please help
Comments
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Lisa, I can't afford Coldwater, either!! LOL. But they had a HUGE clearance sale and was able to get the 3 pairs of slacks for $30.00. I love a bargain. Plus I saw yesterday that they are a Race for the Cure sponsor which was nice.
I will definitely check out FN, I just adore him.
AE
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I wonder if CW sale on the web too? I bet. What am I talking about...even at the GREAT prices you got..I can't afford anything right now. I will be off for 4 weeks of work...w/out pay. I will use some of my vacation days...but that will probably only cover what they take out for insurance!! Yikes...I am going to have to really budget!
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Lisa,
Boy, that stinks.
Does your state provide Short Term Diasbility ???
Valerie
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Lisa,
Boy, that stinks.
Does your state provide Short Term Diasbility ???
Valerie
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Darn post appeared twice - had to delete one.
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Not that I know of. I know...it has me worried.
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I sure have missed a lot over the weekend. 4 pgs to catch up on. I did see that a new person commented about mast for DCIS and not needing chemo or rads. that is what I did. I actually had bilat mast and am nearly finished with my recon. I go tomorrow afternoon for the finishing touches (tattoos). My breast surgeon released me last week from returning unless I have any problems.
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Hi all,
I hope you had a great weekend. Mine was busy but fun. I had a lot of reading to catch up on.
gb if you still have the links for the triple neg info, I would love to check it out. The more positive info I find the better I feel. BTW, I agree with you about the difference in schools now and when I was in school. Here, there is so much put into standardized testing it's sickening. I think that if parents really knew, they would not be so in favor of them. But I do like being a teacher's ass't. I feel like the nurse of the ed. field. While the teacher wisks in and feeds the info, I get to come in and hold the child's hand during the process. I love it.
Lisa, is there any way you can defer your insurance premiums since you will be on LWOP? That's what I did 2 years ago for my knee surgery. That really helped take a financial stress off of us. Also I know I'm late on this, but I think you calling on your ex took guts. Good for you.
Loved the pix of you all. Y'all are beautiful ladies.
With love
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Hello everyone,
I slept in and have to rush! Angie, when I get home tonight I will locate those links and post them.
Hugs everone,
gb
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guess what, the PS office just called to say that the tattoo gun is broken and they won't get a replacement until Thursday! They rescheduled my tattoos until next Wednesday. Oh well, I have waited since June to get this over with, what is another week.
Sheila
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Woo Hoo All
Sue have you got those pic yet? I was just imagining a call from my area manager asking why I had sent him some strange pictures LOL
Here is a vid I took on the beach near my house. Sue Ulla just imagine eating ice cream and kickin back in the summer.
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dear sisters
i am very sad
i dont know wat to do just to over this deep sadness
i feel like sinking
very strange feellings invading meee
am crying my eyes out
wat to do just to feel lil bit better????????
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Keep crying Ulla if you need to, its all healing. These are the bad times but the good times are still to come. Ride it out babe it won't last long...
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LUCY ...... OMG ...that video ...OMG .... I so miss the coast there .....I am mad mad jealous ...and I cant wait to come up during the summer....do you know what I am going to rent a an apartment or a cottage between you and Brighton for a week .... my boys love it down there...and if only I could move back...that was my five year plan .....
Lucy I cant wait to bring Ulla..
Well I was half asleep when I came on here and you have perked me up !!! No pics though
....maybe your area maanger is not letting on
I am off to view websites for apartments and Brighton etc etc etc ... xxxx
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Yes ride it Ulla ...I wish I could cry ...I am too depressed to cry LOL...I am chemo hazed...all foggy cant think ... YAK YAK YAK I will never ever do this again ....cant wait til June xxx
Got my bone scan on Weds...hoping its not grown or whatever on my sternum .... or I will personally rip it out !!
xxxx
Ulla crystalised dear ??? xxx I will get da ginger now xxx
Ulla you are coming with me to see Lucy ..... we will take loads of pics and have a great laugh !!!
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Hi Ulla, Sweet Sue, Lisa, Karen, Sheila, GB, Angie, Valerie, and any of our dear sisters I forgot. I hope this was a good night for all of us.
Ulla, sweetie, I think the chemo has made you fuzzy, honey, it just tries to play with your mind, too. When you are so sick feeling, the mind doesn't help a whole lot.
Of course, it is mad at you for putting things in your body the brain doesn't like. The brain says, "What in the world are the viens thinking" This stuff is really ugly.". The body says, "Well, we are trying to get rid of all the cancer cells, and this is what we have to do whether you like it or not!". Then the brain says to itself, "I'll make you sorry, body, I will fill myself with ugly thoughts, so you can't sleep well". The body answers, "STUPID, we are in this together, if we work together, this whole thing will go better". The brain says, "I am the boss of this whole thing, and no one said a word about chemo to me." The body says, "Yes, you were there in the room with the onc, you know this is what we need to do to be sure the cancer doesn't come back". The brain says, "Well, I needed a break, so I was looking out the window". Now the body is mad.
The body says, "if you are not going to take this seriously, I am going to give you the biggest headache you have ever had". Well, the war between the body and the brain will probably go on until chemo is over. They never really did like each other.
Ulla, sweetie, this will get better, think Post Traumatic Stress Syndrome, this whole thing takes so long, it just wears you out. And that is what is going on, Sue too. Just goes on and on. TOO MUCH.
Love you all, and I LOVED the video, for a moment, it looked like a beach here in San Diego.
Hugs, kisses and love, Shirlann
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god only knows how awfull was my life would look like if u were not in it dear sisters
shirlann..u r so so preciouse..
u brought a wide smile on my face wen i read the conversation between the body and the mind
i fel really the same..there is a huge conflict inside me,,,it is tearing me aparts,,
one side of me is happy that i finished this level of treatment
other part is so so tired of it
third part is very very afraid of the idea that it is not finished ..it will come bak to me again and i will do chemo again
fourth part of me is so so busy thinking about making plans for the near future
among all these parts of me...I AM COMPLETELY LOSTTTTTTTTT
FOGGY CLOUDS ALL AROUND MY HEAD
I CANT BE MEEEEEEE
I LOVE U SISTERS
SUE ..LUCY ..I CANT WAIT TILL NEXT SUMMER
WE WILL BE TOGEATHER FOR SURE
I PROMISE U
I AM PLANNING FOR IT SERIOUSLY..DONT LET ME DOWN SISTERS
LOVEEEEEE
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Hi Sue
! Good to see you made it through your work day. Lucy , thanks for the video. I love , love , love the beach and am sooo jealous you , Sue , and Ulla are going to be enjoying it without us
! But , at the same time I am so glad you all will be getting together for some MUCH needed R&R and lots of laughter and fun. Please you three , take lots of pics to share with us!
Lisa , I hope you got alot accomplished today like you wanted to.OH , I wanted to tell you , I got short-term disability while I was off work. Why can't you get that? You should be able to. Go see your human resource person and talk to them about it. Also , for FMLA , while you are off , so they can't hold the time off against you , and have to hold your job until you come back to work.Its alot of paperwork , but your docs office will fill out the appropriate pgs and fax them back. Thats what mind did. STD isn't alot of money , but it sure did help me.xxx
Karen , did the snow stick around for Chase to play in it? Hope so. That chillow pillow sounds great!! Post the site , if you can.xxxx
Ulla , Shirlann couldn't have said it any better. She hit it right on. Thats exactly what happens. Know you will overcome this and things will get much better. Love ya honey.xxxx
Welcome hawkwomen , Cyndy and Angie. Hawkwomen , feel free to tell us your story. Cyndy , hugs to you. You deserve and need so much support from your husband. But some men have a really hard time with it. Give him some time , maybe he'll come around. And we are all here for you!xxxx Angie , you're the one with the four little ones right? Hope your doing well. Where are you in this journey of ours? Are you having tx? I couldn't remember if you said or not.xxxx
Auntie Em , great deals!! I love that. In this world when prices are so high on everything , it feels so good to get your moneys worth , and then some!xxxx
Shirlann , what can I say , YOU ROCK!! You always have such compassionate , helpful and funny words for us all. You are very special.xxxx
gb-Jane , sorry you're running late. Hope you have a great day!xxxx
Lucy , what kind of pics were those!?!lol I wonder who got them...xxxx
Well Sue , I think its after midnight there. Hope your fast asleep. I know you haven't been able to do that before midnight lately.Have a good day tomorrow. You are always in my prayers. Much love , Melody
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Hi Melody
I sent Sue a picture of my reconstruction! LOL So someone somewhere has a picture of my barbie boobs.
Prob scared the life out of some poor soul.. -
Wow! What a nice beach video! I watched it a few times and tried to picture myself there in the sun. Ahhh!
I love going shopping and getting a bargain too. It's like finding treasure... and if you love the clothes and wear them for a long time you will think of that deal every time you wear them.
I have also gained 20 pounds that I'm trying to get rid of--but it's just not going easily... You'd think if you had a bilateral mastectomy you'd lose weight--especially with the boobies I had, but no... I gained. I am trying, but I think it's because I have been sitting around more (wasn't as active with my arms either). I can't wait until it's warmer outside so I can walk more (and not in freezing rain)...
My next fill is Wednesday. I'm only going every other week because it takes me so long to recover from them.
Oh, and welcome to all the 'new' ladies here too. I had DCIS and chose a bilateral mastectomy with expander reconstruction because I didn't want to go through this again (please God) and I didn't want to do any of the other treatments... I did what worked for me; no one influenced me one way or another. I just know my personality and it fit with what I chose.
Hope everyone is staying warm and well. Shirlann sure is a good cheerleader! I so appreciate her words of wisdom and experience.
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Angie, I just found the link for that article on triple neg. I thought there were 2 but the second link was about a trial on triple negs being done in Australian and New Zealand. The article can be found on http://bcwatchdigest.evidencewatch.com
I hope you find it encouraging.
Wonderful, witty, warm words of wisdom from Shirlann! I loved the conversation between the brain and the body.
Ulla, gentle hugs to you. I pray you will start to feel better soon.
Sue, I can't wait for you and Lucy and Ulla to meet! It is such a great thing to look forward to. Hang on to these plans when your are feeling horrible.
Poppy, what can I say?! Maybe the photos just got lost somewhere in cyberspace/cell phone limbo and nobody saw them! If they did end up on some stranger's cell phone, it may well have made their day! I still haven't had a chance to watch that video but I will.
Cyndy, as Melody said, a lot of men just don't 'get' it with bc. I talk very little to anyone else about my bc experience. This is a great outlet so vent all you like!
That goes for you too Hawkwomen - you will find plenty of sympathetic ears here.
Wren, I can really understand why you had a bilateral, same as I can understand why a lot of women will do all they can to keep from having a mastectomy. Everyone has to make the best decision for them and it's often a very difficult one to make. Same goes for reconstruction and no reconstruction.
Sheila, so sorry you have to wait again for your tattoo. How frustrating after waiting so long already. I am sure it will be worth waiting for though.
Lisa, hope you had a satisfying day and are continuing to heal up and not come down with any bugs.
Hi also to Karen, Val, Melody, Valsul, Tender and anyone else I missed.
Love to you all.
jane. xxxx
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Good morning,
Jane thanks for the site. I'll check it out this morning.
Melody, yes I have the 4 lovies. That's why I'm up on my day off at 5:30
. I have my 2nd of 6 cycles on Thurs. I am doing taxotere along with adriamycin and cytoxan. First round went well. The onc was really happy with all my labwork and after seeing me.
I have good news. A couple of weeks ago I met a woman on here who lives in my area with same doc, surgeon. She has been very supportive and we finally get to meet today. I am so excited. Our schedules have been too busy until today.
Also, is it me or do y'all find yourselves looking for other survivors? Last night I was at my son's P.T.A. meeting and saw another woman there with a scarf on her head. I found myself watching her more than the meeting. Afterwards, we were behind her walking out. My husband told me to go talk to her. I did and bless her heart. She is a single mom who was just dx with leukemia. She unleashed her story and was close to tears as finally seeing someone else who is sick. We exchanged hugs and promises to see each other at the next meeting. And to think I almost didn't go. I was so glad to put a smile on her face.
Sorry to talk so much, but being on here and hearing such words of courage and inspiration, helped me reach out last night. I know that I can come one here and vent and cry and y'all understand. This poor girl does not have that. Have a blessed Tues. and thank so much for being there for me.
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Hi everyone! I don't have a lot of time. It's 6am here and I'm waiting for Portia to get ready for school so I can drive her down to the bus stop. She was off yesterday--snow day! I almost didn't make it to my appt with the onc. My brother and SIL had to come get me with their 4-wheel drive SUV. I wasn't going to take any chances. I've had too much bad luck lately. Don't need another fender bender under my belt!
I just had to post really quick to tell you what the onc is concerned about NOW. She just really doesn't like the sound of my lungs. Remember when she sent me for an x-ray to rule out a collapsed lung? Now she thinks I may have lung disease because my fingernails curve quite a bit. She says that can be a sign of lung disease! She's sending me for a CAT scan on Friday. I didn't sleep all night! The good news is that she prescribed me some Effexor so maybe now I won't suffer from the night sweats as badly. Keep your fingers crossed for me. I really don't need another health concern.
Angie, I read a bit of your last post, and I do the same thing! I notice other ladies wearing hats and scarves who I wouldn't have even given a second glance to before bc. I've never had the nerve to ask them about it. Good for you! I did, however, have a lady approach me at my dh's company Christmas party. She had overheard me talking to another wife about my bc. She was a bc surviver--five years out. There are just too many of us out there, aren't there? It's a stinkin' epidemic! Crazy!!
I'll be back later! Have a great day everyone.
Love and hugs,
Karen
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Good morning girls!
I was going to post again last night. But I finished with most of my chores, then Olivia & I went to the grocery store..UGH! (Sue and I hate that task!) We came home, made dinner, ate, did more laundry and then off to bed.
So catching up with the posts now.
Angie, So glad you have joined us! About the insurance premiums, I will have some vacation time applied, so that should cover all if not part of those. Thanks about me having the guts to call the police on my ex. Still not sure if they actually went and got him.
I have to tell you Angie..you have my admiration, 4 younger kids and dealing with all of this! I don't know how you younger mothers do it! I think that you were meant to find that woman at that meeting!! It would be good for the two of you to stay in touch some how. I am sure she would need a friend who understands, as well as you do. How did your visit go with the lady you met on here?
Sheila..sorry about the delay of the tattos. Do you have your nipple yet? You will have to fill me in after all of that is done.
Lucy..thanks for the video. I so love the beach! How far away is your home from the beach? Too funny about your boobie pics...in the hands of strangers!
Ulla..darling...it is so normal and understandable to feel sadness. Allow yourself to cry and feel it. Your day's are only going to get better. Just think in about 2 weeks from now, you will be feeling so much better!! And then all the days following...better each day!
Mel...I checked into getting short term disability when we had to reapply for our health insurance in Novemeber. I was going to pay for the policy, but it stipulated, not covering any pre-existing illnesses!! Well...so much for that. I am on intermitten FMLA. I filed for that last March.
Shirlann...thank you for your lovely post. We can always count on you to come along and say the right thing!
Karen...oh sweetie..don't worry...we are all keeping you in our prayers, that the problem with your lung is just something small and not lung disease. I am so sorry...I know we can say not too worry...but that is SO HARD not to do!
It is amazing how we are drawn to other bc victims! I think that is normal. What is sad, that they seem to be everywhere! Well...1 in 8 women!! Those are high #'s!!
Stay strong Karen...I love you!
xoxo
Lisa
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Lisa I had the nipple surgery Dec 20 and have been making sure not to squish the new girls. My PS did say at the beginning, that it took the good Lord 13 yrs to make the first set of boobs, you have to give me at least 8 months. Feb 1 will be my 8 month mark. The nurse did say that she numbs the area to be tattooed prior to doing it.
A note on noticing others, When I was about 4 weeks out from my surgery, I was going into my PS office for another fill, I saw a woman walking out with pillows under each arm, moving very cautiously and followed by her husband carrying some gauze pads and tape. I approached her in the parking lot and asked if she had gone through the bilat surgery. She turned to me questioning and said that she had. I told her that I went through it the first of June and was getting my fills. She got a look of relief on her face and asked if it got any better, she just had her drains removed. I told her that since she got her drains out, she was on the road to recovery. I was glad that we just happened to be there that day at the same time so I could encourage her.
Lisa, I had short term disability with my company $300 every two weeks. It was not much but it did cover all the insurance that I have taken out. I got a grand total of $32.18 for the two pay periods that I was out of work.
I wish that I had the guts to call my X hubby when he got behind on his child support, he did let me file for termination of parental rights for abandonment. That termination kept him from coming around, I was abused during the marriage. I was better off without him.
Shirley I love the discussion between the brain and the body.
Sheila
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Yoo Hooooo xxxx
Hello Everyone!!
I am not in a good mood tonight .... humppphhh...humppphhhh
I have to go to that same hopsital tmw that I tried to avoid...the one that makes me blergghhhhh every 3 weeks ..... ARGHH ...If I didnt laugh I would CRY ....I am going for a bone scan ...bcos of the sternum area....I should be grateful but all I feel is sick..SICK ...SICK!!!! and I will have to hang around for hours while the dye works ... Anyway ...thats small fry compared to others so I will shurrup ma face xxx
Karyll ... ((((Karyll!))) Please post soon and let us know how you got on today ...I have been thinking of you ...hope all is well xxx
Karen .... my goodness!!!! I am speechless....I hope the onc is wrong...whre have you got lung disease from ...that is awful ...I am praying for you xxx
Angie I hope you are having a lovely day with your new sister from here..it is so great that you have met today in person!!! I am hoping all is well with you and you lovely family..youre such a strength !!! xxx
Lisa ...xxxx I hope youre having a good day at work and feeling more energized..... I envy your independance with Olivia..I used to love being on my own with the boys ...really love it ...Oh god .... I am so fickle... I am going to get a new life xxx
Melody ..... please post another pic of lilyput if you have any ... I just so love your Lilly hahaha.... xxx Thankyou for all your thoughts....xxx
Hope your having a nice day gb... Is it almost Autumn in Australia yet...it was quite mild in the UK this morning until the rain came...sighs....I am sick of the rain....When I used to say that a few years ago David used to say "Mummy without rain there would be no life!" lol....xxx
Well tonight I am tired ...I am sick with thoughts of tomorrow...I am sore on my arm ....so I think ...mmmmm......I think maybe I will go get radox bath ...and guess what .... I am real sick with all the problems ...worries ...hassles....ailments...that bootface has brought ....
I walked back to my car tonight...musing about how sore my mouth was ...and thinking of how chemo attacks cells and kills them etc....thinking this is what chemo is ...this is it...I know now....but then I went on to think....well I didnt really know a lot last year about any of this...do you know I never thought breast cancer even spread!! ...I also always thought chemo worked most times...how so naive I was...and how much older I feel .. I FEEL SO OLD...I FEEL CHAINED DOWN ....
I love you all .... and big hellos to EVERYONE XXX
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Sheila xxx.... are you set for a date next week for your tattoos...just think ... you're almost done.... I am so wanting recon ... I will have to wait til after radiation .... I still dont understand how they do it.... my scar hurts enough already...gosh I am so naive ...and uneducated xxx
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Shirlann .... I love your post about chemo...it is so very true.... you are so wise and thoughtful...I am so happy you are in my life....xxx Give Dusty a big hug.... and Cleo .... lol.... xxx I hope they're not driving you too crazy xxx
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Just amazed at how long this thread is......and what wonderful friendships that have developed among our sisters.
Love,
Terry
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Hello Terry xxx
I follow your posts regularly...you have such a very friendly and gentle nature..I just want to say....YOU HAVE A GORGEOUS GRANDSON ....he is truly edible!! haha
I hope you are having some good moments xxx
Much Love xxx
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