2005 ROCK-TOBER CHEMO GIRLS

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  • RoseMarie
    RoseMarie Member Posts: 502
    edited March 2007
    Hello ladies....just quickly checking in

    Had a great night last night! Nice dinner and...let me brag...Mike won a marketing award - am very proud of him - he works so hard and couldn't care less about recognition but I'm happy he was recognized. Then came home to a TRASHED house...OH MY!!! I nearly came unglued...eek

    Deb - cute picture!!! Looks like fun...
    V - thinking of you and saying a prayer...
    Debbie - you're a hoot!
    Cathy - have fun!
    You too Kelly!!!

    Lots of love to all of you - hope everyone has a wonderful and relaxing weekend!! It was absolutely GORGEOUS today, btw! Such a pretty day - yay!
  • Graycie
    Graycie Member Posts: 839
    edited March 2007
    Amy, Maybe I missed my calling.....I'm really not that smart but thank's anyway.....lol

    Cathy, I guess that was a bad choice of word's Believe me I wish I could get rid of this butt.......lol

    I don't know where all you girl's find the time to read. I am with Mary I would rather listen to the audio version. I also love the Danielle Steele movies.

    Scooby, That is why I don't read the other threads. I can't stand reading all the bad new's. I know that is the reality of this disease but I would much rather not go there unless I have to. Too depressing. Did you buy a new house yet or are you waiting to sell first?

    TracyNY, I could never go without watching TV although I know I should. I never used to watch it until I got BC and that was all I did when going through my treatments since I couldn't get off the couch. Now I am hooked. I mostly watch the comedies' at night.

    Paula, Glad you finally got the date for your surgery. After listening to everyone else I know you will be happy with the results.

    Ravdeb, Good new's about your friend. If it is shrinking it definitely sound's like it is fluid filled cyst. They thought mine was a cyst and was going to shrink......boy do I wish that was what it was.
    50 year's ago....that was funny. Someone sent that to me once. I just caught a glimpse of your picture.........HOW FUNNY.........heheee..Gosh, does your friend look familiar

    Debbie, those were funny home remedies. OMG, we have to worry about the balloon ride again..........lol....I can't stop laughing, leave it to you to almost get hit by a bus........I'm sorry it's not funny.......And Laura, That sound's scary, your right you would have been a bloody mess.....Don't even want to think about it.

    Speaking of going in the wrong room or building my husband got in the wrong car once in a parking lot. He looked down and saw a baby bottle on the seat and realized he was in the wrong car and high tailed it out of there. I never let him live that one down.

    Kelly, Glad you are having a fun vacation.

    Rosemarie, Glad you had a fun evening. Tell Mike congratulations

    Victoria, I agree once you get back on the Femara your estrogen level's will probably come down.
  • RoseMarie
    RoseMarie Member Posts: 502
    edited March 2007
    My dh was walking out to his car recently. He unlocked the doors remotely - a woman was walking in front of him - she got to his car, opened the door and sat in the front seat. He just stood there looking at this woman until she looked up. He then nicely told her she was at the wrong car! She was still confused after he told her! So Gail, lol, your poor dh!!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007
    Rosemarie - Graycie -
    LOL

    --------------------------------------

    I was in a parking lot recently and went up to my car, stood by the driver's side and was pressing the lock release on the remote unit on my key chain, and the doors weren't unlocking. So I was standing there like an eejit - kept pressing it - nothing - kept pressing it - nothing. This guy walks up and looks at me like - "what the heck are you doing lady?" I walked around to the front of the car to look at the license plate and saw that it wasn't my plate. But the car was the exact same color and make and model! I was so embarassed! I just looked at him and said, "OMG we have twin cars, look...ooops...silly me...mine's right over there!" LOL
  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007
    Rosemarie -
    Congrats to Mike! Recognition is always wonderful!
  • TracySeattle
    TracySeattle Member Posts: 690
    edited March 2007
    Hi everyone!

    Well, I went to the PT for my lymphadema today. Even tho my case is a very mild one, she told me she is glad that I came so that I can learn to avoid it getting any worse. She measured both arms, checked my range of motion and did some massage under my arm and where the nodes were removed.

    She is going to fit me for a sleeve and glove (UGH!) but she did say that I only need to wear them when my arm is aching or swelling and that maybe just at night will be enough. I will have to judge that for myself.

    Interestingly enough, there was very little swelling in the armpit area of my affected side (left) but my right side was swollen. She said that means that the lymph nodes on the right side are trying to make up for the missing nodes on the left.

    After my PT appointment I had my moving sale - made about $400, I wll do it again tomorrow. I am actually making some good progress in the moving arena.

    My arm is sore from the therapy and lifting heavy stuff.

    Not much else going on with me this weekend. Hope you all have a good one (and have more fun that I am!)

    (((hugs)))
  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007
    Tracy -
    I am so happy that you went for that appt. - with all that you have going on, I'm sure it was an inconvenience, but it's really important to stay one step ahead of lymphadema. Glad your sale is so profitable! Hang in there...moving stinx...but it doesn't take long to settle into something new and exciting!
  • Graycie
    Graycie Member Posts: 839
    edited March 2007
    Laura, I did that once with the remote for my car nobody saw me though....
    Tracy, I agree with Laura as much work as it is to move I think it would be exciting.
  • ake
    ake Member Posts: 684
    edited March 2007
    tracy...check out the website for lympha divas....they have arm sleeves with really sassy colors
  • ravdeb
    ravdeb Member Posts: 3,116
    edited March 2007
    V.. that is worrisome...he decided not to give you any more chemo? hmmmmmmmmm... did he know you were on supplements? My onc told me absolutely no supplements with chemo. It will cause the opposite to happen. Could that be it? Do you have time to know before the next chemo would take place?

    Amy..sassy colors for sleeves..that is neat.

    Debbie..almost hit by a bus?

    My first roommate in college was walking down the street with me. We get to the corner to cross the street and SHE hit the car! I mean she WALKED RIGHT INTO THE CAR, WHICH WAS MINDING ITS OWN BUSINESS! She was okay.
  • Paula15089
    Paula15089 Member Posts: 373
    edited March 2007
    Amy - i just read back and noticed your question on Lat Flap. Its not the same as DIEP. Apparently i dont have enough tummy fat for DIEP (hellooo?? from what i can see, i have enough for two people!!), so instead they will use implants and cover them with the muscle taken from the back. Which means i will have a scar running accross my back, but they put in in the bra line, so it shouldnt be too bad.
    Basically, this is my only option for reconstruction. DIEP is out, and they dont really do GAP (using your bum - i would love that.. ) in Australia.
  • Paula15089
    Paula15089 Member Posts: 373
    edited March 2007
    Victoria, pomegranate juice is esterogenic???!!
    i had no idea. I now pomegranate is an excellent anti-oxidant.. i try to eat it as much as i can.
  • marymelodi
    marymelodi Member Posts: 515
    edited March 2007
    Here to say Hello.

    My sister, who hasn't asked me to go out with her in a long, long time, called to see if I would go to lunch and a movie.

    Sure. . . I like lunch and movies. So, we will have a nice afternoon. We plan to see the new movie, "Amazing Grace." I think it tells the story of the man who wrote the song and his effort to end slave trade in England. That's what I think, anyway. If that's not right, I'll know by 5pm today.

    Hope everyone is doing well and that your plans for the weekend are coming along nicely. Stay safe (Debbie) and hope everyone is feeling good.

    Mary
  • ake
    ake Member Posts: 684
    edited March 2007
    paula...don't be worried about any scar you're going to have from the reconstruction. i have my big tummy scar...i just tell people i was attacked by a shark. i know someone who did the reconstruction you are having and her results are perfect!

    i take back what i said about people being hit by a bus...eek!
  • ravdeb
    ravdeb Member Posts: 3,116
    edited March 2007
    Mary...when I was in college, one of my college friends just loved the song Amazing Grace. She built a gorgeous B&B up in the Smokies and it's called Gracehill (do check it out..she has a great website..an amazing place..and she is also a bc survivor!!!). So, I have a special place in my heart for that song. Will be interested in hearing about the movie. I never heard of it. But..have fun with your sister. I love getting together with my sister. We have a riot together. She lives in N. Carolina...

    Paula..ya know..I think that if you eat pomegranates and don't over do it, you'll be fine. That's my take on it. That's the same with anything.

    Making the juice from the fruit is much more powerful than just eating the fruit because in order to get a glass of juice you need a lot of pomegranates (and this goes for any kind of juice you make). I love the fresh juices and we have a professional juicer which we hardly use. The point is..when we do it it's a treat. But my feeling is that drinking juice is too concentrated. I am not a juice drinker and the dietician told me not to drink juice but rather to eat 2 or 3 servings of fruit a day. That is a lot less than pure juice.

    Just a thought...

    and your scar, Paula..you will love your reconstruction, I'm sure..and I love Amy's comment that it's her battle scar. Besides that..since it's back there, you won't see it and so you can forget about it!!! But..doing it from the butt...that would be a woman's dream!!!!
  • ake
    ake Member Posts: 684
    edited March 2007

    i know someone who got their reconstruction from their butt. her butt is a vision now...it's so flat and perfect! but seriously, my stomach hurt like fire after my diep, so i can't imagine what the butt would feel like! how would you sit??

  • ravdeb
    ravdeb Member Posts: 3,116
    edited March 2007

    very carefully!

  • ravdeb
    ravdeb Member Posts: 3,116
    edited March 2007
    Ladies..for those of us who get no scans unless we have symptoms..how is that justified for the women I've read about on the boards here who had no symptoms of bone, liver or lung mets and yet they have them!!! If I have them and I have no symptoms..how the heck will I know?
  • Paula15089
    Paula15089 Member Posts: 373
    edited March 2007
    Ravdeb - exactly!!! I get no scans - never did actually. My onc just asks me if anythings bothering me.
    It helps me to stay in the denial land, but... if you catch mets in time, is there more chance of achieving NED?
  • ake
    ake Member Posts: 684
    edited March 2007
    crap. didn't know about pomegrantes and estrogen. although i have heard from countless people that plant estrogen is okay for us er+ women. it's the processed soy, estrogen, that is not good for us. all i know is my onc. always says you can't avoid everything and everything should be in moderation. that's honestly why i don't mess with supplements. you just don't know what they are, do, etc. i take a multi-vitamin and i take calcium and that is it.

    deb, i know how you feel about everything with scans, mets, etc. i know a lot of women on the YSC who got scanned for a back pain or got scanned for a stomach problem and whammo, found out they had mets. one woman had major stomach problems (swelling, etc) and when she got scanned, she found out she had mets in the liver, which she probably knew, but also in the lungs and bones. i try not to think too much about those situations.

    my doctor does say what victoria says...scans vs. no scans...there is no cure for mets and it is really about responding to treatment or not. so, it's strictly a quality of life issue. and i know my quality of life goes down when i'm hysterical and waiting for test results! it's that crapshoot. mets are the scariest part about breast cancer, at least for me, but dying of a heart attack suddenly is also scary, or my grandmother who died at 56 of a sudden brain aneurysm after going out to dinner with her best friends. my grandmother's two best friends had breast cancer and she thought that would happen to her too. well, she died early and her friends both lived into their 90's. after having breast cancer.

    so, as my mom always says...if you worry too much or let the fear take over, you'll never leave your house! well, at least then we wouldn't have to worry about that bus!
    we just don't know. which is the hardest part for me. to know that i don't always know what's brewing inside my body. i think that's why i love the gym so much...it's when i make peace with my body and feel like i control it. whether or not that is true, i need that feeling sometimes.

    just know your body. trust that it will tell you what it needs to tell you. i'm not kidding...i really think my body was trying to tell me something because when i found the lump, it was from scratching my boob. not doing a self exam. having an itch that i needed to scratch. i didn't find my lump before my wedding, on my honeymoon, during my residency, but randomly itched my boob when all those things were done, and found the lump. my body was really waiting to tell me something.

    when is someone's first 2 year anniversary? do we have a list of date of diagnosis? i hate marking my life in terms of survivorship, but this next milestone is a big one for the rocktober girls who has the first 2 year anniversary? mine is in august.
  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited March 2007
    Good Evening sisters,

    I am back in the groove so to speak. Today is really a spring like day although have had some rain, but the snow is melting yes!!!

    We had to be up early this morning to go over the stats of our new kitchen upgrade for our house. We picked out some beautiful backsplash that I think is a marble slate with a mosaic of colours, just beautiful! We don’t know how much it is going to cost us yet, they have to price it out as the contractor didn’t measure the area for the backsplash when he was here to do the measurements. The backsplash was on the kitchen display in the store with cupboards that are very similar in colour to the ones that we are ordering. We also decided to put in a dishwasher (resale value) with some pot and pan drawers. The two main banks of cupboards on our one wall will have some glass on the doors to make them more attractive to buyers. We also will get our microwave mounted on a stand underneath the second bank of cupboards just above our stove. Lastly….they are going to put a skim coat on the walls in the kitchen and sand and smooth them out as they are really ugly in some spots as the house is 50 years old.

    This is going to end up costing a bit more than we anticipated but think it is worth it in the long run for resale value.

    I spent a few hours when we got home organizing and throwing out crap out of our kitchen cupboards and then washed inside the tracks of one of our main windows in our upstairs hallway. I got my finger jammed while closing the window, swore and then said I;m going for a sleep for a nap as I was grumpy from exhaustion.

    We now have three things crossed off our huge list. The good thing is the kitchen probably wont be completely finished until the end of April so that gives us a couple of extra weeks to get things organized.

    We went to see Zodiac, it was a good movie, but long. I wont give it away for those that want to see it.

    Victoria – I am concerned about the rise in your estrogen levels, hope your oncologist can figure out the cause of this. That is scary news about the AI’s not working after 18-24 months if there is residual bc, okay don’t overthink this one I am telling myself. Thanks for your kind offer of words, I do feel better today – last Thursday was just one of those rollercoaster days for me. My hubby and I once walked in on a couple lying on a bed watching tv. We were in Jamaica and it was our wedding/honeymoon trip. I guess the front desk messed up and gave us the key to an occupied room. We were exhausted from traveling and when we opened up the door and saw people in the room and on the bed, well it didn’t thrill us too much, it was so what of a shock, like omg we just walked in on someone’s privacy, thankfully they were not otherwise occupied.LOL.

    We have a long list of to do items, painting and sprucing up some rooms, getting rid of clutter, cleaning up the basement, cleaning in between the slates of our many windows in the house, painting trim and it goes on and on. It is just never ending…..

    Paula – I would be nervous too but the end results will be what you had hoped for. We will be here for you. It will be nice to give your body a 3 week break from tamoxifen, do your Zoladex injections have any impact on you having the surgery?

    Deb – continuing to think good thoughts for your girlfriend. I am the same as you I feel like I should give back to the wonderful sisterhood of ladies that helped me through the first few days of being terrified and not knowing which way to turn. I surely would have lost my sanity if it wasn’t for these boards in the early days. I have to realize that bad things will happen and to remember that we have no control over the outcome of our life spans and to live each day to the fullest. To quote Victoria “we don’t write the script”…
    My oncologist does not do scans either, just regular followup of mamo, ultrasound, breast exam every 6 months and I see him every 3 months for my injection.

    Love the picture of the “pregnant bride”, who is your lovely partner?

    Debbie444 – I can relate to #1 of your home remedies as the other morning my alarm clock went off, I hit the snooze button and then when it went off again I just shut it off.LOL. OMG what happened that you almost got hit by a bus?

    Amy – have a great weekend with your brother, he is the handsome guy that you posted pictures of isn’t he? It is hard when someone makes a stupid remark when they have no idea what bc survivors go through emotionally. Our overall appearance now post treatment portrays a healthy image to others and they forget or don’t want to acknowledge that we are living with a life threatening disease and making the best of our lives and trying to move onward. For most people it is much easier to ignore and gloss over the reality.

    Kelly – good to hear that you are enjoying your vacation with Teryn and enjoying some wine too, way to go girl!

    Rosemarie – congrats to your hubby for winning an award. We are suppose to have sunshine and 6 degrees celcius tomorrow, yes….its getting to feel like spring around here.

    Graycie – we will put our home on the market once our kitchen is completed which should be hopefully by the end of April. We are going to sell first then buy, don’t like to gamble that we will sell it quickly. We have country property with ½ acre on a major roadway with rail road tracks across the roadway which is a little bit of a draw back for some. We don’t even hear the train anymore, it only goes by a few times a day anyways.

    Tracyseattle – be careful lifting those heavy boxes, that really is a no no. Glad to hear that you made $400 on your sale.

    Mary – how was the movie?

    Brenda – how are you? Did you book your hotel room yet?

    When is Maryanne expected back?

    Wishing all my sisters a wonderful Saturday.

    Michele
  • ravdeb
    ravdeb Member Posts: 3,116
    edited March 2007
    Michele..I think I want to move into your new kitchen when it's done. It's going to be so fresh and pretty. I'm picturing it....
    The other pregnant bride is my good friend here in Israel. She has been by my side through everything. She was at the hopsital before I went in for my lumpectomy and snb..she sat with my family and was there when I came out. She's the one I can call and vent to and she will call me. She can call me and tell me that in 5 minutes she can be at the coffee shop and I will run to meet her and the other way around. She's originally from NY. Just came back from breakfast with her.

    Thanks V and Amy...I know all of these things. (of course..I'm a bc.org addict!). And yet..in my mind..it's not enough. I think it's not enough to know that there is no cure and that it makes no difference if it's caught early or late, etc... I mean..they still don't know that! I always feel that they still don't know much and that's why we are so confused all the time. I'm going to be having a simple x-ray of my spine and hip because the orthoped said that he can see it better that way than from the bone scan. He believes it's osteo and not cancer but he wants to see it differently. The thing is..if it were cancer (and I honestly don't believe it is)..these two new spots that were seen on the bone scan...then since they are small..wouldn't it be better to stop it before it continued growing? that is just an example. I am sure it's osteo. My sister has osteo and rheumatoid and she said they find new spots on the margins often. She's had this longer than me. I think the chemo has just sped it up a bit.

    I will not obsess over this. I go for my visits with the onc but don't believe they are worth anything more than keeping in touch. We do no blood tests..nothing. They have sent me to do blood tests with my family doctor but not for cancer..for cholesterol. I don't keep a steady relationship with any onc..they put me wherever they want. So..it's not like she will know me well and suspect quicker from what I say. I have to be very tough and say I have pain and MEAN it so I'll get a scan..which is how I got the bone scan referral. I did mean it! But..you know what I mean.

    V...sorry about your sale. I agree..don't worry about it. I know you need to downsize, though.

    Now..my brand new refrigerator arrived this morning. I'm so excited! The old one is sitting in the middle of everything but we will take care of that with our farm workers later in the day.

    But...the guy carried this huge monster on his back from the street to my patio! I cannot believe that. He has a cushioned backpack type thing on his back but he is going to suffer big time when he gets older. I told him that. He just laughed..you know..this young, tough, cute guy who doesn't think about the future and is probably making a bundle for a job that nobody wants!

    It is summer here...car thermometer said 82 F. But..it's going to drop dramatically later today and we will have rain and winter temps for a few days. This is the time of year when it can't decide if it's summer or winter. There really is no spring. It's one or the other. But, if I go out in short sleeves..it's summer!

    V...taking a break? Do what you need to do..will miss you on the thread. I was thinking the same thing...I started obsessing though I tell myself not to... hmmmmmmmmmm.... but..I will be worse off if I don't know. I just have to check in every day and see what is going on not only with the Rocktober girls but a few others that are there...and play the song game.

    Have a nice Sunday.
  • linny
    linny Member Posts: 204
    edited March 2007
    So many of you are expressing exact feelings that I have. Victoria, your analysis of mets and scans is exactly correct - it took me a while to understand this. In Canada, because of socialized medicine, resources are rationed, and there is very little in the way of scans, tests, etc. done after chemo. I now understand from reading and brief conversations with my doctors (who never have time to talk!) that it makes no difference when mets are found. Since they are incurable, it is a matter of keeping them at bay, which sometimes works and sometimes does not.

    Debbie444 thanks for the laugh, it was great.

    Michelle, we moved in 2001 from a house we had lived in for 22 years. I got rid of tons of junk, it was so satisfying. There wasn't a limit on garbage bags then (now 6 bags every 2 weeks) so I would put out 10 bags or more per week, it was all picked up. If anything looked decent, I put it by the curb, and people would pick it up! Then my moving day was Sept. 11,2001. I had a brief meltdown when I heard the news in the morning, but then continued on.

    Ravdeb, like you I am drawn to these boards constantly. Sometimes I am at the computer doing some work, and say to myself, I will not go to the boards, but it never works, I always do. I just feel like this is the only place I can truly express myself, while at the same time, we help each other. The down side of course is the ladies with mets or doing poorly.

    I have been doing passover at home since 1979, except for one year when we lived in Israel (1991) and we went to Kinar - it was wonderful. I do get stressed (the whole family is coming) and like this holiday the least of all the holidays, but try to do the best and enjoy everyone. I don't make a lot of new recipes at this time of year, there is so much else to do to get ready. There is a ton of cooking, but I don't do anything fancy - the usual, chicken, ribs, salmon, lots of soup, etc.

    Isaac is doing well, I can't wait to see him. Michelle says he is very tired, took a 5 hour nap yesterday, she thinks it is because of the implant. It is hard work for him now, his world is very different with stimuli he never had to deal with before. She was told to expect this. Audio-verbal therapy means talking to the child constantly, to surround him with audio stimulation, but at the same time, it is hard for these kids when there is background noise. Someone I know with 2 teenagers who have implants told me that her kids take them off in the evening, to have a rest from the noise!

    Linda
  • ake
    ake Member Posts: 684
    edited March 2007
    deb...hang in there. the absolutely hardest part in this cancer crap is that we have to be our own medical advocates...push for the right treatment, ask for scans of things not feeling well, demand this and demand that because we know our bodies better than anyone. so, don't take no for an answer. i'm sorry you have to fight so hard to be heard sometimes by different doctors. i know it's frustrating. stand your ground!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007
    I agree with all of you...

    On Friday I had my 3 month Onc visit...this is the first 3 month visit that he didn't do labs. Of course now I'm a little nervous that he didn't. He didn't think it was necessary because I don't have any major complaints or symptoms. I never did have tumor markers - so it's not as though he would be checking them. He said he'll do labs at my next 3 month visit. (ravdeb - I read above that your Dr. doesn't do labs and I'm trying to draw strength from your confidence with it.)

    I think my biggest concern is not having the liver enzymes checked, because I have 2 Hemangiomas (both about 5mm) on my liver - the radiologist says that's what they are, but one of the girls I met here, who happens to live right by me, was told a year ago she had Hemangiomas too - but in December she had a follow-up CT and they had grown and now she's been dx'd w/liver mets! It's scary because she was dx'd with bc same time as me, and our stats are real similar.

    Do you think this is okay? and

    Do you have labs done at every visit?

    Thanks...
  • ravdeb
    ravdeb Member Posts: 3,116
    edited March 2007
    Thanks Amy...you are my rock!

    Linda..I crown you Queen of Passover! How many people do you have and you have ribs??? wow..we have chicken and Israelis usually have schnizel but we will have another meat dish that will be a Debbie recipe...still working on it!!! I don't do anything fancy, either...just that I never had it my house so the family (relatives) are not used to the American touch and may not be happy with it. We'll see. I'm the only one who keeps kosher so I have to do the cooking myself.

    I'm so happy to hear about Isaac. I can only imagine how tiring it must be to hear all that noise in the world! My mother in law is now hard of hearing and wears hearing aides. But, she takes them out and life is quieter sometimes for her and I was thinking when she told me that what a great idea that was!

    Interesting to hear about Isaac's progress. I'm excited about it!
  • marymelodi
    marymelodi Member Posts: 515
    edited March 2007
    My Sisters;
    I come to you today more heavy hearted than I ever have been in this 18-month experience of cancer. As soon as I got the news I heard today I wanted to come and talk to you, to hear your words of comfort and of wisdom, and get "virtual" hugs. Today at church I learned that a 17-year-old young woman, whom I have known and loved for the last 9 years, has cancer. She was having abdominal pain and shortness of breath. After a work-up by her doctor they decided to operated. The short story is that they performed a total hysterectomy to remove tumors in her abdomen and they have discovered more tumors in her lungs. Tomorrow she will be having further diagnostic tests so treatment can be planned.

    You know that I have been a teacher in the church youth programs for a long, long time. I knew this girl in the Primary, where I was the chorister for the children, and then when I moved into the youth group, she was in my first class I taught 4 years ago. This is a girl that I have said I wish I could have been like when I was a teen-ager. She is intelligent, friendly, full of fun, faithful, sensitive, loving, musical, athleteic, on and on. Every good quality and attribute lives in this girl. Her mother and sisters were so supportive of me last year and they made me 4 different hats and left them in secret on my doorstep through my chemo days as surprises for me. Later, the mother told me how they had so much fun together going to pick out the fabrics and sewing together.

    I learned about this news today and just fell apart. I was sobbing very hard out in the hallway with a couple of the other women from my church to comfort me. But, I could not be consoled. I swear that I would much rather have heard another diagnosis for myself than to hear that this lovely girl is now so threatened.

    I know that hearing of someone else's cancer can be very stressful for you and I do not want to cause anyone distress. Right now I am so upset and distraught, but only you, my sisters, can begin to know how terrible this news is to hear about someone you love. Anyway, I just needed a place to express some of these thoughts and feelings. I've already had one good cry but I suspect there will be more tears as the day goes on. One of the church women just called me to see how I was doing and I started crying again. Well, crying helps, as we all know, and I suppose I'm going to need to do it so I can then gather myself up and see how I can help this family, this mother, who is my friend, and her daughter who I have loved and admired.

    Thanks for lsitening,
    Mary
  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007
    marymelodi -
    Wow...I'm sitting here shaking my head...how tragic and sad and unfair and...
    You will be there for her and her family just like they were there for you and that will help you deal with it all. I will add her name to all the prayer lists I know of. How could so many tumors develop at such a young age? I just don't understand this wretched disease...probably never will. Hang in there. I don't know what else to say other than you know we're all here prn...
  • marymelodi
    marymelodi Member Posts: 515
    edited March 2007
    Laura:
    I napped a while and now I have been looking in my books for the perfect pattern to knit for her. I'm thinking a summer weight cotton shrug/bolero thing that she can wear if she gets chilly in the chemo room or afterward at home. She's small so I could knit it pretty quickly. Oh, and I'm going to first quickly make her some of the slippers, like the ones that I sent to you. I'm also considering a super-soft laprobe/afghan/cuddle-blanket. I have to do something. This is my way. There are lots of others in our church who will babysit the other kids, take in meals, etc. I knit.

    Mary
  • ravdeb
    ravdeb Member Posts: 3,116
    edited March 2007
    Mary..I'm so sorry to hear this news. I will never understand the "why"...It is so unfair. Such a young girl.

    I don't know what to say. I do know that my nephew was 17 when he was diagnosed with lymphoma and it was found in his bones...he is now in college and loving life and so appreciative of it today...he's 19 now. We don't know how long remission will be. It's scary.

    I feel so badly for your young friend. It's not right. But we have no control.

    We can only support you and hope that you can stay strong and be there for her.

    Hugs to you, Mary. You are so dear and kind to everybody. I'm sure she is feeling all of that love, now.

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