TIME TO CIRCLE THE WAGONS GIRLS
Comments
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tape lol
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Post deleted by Peterj
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right peter
hope your day went well
tweaking toes get up!!!!!!!!!!!! -
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Good Morning Everyone: Hoping everyone has a beautiful Sunday. Its raining here this morning, but the local news says it should pass. I sure hope so, I want to get my dog walking and swimming in today.
Jankay: I new someone was tweaking my toes cause I woke up laughing. Did you get a splint for your finger? One time I had an older patient break my finger. The break was so bad, I needed to have pins inserted. Hurt like heck for weeks.
Peter: Thank you for the early morning coffee. I feel less grumpy when my coffee is ready and waiting for me.
Sue/Gus: Wow, so good to hear from you from Pinkstock. Hoping your having a grand time.
Kristen: I forgot you were on vacation. Hoping you had a grand time. I agree the summer is flying by. August 5th alrady. The dog days of summer are upon us, but they will just fly by and September will be here for we blink our eyes.
Charlene: I probably would have been too clinical too. But I was diagnosed with bc before my older sister. Makes a difference when your going through the same experience. Im pretty good at getting into a doctors face if I need to. Learned that from working in ICU for many years.
Cheri and NS: How cool is that. You actually got to talk to many who are having fun at Pinkstock. I would have been pretty excited myself.
Pam: I love when retail therapy is legitimate. Give me any reason to spend money and Im in heaven.
MargaretB: When I go for my walk in the mornings, I dont do much else. Guess thats cause in reality my dog is walking me. We are almost at a jogging pace! Did a mile in 15 minutes yesterday.
Cheri: I must agree, the wagon circle does have a lonely feeling to it this week-end. Missing so many of our friends but glad they are together and having a good time. I know we have had issues in the past, but I hate to see and new person scrutinized. It makes me worry that new people wont feel welcomed. I would like to see the wagon circle just grow and grow, because it is such a special place.
Z: Watching your son learn to palm a basketball. Now thats one of lifes special moments.
Brenda: Trying to catch up after being gone for a day or 2 can be hard - but I think you will have an easier time this week-end as it has been quiet here. But we all knew that when the Pinkstock week-end finially cmae, many of our friends would be there having one big party.
I learned something. There are many bc survivors that come to this thread and read. Some are new, some are hesitant to post. Im hoping that in someway I am reaching out to all of you.
Peter: Good luck with your ENT appointment.
Well - Ive been awake, had coffee, and now I think Im going back to bed for a nap. Still raining outside so it will be a good day to sleep in.
Nicki -
gm sunshine sister nick
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A blond wanted to go ice fishing. She'd seen many books on the subject
and, finally getting all the necessary tools together, she made for the
ice. After positioning her comfy footstool, she started to make a
circular cut in the ice. Suddenly, from the sky, a voice boomed,
"THERE ARE NO FISH UNDER THE ICE."
Startled, the blond moved farther down the ice, poured a thermos of
cappuccino and began to cut yet another hole. Again from the heavens
the voice bellowed,
"THERE A RE NO FISH UNDER THE ICE."
The blond, now worried, moved clear down to the opposite end of the ice.
She set up her stool once more and tried again to cut a hole.
The voice came once more, " THERE ARE NO FISH UNDER THE ICE."
She stopped, looked skyward, and asked, "IS THAT YOU, LORD?"
the voice replied, "NO,
THIS IS THE MANAGER OF THE HOCKEY RINK" -
not yet nicki
will have too -
Jankay - That was a good one. I just love reading all your jokes. They always bring a smile to my face. Lately, I've been reading them to DH and now every time he sees me on the computer he ask if there are any jokes. Thank you for posting them. So sorry your finger is bothering you. Have you gotten it checked out? I agree with Nicki, you may need a splinter.
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OD
Thank you. I am glad you and dh enjoy the jokes. Most come from a girl i have known since second grade. I keep the best ones and ihave a lot. think my finger healed and i kept hitting it. soi probably will geta splint.
I am going to church today, so wish me well.
love jankay -
Say, why did the foreman fire you?
Two neighbors were talking about work, when one asked, "Say, why did the foreman fire you?"
Replied the second, "Well, you know how a foreman is always standing around and watching others do the work. My foreman got jealous. People started thinking I was the foreman." -
Jankay - hope all goes well.
Gina - How are you today? I hope you are feeling better than yesterday. BTW- here is a visual of a Mojito
Charlene - great your brother and sister are with you this weekend. Did I read that you are the youngest of seven sibblings?
Pinkstock is reminding me of woodstock. Is that were the name came from? Can't wait to see more pics. -
Good Morning gals, sorry I have not been posting much lately. I am reading and Thank God for all of you, sometimes things seem so bleak and I come here and realize I am not alone in the battle.
Talking to the Pinkstockers put a big smile on my face and to maintain that smile I had a beer or 3 to chase down the xanax. I just don't want to bring folks down, this weekend especially with all the crap going on with me right now. For those of you who congratulated me on finishing Rads, thank you! After ending chemo and thinking I was done, I went on Friday with my heart in my mouth thinking he was gonna say, oops sorry we made a mistake you need to do another week. Paranoid I guess, LOL
Cheri, I asked to speak to Mena and they said she wasn't there. It was so loud on the phone tho, maybe they misunderstood. Like I said I spoke to someone, NO CLUE who it was but it was a BC sister so that was all I needed to know hahaha.
Gina, everyone told me rads would be easier than chemo and I have to beg to disagree. Not eaasier or harder, different, but both equally sucked!
Still fighting with the surgeon about the uniboob. Had to have a gyn last week. She ordered a Pelvic Ultrasound after that. Anybody know why??? I'm majorly freaked out about that, it's Tuesday at 11:30. Apparently have a mild case of vaginitis. I do wake up in the night several times with night sweats and will be so drenched that I have to change tshirts and underwear. I'm thinking maybe the tamoxifen is doing that?
So everytime I turn around it is something else. I'm not even going into the intimacy problems. Goodness, sorry to drop this on a happy weekend but after reading the posts this morning, realize that yes this is a fun friendship for folks, but for alot of us it is the only means of support. I love you all as friends and love you more for being there for me and understanding. Hugs Amy to Z.......Marsha -
Good morning everyone. The family reunion was fun. When we pulled up to the house it was at I remember feeling so anxious I had to take several deep breaths. But everyone was wonderful and my niece took alot of great pictures of my girls. When she gets back to Ohio she's going to email them to me and I'll post a couple.
Odalys, yes I am the youngest of seven along with my twin. I tease her that I'm older than her by 4 minutes and she always comes back with yes, but I'm bigger than you. lol
Cheri - as always you write so well and my foggy mind is thinking how can I post a response to you and say that eloquently? I can't right now but know that your post about this forum and the circle is right on. I haven't been in this circle long but feel like I've been friends with many here forever.
It feels like the circle is too strong to let anyone break it, no matter how they may try to. We won't let that happen. I hope your pain is better.
Pam - I'm sorry to hear you're aching so, I hope you're feeling better today. Enjoy Miles birthday!
Jankay - you get that finger taken care of! We need your posts here and don't like it when you're unable to type! You keep us laughing.
Peter - Good luck at the ENT appointment. Thanks for the coffee, I Really need that today.
Nicki - Of course being a nurse as well as a patient gives you many different perspectives! I hope you have a good day.
{{{{ Marsha }}}} - Sorry about the fight you're in .. it's not fair. I don't know about the pelvic ultrasound..I'll be having a transvaginal ultrasound in a couople of weeks. I do know being on Tamoxifen has caused me to start having bad night sweats along with other SE's. Are you taking an anti-depressant? Some have been known to lessen the severity of hot flashes and night sweats. Just be sure it's not one of the SSRI's that interfere with the Tamoxifen. I'm on Cymbalta and many take Effexor. They also may help you getting through this extremely tough time you're having right now. I wish I could be of more help .. sending you lots and lots of gentle hugs.
Iris Angel - it was good seeing you on the Pinkstock thread, I always enjoy your sweet posts!
Hey to Margaret, Brenda Z, and all CG friends. Going to my sisters for a cookout and then some of my family will be coming back to my house where the real partying is. lol I don't see a good night's sleep tonight either but that's okay. I'll make up for it this week. But I feel like going back to bed right now!
Love and hugs,
Charlene -
Marsha, don't apologize for having really down days. I will be two years out in about a week and it still happens. It is just a life changing experience and we have faced our own mortality - we were forced to. I agree that rads was just as hard. It has taken me quite a while - almost two years - to get anything close to my normal energy level back. They wanted me to think I would be good to go in about 6 months - ha - not for me.
I had vaginitis and vaginal atrophy so bad - I tried the stuff everyone mentions - Replends burned - I really got myself in a mess. I'm not on Tamoxifen (postmenopausal) but some friends were but they had the hot flashes really bad.
Like you, I have much to be thankful for. We overslept but am going to try to get my shower and make it to church. I came to read and your post is the only one on the page and I saw it and just wanted to "chat" with you.
Don't ever hesistate posting thinking that you bring anyone here down - the circle was started for that reason. I have those days too and that is when I really, really need the friendships here. Hugs to ya
Good Morning everyone. I'll check back later. Have a wonderful Sunday - safe travel to those leaving Pinkstock.
It was 97 here yesterday and the humidity is unreal. We are in a severe drought - close to extreme drought. No rain in site.
Hugs, brenda -
Morning all,
Cheri, like some others before you, you have put into words what I feel. There is a difference this weekend. We will not all get along all the time, but as long as we respect one another we will all get along fine. I know that there have been imposters on the boards before, but I make the assumption that a new person is in the same situation we are, and I take my time getting to know them.
Peter, it's a good thing I have a chocolate foot because mine ends up in my mouth all the time. The internet, while a good thing, can sometimes backfire because the tone comes out wrong. Thanks for my coffee this morning; it's so nice to have coffee waiting. I was going to walk to Starbucks this morning; however, today is not that nice so I'll wait until about 7:30 or so and call my sister and tell her we're driving. Good luck with the ENT.
Jankay, glad you're posting, I was worried about you. Here's a funny story about fingers - hubby was bowling years ago and his team mate kept egging him on. Jokingly, my husband flipped him off and the guy kept swiping at him. This happened three times and the third time the guy swiped at him, he actually connected, broke hubby's finger and had to have pins inserted. Now he's careful who he flips off but it was funny seeing that one finger taped off.
Marsha, I'm sorry you are having a rough time right now. I'm on tamox and do recall some night sweats when I first started but I don't know that I can attribute it all to tamox. I used to sweat severely and had an operation to take care of it; what it does though sometimes is cause you to sweat in other areas so during the summer I notice what happens is my back gets dripping wet but then it goes away. That's what happens in my night sweats too. The only side effects I get from tamox are ankles in the morning that make me feel like a 90 year old, and more panic attacks than I used to get. Forgot - congrats on finishing rads.
I guess it's time for me to get moving. Everyone from Amy to Z, have a good day (or night in Peter's case).
Love to all.
Margaret -
Good morning, all! (And sweet dreams to Peter) I sure did need that coffee this morning. Do NOT want to get up and moving. But such a good day I plan for it to be. Miles overslept this morning at the apt. so I won't see him til lunchtime. It was fun to wish him happy birthday from Peter
last night, who was in August 5 way before we were!
Cheri, thanks for sharing your feelings with us. I, too, feel the loneliness at times. I believe we all do. Although we are all at different stages of this beast, we are co-survivors and only we understand. I am grateful to have this place to come, grateful for the wisdom and wit of friends, for the companionship and understanding. For the center of the circle where I have been surrounded so many times by love and compassion.
I am told one of my biggest faults is putting mouth in gear before engaging brain. Each day I ask the Lord to guard my tongue and to make my words sweet in case I have to eat them.
Angel... Hope that you still have more time with family today and they pamper you to bits. I think it is cool that you have a twin. I am not a twin, but my sister and I are
very close.
Jankay, you definitely need to splint that finger! Of course, it will interfere with your typing... but maybe it can get well.
Puppy... how was camping? Did you go? Thinking of you and hoping all is well.
Marsha...big hugs to you. It can be so frustrating! It seems every time we turn around there is something else to deal with. My GYN did an ultrasound and told me that my ovaries had indeed gone on to the ovary afterlife. Also, you will find that since being diagnosed, every doctor will always be extra cautious with everything. At least that is how it seems.
The news is on re-run now so that definitely signals it is time to go. Hopping in shower and heading to church. Hoping all of you have a wonderful day....
Pam -
What it is like to get a call from Pinkstock....
The phone rings...
You pick up and all you hear is laughing and hollering in the background..
Then you realize you are now IN the middle of the party with them...
People grab the phone and say HI!!!!! And you are trying to keep track of who you are talking to-
But when you do it is like these words that we have read on these many many circle pages have come to life.
These are not strangers we are talking to- they are our sisters.
It is almost like Huck Fin suddenly talked to you- the written word becomes a voice.
THEN the singing started and THEN it got louder and I was told that I was dancing in a circle with them and was asked to sing along.
It was probably the best phone call I ever got.
We are very lucky to have each other aren't we???
I hope to meet everyone of you someday because it sounds like a dream come true. -
Dear Marsha,
No need to apologize for feeling down. We are here to help and support each other no matter what part of the journey we are at. RADS is not easy. I do remember having to take the last two weeks off from work because I was soooooo tired and felt soooo weak. Many times I just wanted to crawl in bed and not come out. I cried and cried and cried. One day I went into the onc's office and did nothing else but cry on his shoulder. The hot flashes were driving me nuts. I wanted to rip off my clothes and jump into cold water all the time. Onc prescribed Effexor and it has made such a difference in my quality of life. I don't cry as much, the hot flashes are almost gone, and I don't focus on cancer as much. I plan to stay on it as long as I can. Without it I don't think I would be accepting this journey as well as I am. Cancer sucks that's for sure. Please talk with you doctor and let him/her know how you are feeling so they can help you. Believe it or not, all your feelings are a normal reaction on this journey.
On a litter note, I do enjoy sharing John T. with you. Glad this brings a smile to your face. Now, look out your window. Someone is waiting to take you for a ride
Enjoy!!!! Love and hugs, -
Wow, Gina! What an awesome post. Thanks for sharing. I have tears in my eyes just thinking about what an incredible experience that must have been for you. You deserve to be in the middle of the circle.
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HI All
I am back and ready to talk to my friends.I just needed some quite mental time,I hope all of you understand.SOmetimes i get in a mind set where I just want to forget the past 3 years of pain and I try so hard then reality hits and down I go.Been down all week,cried all week though about ending it all last 2 days.but guess the insurance company would be really pissed at all the money they have invested in me.
Marsha:pm me anytime you want,believe me I can relate to just about anything,dont ever apologize for being down.I learned a long time ago this is the ONLY place to turn in times of clouds.I dont know how I would have lived as long as I have if it wasnt for my dear friends here and especially for Gina starting this thread almost one year ago this month.In fact it is kind of like my relationship with God If I dont stay close to his heart the sadness comes,its the same for this thread.I do fine as long as I stay connected but when I stray the depression sets in.So if anyone ever wonders if they mean anything in this life,you sure do to me.I have learned this week not to stray from here for whatever reason.You are my lifeline and my connection to reality.When didnt mean to say all that buts its in my heart this morning.I love and cherish all of you and I am so sorry if i made you worry due to my absence. It wont happen again.If I do go amiss someone will come on and tell you the reason.
Enough of that.
JanKay:Love your picture,love your jokes and love you.I have told your jokes to my kids and the love them.
Odalys:how is the weather down there
Charlene:how are you dear? thanks for the b'd wish on the other thread.
Peter:good luck with the Ent.I got to read back and see what is going on.
Wish I were in pinkstock.I hope there is one in 08 cause I am gonna be there.
Marsha:I forgot to tell you this.I had a hard time with rads also and i thought it was much worse than chemo.It took me from april to aug to get to feeling better.Then the ca came back again.So i do understand exactly how you feel.I had blisters up my neck my chest and back all over.I had to cut my tee shirts to keep them from rubbing the areas.I still have scars on my neck that dont look like they are going to heal.
Will check back later.With everyone.Feeling really down today still dont know how to lift the fog.My family has forgotten my birthday totally.Thats ok though just another day.I dont forget theirs thats for sure.
Hugs -
Angel, thanks for the hugs honey, I really appreciate it. Maybe the pelvic ultrasound is just routine then? The order says "transvaginal if indicated".
Naniam, I can't wit till I can say I am two years out!! Thanks for the "chat" this morning, and I know you are right, but I have a tendency to shelter my friends and family and I guess, in a way, I have been doing that here also. I have to keep reminded myself that it's OK to whine every once in a while. LOL
Hey Margaret, who loves ya baby? I know you sent up a little WooHoo in my honor when you read I had finished rads. I'm sure everyone did. So no more boot camp for you? You are a good example for all of us. Colonoscopy, boot camp, what is next? LOL
Odalys, oooh la la I love that photo!!! And thanks for your supportive words. I went on an SSRI after dx and came off it in May after chemo when I was given the tamoxifen. To be honest, it kinda made me feel numb to life. I would be with my friends and they would be talking about trivial things and my mind would wonder off. Sometimes I'd think "who gives a crap"? Well I use to care about those same trivial things. I hav e felt more like my old self since coming off of the anti-depressant but maybe I just wasn't on the right one.
Pam , yes I need to keep in mind that having a doc order a test doesn't mean I have a new something wrong! I just hate knowing some kind of lab work is "pending". But I do know I better get use to it! Oh my.
Gina....let's make a plan and a pack. WE WILL BE A PINKSTOCK NEXT YEAR! And we will both have hair and we will both be free of treatment and pain. OK that definately gives me something to look forward to: meeting Gina and all my other circle friends.
Love, Marsha -
(((((((((((ROBIN)))))))))))) Love you girlfrind! Maybe we can prop each other up??? I am a good listener too if you want to PM me. Marsha
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Well this has been a pretty nice Sunday so far. The rain has stopped, but its gonna be mostly cloudy all day - 85 and high humidity. Wont be walking the dog today, but I can swim with the best of them sun or clouds.
I think reading the Sunday Paper (classified) and drink coffee can be dangerous. Found a new add in the paper. This is a 3 level Sunrise facility. Independent, Assisted, and Skilled. I've been in this place, and its beautiful. So I did it again. Sent out my resume. This would be one of the high profile positions Im looking into. So we shall see what happens.
Jankay: Oh I got a chuckle outta the foreman joke. Now heres the thing with your finger. If its not broke, and just sprained splinting would still help. Maybe try taping the injured finger to the finger next to it. Would still give you range of motion and decrease the discomfort. Hoping you felt a special moment at church today.
Marsha: Seems like you are in the same black hole Im in. Thank goodness, with the help of many here, Im starting to see light again. I believe there is much to say about the darkness that sets in after treatment. Have read alot of things about it and it is more common than not. I might just be the only person here who didnt have rads - so I can't share your experience, but I know - that if I was told I needed them after chemo when I thought I was done with treatent - I would have gone absolutely bonkers.
The seems to be a pattern. Sometimes when we are having a hard time, we stay away from this site instead of coming here for support. Like - we dont want to depress others. But that is when you need to come here most.
It takes along time to recover from treatment. When its over, its really anticlimatic - cause the side effects of the treatment linger on for along time. And we automatically think we should feel better and be ourselves, yet thats not the reality. For Pete sake - Im 2 years out of treatment and for the first time since treatment began I have to shave under my arms again. Thought I got out of that one.
I am seeing a trend when it comes to gyne health care. More and more gynes are getting pelvic US with premenopausal women. Usually they are looking for fibroids, or thickening of the vaginal wall. Lots of treatment is available for vaginitis - which Im sure is a result of the cancer treatment. Looks like someone was watching over you though, what a perfect time to get a telephone call from the pinkstockers. I cant get onto photobucket cause they are doing maintenence. So Im sending you a big hug.
Robin: Happy Birthday. Hope you have a wonderful day. Ive come to realize that life in general is filled with ups and downs, just seems harder to cope with after having breast cancer.
Hello from A to Z. DH just took the cover off the pool and I need to go swim laps to burn up all those calories I ingested this week-ed. I was without a doubt a little piggy.
Nicki
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Marsha, I don't remember, but are you in chemopause? I was at first, they put me on arimidex and then the "monthlies" started up again. Switched to Tamoxifen and had to have the vaginal ultrasound. Ended up having ovaries and uterus out, now on femara. It sounds like a pattern to me. I think with tamoxifen there is potential trouble with the lining of the uterus. I also had fibroids. Believe it or not, the hot flashes are better now after the hysterectomy, go figure. I take Cymbalta and it has really seemed to do the trick for me.
Gina, that phone call must have been the greatest, so glad you got to talk to some of the girls.
Robin, Happy Birthday. I remember last year you were 127 yard saling on your birthday. The 127 goes right through Danville.
My dh has not bounced back from this flu or sinus infection or whatever he has very well. His eyes are just big bags and he still has to go to work every day. Yesterday they were super busy because of the yard sale and his GM snapped at him for trying to do his job and he just can't take it right now. I'm worried that he is working himself to death. I went on the internet and put out his resume. He is extremely qualified, but may have to take a cut in pay if he changes jobs and then there is the whole insurance question, relocation issues, etc. Please pray that the right job comes along or he gets to a point where he can continue the one he is doing. I don't want to move!
Going to try to hit the pool today. Should be working on lesson plans, but oh, well, there's still all week! -
Wait, wait, I didn't get a call from the Pinkstock girls!! I called them. A couple of weeks ago MB posted that she would have her phone at the circle fire and if anyone wanted to call to PM her and she would give the phone #. I actually forgot about it till Cheri told us about her call. I loved talking to them and experiencing it with them over the phone but wanted to correct the thought that they called me and maybe not others. Marsha
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Marsha:I didnt realize 127 ran your way.Next time I will keep going and stop and see you.Would that be ok?
I didnt get to go but on wed this year.I had my teeth pulled finally on monday and they have just about killed me.He popped the parcial right back in and when the numbness was gone boy I thought I was going to die.Today is the first day I have not had any pain.Glad that is over.He gave me gas but the pain from the injections were terrible,he had a hard time getting me numb even and he has never had trouble or gas has never failed me.He thinks it might be the chemo made me more sensitive to pain great as I was not sensative enough.
The yard sale was not as big or the traffic as bad this year as most according to my kids who drove to work in it each day.It is so darn hot here also.I just couldnt do it.
Nicki:you are so right,I know I hate to be down all the time when I post here and I have complained to all of you here for so long I am just about ashamed to say anything else.It is sort of like its time to s&^) or get off the pot with me.But there is so much more involved.Are you looking for a job? I cant wait until I can go back to work.
I have an appointment with a ps finally for next monday.I cant wait.and I dread it so also.I dont know how I am going to manage.The EVIL told me he was not going to the hospital with me,that is ok by me but I just dread it,dont know how I am going to get out of bed on my own and things like that but hey,I have made it this far.I have never even gotten to talk to anyone about recon since the ca came back so suddenly last year.but now I am hoping it will never come back.I am just now beginning to feel better physically.Guess the chemo is wearing off,my nose has stopped bleeding each morning.
I cant wait till they have another pinkstock.I am going to be there if i have to crawl.
Marsha: I love you to honey,I dont know how and i dont know when But I do know it will be ok for all of us.If not in this life then in the next. -
Welcome back Robin. Great to see you. Happy Birthday, sweetie! No explainations needed, just so happy you are back. Hugs to ya girlfriend!
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Hey, Marsha, sorry, didn't mean to put you down. I didn't ask for MB's number, so I guess I have no one to blame but myself.
Robin, It's me, Sheri, who lives off the 127. Just keep going north and there I am! Why don't we try to meet sometime? We aren't that far apart. Maybe somewhere in the middle.
Hi, Z, just a few of us here today.
Guess what! A thunder storm just blew up, so no pool right now. Poor Micah, he was all ready to go. Maybe later. -
Thank you Z you are such a dear person with a great heart.
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