please help
Comments
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Well, I guess the parametics came and checked him out and his bp was a little elevated, but otherwise he looks ok. I think he's just stressed out over the events of the week. I think he'll be ok.
Later girls! Rest well everyone. Things will be better tomorrow.
Love you all,
Karen
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Hey Karen , gosh , I hope everything is ok with you fil. Times like this are so stressful for everyone involved. I'm not sure when Ulla's last treatment was. I hope she is ok. Karen , try and relax. Get some wonderful after bath hugs from Chase. That will make you feel better.xxxx
Lisa , thanks for the uplifting words. I am just in a funk right now. I think these darn hot flashes are really getting me down. I was so happy , I didn't have any for about 4 hours and then boom , I just had two within the last hour. I don't want to do anything , it seems everything brings them on. So I guess it doesn't matter if I do something or not , I get them anyway. I would just like to have a dry head for one day! OK , enough. There is always tomorrow at Tara!lolxxxx
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Karen , glad he is OK. I'm sure he is having some anxiety after all he has been through.
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Hi All
Sorry! I have been doing a lot of work from home at the moment as I have my half yearly review with my boss next week and I have to show a file of evidence on different management behaviors (load of bollocks really!) so been doing that.
Does anyone know why children are a nightmare to get out of bed on a school day but have no problems waking at 6am and shouting like a bunch of animals on a Sunday morning!!!!!
My neighbors must think Im awful all I say on Sunday morning is "SHUT UP!!!" LOL
Karen I hope everything is ok with your family
My parents flew out to Goa yesterday for 10 week holiday! I wish I was retired!
Im on my mac and cant insert links but if you paste this into your browser you will see a really funny vid of just what men are like with a cold! Its classic man flu!http://www.youtube.com/watch?v=rXLHWmjA5IE
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By the way if you watch the clip -
Lemsip is a cold and Flu hot drink remedy
Cbeebies is a kids TV channel -
Hello Everyone XXX
Well I hope you are all feeling a little better today. I don't know...we are all feeling ...erm ....arggggghhhhh....ARGHHHHHH...I think we are all out of energies and a little low....maybe it has something to do with January....what are we going to do!! Ride the storm? Or all get inside a rubbish bag and ask god to give it a good shake up ...LOL....
Seriously ...it has been appx 4 months since I was dx .... and I am finding it so difficult ...so much more difficult to live with now ...as everything has levelled out....the fear ... the feeling OLD ...the mutilation....all this and more. Now this is enough for us all to bear....it is more than enough!! So I think when other worries and stresses of life come our way ....like house moves ...family illnesses....normal stress...I think we find it difficult....Let me explain...when I found out Tom had sold up to a large company....I knew and I know my job is going to be a zillion times more stressful....so I worry and I get fed up...to a point...and then I think..whats the point as I may not be around ...and I have been through worse....so then I become all mixed up....well how should I be reacting to things like this....and then I sit on the fence ....and become despondant ....as life goes round without me....Am I making sense.....Same with money....I have always been a saver....and I could save loads right now...but whats the point....What is the point of looking good ...if I have had my breast taken ...do you see all these things....
I need to pick the pieces up .... I need to find a way to look ahead....I dont feel depressed....I just feel LOST.
Do I sound silly.... "sigh"
Maybe its Winter Blues....but seriously....
WHAT DO YOU WANT FROM ME BOOTFACE ...WHAT DO YOU WANT ME TO DO ... !!!!!
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Melody...Lilly is seriously beautiful ...look at her black marking on her eyelid....I think she is a stunner!!
Karen I hope you have a better day today...I am always thinking of you ..... Lets hope we feel a million times better in the Summer....I am glad you have Chase in your life...xxx
Ulla...where are you... xxx I know youre probably feeling your bad days....I have felt so tired and achey all week with this treatment. I do hope you are OK though xxx
Poppy... sister
LOL @ your boys ....you're a great mum...they are monkeys...you will have two minders at either side of you when they all "growed up" ahhhh ....wont be long...time flies!! xxx
Well I am going to make a huge roast dinner...I always like to feed my boys up on a Sunday....its the only day I am not rushing around... xxx
I NEED YOU ALL TO KNOW THAT YOU MEAN THE WORLD TO ME AND OUR TIME WILL COME WHERE WE WILL FIND BALANCE AND PEACE AGAIN. EACH DAY PASSES IS A DAY FURTHER AWAY FROM BOOTFACE....AND ONE DAY HE WILL BE BUT A PINPRICK....
God I am visualising it as a he !! and I am visualising a black dot on the horizon.... I need to see a shrink LOL..
GET LOST BOOTFACE XXX
Much Love xxx
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OK I also want to say....thank goodness I found you all in September....and thank goodness you found me... I care about you all dearly.... I am so very very grateful that something like this exists.... xx
Right I will go prep the veg now and throw the chix in the oven...
xxx
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Karen, glad to hear your fil is doing ok.
Poppy...how I remember those days...they may drive you crazy right now, but try and savor them...they truly do grow up so quickly!!
Sue, I do understand your feelings and thoughts. But...try, and I know it's difficult..but try and look at things a little differently. When it comes to your job...there are things in life we can't change..like a new boss, bootface, a move, whatever it may be. So ....those things...we have to take as they are and deal with them the best that we can. Worrying (remember worry is for shit...lol) will not change how your job will be with a new boss, nor will it change your cancer or your tx's. Stress from worrying and thinking that we do not have a future is poison!! Try with all that you have to take these things in stride. Look at the cancer as something you are fighting...with chemo, with your mind and your spirit! Continue to have the outlook that YOU ARE GOING TO BEAT THIS!! So..continue to save your money...you will need it to raise those precious boys..and take great vacations with them...and spoil your grandchildren with lots of toys!! Your tx is a long one...but that is because your oc wants to be sure that you have done all that is possible to rid this bootface once and for all!! Please Sue...I do know how difficult it is to be positive right now...I felt the same...but YOU CAN DO THIS!! You have so much to live for...chin up....keep your dreams...because they will be a reality!
And when it comes to looking good....your breast are only a part of who you are. Right now...do what you can and want to do to look and feel good. But I found, that the days I put on the extra little make-up or dangly earrings with my scarve on my head, were the days I felt sooo much better about myself. Those small little boosts are helpful. When you don't feel up too it...dont. But isn't it like that in every day life?
You are a wonderful, beautiful person..who has a whole life ahead of her!! You will make it...and look back at this time...and say...wow...I was strong...I did it!! And you will be the inspiration to others.
Melody...I hope my words helped. I know how you feel, except I don't have the really bad hot flashes as you do. So think of it this way...if the body and head are sweating anyhow...might as well be sweating on the treadmill..and working off those calories.
I love you all!!
xoxo
Lisa
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Hi Sue
! Everything you say , I feel. The good , the bad and the ugly! I too am so glad we have this place to come and bleed our hearts to one another. There are so many sisters going through this. But I feel so blessed , that out of all the people going through this , I was lucky to find you and all the others who come here. I guess when we first read your post , we were drawn to you , because I some how felt , oh I don't know how to describe it , its like when you meet someone , and know you want to get to know them better , and be friends with them. Even though something horrible brought us together , we all have connected as heartfelt friends. I am so thankful for you all.xxxx
Lisa , thanks for all you encouragment. You really are a shining star for us all.xxxx
Well ladies , I decided I need to get out of the house for a while. I am going shopping. C ya later. xxxx Melody
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Melody...Thank you...I am not a shining star...just a friend who wants to try and help. I have my down days too. I feel exactly like you do...I was drawn to Sue's post. When I signed on on Nov 4th..it was one of the first one's I read...and there was...a connection...can't explain it! But...I feel the same about all of you here...you mean so very much to me. I think about all of you everyday.
Sue..when I first saw your avatar..remember...I thought it was a painting from one of my favorite artists...Mary Cassatt?? We were all meant to come together..and I am so glad that we did!
Enjoy your shopping Melody...you deserve it! I bet there are some good deals out there. I have to go to the grocery store to shop today...yuck..not my favorite thing to do!
xoxo
Lisa
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Well I'm sorry to see alot of you ladies are feeling so down.
Sue, I think I now how your feeling. I think you have come to the realization that things will never be as they once were. We on the other side of the rainbow call it the new-normal. Everything you did, wished for, look liked etc., has changed. It happens to all of us. Things you once thought important don't matter as much anymore. Your priorities change. What your feeling is NORMAL, it's just a new way of looking at things. I'm still coming to terms with it, it's all part of the journey.
Hang in there girlfriend, OZ is waiting.
Aunty Em
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sue ,,i feel every single word u said about money and looking better..
i am trying to cope but the pain and swelling of lymphedema of my arm crashing me really
it hurts no matter i do or dont do...it was so busy weekend cleainng the flat and doing all these things,,,,,u know,,sorry i couldnt catch all the posts...
love u all ladies
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Hi Ulla! So glad to see you post. I wish you would of been at my house cleaning , cause I didn't do anything I was suppose to! My O/H son is coming to spend the night Tues. and I wanted everything to look nice. I don't know why I didn't do anything. Maybe I work better under pressure , I will clean like a maniac Mon. night!lol
Lymphedema seems like such a horrible thing to have. I read a lot of ladies here suffering. Sure wish there was something you could do for the pain. I have a different kind of lymphedema. From my diep reconstruction. My pubic area is all puffy with fluid , it doesn't cause me pain , just embassment. I can't where pants that fit in the crotch , because , you've heard of the saying "her pants are so tight , she had camel lips" well , forget the camel , try hippo!!!lol So one of the ladies on the breast reconstruction thread said she wore a girdle and that helped it. So , I bought one today. I hope it works. I don't know when I will get to see my ps again. Maybe April to do my nipple. I hope he can do something about this if the girdle doesn't help.
Hi Sue
! How did that delicious sounding dinner turn out? I bet it was great. Hope you had a relaxing day with your boys and O/H.
Hi Lisa , gb , Shirlann , Mia , Wren , Auntie Em , Karen , Poppy and anyone I forgot. Hope you all had a great day.xxxx Melody
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Hello Everyone xxx
Well I have a cold sweat going on .... I think its hormonal...the room has suddenly turned hotter LOL....I have just said goodnight to David ...it is 10 30 pm
I hope he wont be tired at school tmw ....
I made a lovely roast dinner and cake and custard .... so that was good...I love seeing the boys eat well xxx
I am still feeling fed up with aching all the time etc and my sore rib....what started out as a rolleer coaster ride in October has suddenly turned into one of those labouriously boring coach trips ....LOLOLOLOL......more or less the same freaking trouble of an illness everyday ....same scenery ....hahaha...
Mel I hope your girdle helps...if not the surgeon will definitely be able to help and dont worry about not doing the house work and feeling lethargic...I always feel like this and do things much better in fits and starts.... xxx
Ulla ...hello sister xxx... My arm is painful still...it never gives up...all the way down to my hand ...I am going to go to the massage link in min and do massage .... xxx
I have just read the start of this thread up until my surgery date.....my goodness how naive I was to bootface ..... and how it is evident that you all saved me...I was bobbing along without a life jacket when the life boat arrived ...and you all kept me afloat forever in a day xxx
I am in my bedroom again with Zippy....he loves it up here..his eyes bulge with Love ...lol...I think he finds it more peaceful up here and can sense I am relaxed.... xx
I just want to go through the unsettlement in my job and finish freaking chemo and rads...I HATE CHANGES AND I HATE WAITING...
I am going to do so much when all this is over !!!
If I had to ....somewhere down the line...I am not sure I would go through chemo again xxx
I LOVE YOU ALL xxx
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RIGHT SUE ...THIS POST IS FOR YOU!!
YOU NEED TO GET A FREAKING HANDLE ON YOUR LIFE AND BOOTFACE.
YOU ARE THE SAME PERSON AS YOU WERE BEFORE, ITS ONLY THE CIRCUMSTANCES THAT HAVE CHANGED.
YOU DONT NEED TO THINK ABOUT DYING OR INFACT YOUR NEXT TREATMENT.
YOU NEED TO LIVE ONE DAY AT A TIME...AND LET THOSE DAYS ACCUMULATE INTO YEARS.
THERE ARE PEOPLE FAR WORSE OFF THAN YOU.
YOU ARE WASTING YOUR LIFE BEING NEGATIVE.
SO DO IT !!!
and no more
or I will be
and you will
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Aunty Em... Do you think I will be happy with the new normal once I have got used to it xxx
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<--------- see her there in that pic....where did she go
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Sue, somehow I think you will do just fine!!! That gorgeous lady is still there, just a wee bit older but much, much wiser.
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By the way, I'm sitting in just my bra & panties
, have a mother of a hot flash...........gotta love the new normal.
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Oh my dearest Sue, Ulla, and poor Karen, whose 300 pound relative will soon move in with her! NOT, couldn't resist teasing poor Karen. And we got Poppy back.
Now, first of all, all our bio-rythyms are always low in December/January, less sunlight and usually dreary weather. Also, it is the height of the germ season, so for Sue especially, with the public, you will catch every one, not to mention the boys, who will bring you home a lot of bugs. BUT, next year at this time, you can laugh when you remember.
And Sue, you will indeed be your old self. Only better. Why? Because you have fought the beast and won, Ulla too. This does give a little bit of a superior attitude. La la la la la, I had cancer, now I am well, la la la la la. Works for me! You are not afraid of much of anything again. You will be stronger.
When ever you get those pains and aches that are on both sides of your body, usually it is something other than cancer, which has never been known to hit two exact things at once.
Now: for the uplift for the day, this is kinda long, but I love it.
"In the 18th century, in Ireland, a fine Lord had just married the most beautiful woman of his dreams. They were ecstatically happy. Then he had to go to London for business meetings for about 3 months. While he was gone, his lovely bride contracted smallpox, and while she eventually recovered, she was now covered with horrible pox marks, and was heartbroken, since she felt hideous. So when her dear husband came home, she asked for a divorce and refused to see him. He cried outside her bedroom door and begged her to let him kiss her. She weepingly replied, "you could never love me now". Then, at his wit's end he wrote her this poem, which many of you will recognize, as it is now also a song. It was written by him in the middle of the night, and he slipped it under her door.
This is the poem:
"Believe me if all those endearing young charms which I gaze on so fondly today,
Were to fade on the morrow and fleet in my arms, like fairy gifts fading away,
Thou wouldst still be adored, as this moment thou art, let thy loveliness fade as it will.
For around the dear ruins each beat of my heart, will entwine itself verdantly still."
Now, when she read this, she weepingly opened her door and fell into his arms. They lived happily forever after.
Sighhh, I love that story.
So all of you, remember, it is what is inside you that matters, not the outside, and those that love you truly, will love you always.
Gentle hugs, Shirlann
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Oh Shirlann...that is beautiful....that is so beautiful....I wish you could give me a big cuddle
lol ...you are so loving xxx
Aunt Em...you sit there in your bra and panites all ya like girl...lol...as long as it cools ya off...I took my hat off...I hope you have your curtains drawn...haha xxx
Its nearly midnite...I have gone off sleeping this week...lol...I am so mixed up .....
Shirlann you are so right about January xxx
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Thanks Shirlann...that was a lovely story.
Sue...I like your post to yourself!! There you go......haha...that was too cute!! None of us are ever going to be the same as we were. But I like to think that we come out from this BETTER! I really do think we are changed women...but for the better!!
Well...NYC is expecting a snow storm tomorrow...saying at least 6 inches or more. It is snowing here now. My friends decided to put our day trip off till possibly next Monday. That is ok with me. I wouldn't want to get stuck in NY, since I have to be at work on Tues. morning!
Mel...I am not sure that I knew...and maybe I did that you had reconstruction (diep) done. I am sorry you are having problems with fluid. The whole upcoming surgery is making me somewhat nervous!
Have a good night everyone!
xoxo
Lisa
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Hello all,
I'm sorry some of us are feeling aches and pains and all that.
My trunk area in my armpits has swelling and it hurts -- even when I do massage and wear a sleeve, I still feel pain and it just tires me out. I press on, but dang, it's difficult sometimes.
Sue, I know you will embrace your 'new normal' and run with it into summer and sunshine. I can see it already in your spirit.
Anyway, I'm just checking in--I'm here reading mostly every day--and when I'm not, I'm just busy with life. I don't know how you can work, Sue, or anyone. I didn't have chemo, 'just' mastectomies with reconstruction and I am still not up to working (I'm an elementary school teacher K-8).
Hugs to all of you. Bless you for the support.
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ok...the computer illiterate..ME...is trying to download some pics for you to see...wish me luck!
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I am not sure how to get these smaller!! sorry!
This pic was taken last Christmas 1 month before Bootface was discovered!! It's me and my youngest daughter Olivia.
This is last x-mass also...my3girls!
This x-mass...me and Dad! Look...no wig!
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I am soo sorry about the big pics on top...I tried to make them smaller...but it didn't work?? I am bad at this..just happy to have finally been able to put one on!! haha....
Karen...I am going to put one on of Oliver from last x-mass...coming up...just for Chase!
xoxo
lisa
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sorry..another big one
Oliver and Olivia Christmas morning.
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Thank you so much for all the beautiful photos! (And your kind and wise words). Lisa - you are gorgeous on the outside as well as the inside and such a lovely daughter! You look very young too - could pass as your daughter's sister!
Lilly is such a sweet cat - we call that colour tortoiseshell here but I think I prefer the term calico. I think all (or most) cats of this colour are females.
So sorry everyone has been having a downer lately. Hot flashes/flushes are the worst. This is why I hate summer! Yesterday it was 35 degrees (Centrigrade!) in my kitchen. I thought I was going to blow up! What with the hot flashes and high temps - very hard to take. Luckily I have a little flat/mini apartment at the back of my house that has air con so my partner and I spent the afternoon out there and just made dashes into the house if we needed something. Today it is cooler and raining and it's a welcome relief.
I have to have my first post-dx ultrasound this afternoon and see my bc surgeon. (I had a digital mammo in November and it was clear) so I am not really worried about the u/s but it will be nice to be told that the u/s is clear too.
Mel, will be waiting to hear how your sister's test results went. Praying that they will be very benign.
So good to see Ulla's post. So sorry your LE is giving you pain. It is just so unfair that you have to have this discomfort along with everything else. Have you seen a LE specialist?
Sue, I don't want to sound twee, but you are such a beautiful person. Somebody here said that people who really love you will love you no matter what. Look how much we all love you!! Even before I had bc and mastectomy, I would sometimes see pictures of women with mastectomies and the main feelings I got were huge admiration for them and the idea that this is a different type of beauty. I wish I could do some sort of artistic representation of this new beauty. Photography, sculpture - I am not sure but the women who battle this disease just fill me with respect and love.
Wren, I am trained as an elementary school teacher too. I trained late in life and graduated 2 years ago. The first year after that I did relief/casual teaching and the second year (last year) I got bc and had my mastectomy. I found teaching sooo stressful and am hoping to get a job in some other area. My dream is to write and illustrate a children's book but meanwhile I just want to get a job so I can afford to buy paints and other arty stuff as well as pay the bills. My partner gave me some water colour paints and some brushes yesterday so that's a start!
Thanks for the lovely story Shirlann - you always have something uplifting to say to us. You are so lovely!
Auntie Em - go the bra and panties - that's more than I was wearing yesterday! No, not naked! I just had a sarong wrapped around me.
Help! I will miss my appointment! Must rush!
Hugs, love
gb
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My u/s was fine - lots of cysts but nothing to give concern. My surgeon even went so far as to say that I probably don't need to have a u/s as well as a mammogram but I would rather take that extra precaution.
gb xxx
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