please help
Comments
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Sue - I thought deep margins meant wide margins. Wouldn't shallow margins mean narrow margins?
gb
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I agree 100% with you gb. I can't imagine going through what I did and having young ones at home. You all are truly amazing.
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Yeah 4 little darlings
I have 2 girls Tyana 14 and Alexis 2 and 2 boys Christopher 7 and Jordan 3. Between them and my husband they keep me positive.
So far I do not have to have rads since my margins were clear and lymph nodes as well. I saw mention of the red devil a few posts back. What is that?
And yes it is good evening so far. Work went well and the kids are quiet. And, since my hair is falling out so badly, I don't have to cook dinner. Good evening to me. HEE HEE
With love
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Yes Sue , I think gb is right.
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Oh Angie, your kids sound gorgeous! What a handful though!
So glad to hear that you had clear margins and nodes. They are two really positive results and give you the upper hand on this nasty bootface (this term has become mainstream - thanks to our lovely, feisty Sue!).
gb
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I think gb is right on the margins also.
Going through this with my children has helped me find the strength to stay so positive. When I first found out, I buried my head in the sand and just let the decisions be made for me. But then I thought of my family and that gave me the courage to get started looking for info and attacking head on. I refuse to let life pass me by, no matter how tired I feel or how bald I get. This WILL NOT defeat me. I made that promise to my 14 year old and she watches me like a hawk to make me keep this promise. She has my temper so I don't know if I want to cross her
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With love
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Angie you have such spirit and energy...you have an amzing array of family....what lovely blessings and things to focus on... xxx
My onc said dear dear thats not good deep margins...thats why I am confused...I think they went as far as they could under the tumour...and had to go deep....I dont know....BOOTFACE SUCKS..
I need to find out more about this though for peace of mind xx
Sorry for my rambling posts tonight my head is all out of synch xxx
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Angie - I am glad you have a temper - you sound like a wonderful, strong woman and your kids and dh must be so proud of you and love you to bits. I love your attitude. The bootface must be quaking in his boots!
Hugs,
gb
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Sue - this is really getting to you isn't it? I think you need to tackle this tactless onc of yours and get him to tell you clearly what he meant. He obviously doesn't have a very good command of the English language. I am getting angry with him. How dare he give such confusing info! Can you ring him soon and get him to clarify things? You don't need this extra worry.
Hugs
gb. xxxx
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Ok ..I am going to say nighty night....have a lovelt Saturday gb xxx
Have some lovely moments everyone...I will think of you all tomorrow....and say hello to you all at 3pm in my head on my drive home from work...so feel the love from Bolton and Sueps little heart....You should be up at our time 3pm ?? Much Love xxx
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Good night dear Sue - I hope you have a deep, soothing sleep. And don't work too hard tomorrow...pleeeeease.
love,
gb
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Good night Sue. I'll be here tomorrow. Hope your day at work goes quickly.xxx Much love to you and the boys. Melody
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Well ladies , I must go make some dinner. My O/H is grumbling... ttyl xxxx Melody
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Ulla, are you there? No, you're probably sleeping. Something you said recently worried me. About the hot baths - I used to love getting into a big bath tub and soaking in hot water but alas - I can't do it any more! Apparently it can bring on lymphoedema. The heat makes the lymph go crazy and it can pool in your arm, scar or wherever the lymph nodes have been damaged and then your arm starts to swell big time. I am not saying hot tubs will give LE to everyone but it is one of the main things they (lymph specialists) warn you not to do. Sorry to be a spoil sport! I am going to really miss my hot baths next winter - they are such a great way to relax - especially if you have candles and relaxing music playing. Bloody LE - it's something you don't focus on before surgery but you have to be careful to keep it from taking hold or treating it for the rest of your life.
Sending healing prayers and warm thoughts to you for a rapid return to feeling good again.
Hugs,
gb
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Well, it seems I'm too late to join the conversation and everyone's logged off for the evening.
gb/Jane, I forgot to mention how wonderful I think it is that you're going into teaching. You implied that you've taught in the past--am I assuming correctly? You're such a caring, sweet woman. The kids will be so lucky to have you! It takes a very special person to be a teacher. So many here in the States go into teaching because they get summers off. This certainly isn't the case for all of them, but I've actually spoken to people who've admitted to it! I can't imagine being a teacher and not loving IT and the kids. It's like a doctor who doesn't really want to heal people. Anyway, good luck Jane. It sounds like a very challenging, but fulfilling career move.
Angie, my oldest is 14 as well. This is the Portia with the pink hair you've probably read about. She's a challenge, but I have high hopes for her. She's so smart, but she just doesn't know it. Sigh..... It's frustrating.
Where's the picture you all commented on that Auntie Em posted? I see that she deleted a post. Was that it?? I didn't get to see it Aunty Em!!
Take care girls. Much love to you all!
Hugs,
Karen
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Oh, Angie, forgot to comment on the pink eyes. My eyes are very dry--yet gummy and irritated. They are more bloodshot than usual from the irritation. I use artificial tears when they get really bad. I'm sure it's just a se from the chemo, but you might want to point it out to your onc the next time you see him/her.
Hugs,
Karen
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Ulla, I'm thinking about you! Hope you're tolerating the Taxotere okay this time!
Love and hugs,
Karen
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Karen,
I deleted the picture because after I posted it I felt that maybe it wasn't the right kind of thing to put up right now. Didn't want to hurt anyone. Sorry if I did.
By the way, I mailed your book today, you should have it by my guess- Tuesday.
Nite all,
AE
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Karen, I had my kids pretty young so I didn't get to finish my education until 2005! I got my degree in teaching then. That first year out of uni I was unable to get a full time job so I did casual teaching and it nearly killed me! The kids have a real attitude to casual/relief teachers who turn up out of the blue if their regular teacher is having a sick day (or can't stand facing her/his class that day -lol). They can make your life hell and you tend to often feel alienated from the other teachers because you haven't built up relationships with them so you don't get much support. (Although some schools were better than others). It wasn't long before the stress just really got to me and I started making excuses when schools rang to ask me to teach. Then I got bc and that wrote off last year. So now I am going to try again but not as a fully fledged teacher. I want to be a teachers' aide so I can get my confidence up and maybe go back to being a teacher. I am not sure but I just have to try again. I also plan to do a part time course in mental health just in case I discover that teaching really isn't for me. I did find it encouraging that this nice principal I spoke with yesterday told me that he had a similar experience with casual teaching - and that was after he had already been a full time teacher for some years!
Have a great weekend,
hugs
gb
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A friend sent me this link. It's so cute!
http://www.youtube.com/watch?v=-Kq3qbwTtbo
Or just type in "cat and hamster" in youtube.
gb
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Hmmmm, I got to thinking sweet Sue, there is a group of nerves right in the middle of your sternum. Where the ribs start. Now, if you are under severe stress, this area will feel like a heart attack. PAIN, maybe this could be what is going on? Is the pain an ache, like a sore thing, or a real sharp jab? I wonder. Also, the gall bladder is an interesting subject too. I am sure that particular organ is not too happy with the chemo. Could be some sort of connection.
How is ULLA? Did not see her post. Karen, Lisa, Angie, Honeygirl, HI Y'ALL!
Sue, I would try Capsacian roll on pain reliever. There are several, they are over the counter, and they work. Also, we had a product called "Stop Pain", sounds so stupid, it was a spray, but it really worked too. So look around at the Pharmacy.
Love you all, our sweet crew!
Shirlann -
OMG ..It is 2am and I am still awake....I have just made a nice cup of english tea...and am lay in my bed...with Zippy. I have to be up for work in 4 hours...OMG...what a day I am going to have....xxx
Thanks Shirlann xx the pain is like a sore pinch thing bruised and pulled ..the onc looked at it and my actual bone on the sternum is very swollen and odd...so I am fearful xxx
I will try these pain killers...I am sure it might be strain as mainly it hurts on exertion...
I want to live so much...surely thhings cant be this cruel so soon.
Well I will try again to sleep...I wii be fit for nothing tomorrow ...and a busy Saturday...at least I finish at 3pm sigh
Much Love xxx
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Karen, thanks for the info on the eyes. I saw my onc yest and forgot to ask. Need to remember to write things down. My 14 yr old is a blessing. She is a typical teen w/o major attitude. WOOHOO.
Sue, I wish I could shoulder some of the pain. I am with you in spirit and you are in my prayers. Just when you think that you can't take anymore, that is when you can find it in you and in all of us who love and support you to go that extra mile. BTW, what type of treatment are you taking?
gb, good luck going back into teaching. I am a teacher's aide with 2nd grade special ed. and love it. For me there is no better profession. Karen is right about a few teacher's here picking the career for summer's off. I work with one and it's been hard to see the children not get the chance they deserve because their teacher does not want to be there. Is that a problem there?
With Love
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Angie, when I first started my teacher training there were quite a few students who openly admitted that they had chosen teaching due to the "long holidays" and because they thought their working days started at 9 and finished at 3! Hah! Their eyes were soon opened when it became obvious that teachers spend most of their "holidays" preparing their programs for the next term, taking part in "inservice training", etc etc. Most teachers here would be lucky to get 4 weeks during the year where they leave their work behind and start to relax. And as far as the "short" working day - well, in the first couple of years out, you have to be at school well before starting time and usually for at least an hour or so after the kids leave. It's a hard slog. So, no, I don't think it is a problem here. I think the main thing is that you do have to be cut out for this profession because it is really challenging. Society has changed so much. When I went to school most kids had quite a lot of respect for their teachers. The downside was that I think discipline was often a little harsh. Now we have come full circle and it's the teachers who are struggling with the kids. So many come from really sad, dysfuncional families and teachers have to contend with very disturbed, angry children. There are some wonderful, loving families out there who have the right amount of discipline and children from these families have such a huge advantage.
hugs,
gb
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Good morning sisters!
Ulla...I hope, if you are strong enough to read this, that you are doing well!! Last tx...woohooo...so very happy for you!! Much love to you!!
Jane (gb)...your writing is beautiful! You are a talent with the pen! I am glad you are getting into teaching..and as an aid and not a substitute. I know here in the states, kids do not respect substitute teachers as they should. You will be excellent at what you do. You have the love, compassion and want to be there! My middle daughter, (Matthew's mom) is in her 2nd year in college, preparing for a degree in early childhood education. I think she will be a wonderful role model for the little ones.
Shirlann...your story about Cleo is so sweet. I do believe that she did that. I have found Oliver at times doing things..that are "human like"! Yesterday, Olivia was hugging me, as I was lying on the couch..and he got so jealous, that he literally (with his 4lb body) moved her arm out of the way, and put his face in between ours..so she could not kiss me...haha...so cute!
Sue, sorry to hear about your pain. I hope you get the answers you need soon.
Mel, I hope Miss Lilly is feeling better today. I have to have Oliver fixed soon. He is never around any females..haha, but he lives a longer life, if he gets fixed.
AE..I didnt see the pic either.
Angie...4 children..and young too!! I am amazed at all of you that have young children!! Truly my heroes! I have 3 daughter's Angie..but my youngest is 16. Any help I can give to you or Karen about raising teenage daughters, don't hesitate to ask...I will help in anyway that I can! Been there done that..as we say in the US!
I am glad you and Sue will be on the same journey together!
The red devil is Adriamycin (sp) It is one of the tougher tx's.
As for me...I got off work at 12:30pm yesterday...got home, slept a bit, visited with Olivia when she got home, ate, ate...and then fell asleep again on the couch until 1am..off to bed and up for work today at 6:45am. I am not sure why I was so tired...but I sure did sleep allot.
I am not sure how the symbols disappeared yesterday?? I am at work now, but when I get home...I will log on and post and see if they are still gone! I sure do hope so! I didn't do anything...they just didn't show up..haha.
Ill check in later..
Love to all my sisters here!!!!!
xoxo
Lisa
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Hi Lisa , maybe when your computer was down , and they had to fix whatever , maybe that did it. Wow , talk about sleeping , you and me both. I fell asleep at 8:30 last night and got up at 5:30am! Thats 9 hours , I never sleep that long.
Ulla , Hi girlfriend , hope your resting and not having to bad of a time with the se's of tx.xxx
Its snowing here again. Or should I say yet. But just flurries ,no storm like last weekend. But they are calling for a high of 46 by Wed.! Crazy weather , globle warming indeed!
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YOO HOO ....X X X X
I'm home!! What a rowdy noisy day at work....I always feel rattled on steroids ...lol....everyone laughs at me
Well hope you are all having a good day...I got through the day with 2 hours sleep last night...I still have pain ...but I am not letting it bother me anymore...or at the moment...so there ya go..makes me feel so much more in control....what will be will be...and I am not going to lose anymore precious moments ...well not right now anyway... xxx
Ulla thinking of you and hoping you are getting lots of rest xxx
Right gotta sort a sore throat out..I can feel the chemo cleaning me up ...I love this feeling..it lasts for a couple of days...deep clean LOL...
Much Love to you all.... x x x
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Hi Sue
! Glad your home , and your noisy work day has ended. Get a cuppa , put the toosies up and relax. Thats if the steroids will let you!
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Hi Valsul , am thinking of you daily and praying for complete recovery. Hope the tx ses' aren't to bad for you. I am sending you an angel of comfort. Love and Hugs to you. Melody
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Glad you are doing well today Miss Sue.
Mel, I am waiting for that warmup! I am tired of being cold!
Well, girls...I am having some tough moments today. It's just because I have been feeling so emotional lately, I am sure. My oldest daughter Danni, called to tell me that her laptop (2nd one) has quit on her. It was only 2 weeks out of warranty. So, she just had to put out $1300.00 for a new one. She did get a 6mos. w/out interest deal at Best Buy. Then my middle daughter Alise called to say that the car she just bought this month, needs new rear roaders(SP?) and brakes put on. They are charging her $600.00. My problem is dear sisters is that as a Mom...I feel so helpless and useless to them right now. I know they are both adults, but they have worked so hard to put themselves through college and supporting themselves, that I feel so bad that I CAN'T HELP THEM...FINANCIALLY!! It is so hard for me...I just wish I had the money to help them out. Then I get so angry at their Dad for not paying me a damn penny to help take care of Olivia!! If he paid me what he owes and what he needs to pay on a monthly basis, I would be in a much better state. I am just so frustrated...and mad, and very sad.
I am sorry to go on and on about this. I am sitting here at work in my office with tears running down my face! Why...I just wonder why all these things keep happening to me (us)??
I am sorry...
xoxo
Lisa
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