please help

livesstrong

UGH!!!!!  Just wrote a nice long post and my computer went down!!!!  UGH!!! Damn phone lines - spent about half hour on the phone talking to a recording!!!  Managed to schedule a visit with a repairman for Wed. 

HE BETTER FIX IT!!!!!!

Ok, I'm better now.

Sue, just remember after tomorrow you will have one MORE "under your belt".  You are getting closer & closer to OZ !!!!

Ulla -rads are MUCH easier then chemo -  I had 35. Went to the hospital for my 7:00AM treatment,was done in 5 minutes and off to work I went!!!  If I got tired, it was always in the early evening - I would lie down for a bit then I would be good to go. You should do just fine.

By the way, with the wind chill it was -4 this morning!!!!

bbl,

Valerie 

honeygirl

Auntie Em , I live in northeast Ohio. It is known as the snowbelt. I am about 5 miles from Lake Erie , so we get all the lake effect snow. I think we got about a foot and ahalf over this past weekend. Wind chill , -8 this morning!Brrrrrrrrrrrrr

sueps

Gosh A.E and Melody...you got it cold...brrrrrr...that is sooo bad....I thought I was cold out this evening...you are very brave!!!

I have just been talking with o/h ...about blergghh chemo and not going for anymore after tmw...I am so so so out of energy...and I havent had any chemo since end of December!!! My tummy feels all squelchy...and I am really sick...I have gone off tea and coffee ...and I havent even had it yet!!! It is the most cruelest on the mind....

If I dont see my onc tmw I will never be able to ask about taxol versus what I should be having next...I really want taxol for the trip neg....

Oh god I feel like crying inside...I have tears in my eyess...tears of frustration ...you are all going to be so fed up with me by June ...I will probably be sat here posting to myself LOL....it is an absolute age away!!! I hope you will all still be around to chat to....in spite of bootface...I love you and I cherish our friendship and our normal lively chats....dont you all   Dont leave me....lol

Aunty Em..it drives me nuts when the net goes down after doing a post...GGGRRRRR GRRRR .... xxxx

I keep getting a little scab on my scar every so often...and tonight the scar is red raw....I think its the chemo...somedays it looks quite invisible xxx

Much Love xxx

sueps

    

                         I DONT WANT TO GO TMW !!

                            STUPID BOIL IN A TESTUBE

                              BOOTFACE FROM HELL

                         LOOK WHAT YOU DO TO US ALL

                           

Lucy1234

Sue this is another one down!

Woohoo!

Just think of the good it is doing! Kicking ass..... Yea you feel like dog poo  for a bit but long term hun its kickin ass!

You can do it!!!

geebung

Hope your computer gets fixed soon Val. My laptop had ANTS in it yesterday! I hadn't been eating when I used it - I think they just like the warmth. They always come inside when it's going to rain so maybe they thought they had found a nice, safe, dry place to build a nest! I had to keep squashing them as they came out. They've all gone this morning though.

Ulla, it took some time before I could comfortably sleep on my tummy after my mastectomy. It's ok now but I tend to sleep on my arm in that position & it goes numb - then I worry about LE so I try to sleep on my side or back.

Sorry about your team's loss Shirlann. We had a big loss in the tennis last night. I didn't watch it - too excruciating!

Sue, saying prayers for you that you will have the strength to endure this treatment. I think this is the last of the bad ones or is it the first of the not-quite-so-bad ones? ((((((((((Sue)))))))))) 

Mel, what exactly is "lake effect snow"? Is it that there is greater humidity and it falls as snow?

Have to race...

Love to all

gb 

sueps

 Yes kick ass...lol...it is kicking my ass....hahaha...I just think it is the thought of still 8 treatments after tmw...I am so glad its not 8 more of what I am on now...God I would have given up ... xxx

Poppy...I cant wait to be over with this sh t and back to reasonable living....I want to come down south in the Summer ..... the sea is beautiful where you are...and the sun shines loads xxx

xxx

geebung

Sweet Sue - rant, rave, swear and complain as much as you like. Just see how hard it is to drive us away!

Hugs,

gb 

sueps

gb ...it is the last of the baddie xxx  Have a lovely day xxx I always imagine you at a train station on a hot sunny day ...do not ask me why ...lol...I hope you're painlessly getting through that course you had to go on...and good luck with the jobs .... xxxx You are always with me xxx

livesstrong

Sue, you brought back memories when you were talking about you & your S/O.  When my DH was going thru treatment he would say the same thing to me the night before he had to go - and I would ALWAYS say - Shut Up - your going!!!  WELL, when it was MY turn to have treatments I would say the night before - I'm not going -  and Dh would say to me - Shut up, your going!!!!  LOL.

Guess what - its all a memory now!!!  We went and we made it!!!!

AE 

Ulla

dear sue..

plz look at it as i am doing now..it will be one more less,,,

one more down ,,shorter way till the other side,,,

think about the good days that u will have with ur wonderfull boys,

u wont be able to have a chance without this terrible chemo..it really helps u to kick this nasty bootface a$$...

think in this way that i find it really helpfull when i tried it....

what if u were one of those women who cant have this treatment at all???

so many women in my home country crying for one dose more ...with huge amounts of money and nothing to help them get over the side effects ,,,

i saw long ques waiting for their traetments and once its thier turn ,,they told them that the drugs r out ,,nothing left to be given to them,,,

i saw tears ,,,fears,,,worries ,,,more than u can ever imagine ...

dear sue plz look at the good side of ur being in an advanced country wher u can get the best traetment ...and where u r fully covered by a good system that protcts u (least to be said)

think about those ppl who cant have the half of ur chances...

the ppl who r fighting this horrable disease without enough weapons to do so.....

dear sue ,,,do u remember when u where counting the long months left till june ,,,it was just in october ,,,look where we r all now...

it will be over efore u know it ...trust me ..i am still ur net nanny....

dont i??

i will be here for u till u feel fed up of my posts ,,,

i will be with u till u tell me get offfff  ulla ....

i will be here even after u finish all ur treatments ..

i will be here telling u wat i am planning to do after it....

i will be here when u will start ur rads ,,,,

i will be here after that ....

just like the song of (FRIENDS ) SERIES...

I WILL BE THERE FOR UU...TA TA TA TA

I WILL BE THERE FOR UU...TRA TTRA TRA

love u sue

(i took the laptop from hubby...just to c if u posted anything ....lol)

i love u ((((((((((sue)))))))))))

geebung

Sue - listsen to lovely Ulla - she is your netnanny and she ain't going anywhere! Thank you Ulla - you say it SO well!

love

gb

ps I really have to rush now - I feel like staying in my pjs and chatting but have to go. 

livesstrong

Sue - what Ulla said.........................................

Ulla you are the sweetest .

AE 

lvtwoqlt

GB, Lake effect snow is usually found around large lakes (Great lakes region of US primarily) and the wind blows across the lake, picking up the moisture and it falls as snow. Thus the name 'lake effect snow'

Sue one less treatment to deal with!

Sheila

sueps

Ulla ...you put a lump in my throat and a sigh of happiness....You mean everything to me .... xxx  You have made me feel a lot better about treatment now...a lot lot better...even though it is arghhh ...it is giving me a chance...THANKYOU ULLA ...THANkYOU FROM MY HEART XXXX  No matter what I will always ALWAYS be here for you xxx

Aunty Em lol....you are soooooooo good for me ...tell me that ...please tell me what you and youre d/h said to each other...and I will do it better...you always know how to handle me lol.... and I love you for everything xxx

Ulla

DEAR SUE

LETS TALK AOUT WAT UR ONK TOLD U THAT U WILL BE TAKING AFTER THE RED DEVIL???

Ulla

DEAR SUE ..WAT IS UR NEXT Rx??

TAXOTERE OR TAXOL OR WAT?

I CAN TELL U ALL THE DIFFERENCES BETWEEN THIS AND THE RED DEVIL///

sueps

Ulla xxx

My oncy said I will be on CMF ...8xover 16 weeks ...this is given for EARLY breast bootface. I was earlyish but I was also TRIP NEG and most of the brave ladees on here have had a TAXOL based chemo as trip neg is treated as node positive regardless of node negative...it is more aggressive ugly bootface xxx So I want to ask onc tmw...but I bet I dont get to see him...and they do have to order the chemo in xxx

sueps

I want taxol instead of CMF ...xxx I am going to have to google it now...but I really want taxol...my onc has me down for CMF xxx

sueps

Ulla what did you have apart from Taxol x

Ulla

DEAR SUE ,,I WAS TRYING TO SHOW U HOW LUCKY WE R ALL.WHEN WE COMPARE OURSELVES WITH OTHERS WHO R UNLUCKY TO HAVE ANY TYPE OF TREATMENT,,

I ALMOST FORGET ALL THOSE TRAGIDIES THAT I HAVE4 BEEN LIVING IN ALL THE TIME WHEN I WAS WORKING IN THE MEDICAL CITY TEACHING COMPLEX IN BAGHDAD,,,

I WAS WORKING AS THE MANAGER OF THE TECHNICAL DEPT WHICH HAVE A HUGE RESPONSIBILTY ABOUT WORKING WITH PATIENTS ,,AND PPL WHO NEED SERIOSE HELP...

I FELT TIRED OF BEING WORKING THIER ALL AGAINST THE FLOW...

I WAS THE YOUNGEST DEPT.MANAGER THIER WITH OLD MEN WHO WHERE REALLY NASTY AND SELFISH AND UNHUMAN...

I SAW PPL. SUFFERING FROM ADVANCED STAGES OF CANCER WITHOUT ANY HOPE TO HAVE ANY TREATMENTS DUE TO LACK OF CANCER MEDICINES WHICH WERE STOLEN AND BEING SOLD OUT OF THE HOSPITALS WITH A VERY HUGE AMOUNTS OF MONEY

 I AM TALKING ABOUT CHEMO ,,,WHERE TALKING ABOUT THE DRUGS TO OVERCOME THE SIDE EFFECTS IS JUST SOMETHING FROM THE IMAGINATION AND LUXURY THAT NO ONE THERE CAN AFFORD IT REALLY

IT WAS VERY SAD TO C SOME YOUNG WOMEN JUST IN OUR AGES ,,,SUFFERRING SO BAD AFTER THE SURGERY ,,THEN JUMP TO RADS,, WITH NO CHEMO WHILE THEY KNOW THAT THEY R SKIPPING AN IMPORTANT STEP IN THIER WAY TO HEALING....

DEAR SUE ...LETS TALK ABOUT US ..AND UR NEXT DRUG HONEY ...

LET ME REMEMBER U THAT U WILL GET RID OOF THE NASTY NAUSEA....

IT IS REALLY SIMPLER ,,,

Ulla

DEAR SUE

I WAS ON TAXOTERE WHICH IS LIGHTER THAN TAXOL..

IT IS BECOZ I AM NODE +VE...

NOTHING WROUNG WITH ASKING UR ONK...

BUT I THINK U NEED TO TRUST HIM ALSO

I WAS THINKING ALL THE TIME WHY THEY GAVE ME ONLY 3 FEC AND 3 TAXOTERE ONLY,,,

WHY NOT 4 FEC AND 4 TAXOTERE ....

BUT I STOPPED THINKING IN THIS WAY ,,I DISCUSSED IT WITH MYSELF AND FEELS THAT IT IS BETTER TO TRUST HER AS SHE WAS DOING ALL THAT FOR A VERY LONG TIME ,,,SO SHE SURE KNOW MORE THAN I DO ,,,,,

WAT CMF MEANS ALLREADY??

CAN U TELL ME?

sueps

cyclophosphamide, methotrexate and fluorouracil .....I just copied and pasted it....

I have one more of the horrible ones left tomorrow... Ulla thats absolutley awful about much needed drugs being stolen....we are very lucky...you have made me appreciate everything tonight...I have learnt something and I am very thankful to you xxx

sueps

I have just found an excellent explanation of CMF

http://www.healthcentral.com/breast-cancer/c/78/10884/chemo-faqs-cmf/

I feel bit better now xxx

Ulla

DEAR   SUE NO NEED TO THANK ME REALLY...ALL I WANT IS TO HELP U C SOMETHINGS THAT U MAY MISS WHILE U R WALKING IN THIS TRAETMENT TRIP ....

I KNOW EXACTLY HOW U FEEL AND KNOW UR WORRIES AND HOW THE SIDE EFFECTS MAKES US FEEL ....

DEAR SISTER ...IT IS A REAL BLESS THAT WE HAVE EACH OTHER HERE ...I THANK GOD EVERYTIME I START TO FEEL SO BAD ABOUT MY TREATMENST THAT I AM NOT IN BAGHDAD WHEN I WAS DIAGNOSED ..IT WAS GOING TO BE MUCH MORE DIFFICUILT TO DEAL WITH ALL THESE THINGS TOGEATHER...

NOW I AM NOT WORRIED ABOUT MY FAMILY ..NOT WORRIED ABOUT WORK..NOT WORRIED ABOUT HOW I LOOK LIKE ...

I FEEL BLESSED TO BE DIAGNOSED HERE REALLY//

I THOINK THAT GOD WANTED TO SAVE ME FROM MORE SUFFERING ...

LET ME C THE CMF SE ..I WILL GOOGLE IT THEN WILL TELL U WAT U R ALLOWED TO C ,,,UR NET NANNY IS VERY CONTROLLING ONE...LOL

THE FEC MEANS FLOUROURACIL..EPIRUBCIN..CYCLOPHOSPHAMADE...

THEN TAXOTERE

Ulla

WAIT SUE ..I AM MEESED UP..MY CHEMO BRAIN IS NOT HELPING ME AT ALL..

DO U MEAN THAT U HAD CMF ???

OR U R GOING TO HAVE CMF ???THEN WAT U R ON NOW???

SORRY BUT AM LOST...

livesstrong

Sue - If you think I'm a "piece of work" in cyperspace I can't wait for you to meet me in person!!!!  Just don't talk to my DH.  LOL.  I just wanted you to realize that we DID NOT want to go back either, but we did and we made it to Oz.

So once again I am sitting here with my shirt off and the ceiling fan on - when its 10 dregrees outside!!! This is REALLY starting to get annoying.

Where is Lisa tonight?

AE 

livesstrong

Sue, I read part of your link on CMF.  Make sure you find out if you'll be getting the Neulasta shot.  It helps to keep your cell count up and with yiou working you'll probably need it.

sueps

Hey A E   You are so right!!! Where is Lisa !!!! She wasnt here yesterday...Last thing I heard was her leaving work on Saturday night....Olivia was really ill and she had her grandsons cake to bake...she said she would be on...xxx

Lol Aunty Em ...you're the best for me...and I bet your d/h would be the best too... lol...yes Aunty Em ...I will go tomorrow...lol...xxx

Ulla I had epirubicin x 4 (last one tomorrow) and then I have 8 CMF xxx

Ulla

OH I REALLY WAS GOING TO ASK ABOUT LISA UT MY LONG,MULTIPLE POSTS TO LOVELY SUE ...MADE MY STUPID CHEMOBRAIN JUST FORGET..

WHERE R U LISA....

I NEED UR HAPPY WORDS TO HELP ME WITH OUR PRECIOUSE SUE TONIGHT...

TY AE FOR REMEMBERING MEEEE.LOL