MIDDLE-AGED WOMEN 40-60ish

luvmygoats

((((Dianarose))))

elimar86861

Heads up!  I'm jumping into Dianarose's pocket, and I've got "breakfast" with me.  We can start on these basic Bloody Mary's.  I think Barsco will be bringing her recipe later.  Since I cannot actually have alcohol or even celery or even a beverage containing ice, I'll have a double!

                                                                    

Momine

Someone said we needed waiters. I found these guys in Sydney (their FB page is called "Topless Waiters" and the guy on the far left is mine, since I found them I get first dibs ):

Momine

Oh, we need something for them to serve:

elimar86861

Mimine, Sydney who?  Please tell me you mean Australia.  

maryah930

Hugs Dianarose.  

luvmygoats

Well, Momine, aren't you the miracle worker. I'll take one on the right.

I thought maybe some chocolate dipped strawberries so a semblance of breakfast/healthy. Does that go with bloody mary's???

Y'all keep quiet so Dianarose can hear. Too much snorting/snickering.

Momine

Eli! You are worse than I am, even if you achieve this feat without the use of bad words Yes, the nice boys are Australian.

Beatmon

I'll take any of the left overs.....guys that is.... All my thoughts with dianarose. Be

elimar86861

Momine, that's how I stay admirably naughty, and the scary part is how effortless it is.  (Snort!  Snort!)  Since you have dibs on my first pick of hot waiter-boys, send over the one going commando in the overalls.

Also, I am floating in a chemo fog today.  I'll be getting detached from my home pump later today, so the fog should lift after that.  My calves are hurting so bad, it is hard to go down the stairs.  The tip of my tongue is numb again.  I HATE chemo, HATE it.

luvmygoats

Eli - I hate it for you too but so long as its kickin' those little s***s to the curb. How long are you available in the detached state?

So you drank the tomato juice and left us with the alcohol, celery and ice or is tomato juice on your list of consumables.

Momine

Eli, harumph! You wanna make sumtin of it? I don't mean the boys, but that italic "admirably." What am I ova here, chopped liver?

But, I will still let you have overall boy though. I am big-minded that way Although my boy has on underpants, they don't seem to do much good, ahem.

luvmygoats

I don't know that Mr. Overalls guy has on any. Just sayin'.

elimar86861

Oh, you have absorbed some NYC, haven't you, Momine.  I think your guy is holding my guy's tighty-whiteys!  Don't ask, don't tell.

Luvmygoats, I don't even like tomato juice, but since I can't have skins or seeds of real tomatoes (or other vegetables either,) I did buy myself those small cans of V8 juice to drink at room temperature. 

Not that it is good for me, but I cannot help wanting salty food more on chemo.  Did anyone else get this?  I remember my mom was always asking me for table salt for her meals.  Our family rarely uses "table" salt, that is, have a shaker on the table to add more than the little we might put in a cooked meal.  Now I find myself sprinkling it on meals, and it seems to make the food taste more normal.  Can the high blood pressure be far behind now?  Ai-yi-yi!

I only wear that home pump for 46 hours.  I say only, because when I did neoadjuvant, it was on 24/7.  I don't really like going out and about with my stange little attachment, but the times when I did, people did not even comment and maybe not even notice.  They probably thought it was just an ugly shoulder bag.  I would post a pic of what my little Hitler in a Handbag look like, but BCO images is not working for me right now.  ???

                                                  

                                                      

barsco1963

"admirably naughty" - love it! I hate chemo for you too Eli. Good thing you don't make a habit of biting your tongue - it being so numb you might just bite it off - ouch!

Food, drink, dancing boys ..... It doesn't get much better.

Dianarose

WoW- that was a pocket party with a WoW factor. I want the one with the bib overalls!!! You ladies were great. Made that MO answer all of our questions. I know some of you had one to many Bloody Mary's so I will re-cap. They were delicious by the way. Eli, I hope you had 2.

Who would have ever thought that being stage IV is the best senerial in this case. Doc agreed that was the worse path report he had ever gotten back. He said he actually was hollering at them on the phone yesterday. There are mistakes in the report. Yes, the cancer is actually in the ovary and fallopian tube (he got this during his phone call). There was absolutely no signs of cancer until they sliced through everything. The tissue was still soft, which he said is a good thing. The Her2 being positive is something that he thinks is wrong. Momine, as you mentioned, everything is now being sent to a lab in Boston for a 2nd opinion. He wants to make sure that it is indeed mets and not ovarian cancer. We want it to be mets. Ovarian cancer would mean another major surgery and more chemo, no thanks. I am going to have to have another CAT scan. Yuck. I don't do well with the contrast they put in the IV never mind the bottles of crap you have to drink the night before. He said if nothing lights up he will put me back to NED status. We love NED. I have to have a bone scan as well. Never had one of those so maybe someone can enlighten me to how that one is. I don't like surprizes. Blood work is on the menu again for tumor markers and all that stuff. A lot to get through to make sure the little bastards aren't hiding some where else. He believes that they were in the ovary from the get go, so like many others, stage IV right out of the gate. He said lobular likes the ovaries so why he wanted to give me a shot instead of removing them before is still questionable. He said that they really don't grade lobular, which is again questionable. Said lobular is usually mid-grade so they consider it all about the same. He wants me to heal for 2-3 weeks before the tests so we get good results. The results from the new path report will take about 2 weeks. I told him that I want him to call me when he has them. I don't want them 2nd hand from the ps who could not answer any of my questions. He actually answered all the questions today instead of talking in circles. I think all you ladies intimidated him. Great job !!!

Thank you all for being in my pocket and so supportive. I know I have a lot more hurdles to jump over in the next month. Thank God I have long legs.

macatacmv

Oh,diana, queen of tarts, praying your mind can absorb all the info thrown at you today. Came to the party late,so just cleaning up after you all. Where'd those cute guys go.......

I am starting back on the arimidex again. They want me to try it one more time. I was just getting use to feeling better. Since I've still part of a bottle left,I said ok. But it sure feels like we're experimenting here.

Birthdays are just another reason to party in my book.I don't think I've acted my age in a long time. When I was younger I acted older, now I act younger. A person told me the other day that I looked like a teenager. LOL must be this bc regimen.

macatacmv

Diana,I just saw your post! So yay for NED!!!!! Get on with the healing, and we'll be with you for the hurtles. I'll be pushing you over since my legs are very short.

elimar86861

Dianarose, It does seem to make more sense now, and I'll stay hopeful that the scans come back clear.  NED would be great.  The bone scan is one of the easiest.  You get a radioactive injection, then wander off for 2-3 hours before coming back for the scan.  The scan is usually between 30-60 minutes on an open table, so no claustrophobia and no loudness either.  You might even be able to watch the monitors as they do it, depending on how it is set up in the room.

Dianarose

Eli- the other thing we wanted to know from the path is how well defined is this cancer. We want to know if it appeared chemo had any effect on it. We want details of was it alive and healthy or on it's way out. The path report can tell so much more than the one these people did. The MO couldn't believe that someone else actually signed of on this guys report. Is the radioactive dye similar to the one you get with a PET?

barsco1963

Diana - I think we are all breathing a bit easier now that you have some answers. It is good that the cancer was in the ovary and that IT IS GONE! I am very happy that you got all of your answers today. We will all be in great shape as we jump those hurdles with you!

If you are able to see the monitor during the bone scan - don't be alarmed if you see lots of spots lighting up. I am not sure what it is but I have had a couple of scans that are very sparkly and they have all come back clean.

Get to healing now girl! I hope the next couple of weeks pass quickly for you so that you can get the path back and find that NED is lurking around and not those damned mets!

xoxo

Momine

Diana, I am so glad your onc yelled at the lab and was able and willing to give you the straight dope. One thing I have learned from cancer treatment is to trust my instincts, as you also did. Several times my onc thought I was overreacting, and every time it turned out to be the right call.

I fervently hope these were stray cells and that the surgery will mean the end of the suckers.

heartnsoul76

Diana - so happy your onc did a good job of explaining all of this AND is getting another path report.  It pisses me off that your other one was so poorly written - so careless for something so important.  So heal up fast and well and glad you are forging ahead with the Queen of Tarts!

Chocolate should help things along...

elimar86861

Dianarose, I can relate to what you are saying about finding out what the chemo did.  Yes, it should be able to note the appearance of the cancer that was still left.  For example, I had that rads/chemo combo before surgery.  I do know that my 5cm tumor was shrunken down to a mere 1mm x 6mm strand and all removed.  I know less about the nodes, about the active cancer that was still in them.  I never did ask if it was a lot or a little.  I do know that my cancer was graded at moderately differentiated from the biopsy, and then as well differentiated in the surgical path.  So, it seems like the worst mutant cells died and what was left was closer to normal, tho' still cancery.  In the end, knowing every last detail would not have changed the course of what came next, so I did not pursue my line of questioning any further.  I think a big part that needs to be answered for you is whether the HER2 was correct or not.  That is going to make a difference in treatment, I think. 

The radioactive tracer for bone scans is not exactly like the PET material, which also relies on uptake of glucose.  The bone scan is one of the least expensive scans and the radiation dose you get is nowhere near that of a CT.  I'm a fan of them for those reasons, but I have heard that while the bone scan is very good in showing abnormal growth of bone (blastic lesions) that it does not do as well on bone breaking down (lytic lesions.)  None of these scans, no matter the cost, seems to be perfect.  If you have ever gotten scans at two or three in a clip, you will see how image shapes and sizes vary from report to report.  How annoying!

Eph3_12

breathing heavy sighs of relief, both from being out of the pocket (I have an imprint of an overall strap on me.  How did that happen?) and for the tentatively wonderful news that doctor gave you.  I knew giving him the stink-eye would help!

Anonymous

I'm rooting for NED, Dianarose. Glad your doctor could give more clarity on the report and is aggressively following up.



Thanks for offering me a PP, Barsco! I'm going to Mexico just for the weekend and my son is coming out on Sunday to celebrate Fathers Day......so I won't have too much time to dwell on the test (can you believe it is Tuesday at 8:50 PM!!!? That's almost my bedtime! It was either that or wait until July and I want it done before my next appt w/ my MO on July 1,)



Surprise to me! I received a call from Nordstrom's that my "authorization" for new bras was in! I didn't think I would be eligible since I've had the first part of DIEP and don't née a prosthesis anymore.....but my new boobs aren't fitting the old bras well.....so I'm going to take advantage of the benefit!

luvmygoats

Dianarose - Well, well, some answers. I'm cheering for NED also. Sounds like your MO has taken the proverbial bull by the horns. Gosh I know I would have wanted a 2nd opinion on the path at least if not a 2nd MO opinion. Way to go. So when can you expect to get more definitve answers? Will keep you close in prayer.

Chachamom - Who the heck schedules tests at 8:50 pm? Well that will be late for me but count me in for a PP. Name your favorite snacks and we'll supply them.

Anonymous

Hmmm....favorite snacks sorbet, spicy hummus and spicy men :-)

......and I'm addicted to carbs, so anything from the "Queen of Tarts" bakery would be yummy!!!......since it will be so late, I'll skip the margaritas and have some red wine!



Dare I say I'm looking forward to Tuesday night? Well.......more than before!

barsco1963

Chachamom - I think we definitely have the spicy men taken care of. Those Aussie's are welcome to join in anytime. I have a new recipe for avacado hummus that I can spice up for you.

Our local hospital does MRI's 24hrs/day so you could have a test scheduled for 2 or 3 AM.  YUCK!

luvmygoats

OHH Barsco I would love your avocado hummus recipe. Have to attend a mexican food party weekend after next and recipes are always welcome. Well let me say with Eli's approval.