please help
Comments
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That burning is pain from various nerves being cut during the mastectomy, and the surgeon reaching up under the armpit and slightly toward the back (in the direction of the scapula). That's called neurogenic pain. Prescription pain medicines are about the best to take that pain away, using them every 6 to 8 hours as prescribed rather than less often, when the pain gets real bad.
Additionally you may have some fluid re-accumulation in the chest, under the arm, around to the back, just enough to press on these raw nerve endings and cause them to fire off. Then there is the possibility of some "tape" issues.
I'm so sorry, Sue. Perhaps two pain pills and a good nights rest, and tomorrow to the nurse.
We're pulling for you!
Tender -
Sue, the sense of inflammation under and down the arm is a familiar one to me. I couldn't stand anything touching or even the skin of my arm rubbing against my body. Some of it was just having to wait for things to settle down, but my lifesaver was snug-fitting satiny camisoles.
I came across a sale on camisoles...end of summer, you know. I got a bunch. Some are the spaghetti strap kind, some the undershirt style. All are a blend of polyester and lycra.
Having something on that was snug and didn't rub really helped, though I had to keep tugging them down 'cause I went nuts if they got near my armpit. After six weeks, I can finally tolerate more, but still wear the camis 'cause they're so comfy!
Towhee
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Hi Sue. Just wanted to check in with you to let you know you're in my thoughts. I'm so sorry your in so much discomfort. Hopefully, they will give you something to help at your appointment tomorrow.
Take care and I hope you rest well tonight.
Love and hugs,
Karen
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Hi sweet Sue, I would get that pain checked. It just might be some sort of infection. This you do not need.
You will be surprised, after feeling so sicky for days, all of a sudden one day, you will see the sun shine, and the birds will chirp, and things will be so much better.
But you should not let things go right now. You need to check the incision and all to be sure you didn't pick up an infection.
Hang in there, dear girl, love you, Shirlann
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Hi Sue!
, I'm sorry your in such pain. It really sounds to me like nerve pain. I agree with tender. Keep taking your pain meds. You should start feeling better as each day passes , if it is getting worse , then see your doc. But I do remember feeling that kind of pain. And the back of my arm is not numb , but the back of my shoulder is and mixed with tenderness to the touch. And its been 7 mos. since my surgery. Make sure you're not over doing it either. I know you want to get back to your normal life asap , but you need to take time to heal. I hope tomorrow is a better day for you Sue. Full of sunshine and less pain. Remember , you have started your journey through the "tunnel" and there is light at the end and you will start seeing it very soon! Sweet dreams. Hugs to you and your boys. Melody
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Sue, I'm so sorry your pain is worse. Everyone has given you good advice and I am hoping to hear that you have been able to get some satisfaction from your medical people today.
You have had a rough time so please don't push yourself too much. I know how knocked in a heap I felt after my mastectomy and I only had 2 nodes removed. No wonder you are so sore right around to your back!
I just wanted to add that I just loved your "like a grasshopper on caffeine" phrase! Brilliant! I have never heard it before.
love & hugs
gb
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Hello Everone xx
Well I thought I would post for a change LOL...Give you an update ..
I was really ill last night until 3 am with my tummy...I dont think the cocodamol or the antibiotics have done me no good..and the inactivity...anyway I didnt get up at 8 am (this is the time you have to phone your docs to get in that day) and I felt really off colour...and tired!
The pain is still there under my arm ...and I feel like I have rubbed my right side over a rough brick wall....until the friction has almost ignited my body lol....I will try go nurse tmw and phone clinic up
However I am 8 days post op now and am more whirlpooled mentally...
At first I was diagnosed and in shock,then terrified of surgery, now I am waiting for results and treatment I cannot make plans for the future...I do not know if I will be alive in years to come or whther I will have to suffer painful treatments in the meantime....I dont want to live like this at 38 and the feeling is comparrable to a HOUSEFLY BEING TRAPPED IN A JAMJAR WITH THE LID SCREWED ON FOR GOOD MEASURE AND NOWHERE TO GO.... I feel at gods mercy...
Anyway these are the feelings I have.... Very strange place to be...I am not really interested in the news the papers the tv..
Hope everyone has a lovely day...
Much Love xxx
ps does anyone watch coronation street in the US ..... just wondered x
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I love your comparisons. housefly in a jamjar.
We do not have Coronation Street here, or I have not seen it.
The feeling being rubbed raw is from the nerves regenerating. I found that if I kept a small soft pillow between my arm and my side, the pain was diminished.
Hope this helps.
Sheila
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Thanks Sheila ..I am hoping it wii be better soon...I went into Tesco superstore today ..picked up something with my right hand as I forgot , my arm gave way and everything fell on the floor hahaha....
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Hi Sue
, When I was in the place you are now , I didn't care to read the paper or watch tv either. But I do now , and you will too. I know you don't want to be in this place at 38. I don't want to be here at 50. But we are and we will get through this. Right now I know you can't stop thinking of the "24th" and the out come. We already know we had c@#$@r , now you wait for the , what I called , collateral damage and get your plan in place. You will get through this. Its normal to be scared. We all fear the unknown when it comes to this. But once you know what your precautionary treatment is and start it , you will start feeling like you have alot of tomorrows yet to come. And you do. Its just that darn old fear that wraps around us. Stay strong Sue. Try to focus on this time as your healing time. Because it is. Try not to think about the 24th until it is here. Then we will deal with whatever the out come is then. I wish I was there with you. Me with my chemo brain and you with your witty , articulate ways , we would be hurting from laughing! Cheer up sister. Your going to be fine. We are all here for you.
Remember , most of us have been down the road you are traveling now , so believe us when we say , its ok and normal to feel what you are feeling. But it will get so much better. Hugs and MUCH love Melody
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Melody...thankyou from the bottom of my lil heart for that last post...it was spot on support....deep thx... xxxxxxxxx
Melody you always make me laugh ...if we were togther hurting with shriekable laughter...we would be at risk of being carted away by the men in white coats LOL...and I would be in agony with my pain hahahahaha
Melody also truly thankful for that song you gave me for hospital it still keeps me going I played it today in the car on the motorway and felt really close to you xxx The song has HELPED me so much xx
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Oh my , Me , you in your car with our song playin' , laughin' we'd find some "fun" trouble!lol
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I am glad what I feel is normal..and it will get better, its a right perculiar business is this journey...I wouldnt wish it on anyone
Much Love to you all xxxxxxxxx
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BOIL IN THE BAG BOOTFACE FULL OF FILTH !
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Yah , you boil in that bag you pile of filth!!!!!!!!!!
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oops , I forgot bootface!
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Oh sweet Sue, you are going to be fine. You are so full of life, you will get back to where you were again. This is a loong nasty journey, but thousands of women have made it, and you will too.
All these annoying things, the stomach for instance, that is what always happens to me with anti-biotics. And the thrush, very common. So much is going on, pain just loves that, you don't know which part of you to cry over first! Just rotten.
But hang on, honey, things will sort themselves out and you will be back to your old self. I guarantee it.
Gentle hugs, Shirlann
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Hi Sue. Hope you had a good day. I'm sorry that I haven't been checking in with you as often as before. I started chemo yesterday. It hasn't been horrible, but I do feel like I have a slight case of the flu. No vomiting yet, thank goodness.
Take care.
Love and hugs,
Karen
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Hi Sue,
I hope you were able to get some help with your pain and that you are finding things to distract yourself and pass the time.
If you get a chance, let us know how you are. We certainly haven't forgotten about you!
Hugs,
gb
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Hi Sue , I hope you are feeling better. I am going for my 6 month mammogram today. Wish me luck. I'll check in when I get back. Hope today is a better day for you. Hugs , Melody
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Hello Everyone xxx
Thankyou for all your kind thoughts. I have been thinking of you all xxx
Well I have been in utter pain for 3 days ...feels like my arm is skinless and the inside is sticking and ripping and burning..so last night it became that unbearable at 10 pm I went to the out of hours surgery in the city centre and got checked over...I really nearly gave up with the pain y'day...which is why I haven't been on here...I didnt want to be miserable again with all of you ...
So now I am taking Tramadol Hydrochloride and Dicloflex sodium...which is sending me wooozy...but the pain is still there just a little masked....
The doc says its because all my lypmhnodes were taken out...Is this pain going to ever ease???
Anyway back to you lot...you are my strength
Good Luck Melody today...I bet you're all done and dusted now though...but I am thinking of you loads...I will email you..
Karen I hope your chemo is treating you Ok I sincerely do...you are one great support.....many wishesxxx
I hope you have sweet dreams gb I hope I gotten the time zone right without looking back....loads of hugsxxx
I also want to tell each and everyone of you.......everytime you think of me I will be thinking of you ....... I am just fed up with the pain and worry...the pain has really got me down... I am supposed to be popping to work tmw to do 3 days worth of banking and put a new rota up....and I know I will make it ...... and probably pay for it tomorrow night ..lol....
Well hope you are all having a good moment...and please let me know what ya are all up to.....our paths are woven xxxxx
Much Love xxx
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Sue, that is such a bummer you are having so much pain! Be careful not to overdo hun! Just rest and let yourself heal. I am glad you are so willing to share your experience and feelings. It has been very helpful for me in preparing for my mastectomy next week. Take care of yourself!!!!!!
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Sue, you need to be resting and letting everything heal. Sorry you are having such problems with pain. Even though you are in pain you are helping others along this journey. I applaud you for that.
Sheila
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Hi Sheila xx I know I should be resting,I do a bit in the morning ...and today I have rested...I just never expected the pain to be anymore worse than when I came round from surgery..but I guess I am naive in all respects..lol....and it has sunk in that the pain is more than likely healing pain! Boy I never would be able to explain the kind of pain...I just read some stories that some ladies suffer like this for years....and I mentally fleetingly gave up ...the new pain meds are helping though ...I am going to go into work for an hour to do the bits and bobs for Tom tmw while he is away and then from tmw afternoon until Weds morning I am going to render myself resting....with nice pain meds and lots of sleep...
sunneedazee.....you will do good in surgery.I was dreading it...I am always full of fear where that kind of thing lies...but honestly it was OK....and it is only recently I have the pain...If ever I have to face an unwanted episode I close my eyes take a deep breath and think repetively 'its only a moment it will pass' ...... you are so courageous and thoughtful...the hospital will give you all the pain meds you need....don't at all dwell on the pain side...it is not as bad as you care to imagine....I will be thinking of you on the 25th..its also my sons bday....YOU WILL BE IN MY THOUGHTS XX
I am having chemo more than likely...I will find out on Weds..I am such a wuss with all this...
Much Love to EVERYONE XXXX
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Sue, My mom who went through this 6 yrs ago was my watch dog. She came by my house every day for 4 weeks and would not let me do anything. If we had a scheduled appointment in the afternoon, she would make me lay down and rest all morning. If I had an appointment in the morning, she would make me lay down in the afternoon. Although a lot of my sleeping was done while watching movies, I would start watching a movie and wake up wondering what I missed. I love my DVD player, I could then go to the menu and see what was the last scene I remembered seeing and start the movie at that point then fall asleep again. I think it took me 5 tries to watch Chronicles of Narnia completely.
Take it easy Sue.
Sheila
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Haha Sheila...that is the kind of rest I love.........you are always extremely patient and helpful to my wellbeing....I do truly appreciate it....I am going to do some good resting with the pain meds...I am so much more comfortable than last night...
Thankyou So Much xxx
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Hi Sue
! Happy ,Happy ,Joy , Joy , my mammo was good and I don't have to go back for a year! Yeah! I was so happy. My two best friends went with me. I treated them to a delicious Italian lunch at a place called Bravo'. And , they convinced me to go scarfless! They loved the short look on me and I am so sick of covering my head , I just went for it and it felt so good. Ok , enough about me...
I'm so glad you went to see a doc Sue. And I'm glad the meds are kicking in. Pain makes everything larger than life. Once your pain starts to ease off , you will feel much better about everything.Please take it easy at work tomorrow. Try not to use that arm to much. Remember , meds and rest is the key to feeling better. Hugs and much love to you , Melody
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Hi Sue,
That razor like pain in the arm is something I had for about 8 weeks after surgery. I couldn't have anyone touch it, and it was like a burn if they did. I'm a year out and I had forgotten about it until you mentioned it, so it does get better, but slowly. That's not good news for someone as energetic as you
but it will get better as the time goes on.
You won't have any interest in anything until you get your details and plan - but what about Coronation Street - all fired up for the wedding? Did you see the farce over the wedding dress, the wine and the torn dress? Wasn't Eileen's face a picture? There's probably more humour in that soap than all the comedy shows on TV! Do you think this will be third time lucky for Sarah-Lou?
I hope you start getting a good night's sleep. Listen to Shirlann and the rest who are advising you to seek meds to help. My nurses told me that they weren't looking for martyrs and I took full advantage!!
Just let me know if you want to meet and I'll be there.
Big hug
Valerie S
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It's been so long since I posted and said hello, Sue. I dropped by yesterday and noticed too you weren't on and got a tad worried. It was too quiet here across the Atlantic without you.
Gosh.. it's a bummer about that pain, and Valerie having that type too. As long as your docs have checked for obvious causes, I guess it's one that has come with your lymph node dissection. But ooh, ouch, that hurts, razor pain.
We all understand your desire to escape the sick bed, and maybe just sitting at work answering the phone will do you well for a couple hours. But do take care.
Go on back to the doctor if more pain or worse pain comes. And I'm hoping they've looked under the bandage too.
We missed you and are glad to hear your sweet voice. Your friends here have given you great advice.
Tender -
Hi Sweet Sue, honey, are you sure you don't have any fluid build-up? That presses against the incision and is agony. When you go in, have them check that. I was a little worried when they took your drains out so soon.
Anyway, I wanted to let you know that you need to come here with ALL the things that are happening to you. Don't think you are worrying any of us. We have all been there. You don't just come to be cheerful, come when you need support. You are our little darling and we all treasure you!
Gentle hugs, Shirlann
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