please help

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited November 2007

    Just doing my nightly check in on our dear Sue.  Glad to hear the arm is better and work has been a distraction.

    Please don't get your panties in a bunch over chemo.  Once you start you have all of us here to guide you thru it and make the journey that much easier.  When the time comes we will fill you in.

    Karen, love the pics!!! Your son is the absolute cutest!! And the furbabies are just as adorable.

    I just love all the pictures.  I think it brings us all that much closer, don't you agree.

    Well Sue, my guess is that  its after midnight there.  I hope you are fast asleep.  I'll check in tomorrow to see how you are doing.

    Stay Strong,

    Valerie

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    Thanks, ladies.  My little man is absolutely my pride and joy.  I love my daughter to death too, but she never was as affectionate as my son is.  She has always been more standoffish in a way when it comes to me--more of a daddy's girl.  It's amazing how totally different they are, but then they do have different dads.

    Melody, I forgot to comment on your picture.  You are so beautiful and your son--he is SO handsome!  And he's sweet too?  That's a pretty rare combination.  He's going to make some lucky lady very happy (if he hasn't done so already). 

    Take care everyone!  Have a wonderful weekend.

    Hugs,

    Karen

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    Oops, almost forgot.  Regarding your question about cravings, Melody, I'm craving sweets!  Horrible, huh?  I don't typically eat a lot of sweets (salty foods are my weakness), but I can't get through the day now without something chocolatey.  Of course, potatoes and pasta are always a favorite.  I probably have been eating more of them than usual too.  I'll tell you what--I've been LOADING UP since my sense of taste came back!  I've never appreciated food so much!

    Hugs,

    Karen

  • honeygirl
    honeygirl Member Posts: 1,718
    edited November 2007

    Oh Karen , I know just how you feel. I hadn't ate McDonalds fries in years , but I just had to have them after chemo! NOT good for the waistline!lol I thought maybe it was the salt for me , since I couldn't taste anything , I could taste something with alot of salt on it. But potatoes did seem to settle my stomach. Go figure...

  • mrs_X_Sunneedazee
    mrs_X_Sunneedazee Member Posts: 541
    edited November 2007

    Sue, You have been having quite a hard time. I am so glad to read your posts and know that there are others out there that have the EXACT same feelings as me. I had a hard time yesterday mourning the disfigurement of my body. My tummy is so bloated from the hysterectomy, and I am bruised everywhere from the mast and hyst, and I just BAWLED. I hate not having hair...I wonder if I will ever look halfway normal again. It is so good to know that others have the same feelings and mourn the way I do.



    Some days, it is easy to be positive, but then there are days when all I can think about is how much having cancer SUCKS!! It is hard to be hopeful sometimes. I am so glad we have each other to help one another through this difficult trial that life has dealt us.



    I loved everyones pictures!!! I will have to post some pics once I feel a little better. I hope everyone has a good weekend!



    Hugs to everyone!

    Amber ... Sunneedazee

  • geebung
    geebung Member Posts: 1,851
    edited November 2007

    Sunneedazee, I am unqualified to talk about chemo and hair loss but I just wanted to send you a big hug - ((((((())))))). I am so sorry you are feeling so uncomfortable. You have been through so much - no wonder you have been crying - the whole thing just stinks. I hope and pray that you will start to feel better soon.

    Love

    gb 

  • geebung
    geebung Member Posts: 1,851
    edited November 2007

    Dear Sue,

    I hope you are having a restful weekend and are enjoying cups of tea, cuddles with your boys and OH and feeling soothed by Zippy's flirtacious antics and purry softness.

    Is it brisk and bright for walking or rainy, stay-at-home weather? It must be getting quite cold over there now. I am very weird - I love cold weather! I live in a very warm to hot climate and our "cold" weather is a bit of a novelty - I'd probably complain if it lasted for months and months though.

    We get a really interesting program here from England called "Grand Designs" about the designing and building of really beautiful houses. They cost a fortune and are always built in the most stunningly beautiful countryside. Sometimes they convert old mills and castles into modern houses while keeping lots of the original features. It's great escapism - I could never afford a house like that but it's fun watching!

    We used to get Coronation Street here but I was too young then to get interested in it. I think I remember another British soap - The Eastenders? Most of our soapies are American (The Bold and the Beautiful, Days of Our Lives) and Australian (Neighbours and Home & Away).

    Well Sue, will stop raving on. Hope you are doing ok.

    hugs,

    gb 

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Hello everyone! xxx

    Its sooooooooo good to hear from you all....I absolutely have the upmost respect for everyone....you are all truly amazing ...so please please remember this... when the going gets tough or ya got the blues and struggling that ...you all to me are everything ..... with the sincerest of sincerity! xx

    Karen your son is gorgeous...and you really gave him a great halloween...I understand about children being able to relate  in different ways..my sons are like chalk and cheese....drives me nuts at times...lol....you are really special to me....I wish I was in the October gang of chemo girls!

    Melody..I had a few of them moments again today when I was laughing and joking with colleagues and really enjoying my work....a couple of my regular customers brought me in some roses because they had missed me....I will come to grips with this all and live with it I promise .... I am so glad you understand those moments xxx

    sundeedaze...I love your new pic.....you are doing absolutely fantastic...it is so good to know you are out of hospital and got the surgery over with....keep taking those pain killers....one day in the next couple of weeks...the pain from the mastectomy will suddenly lift...I had a really difficult few days where I thought the pain would be there for life...it Will go...as for the emotional side....I am grateful to have you by my side...I will always be here to prop you up and I admire you so much...lets be strong xxx

    gb xxx hello xx It is always lovely to read your posts...even though we are miles and miles apart I feel very close....xx The weather here is quite mild for the time of year....I havent worn a coat yet...it usually is bad in January....although you would probably find it cold...we have had such a dreadfuly wet Summer that a lot of people aren't noticing the Winter set in...I love brisk and breeze...its quite brisk tonight..its nice to get fresh air after work....  I love the program Grand Designs...it is brilliant how they turn things into habital space...we get a lot of diy programmes like that but this is my favourite ..as its quite extreme and very interesting......I hope you are having sweet dreams right now xxx

    Valerie xx Thankyou for always checking in, it means so much to me...you are a huge strength to me and my journey...I hope you are well and enjoying a good day....xxx

    Well I have been working too hard today...Saturdays are ALWAYS busy.....which is good ...but not when the stamina fades...lol....tonight I am crashed out and watching the X Factor with Simon Cowell....like American Pop Idol....I love that programme too...When is the next season?... I remeber Rueben...and Fantasia....great stuff!!

    Still feeling blue a little and wondering why I am not stressing about Xmas shopping LOL...everything seems unreal and stalling somewhat....life is going on but stopped ..... very perculiar....I am still in shock from everything I think...unless it is my coping mechanism....

    Ramble over lol..... Hope you are all having a good moment..xx

    Much Love xxx

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Tomorrow I have a day off..which is kind of good...but I will be thinking more and worrying about Chemo....so I will have to work out something to do ... to keep the demons at bay...I will try and write some questions out for oncology as Monday and Tuesday I am working and then Weds its 'bobs your uncle' ....appointment....YIKES!.....I really must go to the wig shop..I think we get one free on the NHS too...I am very grateful for the NHS ...

    I am going to ask him about my neck and chest on the side that the mastectomy is on as I have a dull swollen like ache under the top of my ribs...theres no lumps under my collarbone...I think it must be strain from work...but I will ask him about any lymphnodes there...I feel fine apart from that ...

    Well...I will catch you all xxx Smile

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Oh sorry again ...lol...the most important noticeable ...is that I feel a lot healthier since they operated...prior to that going back 4 months I was extremely tired with a lead weight feeling dragging me down and no matter how much sleep I had I was always tired...so it just goes to show I WAS ill....sorry to rabbit on....I physically feel a lot lighter and healthier  and of course all my cravings for vinegar have gone...which Tender pointed out symbolised chronic fatigue...what a difference! xx

    Much Love xxx

  • honeygirl
    honeygirl Member Posts: 1,718
    edited November 2007

    hi SueSmile! I've read on the threads , and I too , had that extreme tiredness before being diagnosed. I think its more noticeable after surgery and treament , that I have a lot more energy now.

       Will you have a port put in? Good luck Wed.

    I think american idol starts in Feb. but I'm not sure.

    Have a good day off tomorrow. Fill it full of fun and laughter if you canLaughing. Take care ,xx Melody

  • honeygirl
    honeygirl Member Posts: 1,718
    edited November 2007

    Oh , thats right , Tender did say that. And now your craving is gone!?! I find that so interesting.

    Tender , you are so knowledgeable and such a kind soul. Thank you for being you! xx Melody

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Melody...I am not sure if I will have a port put in...I guess I will know on Weds...I never heard of ports before until I read these boards....if you don't have a port in do they just put one in your hand..like before surgery...or do they ..well I never really thought ...I just know I have a phobia of nurses with needles...as a few years ago I went for a routine blood test with a nurse of at least age 100 ...who kept stabbing at me because she couldnt find the vein....lol....I was sooooooo black and blue the next day...she eventually found a vein after putting her spectacles on....so needles make me ewwwwwwwwwww  xxx

  • geebung
    geebung Member Posts: 1,851
    edited November 2007

    Hi Sue,

    I am wondering if the dull ache in your neck, chest and wound is caused by a build up of lymph fluid. This is so common after surgery. Sometimes it pools in one place (seroma) and other times it can be over a large area. I still have it a bit in my scar but at its worst it was all over the front of my ribs, round to my back and especially in my arm pit where they removed the nodes. There were no obvious lumps, just a heavy, tender feeling. Lymphatic massage was SO relieving and soothing. Kinesio (sp?) taping brings great relief too as it lifts the skin slightly and the lymph can drain away. I hasten to add that if this is what is causing the ache, it doesn't mean you have lymphoedema but post surgical edema. It will eventually settle down but it can be uncomfortable. Perhaps you are working too hard - if you use the surgical side too much it can cause an increase in lymph. 

    It's so interesting about the vinegar cravings and extreme fatigue and great that you don't have them any more. You are doing so well Sue. I will be thinking of you especially over the next few days before the onc appointment. Great idea to jot down your questions - it's so hard to think of them when you are sitting in front of the dr.

    Well, I'm off to see Miriam Margolyes, a British actress (she was in at least one of the Harry Potter movies). She's doing a show called "Dickens' (Charles) Women". I saw her interviewed on tv and she is hilarious. 

    Enjoy your day off Sue. Hope you can do something indulgent and relaxing.

    Lots of love,

    gb 

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Have a wonderful day gb xxx 

    The symptoms you describe are exactly the feeling I have. I think I have been using my arm too much at work...as last night I had stabbing pains under it...

    The vinegar craving is amazing...also for the first time in about 5 months my tongue is a really really healthy pink colour!  It was awful yellow for months ...no matter what I did...I keep sticking it out in the mirror...to remind me how far i have come...lol xx

    I hope you enjoy the show...see it looks like I gotten the time difference wrong again! I am going to check and goolge it...lol....

    Thankyou so much for taking the time to post about my physical concern...I have to keep remembering I have had all my nodes out...I certainly remember everytime I have a cold drink...I can feel it whoosh down my right hand side..inside...very weird but ultimatley refreshing...

    Much Love xxx

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Wow I just googled it...I am guessing you're around 8am unless you live in the 4 am zone...lol...and my you've only just started your Summer...how fascinating...I am going to read some more...isn't the world great xxx

  • geebung
    geebung Member Posts: 1,851
    edited November 2007

    Big hugs to you Sue - you are a gorgeous creature! ((((((()))))))!

    The show isn't until 2pm but I am going early to have lunch with my partner. I was going to walk to the station but it's pouring rain and I don't want to sit on the train for over an hour feeling wet and cold! I will have to wake up one of my sons and get him to drive me. I don't think he got in until about 3am. The other son, who is at home for the weekend has just gone surfing and he didn't get home until 2.30 - they don't seem to need much sleep!

    Take it easy today Sue.

    xxxxx

    gb 

  • Lucy1234
    Lucy1234 Member Posts: 289
    edited November 2007

    Sue are you watching Saturday night Diva?

    Its all for Breast Cancer month last month, it really good they are having alot of people with their stories and stuff

    I looks very good, chucka Khan, Girls Aloud, Alisica Key and lots of others singing

    Give it a look!

    Poppy

  • Shirlann
    Shirlann Member Posts: 3,302
    edited November 2007

    Hi Sweet Sue, I had the whole family over for the Football game that we LOST!!!  So disappointed!  Darn it!  So I didn't get to post while you are still awake.  I think it is midnight in London, it is 4pm here in San Diego.

    Sounds like you are moving along quite nicely.  The stabbing pains are often the nerves endings "looking" for each other.  I thought that sounded kinda silly, but it seems to be correct.

    It is still warm here, we had those awful fires in our back country, many people lost their homes.  Except for right along the coast, San Diego is really a desert.  And when people build houses further and further east, they get in dryer and dryer areas.  Then, they plant trees which burn in a big fire like roman candles.  Well, I hope that is over for now.

    We have had a total of 3.35 inches of rain in 16 months.  So we are so dry, poor trees, just thirsty.

    Well, sweetie, I will get with you tomorrow in our little "window" of time that we are all awake.

    Love you, honey, and I am so proud of you, working so soon.  You are a wonder!

    Love and kisses, Shirlann

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Sue and all,



    Thank you for your kind words. They warm the cockles of my heart (cockles, in reference to one's heart refers to the chambers, of which there are four (two atria and two ventricles)!



    Speaking of warm, here in the USA, they've had SNOW in Maine and are expecting a big snow in the Upper Peninsula of Michigan.



    Wow! Snow. Maybe we could wish some snow for your area, Shirlann.



    Glad your feeling better, Sue.

    Tender

  • livesstrong
    livesstrong Member Posts: 1,799
    edited November 2007

    Sue, just checking in.  Sorry I'm so late by DH & I just got back from a football game a little while ago and like Shirlann our team lost as well. (:<).

    Hopefully you are getting some much needed rest.

    After reading your posts I couldn't help but notice how far you have come.  Think back when your journey started and how sad, confused and angry you were.  What a difference a month makes.  Things really do get easier.  You are such a STRONG woman!!! 

    Try not to fret so much over the whole "wig" thing.  I remember I was so paranoid about losing my hair.  It was actually the topic of my first post on the boards. I found a really great place that specialized in the big "C", so they were very understanding.  I took a BFF with me and she helped me pick one out then afterwards we went to lunch!! LOL. Long story short, the wig was actually a perfect match to my hair and everyone had a hard time believing it was a wig!! I have some pics of me wearing it. If I can find them I will post one for you to see.

    Have a great night everyone.

    Valerie

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    Hi Sue.  You're sleeping by now, but I had to check in to let you know I'm thinking of you.  I've had quite a weekend.  Saturday my hair REALLY started falling out in earnest, so I visited the wig shop with my daughter, sister-in-law, and niece (along with her baby daughter).  We had SO much fun!  I haven't laughted so hard in ages.  I tried on wigs that I really liked as well as some really silly ones.  My daughter tried on the goofiest looking ones she could find.  We laughed ourselves silly!  Don't dread the experience, Sue.  Take some fun friends or family members with you and make a day of it.  We had lunch afterward (I actually wore a wig out of the shop) and later my niece shaved my head.  It was such a relief to get it all off.  It was actually causing my scalp to ache and it looked awful.  Once I have the pictures (my sister-in-law is going to send them to me) I will share with you pictures of me wearing the two wigs I bought.  They actually look really nice.  I may be disappointed with my own hair once it grows back in Undecided

    Take care Sue!  Don't work too hard--I hope your arm is feeling a bit better.

    Love and Hugs,

    Karen

  • Valsul
    Valsul Member Posts: 160
    edited November 2007

    Hi Sue,

    For the hair loss thing - I found that the follicles were very painful and disturbed my sleep, so I hit it all head on (as it were!) and had a head-shaving party and just went straight into wearing my wig.  Like Valerie Livesstrong I got one just like my own hair and people even complimented me on its condition "these days."  I had a few months where there were no bad hair days.Laughing  I used to arrange the contracts for wigs for the NHS years ago never dreaming that one day I would be a patient, and all the wig suppliers were lovely people who understood a patient's anxiety.  I chose the supplier of my own wig who actually scolded me years before when I cracked a joke about wigs (I was an insensitive youngster) and he had said that there was nothing funny about helping people try to get something normal back into their lives when they were facing such a dreadful disease.  He also pointed out that far from getting anything glamorous, people wanted something exactly like their own.  He was so right.  He is long gone and his daughter runs the business now, but I knew she would have the same ethos.

    I am glad to see that returning to work is helping, Sue.  And that was a good call, the till. You continue to be upbeat and that does me good, even though there are moments when it hits you again what you've been through.  And chemo isn't exactly a walk in the park, Sue, but is so doable when you think that it is nuking any lurking c-cells.  You've come through so far with flying colours and you'll do the same with chemo. 

    Big hugs,

    Valerie S

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    BOO xxx

    Just checking in to say hellooooo.....and you are all so close to my heart and in my soul which warms me right up on this cold blustery day....

    Thankyou for all the encouragement which I will read over and over (and over lol) in a while.....because argggghhhhh I am going to get a hot bath...I have just gotten in from work and I think I have overdone it today .... my arm/hand is aching and my hand looks a tad swollen...help!!!

    As for working a week of short shifts since last Thursday .... it all went out the window cos I have worked just as many hours as usual...lol....and its stock take today...my oh my I hate Mondays....count count recount and count again.....

    I hope you are all having really good moments....I am so sorry your teams lost at footie ..... the british are football mad and we always hate to lose...lol

     Thankyou for all the chemo posts.....I just cannot imagine shaving my hair off Surprised....but like you Karen I am bound to get a thing for wigs...I am dreading my hair growing back it might grow grey! But you know ....I love my hair right now....isn't it strange how some days you feel you're hair is a right bad hair day...and when you are due to go to have it cut it feels ok...well that is how I feel about losing it...for the first time in a long time I love my hair AS IT IS ...lol....I am a strange one eh...

    Well must crack on...I am going to have a bath and make a nice cuppa....my O/H is working nights this week.....so its me and Zippy all the way ...lol

    Much Love xxx

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Just one more thing...I really really do appreciate you all so very much.... x x x x x x x x

  • nowheregirl
    nowheregirl Member Posts: 894
    edited November 2007

    Hi all,

    I hope I am not intruding here. I haven't got a chance to read all posts in this thread but just skimmed through the last page. Looks like this place is filled with warmth and love. I hope it's OK with you all to have me here.

    A little about myself. I was dx'd in July of 2005 with stage IIB IDC. My tumor originally measured more than 3.5cm and MRI's comfirmed at least two positive nodes. I was put on chemo immediately, 12 x weekly Taxol followed by 4 x EC every 4 weeks. By the time I finished with chemo, my tumor was only 0.8cm and those two positive nodes were gone. Had a lumpectomy in March of 2006 followed by another 12 x weekly Taxol. Call me a chemo veteran! *lol* Then went on to 30 x rads and have been on Tamoxifen and Lupron shot since February of 2006.

    I started chemo in July of 2005 and finally finished in June of 2006. So just until I ditched my silly wig in April of this year, I had been bald for more than a year. Now no one can tell I had no hair for such a long time as my hair has 100% grown back. I am so sorry that many of you are losing hair but hey it sure will grow back! Look at these pictures of myself. The first one was taken on the 22nd July of 2006 and the second one was taken just a couple of weeks ago. Yeah I was being funny in one of those silly photo booth with my friend who I did meet here on BCO. Can you believe that she came to see me in Japan all the way from the US?

                  

    So... Sue, don't feel alone just because the majority women here don't live in your country. We are all close in spirits and we will all get together someday if we wish hard enough!

                

    Much love,

                       

    Fumi 

  • Shirlann
    Shirlann Member Posts: 3,302
    edited November 2007

    Oh, all our lovely girls!

    Fumi, you are so beautiful with Donna!  How wonderful.

    And Portia, loved the pets AND loved your son in his costume, I miss those days, my "little" boys are 53, 49, and 46.  YIKES!  So long ago, I always loved Halloween.

    Dear Sweet Sue, aren't we getting close to Guy Fawkes Day?  We were in London once and got to see the bonfires, and I think it was in November.  Who was he?  I can't remember dingdong anymore.

    Well, I will tell you Sue that I had 10 times the pain and misery with my underarm than I ever did with my lumpectomy.  That dang underarm hurts.  For quite a while, too.

    We are leaving on a cruise this Saturday, so you may not see my big face for awhile.  Just a week.  I know I can be assured all the sisterhood will watch our Sue for that week.

    Anyway, got to start thinking about what to take.

    Love you all, Shirlann  

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    I think I speak for all of us when I say "welcome" Fumi!  Your hair looks wonderful now.  I love the red on you!  I would really like to thank you for your wonderful instructions on how to post pictures here.  I don't think I ever would have figured it out on my own.  It's great to have you here.  We've become such a close group thanks to our wonderful English Rose, Sue.  I'm looking forward to getting to know you better.

    Hugs,

    Karen

    PS  For those of you who are wondering, my new avatar is me with my "sassy blonde" look.  My friend who lives in Australia sent it to me.  She wore it six years ago when she had bc.

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    Sue, I hope you are resting and relaxing after a hard day at work.  You silly girl, overworking that arm again!  What are we going to do with you?

    I'm sending you a link to my "grand adventure" album.  We had so much fun.  My daughter is such a goofball!  She kept us in stitches the whole time.  I bought the wigs in pictures 5 and 26.  The last picture is me with my mohawk.  I had it for about 30 seconds before it was whacked off.  Should I go back to that look when my hair grows back Tongue out?  Take care, sweetheart.  Love you!!!

    http://picasaweb.google.com/cindynjurgen/KarensGreatAdventure

    Love and hugs,

    Karen

  • livesstrong
    livesstrong Member Posts: 1,799
    edited November 2007

    Sue, just doing my nightly check in.  Please be careful and don't overdue anything.  It will set you back on your recovery and don't you want this all over ASAP?? You need to rest girl!!! Listen to your older sis,Valerie, OK??? lol.

    Fumi - welcome!!!  I have seen you post elswhere on the boards and you are always so willing to help others. Feel free to jump right in. Love the pics by the way!!

    Karen - OMG, how much fun did you all have!!! Your DD was hysterical.  And that baby was just too darn cute.  I love the wigs you chose, they look fabulous on you. Mine was actually very similiar to them.

    Shirlann - where are you going, you lucky girl.  Please know that you will be missed around here.

    Gotta run amd start dinner,

    TTYS,

    Valerie

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