2005 ROCK-TOBER CHEMO GIRLS

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  • AnnaM
    AnnaM Member Posts: 1,387
    edited February 2007
    Amy, I LOVED the article in today's Post! Absolutely LOVED it!

    Anna
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  • TracySeattle
    TracySeattle Member Posts: 690
    edited February 2007
    Ravdeb - I had an ultrasound guided biopsy. I can't say as though I remember much about it, I think I have blocked those days from my memory. What I do remember is that it was much easier than the stereotactic biopsy (yep - had both kinds and an excisional biopsy too!). They use the ultrasound to locate the tumor and then they extract a specimen with a needle. They numbed me up and it was not very painful, but I would image that there are places that would be more tender than others..... If she has to have a biopsy, this one is the easiest of the three I had.

    Mary - you are in my thoughts today!

    I am jealous of those who are traveing off to warm weather! I woke up to snow this morning!

    Gotta run.... Work calls! Have a good day everyone!
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  • debbie444
    debbie444 Member Posts: 847
    edited February 2007
    Ok not got long but, Michelle - did your brother treat you like a leper or a leopard?????? Made me laugh.
    Rosemarie - hope you are better soon, thinking of Mary, everyone else - have read your posts but need to go and tax my car before the post office shuts,
    Debbie
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  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited February 2007
    Ha, ha Deb, I;m was too dumb or is it still chemo brain to pick up on that.

    Michele
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  • ravdeb
    ravdeb Member Posts: 3,116
    edited February 2007

    Tracy..thanks for the info on the ultrasound guided biopsy. You had them all? I just had the excisional and it was easy. I would do it that way again if I had to, which I won't of course!

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  • ravdeb
    ravdeb Member Posts: 3,116
    edited February 2007

    Hey Ladies..did you all see Amy in the article in the Washington Post? It is posted on a different thread. Her girlfriend is a journalist and wrote the article and both Amy and BethNY are quoted. MemberoftheClub posted it. Very cool..

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  • ake
    ake Member Posts: 684
    edited February 2007
    Ok,

    I've thought long and hard and I love you all too much to let someone's anger or behind the scene drama pull me out of something that means so much to me....like you strong women!!! I've been reading all the posts and feeling so disconnected from you all and I want back in Am I allowed to be back in? I don't know why someone felt I was the most selfish member in the group and I'm still waiting for an explanation, but life is too short for the bullshit and no one is going to pull me out of something I love. I work really hard to give a voice to breast cancer, especially in young women and I'm not letting any drama take away my voice.

    Ravdeb....happy purim

    Victoria....hang in there with chemo. you're a strong woman and you will get through this....and we're all here to help you when you need it.

    Kelly....love the pics of skiing. I wish I knew how to ski...I'm a snowboarder myself I don't think I have the coordination to not go off a cliff skiing....too many things to think about I adore your daughter's hair....wish I had that color!

    Mary...any news? I'm thinking strong positive vibes. LIke I told you, I'm thinking thoughts of scar tissue.

    In terms of exercise....at the conference I went to for breast cancer over the weekend, they talked A LOT about exercise lowering risk. For me, I was so out of shape after treatment that it only made me more frustrated. Working with a personal trainer really helped me and now I'm working out 4-5 days a week. Plus, I rationale that if I go to the gym, I can have my piece of dark chocolate later

    Rosemarie....thank you for your card It meant so much to me. How's Kiersten?

    To all the other ladies, I hope you're having a good Wed.

    Love,
    Amy
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  • TracySeattle
    TracySeattle Member Posts: 690
    edited February 2007
    Amy - YOU GO GIRL!!! Glad you are here with us - please stay here where you belong!

    Mary - thinking of you and waiting for an update!
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  • ravdeb
    ravdeb Member Posts: 3,116
    edited February 2007
    Happy Purim Amy!!! You are such a beautiful woman and so very articulate in the article. I am glad you are back. You are too important a part of this group to leave!!!!

    wow..4-5 times a week. Obvious that you are younger than I am!!! And I'm sure it's that strenuous stuff the research is talking about! I told my dh today that it's imperative that I get the stationary bike so that I can ride the cancer away.

    Ahhhhhhhhhhh...your post was refreshing...glad you're back on board.
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  • ake
    ake Member Posts: 684
    edited February 2007
    Seriously, Deb, I started just walking on the treadmill for 30 minutes, slow pace, with my music. Then I started walking faster. Each time I got tired, I thought to myself, "This is your new treatment." over and over again. I also made a really empowering mix too to get me pumped up. I took some begining weight lifting classes. It definitely took time to get to the point where I felt strong enough to be "strenuous" and the hardest part is being patient. But, you can get there
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  • ravdeb
    ravdeb Member Posts: 3,116
    edited February 2007
    you are kind, Amy, but I am old! lol... Actually I do walk about 4-5 hours a week. But it doesn't seem to be enough. That's why I'm going to add the stationary bike. I used to do a touch of lifting weights..not heavy weights..just dumb bells and I did put those weight thingies on my legs, too.

    I should probably join the health club but I know I won't so... buying the stationary bike will have to do it. My dh will want to use it too, though he's an avid mountain bike rider and he's very strong now because he's been really working at it. so..the stationary bike is for ME! I will tell him to surprise me for Passover this year (I deserve it..it's at our house this year..OMG!)
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  • ake
    ake Member Posts: 684
    edited February 2007
    you get presents on passover? all i get is matzoh!

    think about the health club...in the begining, it's hard to make yourself go, but it becomes a routine. my mom actually got a trainer because she had problems with her back and now she's so in shape and strong. i found the biggest diference in getting my endurance back was through weights and a trainer.

    here's the link to the photographer mentioned in the washington post article that took portraits of me and some other young survivors at our conference for her book..."i of the beholder". she is pretty amazing.

    http://www.christinebenjaminphoto.com/index.htm
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  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited February 2007
    Welcome Back Amy!!!

    Will post more later, am at work. So happy to see your post!

    Michele
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  • cathy987
    cathy987 Member Posts: 179
    edited February 2007
    Happy, Happy Joy, Joy

    That’s me doing my happy dance cause Amy’s back. Welcome back! I checked out the article. Well done! Had a little trouble finding it because I didn’t really know what I was looking for and also had to register (no charge) which always takes me a while to figure out and then I read some of the article and didn’t see anything about Amy so quit but then went back and there it was. So to help other internet challenged folk here’s the link.

    http://www.washingtonpost.com/wp-dyn/content/article/2007/02/27/AR2007022701360.html

    Hey I’ve been googling and I found what seems to me a great site for us to have a virtual Purim Party. Check out the Purim Costume contest.

    http://www.chabad.org/holidays/purim/default.asp

    I am the sole person at work today. Heavy snow and wind it is! I am truly appreciating all who work for me. Have to run now. More later.
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  • TracySeattle
    TracySeattle Member Posts: 690
    edited February 2007
    Waiting to hear from Mary! *stomping foot* *pacing*
    Where is she???
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  • cathy987
    cathy987 Member Posts: 179
    edited February 2007

    same here--should go home before dark.

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  • cathy987
    cathy987 Member Posts: 179
    edited February 2007

    Senokot only worked for me if I took it before chemo. drank lots of water and prunes always helped.

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  • debbie444
    debbie444 Member Posts: 847
    edited February 2007
    OK - i think Rosemarie should enter her ipod costume and we could all vote for her!!
    Amy - the pictures made me want to cry
    Debbie
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  • marymelodi
    marymelodi Member Posts: 515
    edited February 2007
    I am sorry. Swamped at work today and unable to communicate with you all.

    Had the CT scan. Took 3 needle sticks to get the IV started. Ouch!! Then during the day had a wicked headache. I think the contrast dye doesn't like me or something. I may be able to call tomorrow for results. If not, then on Friday. Or, the doctor may call me. We'll see. I am tired. Still headache-y. Need to sleep I guess.

    I haven't read any of today's messages but saw a glimpse that makes me think we have heard from Amy again?

    Yeah!!!!!!!

    I'll write more later. Hope everyone is well and happy.
    Mary
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  • cathy987
    cathy987 Member Posts: 179
    edited February 2007
    Mary

    Thanks for posting. I understand tired. You'll continue to be in by prayers. I'm going home. Been a long day here too.
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  • ake
    ake Member Posts: 684
    edited February 2007
    mary...all that contrast stuff made me feel off when i had my scans. you endured a lot today (3 needle sticks...i kick them after 2 sticks!) just sleep, take care of yourself, and friday (or even tomorrow) will be here before you know it. we're all behind you.

    debbie...my topless nudie pics made you cry? i'll be selling poster sizes of the one of just me with my autograph across the boobs. all proceeds go to breast cancer. ha!
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  • RoseMarie
    RoseMarie Member Posts: 502
    edited February 2007
    ick - what a day - Kiersten is fine! Yay! but I have had one heck of a day! I did end up throwing up...a few times! (too much info??) Have a HORRID headache and my joints were even hurting! AND Mike's gone this week TOO!!
    I will post more tomorrow but I wanted to check in on Mary.
    Hey Amy!! SO GOOD to see you!!!!!
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2007
    Sorry, ladies. I was not paying much attention when you were all making reservations to go. If Michele can't have 5 in a room I will get a room for 2 (for me and my dh or younger son or somebody). So if someone can post the info. that I need to make reservations I would appreciate it. Maybe Michele can pm me?

    Laura: Wow, great wedding photos! You have not changed much, you know!!

    Victoria and Amy: I am happy that you are both back.

    Mary: Thinking of you and wishing for good results.
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  • Paula15089
    Paula15089 Member Posts: 373
    edited February 2007
    Amy glad to you see you back here girl!!
    I knew you couldnt stay away from us for too long..
    i'll check out those pics when i get home from work.

    Mary, you poor thing, you deserve some rest!

    Ah, first day of spring for all of you ladies.. and a first day of autumn for me here in OZ. Nooooo! I love summer!!
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2007
    Hi Girls
    I only have a few minutes but wanted to say <ola! We are having a great time....my prosths will be arriving here at the resort tomorrow morning! The company sent them to me priority! <i am so happy now...The flight and everything was great ...spent the whole day at the pool just love it! Amy and ravdeb i ran out of time to respond to you...but Amy IM GLAD YOU`re back here with us. This keyborad stinks! Love ya all - keep warm - we have room in our room if you want to come and hang out! Adios for now. <kelly love the pics! <more later...uno momento...por favor...
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  • TracySeattle
    TracySeattle Member Posts: 690
    edited February 2007
    Wow! Hard time coming home for me tonight - for a minute I thought I was in NY!!! It has been snowing like crazy here all day!!! The bus ride home was Loonnnggg and Scary - we were slipping all over the road. The Lady who drives our bus (Sandy) is an Angel! After 3 hours, she got us home safely! Not so sure I want to venture out in it tomorrow morning..... It is supposed to continue snowing thru the night - a snow day tomorrow would be VERY COOL!

    Mary - still thinking of you and saying a prayer. Thanks for checking in!

    Amy - so good to have you here with us (((hugs))).

    Laura - I am so jealous! Have fun!

    Everyone else - good night!
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  • ravdeb
    ravdeb Member Posts: 3,116
    edited March 2007
    Sounds like fun, Laura.

    Amy..lovely link you linked us to of the photos.

    Mary..am hoping all is well and your headache goes away. I think I get a tension headache after ct's because I'm so nervous about them. I am always exhausted after every scan/appt...

    RoseMarie..that's awful!

    Brenda..I think Laura has the list of who is rooming with who. Are you coming with family?

    Michele..not sure who is in our room for sure..Paula, you, me and maybe Jill?

    Watch out for the snow and be careful on the roads.

    It's rainy and gloomy here today..and cold! I have an appt. with the new orthopedist..I'll keep you posted. Hope he's not a disappointment!

    Paula..I'm with you...I love the summer. Am waiting patiently for it.

    Cathy..how cool.. a virtual Purim party!!!
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  • ravdeb
    ravdeb Member Posts: 3,116
    edited March 2007
    Sh*T... I just have to vent. I'm getting so sick of being strictly identified as Debbie with cancer. Before cancer (I'm talking about this dang village I live in) I was Debbie the American or Debbie A's wife. Now I'm Debbie with Cancer.

    Last week I ran into a couple at a store who live in our village. I've seen her pretty often but hadn't seen her husband in a long time. She chatted away with me, made a zillion comments on my hair as though that was my whole entire life, and her husband just stared at me. He stared at me so much that at the end, I turned to him and asked HIM if HE was okay.

    Later he called my dh to see if I was REALLY okay. I didn't think I looked that bad, really.

    Then the other day I was on my walk with Casey and Casey stopped to do her thing on the side of the road (fields..it's okay!)and a friend of ours was driving by and stopped to say hi. I kinda covered up Casey as despite it all, I should be picking up her poop and I didn't. Didn't want anyone to see and didn't realize this was a friend of mine until he stopped. We chatted and then he called my husband and told him that he had seen me and I looked like I was disturbed about something. My dh just told me this now. At first I thought that maybe I had seen him on my way home from the hairdresser's because I WAS disturbed! But then I recalled the time and got mad instead. I told my dh that I'm sick and tired of everybody thinking something is wrong with me.

    I got out of the car the other night and one of our board members who was waiting outside before the meeting, comes up to the car and says..How are you? How's your health? It's not like I never talk to this guy or see him weekly. Why? Why? Why do they have to bring it up all the time? My dh said they just care. Fine! But how much caring is there? If there was something terribly wrong with my health they would all know. I have never kept anything a secret. Why would I start now? I think I look darn good after all that I've been through. What are they thinking???

    Makes me so mad. I know lots of women are going through this but I've had such a hard time finding my place in this darn village and now I'm the Cancer Poster Queen. GEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEZ!

    Besides this..I realize that my hair looks totally different than it did before. There is a sharp contrast between black hair and then white hair. But women are coloring their hair all the time..blonde, red, etc and changing their hair color all the time! It seems that mine only reminds them that I was on chemo and bald (and some think it's the cancer that makes you bald..go figure!).

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  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited March 2007
    Good Morning

    We are scheduled to have another storm today, snow and freezing rain. I have my napsack packed to stay at mom's tonight being she is so close to work.

    Spring is officially 20 days away according to the calendar...


    Amy - I am so happy that you are back. I read the article in the Washington Post and the pictures there moved me. The spirit and smiles on all the young ladies was amazing, it did bring tears to my eyes seeing how many young ladies were there. You are a kind soul and are a great inspiration to all the newly diagnosed that cancer can be beaten. You also have a great sense of humour, liked your comment about autographing your nudie picture, hee hee:)
    Are you going to be able to make it to Chicago in August?

    Mary - hoping for good news on your scans. I think two IV sticks would have done me in, three would have put me over the edge.

    Rosemarie - did you eat the peanut butter too? Oh it sucks to be sick. Are you on tamoxifen or armidex cant remember?

    Debbie444 - how is the armidex going for you? Any major s/e's? It gives me insomnia, hotflashes and sometimes it makes me tired.

    Brenda - I sent you a pm.

    Paula - spring doesnt arrive here on the calendar anyway until March 21. What are the autumn temps in Australia?

    Laura - so glad your prosethesis arrived. Have a great trip!

    Tracyseattle - we are suppose to have the snow and freezing rain today too. I hate winter now!!!

    Deb - I changed the title to cancer survivor because that is what you are!! It is hard sometimes to ignore the ignorance of other people and they should really think before they speak. It too get it all the time at work, people trying to be nosy that never said boo to me in the past.
    We have 3 definites in our room, myself, you, Paula and maybe Jill.

    I have to run and get a shower, getting late.

    Have a wonderful day everyone.

    Big hugs

    Michele
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  • ravdeb
    ravdeb Member Posts: 3,116
    edited March 2007
    Thanks Michele...you are right. I am a cancer survivor!

    Actually it's Amy who is the poster queen..autographing her nudie pics!! JUST KIDDING Amy!! I'm glad you joke about it but those photos are beautifully and artistically done with so much feeling..of course our ladies cried!

    I saw the orthoped.. Nice guy who was in a hurry and not his fault. Some other patient barged in when it was my turn and I was the last appointment for the day.

    Anyway..he pushed on my hip area near my leg when I told him that I had originally complained of pain on the front of my leg and everybody was telling me it was sciatica. He said it is NOT sciatica. He thinks it's bursitis in my hip.

    And he said of course I have pain in my shoulder and arm..it's the c7 that lit up.

    He is sending me for a spinal x-ray and hip x-ray to get a better view. He thinks bone scans are not always the best scan and simple x-rays often show more.

    And he's sending me for a bone density only because of the chemo. He said otherwise, I'm too young. How nice to be told I'm too young.

    Can't get the x-ray place to answer to make the appt but I have a bone density set up in 2 weeks. It's across the street from the mall so I'll make it a shopping trip as well!
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