you get home?

    I had one of my TX in a blizzard day. I thought they were gonna close the office......

    Hugs my friend.

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited December 2010

    NO I AM STUCK.....in PA...blizzard in NJ and PA>>>>>soooooo.ill just relax(try) and watch my great grandson taking his first steps.

    please think of me as sometimes tomorrow if this darn storm stops i have to get home.my GD has to be in work tues.the latest.

    im angry that im missing my tx.i just want to finish this long drawn out crap/

    huggggggggs

    k 

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  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    how far are you from home?

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  • JanetinVirginia
    JanetinVirginia Member Posts: 1,516
    edited December 2010

    Let it snow, let it snow, let it snow...

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  • JanetinVirginia
    JanetinVirginia Member Posts: 1,516
    edited December 2010

    Whoops - sorry that's so BIG.  Still getting hang of this :)  Hope everyone is cozy & warm.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    JV...dont feel bad i still dont know how to cut pictures.

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  • theresap60
    theresap60 Member Posts: 947
    edited December 2010

    ThereIsHope:  Did you over-do it these last couple of days?  I've been out of chemo since May and Christmas Eve and Christmas Day I was completely fatigued, like you said, as if I had chemo.  Even my legs were sore/achy.  I took naps, which I normally don't do.  I'm better today.  My onc told me that it would be a good year before I was "normal"... but I'm on tamoxifen for several years, so I doubt I'll feel normal for a long time.

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited December 2010

    I am 3 hrs.from home without traffic.the way i look at it now its probably about 10 hrs with this blizzard....its bothering me that the weather forecast for both NJ and PA said a lite dusting....if this is a dusting what do they call a storm.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    Im sure the busy roads will be cleared by Tuesday.

    If your appt is early call and change it for the afternoon.

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  • jo1955
    jo1955 Member Posts: 8,543
    edited December 2010

    For everyone having to deal with the massive snow storm - just be safe.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    thanks jo.

    Is my room ready to be rented yet/Wink

    Im flying down to deep South.

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  • deborye
    deborye Member Posts: 7,002
    edited December 2010

    thereishope~I am on Arimidex also, and have the joint and muscle pain.  I find that I don't have the strength that I used to, like lifting things or opening jars, it frustrates me.  I will be off it July 26, 2012. 

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  • jo1955
    jo1955 Member Posts: 8,543
    edited December 2010

    Sheila -  Will go prepare the bed right now.  For us, it is cold here - gonna get down in the 30s tonight but have plenty of quilts I have made over the years.  Hope you don't mind a small dog.  Once he gets to know you, he will want to sleep with you.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    Deb...Do you feel relieved or nervous?

    Because I'm kind of nervous well I feel very uneasy about March 2011  End of Femara.

    I feel like nothing is gonna protect me anymore.Frown

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  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    Oh I love dogs and they love me.

    My neighbor's dog runs inside and doesn't want to leave.

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  • deborye
    deborye Member Posts: 7,002
    edited December 2010

    Right now I feel nervous.  In March I will be seeing my onc again with the results of repeated BW with a few new tests added to the list.  I hope the CA 27-29 is normal this time.  Oh well we will see in March, I can't worry about it now.  I will have the BW done the end of February cuz my appnt is March 4th.

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  • deborye
    deborye Member Posts: 7,002
    edited December 2010

    If she wants me to stay on Arimidex, I will do so.  I hear some onc are doing more than 5 yrs.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2010

    My Oncologist already announced at last visit that I'm stopping Femara.

    Probably he will schedule me once a year check ups which is good but too much security blanket has been taking away from me at once.

    Okay I'm not gonna even think about it.

    Good Thoughts Good Thoughts...........

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