TIME TO CIRCLE THE WAGONS GIRLS

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  • lv2cmp
    lv2cmp Member Posts: 1,363
    edited July 2007
    Shirley, I agree its just a sick type of mind that does the things they do. I will never understand it which is a good thing cause if I did I might have a mind like them.

    Karen sorry about the mom. It is somewhere in the contract to drive their kids crazy at some point. I feel certain about that.

    They went in at 10:30 and drained fluid from the lungs of my dad and it was all nasty gunky stuff so its being sent to lab to see what the gunk is. He is on a broad spectrum antibiotic until its narrowed down what it really is.

    Holy crap got 20 minutes to hit the door and get to visiting time. I shall return.

    Amy
  • lizws
    lizws Member Posts: 1,892
    edited July 2007
    Just talked to Madison on the phone. We're meeting tomorrow and I can't wait. She is so sweet. She's having bad board withdrawal. She tried to get on earlier while the site was down.

    Now back to the bathroom so I can have tomorrow off! LOL
  • NOLONGERREADINGORPOSTING
    NOLONGERREADINGORPOSTING Member Posts: 778
    edited July 2007

    Post deleted by Mizsissy

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited July 2007
    Just came home from tennis and our little museum where I am a volunteer docent and photographer..it is a beehive of activity..they are setting up a New Exhibit called
    "Home Grown:Japanese Americans in the San Diego South Bay"
    looks interesting. They are having an opening reception on Saturday and I am to take pictures. They even have a replica of a room from the internment camps they were forced to live in during WWII.
    I have to run again..just wanted to say a quick " hola"
    SoCal
  • beth1225
    beth1225 Member Posts: 1,061
    edited July 2007
    Hi everybody. Sorry to have been MIA for several days.

    Karen, good to hear you are all back in one piece. I so worry when people are flying in and out of the Middle East. What a wonderful experience that none of you will ever forget. Glad to have you home.

    Mothers, especially those who have their black belt in guilt, are here to remind us to treat our children well, since they will choose our nursing homes, LOL. Really though, I spent most of the morning with mine at Sunrise (the assisted living) listening to how she misses me and wants to be home to help take care of me. Like a bandage for a corpse in this instance! My mom, BTW, has her masters in guilt along with all the medals. You know the joke, "Its OK, I 'll sit in the dark!"

    Amy, so sorry to hear about your dad. Will add him to my list for Friday night's service. (see the Spiritual/Jewish thread for explanation)

    I have been kind of hiding out. Very concerned about Puppy and Mena. And then I have been living my own personal hell. We are having our first "no kids" weekend for the entire weekend since I got the stitches out and drain removed. So, naturally, we have been talking with a lot of anticipation of being all alone for once. Now I am nervous and depressed all at the same time. I am so scared about dh touching the new "girls". Please let me know how any of you handled this. I am taking myself over to the Recon forum and see what they all have to say too.

    Talked to Puppy the other day and we cheered each other up some. She has an appointment on Monday to map out the treatment and schedule. Talked to Mena this morning and she is pooped from the yard sale and is taking it easy with napping when she can.

    I am going to get most of dinner together now so I can heat it up later when dh and ds get home. London Broil, mashed potatoes and fresh salad. Fabulous blueberries with whipped cream for dessert. Great bing cherries too. When I am depressed, I cook. What can I say!
  • newvickie
    newvickie Member Posts: 3,939
    edited July 2007
    Afternoon all...only got a sec...noticed that the last post was at 4:58 and thought I was late going home!! Strange happenings on the boards today LOL.
    Beth...I was wondering where you had gone! Figured we were going to have to send out a posse.
    Shirley...did I hear you say summer is half over...no...I didn't hear that.
    heeeheee...one toxic sister has disowned me LOL! Little does she know, I ditched her yesterday...I feel great too!

    Catch up with you all later...
    Vickie
  • beth1225
    beth1225 Member Posts: 1,061
    edited July 2007

    Hi Vickie, no posse necessary. The other thing that I have not told anyone except dh is what someone said at the ps office last week. I was so excited to finally get my drain out after 8 weeks I almost danced out of the exam room. I was waiting to make my next appt and the woman sitting next to me asked what I had done. I told her it was a prophylactic mast and it was to lower my risk of getting bc. Unfortunately, I had a lot of complications afterwards with infections. She told me I should be glad to be cancer free and I said I was. then she said the problems I am having are nothing compared to chemo and I agreed. Then she said I would never have to worry again. Well, there I told her she was wrong that I could get bc or ovarian cancer even after the surgeries. No guarantees there, lady. She made me feel guilty that I complained about my aches and pains and worries. Do you guys feel that way too? The spectre of cancer does not go away with a cut of a knife. And I will have to go back on Tamoxifen as well after the tweaking is finished. I am so confused at this point and still wondering if this was the right thing to do. Thanks for listening to my rant.

  • beth1225
    beth1225 Member Posts: 1,061
    edited July 2007

    BTW, Shokk, so many congrats for your daughter. You must be bursting with pride right about now!

  • purplemb
    purplemb Member Posts: 1,542
    edited July 2007
    Beth, never feel bad about telling someone how you feel..its your opinion and you are allowed to feel bad for yourself once in awhile, as long as you aren't wallowing...we have good days and bad ones...son't let anyone make you feel guilty either
    MB
  • shokk
    shokk Member Posts: 1,763
    edited July 2007

    Beth thanks so much for the congrats for the daughter but I think you are right on target when responding to this woman......there are no guarantees that you won't get bc or any other kind of cancer.......you have greatly reduced you risks but lets face it kiddo you have been to hell and back from your surgery......I think you deserve to whine....oh and good luck on the short trip.....things will work out.....if things can't be accomplished one way there are always other ways to reach that ultimate goal......

  • beth1225
    beth1225 Member Posts: 1,061
    edited July 2007
    shokk, you do have a way with words. I have never before seen anyone NOT talk about sex as eloquently as you just did, LOL. Uh, that is what you were talking about wasn't it? Otherwise I am so very embarassed! But thank goodness I have Mena who never, ever minces words on that subject. She keeps me on track.

    MB, I still have not figured out why some people can be so mean spirited. I asked if she had bc and she said yes but was NED currently and getting her expanders in finally. I wished her well and made sure to tell the receptionist never to book us at the same time if they can help it!
  • Peter
    Peter Member Posts: 343
    edited July 2007

    Post deleted by Peterj

  • shokk
    shokk Member Posts: 1,763
    edited July 2007

    Peter.....ha..........

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2007
    HaHaHaHA Peter: That made me laugh.

    image

    I have no time. Just checking in and will see ya in the morning.

    Nicki
  • jankay
    jankay Member Posts: 837
    edited July 2007
    hey everybody

    POOL THERAPY WAS EXCELLENT
    I NEED TO SIGN OFF FOR NOW IMAY BE BACK LATER
    MY DH IS UPSETTING ME
  • karen1956
    karen1956 Member Posts: 6,503
    edited July 2007
    Beth - too bad you had to intereact with that mean spirited woman - and too bad she has not learned that it is not a competition. WE all have our own journeys, be it whatever they are. Enjoy your time alone with your DH.
    More quilt from my darling mother. I told her the dates I could come and she said it sounds like it is too difficult for me, so maybe another time. I was going to fly in on a wednesday and home on friday. REally don't want to spend anymore time.
    I was trying to schedule a colonoscopy and my insurance considers it under "wealness" which only covers 500/year, so unless I have a diagnosis, no colonoscopy for me. Also trying to schedule my physical with my pcp before I go back to work, but it doesn't look like I can do it. My PCP says I still need to see her even though I see these other docs and that I need a fasting blood draw, EKG, colonoscopy and shots. What shots? and why EKG - I had one last year before I started chemo? Onc does blood work every 3 months, so I wonder if I can just go in for my cholesteral. don't even know if insurance will cover a physical. Need to call my pcp and chat with her - I had left a message when she was on vacation and she called while I was at work and left a voice mail. Need to try her again and leave my cell phone so I'm not tied to the house - that makes me crazy!!!
    Peter - loved the "flasher". Hope you get some answers soon.
    Vickie - you go girl -
    Nicki - sweet dreams
    BBL - Karen in Denver
  • neesie
    neesie Member Posts: 1,924
    edited April 2008
    Another long post is no longer valid...........what the heck is wrong with this site today. I was only on here for like 5 minutes............my time shouldn't have blipped out that quick.
    Even talked about my 'weight loss!' I'll try to remember (I know I need to copy and paste)....computer crap doesn't come easy to me! Anyhow, I'll try to come back in a bit and post.
    What's up with the times on these posts??????? Is this what it means by "improving" the boards??

    Hugs,
    Denise
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2007
    Good evening boy & girls. I slept most of the day as I stayed up very late last night. I put little Kevin in my bed but he puckered up his little face and i let him up. He's not used to sleeping in my bed or anywhere but his bed at his dads and here. Luckily, Amber got home before it was too late and she put him to bed. She has a date tonight but Ethan's home too so he can help me at bedtime with Kevin. He just walks him in there and covers him up and shuts the door and Kevin goes to sleep. She's already made dinner so I don't have them but just a couple of hours before bed. That little dickens kevin won't have a thing to do with me when she's here. lol Plus, he smacked me and I smacked him back on his diaper. He hasn't done that in a long time. It was a mild exchange but he got the point. haha

    Amy, I am just so sorry about your daddy and there's nothing i can do but tell you that and it isn't any help.

    Charlene, it's too bad your Mother doesn't live closer. She and your girls are missing so much. I love my grandsons unconditionally. Now that doesn't mean I'm blind to their faults...I simply choose to ignore them if possible. I may say Kevin is spoiled rotten and a little on the bratty side, but nobody else better say it. haha I hope Audrey stays close...good luck. My dh always drove a truck and gone so much of the time that it was just Amber & I while she was growing up. We were so close and she just told me everything...sometimes too much info. Until she hit about 14 yrs....our lives changed. Our relationship changed. I looked at her one day and asked her who she was & where was my daughter!But we made it through and we're very close again, probably closer. It snuck up on me so keep yo eyes wide open!! lol

    Shirley, i read about the cruise. I'd love to go but I think it's too expensive. Maybe they'll lower the price if there's alot of interest. Wouldn't that just be the most fun? wow.

    Nicki, you'll see us in the morning? OK. So what's up, you were working two jobs and don't want to say or what? You know I worry. Aside from the fact that i'm also...nosy. hahaha

    Wishing Mena, Puppy, Gina and CherylCy good health.

    Hey to Janny, Jazz, Marsha, Iris, Gus, Boo, Susan, Vickie, Neesie, Sheri and everyone from Amy to Z. Hoping you all have a nice evening. I'll be back.

    pals
    cheri
  • Biker54
    Biker54 Member Posts: 1,310
    edited July 2007
    Okay, I'm sorry, here it goes......

    Beth, I am truly sorry for what you have gone through, it totally sucks to have had the infections and all, but, you do not have nor have you ever had cancer. To compare what you have gone through to anything that we have gone through, diminishes everything that all of us have gone through. Yes, you have the BRCA2 gene. So does my very young next door neighbor. She is only going to watch and wait right now. To compare yourself with us is just incomprehensable to me. You are NOT us! I'm sorry to lash out at you, but you have left me no choice. The only people to understand what we have gone through are people who have had cancer. You have not. Again, I'm sorry to lash out, but you have left me no choice.

    And nobody is going to step up!!!
  • SheriH
    SheriH Member Posts: 785
    edited July 2007
    Hi, just checking in. Only 3 full days to go. I could sit here and whine, but I only have a minute.

    I did want to share some good news. I had my 4 week follow up with my onc about my blood. I do not have a blood cancer. I do have a chronic anemia which will have to be checked and treated the rest of my life. Thankfully, it responds well to aranesp. I will have my blood checked once a month and if the hemoglobin falls below 11.5, then I get the shot. That's where I am at this point.

    Just out of curiosity, why has Miscizzy (sp) deleted all her posts? Did I miss something?
  • newvickie
    newvickie Member Posts: 3,939
    edited July 2007
    awwww crud...lost my whole friggin post and I never (well almost never)do that. Wrote and wrote and wrote and the damn cyber monster ate it.
    Still no referral for my thryoid test. I am really getting ticked about this now!
    Had a better day than the past few (well...quite a few actually), got a lot done at work, came home and got the entire lawn mowed, fell asleep on the couch when I was done till Nate woke me up to say he was sleepy and goin to bed. He's so funny...been watching Milo and Otis which is one movie I really can't stand LOL.
    Boards are screwed up again I see...had a hard time getting on today and the time is wrong or we've moved to a new time zone.
    No late night swims for me last night, it got down right chilly! Tonight is really cloudy.
    Were is everyone? We haven't heard a peep out of Susan, Gina, Robin, Shel, Puppy, Tricia, Odalys, hmmm...not a good thing girls...
    Too tired to walk the perimeter so I'll just use my binoculars and megaphone to wish ya all a wonderful peaceful nights sleep and tell ya that I love ya dearly. You are so very good to me. I'll get back on track eventually...I hope!!

    Now this day is ending,
    I bow my head in prayer,
    Asking God to keep you
    Within his loving care.

    May angels all surround you
    Enfold you with their light:
    These things I wish for you
    As I whisper, dear,"Goodnight".
    image

    And for Peter
    When the sun comes up in the sky
    To yesterday we'll say goodbye
    Bright and new is the day
    Good morning is what I'll say
    Having you as a friend makes my day
    So happy to have you here to stay
    image
    glad we have you to watch over us at night.

    Sorry I'm not posting to you all...you are truly all in my thoughts...my thoughts are just to scattered to put together...
    Vickie
  • SheriH
    SheriH Member Posts: 785
    edited July 2007
    Jan, I'm almost afraid to respond, but I will not back down. I think in some ways you have said something that many of us have thought and don't really want to say because we don't want any discord here. This is a very sensitive issue, I think, but I guess it struck a chord with me and I'll share why, but may delete this later because I'm really a big chicken.

    I guess in a way I understand how you feel, Beth, because I have a ticking time bomb, myself. I chose to keep my "good" breast. I guess I didn't want BC to take any more than it had to. I have respect for you in taking such a drastic measure, I couldn't do it. That may be why it's hard for us to relate to you sometimes. We not only have the fear of it returning or coming back in our "good" breast or someplace else, but we've had to face this beast. He's ugly and terrifying, but we looked at him and threw our best at him and it changes you inside. They say that your life passes before your eyes when you face death, well, not only did we face death, but we are here to tell about it. Our scars are reminders of this and in a perverse way, I'm proud of my mastectomy scar, more so than my hysterectomy, which was more prophylactic in my case.

    I don't have a way with words like some of you have, but I want Jan to feel like she wasn't ignored and Beth to maybe see where we are coming from. Jan, I'm not trying to speak for you or anyone else. I'm just sharing my thoughts on the subject.

    Please, I love all of you, I don't want to see any "in-fighting". I just hope I didn't make it worse.
  • neesie
    neesie Member Posts: 1,924
    edited April 2008
    I'm just popping in to say Good Night to all. Just don't have it in me to re-post what the Cyber Monster ate earlier!

    See you in the Morning!

    Hugs,
    Denise
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2007
    I agree with Jan. I resent the fact that you have always compared your experience with those of us that have survived breast cancer. I understand that you lost your father to cancer and you seem to consider that to be the same experience as having it yourself. I assure you, it is not. I lost my father to cancer, too. But the experiences, though both traumatic, were far from the same.

    I have chose simply to ignore you because we do not argue or fuss here. I do believe the Circle as well as the whole bco is also here for people who have issues like yours but I've never liked the fact that you've put yourself in the same category as those of us who've actually lived through this horrible disease. Perhaps you should think your posts through before making them. As Sheri said quite well, this is a sensitive issue among us.

    I stand by Jan.

    Cheri
  • jasmine
    jasmine Member Posts: 1,286
    edited July 2008

    Having a high risk for the possibility of developing cancer is not the same as having actually been diagnosed and knowing you have cancer.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2007
    image

    Shirley - Lucky you! I always wanted to be one of those girls with hair that long! The longest I managed was to my waist. When I was about 16 I let my sister "trim" it for me and she cut it to my shoulders. She was trying to get it even. lol

    Cheri - Eyes Wide Open .. got it! lol Already Audrey and I butt heads a bit. We are so much alike and she's a daddy's little girl. It's either going to make the teenage years easier or I'm in for one helluva time! Steering myself!

    Sheri - that is Great news regarding no blood cancer. Sorry you have to deal with the chronic anemia but happy to hear it's treatable! I was also wondering about MizSissy and why her posts are all deleted...

    Beth - wow, you did bring up a touchy subject. I'm not sure I should even touch it. I am so early in this journey but I must say that I can't imagine dealing with the possibility of getting cancer to be anything close to being like the hell of getting it. After all Anybody can get cancer and some, like you, are higher risk. However many higher risk women never get it and many with no risk factors do. I never thought I was at risk myself (small family history with one Aunt and cousin out of a lot of women) and it hit me like a mack truck when I got it. Actually that doesn't do justice what it did to me. Turned out later I found out I did have a risk factor..having children later in life. Still had I known that, I wouldn't have lived my life fearing it because I still wouldn't have ever expected it to happen to me, at least not as young as I was. Now I know that one in eight women will get BC in their lifetime. So again, just being female puts one at risk. That being said, I can't imagine the courage it took for you to have your breasts removed when you didn't even have cancer and you can relate to what it's like to deal with not having breasts and going through reconstruction. Still I guess most of us didn't have a choice so again there's some difficulty relating. But I'm surprised a perfect stranger would ask you what you had done at a PS office .. maybe a myob is in order there.

    Well that just about did me in and I hope I didn't alienate anyone. I'm going to go have a drink now.
  • AlaskaDeb
    AlaskaDeb Member Posts: 2,601
    edited July 2007
    Beth-

    The only reason I am writing this too you is you asked a direct question… “Do you guys feel that way too?”

    Months ago we had this all out, with much shouting and angst. You asked then, and I told you then….being a “Previvor” or high risk is not the same as having cancer, period. Does that mean that you have not been through hard things and fear? No. Can you understand how I felt at stage 3C? I doubt it.

    I have been consistent in my feelings on this from the beginning. There are no rules on who can post where on this site. It is a free country and folks can do as they wish. It is not my place to say who deserves to be a part of this ongoing conversation. You don’t need a secret handshake to come here.

    What I don’t understand is why you keep feeling it is necessary to have this conversation? No one here has said a harsh word too you. No one has excluded you. I just think this is rehashing old material….nothing has changed.

    Deb C
  • AlaskaDeb
    AlaskaDeb Member Posts: 2,601
    edited July 2007
    Sjeri-

    Glad to hear it is "only" chronic anemia. It is kind of sick how excited we get to have other types of illnesses....at least it's not cancer.

    I had anemia for several years before cancer. Do you like beets? They are high in iron which I never knew. Red meat, and spinach are also good. If you cook foods, especially acid based food in cast iron pots, you will also get iron that way....

    Good luck and I happy for you "good" news.

    Hugs
    Deb C
  • AlaskaDeb
    AlaskaDeb Member Posts: 2,601
    edited July 2007

    Just deleting the deleted in our title....

  • Peter
    Peter Member Posts: 343
    edited July 2007

    Post deleted by Peterj

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