2005 ROCK-TOBER CHEMO GIRLS
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Hello Friends,
I am not kidding... I look like Betty Boop after my shower! My hair is all curly. Wait till you see a photo.
My mother is still with me. I have been learning a lot from her. I actually know what lesson it is I am supposed to learn. I was just having a very hard time learning it. I can't even say that I've learned my lesson, I just know what it is I need to learn.
I need to learn that I can't control everything. It is not all up to me. That kind of thinking is very arrogant. There are things that I have no control over.
So I'll do all my studying and all my homework and relax.
"Thy Will be done." -
Quick funny...took the kids to a living history museum today (trying to do one new thing every day of spring break) The people at the museum were all dressed in 19th century garb - a lady at the "loom house" asked my 8 year old son where he was from and he said the 21st century!!! hee hee hee!! I think she thought he was being a smart aleck but he was 100% serious!!!
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Thanks girls (again)!
I have to get better at dealing with this pest named paranoia. I will have to hang in there, trust my Onc. and have another CT in 3 months. What the heck more can I do? I have to start packing - last year I was packed and ready to go 2 weeks ahead. That was the old Laura.
I'm hoping this vacation will renew the upbeat, productive, creative, motivating and happy person I used to be. I'm leaning toward - a big fat yes!
Amy -
Best wishes to you w/the boards. What a tough time this must be for you. Hang in there.
Brenda -
Your Mom sounds as though she's quite special and quite an inspiration for you! Can't wait to see the Betty Boop pic!
Laura -
Hey Laura..that's the spirit...renewal. I wish that for you. You go girl!!!
Amy...wishing you the best of luck on your boards. Quite an achievement!
Rosemarie...kids are so cute, aren't they???
Be well ladies.
ravdeb -
Amy , hope yor studies go well and you ace those board exams. It will be a big relief to get that piece of paper.Hey your hair is almost the same as your hubbies. Nice pic.
Laura I have small thing on CT in my lung . It is only 3mm and did not change through chemo. So it looks still like nothing. If it is less than 6mm it is most likely not anything. Did they tell you the size? Always assume you are well until proven you are not, muvh easier that way. Have a great trip, try to leave BC at home.Pack for the future!
Ravdeb , the wallowing pit thread is pathetic, don't you think? I think Ter and Yvonne are fast friends so that does not surprise me that Ter is up in arms too. When any conversation gets in to character assasination and name calling it is time to get out of the conversation. Every good thing those two may have written means nothing to me now. I for one plan to block their posts so I don't have to read such drivel.
I am off to my sons school. He is entering junior high next year. He has special needs and wants to be in the band. I think the school is going to block this. I will see at the meeting. If they try not only will I have my fists up, but I will put on my gloves! Had the same fight in elementary school and won.
Brenda, your Mom is right, in this world the only persons we can change with any success is ourself. Sit at her knee and take in all her good advice. Moms only want the best for us.
Rosemarie what a smart reply to the question. Likely made the ladies day.
Fists up! -
Good for you, Maryanne and good luck!! Wishing you and your son all the BEST!
Laura- will keep you in my prayers! Have a great time on your trip and enjoy yourself!!
Amy - ditto on the boards!! Will be thinking of you!!
Have a wonderful day ladies!! -
Amy, Good Luck with your boards......
Laura, I am going to think good thoughts, if your doctor wants you back in three months he must not be worried. It is probably nothing...Try and put everything out of your mind and have a Great Time in Mexico. I will be thinking of you and wishing I was there.
Mary Anne, I hope the school lets your son in the band. That is not fair if they don't.
Ravdeb, I am not sure what Mary Anne was talking about but don't let anyone get to you, it's not worth it.
To Everyone, Have a wonderful day!
Graycie -
Maryanne..yes....the wallowing pit thread IS pathetic and it's very nice to come to this one where everybody is kind and supportive and it feels like family here.
Graycie..suffice to say that some women on that thread that was mentioned were uncomfortably NON-supportive. I am being diplomatic when I say that. Best not to say any more about it as there is no need to bring up ugly stuff on this wonderful thread.
What is much more important to me is how all the women here are doing and how we can hold each others hands in time of stress and jump for joy when good news comes in.
Have a great day you wonderful ladies!
ravdeb -
Quote:
Can't wait to see the Betty Boop pic!
Laura
Poop Poop Pa Doop! -
We are all here for you Ravdeb and each other...I don't know what I would do without each and everyone of you. I plan on never losing touch and I hope you all feel the same. I would have never made it through all this without all of you. It is so nice to know that I am not going through this alone and that I can come to this thread and have all you wonderful ladies to talk to..
Hugs to all,
Graycie -
Brenda,
I like your new picture. Your hair is really growing in thick too...Why are all you ladies so lucky?
Graycie -
Brenda, I just realized that your online nick is BRENDA spelled backwards!
OK, I probably am inciting thoughts like, "oh boy, you just realized that?" "Oh boy, Kelly must be a real riot."
Ravdeb, I saw that thread and just crept away. But I really did enjoy your comments to her. I did, was thinking of typing that you right on target but I just slinked away. But I haven't even seen the MOJO thread! -
I apologise for bringing up that other thread in our safe place...I just vaue your opinions and wondered what you thought about it. Good for you Terynsmom to walk away. Although it was tempting to try to straighten it all out.
Gracey I feel connected to all of you too. I am sure we will keep it that way over the years.
Patrick is in the BAnd!
Fists up! -
Maryanne Fight for your son I work with the " special needs" and they all need more people fighting for them, It is unbelievable how talented they are in their own ways. If you need letters petitioning it let us know!!!
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Way to go MaryAnne! You are a great Mom!
Brenda, your hair is awesome and so thick! I am jealous too!
I agree that we are a great group and such good support for each other! Thank you all! -
maryanne-everyone
They did not give the "spots" sizes. It just says many scattered on both lungs. My dh picked every word of the report apart and researched it on the internet. He has reassured me it doesn't sound like anything horrible. I told him if it is - don't tell me. I want to call the Onc. back, but I am not. I will wait until after my trip. Onc. was very vague because he knows I worry and he wants me to have a good trip.
I am really trying to keep all in perspective. I have some tranqs. (xanax) that I take when absolutely necessary. My Dr. reminds me every once in a while that's what they're for.
Brenda -
Love your new "look". Great pic. Betty Boop it is! I wouldn't mind some curls like yours.
Graycie -
I have lost a few pounds - but not enough to be concerned about. When I get back I will talk to Dr. about it.
Everyone -
I got my tattoos today. 4 of them. It didn't hurt at all. I was happy about that. DH went with me just in case. The "plan" is targeted at my chest wall behind my Mast. the width of the incision - about 6 inches. Thanks to all of you, I am not worried about rads. You have made it seem so "doable".
And, thanks ALL for your words of encouragement, concern and advice. I don't know how I could have gotten through all of this without you.
Laura -
Laura, I forgot to say, "have some margaritas for us!" I hope you have a great time!
MaryAnne, let us know about the band .....
Laura, how come you have to have rads since you had mast? -
Forgot to add: ex-hubby violated the restraining order today, very traumatic for all involved.....
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Go Patrick !!!!!!!!!!!!!
Thats excellent news - no need to start a support campaign then!! I am a SENCO ( grand title!) and i fight to the death for the kids i work with - as if they are my own. Luckily the school i work in is, if anything, biased towards them rather than against.
Terynsmom - is your real name Kelly? Feel quite rude not knowing what to call you. Sounds like you are having a tough time - thinking of you.
Out of curiosity i wandered onto THE board. Well that will teach me wont it! I am so glad that that wasnt the board i first saw - dont think i would have come back again!
Hope you all have a good weekend.
Maryanne - tell Patrick to hit the drum , blow the trumpet or rattle the tambourine extra hard and i will listen out for him!
DEbbie -
Brenda- YOU HAVE HAIR!!!!!!!!!!! It looks great.
Terynsmom, be careful.......
Off to my sisters for the weekend,take care.
Fists up! -
Terynsmom... oh no! I am so sorry he violated the restraining order. now what? Really feel for you and wish I could help!
and thanks for thinking I was "right on target". I really tried to help over there but it was all in vain, unfortunately... oh well.
Graycie..hair will come..you know the saying..."gone today, HAIR tomorrow!"...
Maryanne... never mind that you brought up the mess going on THAT board! maybe we can all learn from it.I figure..when things go bad, we can still learn a lesson. Ah...that's me..always trying to find the good in the bad.
And..I never noticed that Brenda's name was on there backwards...very clever! (no..obviously not ME..but rather Brenda for doing that!!)
Maryanne..hope you have/had a nice weekend! And congrats on your son getting in the band!!!! YES!!!
Laura..aren't YOU lucky that your tattoos didn't hurt..so my question is still, WHY DID MINE HURT????? Can you see yours? Tracy said she can hardly see hers. I can see mine just fine, even without my glasses and among all the rash spots I have. hmmmmmmmmm....
have a good weekend..must go cook now...
ravdeb -
I just completed neo-adjuvant chemo/ 4 rounds AC and 4 rounds of Taxotere, surgery scheduled 04/24/06. I find the side effects from Taxotere harsh. Did anybody else get the whole list of side effects? Sometimes I feel like the side effects are underplayed. Did anybody actually go through 4 rounds of Taxotere without the following side effects: The day of and two days after I'm O.K., then like clockwork days 3,4,5 I feel like I have the flu-muscle pain throughout body. I have to take tylenol around the clock. About day 6 it starts to wreck havoc on the mucos membranes-mouth, gastro track and eyes. Every time without fail it rips the lining off my tongue and cheeks and eventually caused sores. I thought it was thrush but the medicine for that didn't touch it, and it happened every time. Along with this it hits your gastro track and I got the anal itching. Next like clockwork and this is absolutely the worst-it hits your eyes. I got sensitive to the light and my eyes were red burning and puffy, and looked like I had conjunctivitus. They finally started tearing. The literature mentions tearing which sounds annoying but innocuous-but what they don't tell you that the tearing is the end result of the itching burning photo-sensitvity. I also got a rash on my hands. This very last time I got it on my face as to red blotches. I'm I unlucky or did other people get this whole range of side effects.
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Well, I was on Taxol...similar stuff. I have numb, tingly toes/feet and fingers/hands, have very dry eyes that tear and sometimes itch (tho doesn't sound as bad as yours), weak muscles..(I was achy but am off it now so I'm not anymore but I was very fatigued) but the worst and I mean the WORST...is that I have a rash from neck down to my feet, all over, and it's itching me like crazy as many women on the boards have heard me complain about...and nothing...NOTHING is helping. It's been like this for over 2 months now, I've been out of chemo for over 3 weeks and I am very afraid this will be an ongoing problem forever. It seems to be getting worse instead of better. Makes me crazy...
I am lucky that so far it has not gotten to my face but I have dots all over my body so no short sleeves for me! It did hit my left ear and man it's hard not to touch it. The only relief I get is from coating my body with aloe vera gel as that seems to cool it for a while. but soon as that dries up, I'm back to itching!!!
Hope your se go away!
ravdeb -
My tattoos are tiny, one looks like a full stop, the other two are so tiny that the tecs had to get a torch out a couple of times to find them. I asked the guy that did them if i could have hearts being as he was doing it on Valentines day. He sais he would try but he failed art. Obviously i gave it a miss!!
Debbie -
Quote:
My tattoos are tiny, one looks like a full stop, the other two are so tiny that the tecs had to get a torch out a couple of times to find them.
To translate for Debbie: torch = flashlight
LOL --- could just see her techs holding tiki torches up looking for her tats!
Debbie, yes, my name is Kelly, Teryn is my daughter.
MaryAnne, yes, I am being careful. I did notify the police and let them know that he came to my daughter's school. Not sure if he was trying to pick her up or just see her even though it was court ordered that he stay away and his visitation is in writing. It was scary for the school and very upsetting for Teryn. The girls at the pre-school had changed the security code due to restraining order so his attempt to get in the door didn't work. Since Teryn was playing outside, he then started to call to her and then was holding her thru the bars of the fence. The school's director came running out and got rid of him and then notified me.
I guess I am in shock he would violate this order! And then he called the school and asked them to just 'forget the whole thing' .... Our next hearing is Tuesday, so I am reeling that he would do this so close to that date. -
Scout,
I am sorry you had it so bad. It certainly does sound like you have had every side effect there is. At least it sounds like it is over for you so you shouldn't have to go throught that anymore. You are done with chemo, right? I was on Taxol and had some of the side effects but not as bad as you did. I guess I should consider myself lucky.
Debbie, my tattoo's are like your's very tiny. The only one any one will notice is of course right between the boobs. I guess my day's of wearing low cut tops is over, HAAAAAA
Oh I almost forgot, I finished rads...My last day was Wednesday. I feel so free....but now I don't know what to do with myself (I am sure that will end). It is kind of a weird feeling after going there everyday. Even though I had no bad side effects I am glad it is over.
Graycie -
Oops, I forgot! I was telling a friend about our "October Chemo gals" and she said our nickname should be
"The Rocktober Girls"
How would you spell that? rOctober, Rock-tober? -
What on earth is a tiki torch????????
Debbie -
Scout: goodness!! I had difficulty on Taxol, but nothing like what you've described. So sorry to hear you were one of those that it affects badly. I bet you are so-o-o glad to be finished.
Kelly: I join with everyone else in saying we are concerned for you and wish we could help in some way. You and Teryn are a precious duo and I hate to think of these ifficulties coming your way. I agree with your friend, "Roctober Girls" is a great nickname.
Graycie: Yeah!!!! You are finished. Congratulations.
I know what you mean about low cut tops. My scar from the port incision is right in the way. I'm now looking for a high top bathing suit for the summer. Not so easy to find in the "queen" sizes that I take. I am considering seeing if I can sew myself a suit or figure out a way to make an insert over the chest area.
Laura: Have a great vacation and try not to worry.
To all: I am having a devil of a time with itchiness all over the radiation field. I am using hydrocortizone a few times a day to control it and that does work, but wowie, it is hard not to be scratching my boobie or nipple at the most inappropriate times. If it was anyone else but me I might think it was funny, but I have learned that what might seem funny can be anything but. Last night I just bathed it in cool water and patted dry and then powdered it with the stuff they gave me and laid there to dry out. My cat came to investigate and sneezed from the powder. He got a surprise!
Happy weekend to all! -
I think i will go and make a JAM sandwich , with a packet of CRISPS, whilst putting salt on my CHIPS, followed by JELLY and icecream.
Then i will put my PURSE inside my HANDBAG and put it in the BOOT of my car whilst i put some PETROL in. I will park in the CARPARK whilst being careful not to park on the PAVEMENT when i go to the shop to buy some TIGHTS. BEcause i have no TIGHTS i will have to wear my TROUSERS and will put my money in my BUMBAG. ( whilst doing this i might use my tiki torch - if i knew what one was!!)
Part of my job as a SENCO is teaching EASL - never realised i needed it myself!!
Next you will be telling me you dont have Yorkshire pudding, dumplings and pork scratchings!
( by the way what are grits, collard greens and meatloaf?)
Debbie
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