Thinking Out Loud.....

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  • Makratz
    Makratz Member Posts: 12,678
    edited June 2012

    I'm so sorry Ducky.  Those costs are outrageous!

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  • sheila888
    sheila888 Member Posts: 25,634
    edited June 2012

    Ducky...sorry that's too high for copay.....i know when I finished Femara last March...30 day supply was $465.00...it's almost like you are paying for your RX.....

    Maybe you should try the generic and see.......meanwhile go to shore and have good time......

    Femara has a low copay program...at least they did until last year...Let me check it out for you.......

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  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited June 2012

    Sheila - I will try again when you are not with SAM :)  Or after all those PITA appts.

    I am seeing onc tomorrow - I stopped taking Arimidex two weeks ago and feel so outstanding I don't know what to do.  After all the cortisone and hand surgery scheduling plus the pain, I needed a break.  He is going to be pissed I am sure.  He is going to have to make it doable for me.

     For those of you who watch Red Sox, I will be at the Mariners/Sox game tomorrow night with a friend from MA who FIL is the owner.  Part of the time we will be in the owners box but most of the time in the front row - easiest to see us with a lefty.  Text me if you see me :)

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  • Makratz
    Makratz Member Posts: 12,678
    edited June 2012

    I will see if I see you!  My parents were in the front row of today Sox game.  Hope you have fun!

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited June 2012

    H

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited June 2012

    (Got a bug in my throat....) LOL



    Hello everyone! I've missed you all here so instead of stalking I wanted to say hey!

    Sheila...whoooo guna be a long day girl! Hope they have a good cafeteria! ;)

    Ducky....holy shit. That's crazy. Have you tried any saving clubs? Walmart? Mail order? Calling the drug manufacturer? Anything I can do to help you? For me the shitstorms get to be too much and even a phone call can be too much....I'd gladly make calls if it would ease your worries....

    NH sounds wonderful....I'd love to go East this year.....

    XOXOXO everyone: )

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited June 2012

    Fuzzy.......you are a true friend...thanks for caring.........I made so many calls yesterday to every place I was told, and every place I knew of.......Astra Zeneca was wonderful.....ready to send the pills, but need $689.00 in copays, and didn't meet that requirement.........also checked pacenet..was short there............Starting today I will be going to LE therapy "again", and it wll be a $40.00 copay every day , and I will be going 3 days a week.........that will be almost $500.00 a month in copays.........sounds good right,...............not...............that is considered "medical", not Pharmacy related co pays......

    Pacenet told me I was $400.00 more then I could be to get help from them...........Imagine a yearly income of $21,000 and they tell you..........you get too much money to qualify...............

    Called another place, and after pushing all the required voice mail buttons....the person on the voicemail said......."when I get to what disease you need help for say "yes"............when they got to BC, I said yes, and the voice said "sorry we are not giving assistance to BC patients now"................I said "fuck you", and hung up.

    Thank God my grandchildren were not within ear shot of me, and my truck driver mouth...................I think my grandaughter thought the phone was growing out of the side of my head yesterday..........everytime she saw me I had it on my ear.............finally she said.............Nan, would you play Scrabble with me and Sean...........of course I did, all the while thining...................God I hate cancer............

    So bottomline, if I already didn't say it...............I ordered the Letrozole which cost $62.00 for a 90 day supply.......and my plan is to try it..............if it gives me more SE's then what Femara has done (and they are wicked),,,,,,,,,,I will "STOP"................altogether.............I will take my chances with recurrance.............maybe I won't get a lot of years, if any, but at least I will reach life's end in comfort, and not "piss poor" from paying for a drug that is literally "killing" us anyway............just takes a little longer..............I have no intentions of spending my life in a "wheel chair".................with the aches and pains.......thatis where I'm headed................

    Thanks Fuzzy for listening, and hugs to you............if I can do anything to help you too, don't hesitate to ask.......I worked for a Pharma company for 15 years, so I know how they operate............trust me, it is not big Pharma like they say...........It is the Insurance companies, and the Hospitals sending this Healthcare system down the toilet....................

    Plus generics are not the identical to Brand drugs...................dyes, fillers, do not have to be the same, and sometimes that is what gives you worse SE's then the Brand................will try and see how I do.............It can't get much worse then it already is.

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  • chabba
    chabba Member Posts: 5,065
    edited June 2012

    Ducky, Before giving up completely if the generic dosen't work you might think about talking to your MO about Tamoxifen.  When I had really horrible SE's from the Al's, my MO switched me to it.  That was 20 months ago and I was nearly 18 years out of menopause.  I've had few SE's and they have been mild.  Definitely doable for me.

    Edited to add:  PM me if you want to talk about my experience with it.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited June 2012

    Ducky that sucks, I am poor which I guess works both ways, I am so sorry, navigating the system is horrible and my thing is always what about the people that can't do that or don't know how to do that....cancer sucks

    Shiela.....it is YOUR DAUGHTERS WEDDING don't let anybody take that joy away from you..

    Linda have a good time....

    Deb and Chris where are you.. 

    Well you know what it never occurred to me that people actually talked on the phone, what a concept....so my cell # if 610-848-0655 for anyone that wants it, gall bladder out tomorrow, thank goodness....92 or so here and down the shore next week for 4 days, Ducky where are u, me Holly Lake on 47.....

    sandy

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited June 2012

    Chabba...........I have had 6 blood clots in my legs................deep vein.........Tamox was already suggested, but when the MO heard Blood clots.......she said "no way" can you do Tamox................so I have ordered the Letrozole..........we will see what happens...............I asked who the Mfg. was, and they told me Teva.....I heard they run a pretty good "ship", so here's hoping they don't use "shit" for fillers..................I guess time will te..

    Waiting for my daughter to come......heading to my shore home for 12 days............with her and my grandchildren.........11, and 13...........love those guys..........and another daughter and her husband is coming down Wednesday and staying till Sunday, July 8th..............so I will "pack up my troubles in my old "kit bag", and smile, smile, smile..............what the hell else can you do.................no one wants to be around a "Ducky Downer"...............lol.......love you guys.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited June 2012

    Update...I survived all my 3 appointments....lalalalalalalalalalalalaaaaaa

    Mammogram=Smile

    MH=Smile

    Dermatology=Undecided

    Scalp is really acting up....red patches and was prescribed some scalp lotion.....it burns like hell when I pour the shampoo...good news is...I wasn't expecting Ins to cover it but they did Surprised

    Ducky i hope the generic Femara works for you...meanwhile have a nice vacation with your family

    (((Sandy)))   (((Chabba))) (((Fuzzy))) (((Diane))) (((Linda)))

    (((♥TOL♥)))

    time to take a good shower...I was touched by too many people today  Wink

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  • sheila888
    sheila888 Member Posts: 25,634
    edited June 2012
     
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  • chabba
    chabba Member Posts: 5,065
    edited June 2012

    Ducky, Teva makes one of the generic Tamox versions.  A while back there was a lot of discussion about generics and SE's on the tammy topic.  Teva (the one my pharmacy dispenses) had about the fewest reported SE's.  Hopefully they exercise similar quality control with other generics where filers etc. are concerned.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited June 2012

    Humidity started to show it's ugly face again.

    AC is turned on

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  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited June 2012

    I survived my med onc appt today too.  He walked in, looked at me and said "so, when did you stop taking Arimidex".  I said a little over two weeks ago.  He said you look great.  We reviewed all my statistics and for me, I have a 9% possibility of death from BC and a 4% of recurrence.  I have only made it 15 months and he really wants me to try for at least two years.  So off I go to fill Femara and see what happens.  If that doesn't work, then we will try every other day and if that doesn't work, I am done.

    Ok, I am off to the game - it is pouring out so thank goodness for the roof. Message me if you see me!

     And Sheila - YAY!!!!

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  • Makratz
    Makratz Member Posts: 12,678
    edited June 2012

    Ducky, I looked online for you too and was shocked at the cost!  That is so unfair!  Have you talked to your doctor about the costs?  They may be able to help.  Have fun at the shore!

    Good luck tomorrow Sandy.  I'll be thinking of you!

    Glad everything went well for you today Sheila.  Who's touching you tonight?  Sam???

    Message you Diane??  cell???  text????  I don't have your number but will be looking for you!

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  • sheila888
    sheila888 Member Posts: 25,634
    edited June 2012

    Linda......GF & I will celebrate tonight.....not sure about sam....i'm keeping it cold just in case

    Sandy...how long you'll be in the hospital/

    Diane...there is always something...sorry

    How is your weather Linda?

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  • Makratz
    Makratz Member Posts: 12,678
    edited June 2012

    It's not bad now but is supposed to be hot and humid for the next 3 days.  Once I get to NH I will LOVE this weather.  I will soak in the lake allllllllll day!

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  • deborye
    deborye Member Posts: 7,002
    edited June 2012

    I took Tues and Wed off to meet Nick's parents, Chris and David. We hit it off so well, it was like we knew each other for a long time. We went on the MS Mount Washington on Lake Winnipesaukee, it was a bit cold and winding but we still had a great time. Then we went to Portsmouth NH *that is were DD, FSIL and Chris & David were staying.* DH and I booked a room then  we went to Ogonquit, Kennibunkport the next day, saw the Bush Compound, very nice went into tons of gift shoppes then we ate in Kittery at Roberts, had some drinks and apps. Went to their hotel, chatted then came home. We won't see anyone until August. I love their british accent.

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  • Makratz
    Makratz Member Posts: 12,678
    edited June 2012

    Good for you Deb!

    I am watching Diane.  Lots of lefties.  The dang score keeps blocking the seats!

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  • sheila888
    sheila888 Member Posts: 25,634
    edited June 2012

    OK...I know we suppose to see Diane on TV...but what channel?

    Deb....i'm really happy for you that you are getting alone with Nick's parents.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited June 2012

    Linda...I'm happy you are watching Diane.....help me to watch her too....

    Please hurry up

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  • Makratz
    Makratz Member Posts: 12,678
    edited June 2012

    I can't see her!  There are 2 empty seats in the front row.  Are those yours?  DH even paused the game so I could check out the people!

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  • sheila888
    sheila888 Member Posts: 25,634
    edited June 2012

    Which game..what channel

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  • Makratz
    Makratz Member Posts: 12,678
    edited June 2012

    Here it's on NESN.

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  • Makratz
    Makratz Member Posts: 12,678
    edited June 2012

    Ortiz is up!  Where are you Diane?????????????

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  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited June 2012

    Blondie46, Good luck tomorrow with your gall bladder. Hope you have a swift recovery. Remember no lifting over five pounds for the next several weeks.

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited June 2012

    Oh I love you all....love love love love love....sounds as though appts are going pretty well! Sheila....if your scalp doesn't get better...let me know...may have a few tricks up my sleeve...

    Ducky love...what about a savings club? Have you tried one of those? I'll PM you after I try to research it a bit so you may not need to. Yes...big business is rooted in evil. I can't imagine how frustrated you must be. Have you looked into any grants through your hospital? Those are never advertised and there could be funds there....

    I'll be back.....

    XOXOXXOOOXXXOOO

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited June 2012

    Forget the savings card thing....$720 for a 90 day supply!!

    I'll look some more....

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited June 2012

    This looks promising!! Have you looked at NeedyMeds.com?

    I book marked that one myself.

    Just wondering if you looked at the Femara website for assistance already....

    There could be local assistance that the hospital staff may know about....the social worker would be a great help for that...

    Cancel that Femera website...they took that drug out of their assistance program apparently...



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