Stupid comments ....

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  • blondedoris
    blondedoris Member Posts: 197
    edited December 2016

    lol I just was having visions of the pair of us being hauled off by security for drug dealing! I know she meant well, but all the same..!

  • wirdgirl118
    wirdgirl118 Member Posts: 231
    edited December 2016

    back in the day, in my experience anyway, well meaning people were more discreet lol you handled this in a wonderful and dignified manner ... I doubt you could have said anything that would have gotten her to stop screeching and you might have chosen to slap her silly but alas, it seemed too late to do any good for her. Hugs to you dearie

  • rdeesides
    rdeesides Member Posts: 459
    edited July 2017

    When I told my mom my diagnosis she said "OH, I always figured you would die from a stroke". Gee, thanks Mom, that was quite reassuring.

  • VL22
    VL22 Member Posts: 851
    edited July 2017

    My mom first told me I should "cut them off", followed by I probably got BC because I'm a vegetarian. Now I'm waiting to here about whether or not I need chemo and she's telling me she doesn't see it being a big deal. Just amazing. Luckily, I learned to ignore her many moons ago

  • ready2bedone
    ready2bedone Member Posts: 95
    edited July 2017

    VL22 - That reminds me of exactly the reason I didn't want to tell my mom about my breast cancer diagnosis! Several years ago when her next door neighbor was diagnosed with DCIS and was struggling with all the decisions about surgery and treatment options - my mom crudely told her, "just have them chopped off! You're gay, it's not like you need them anyway since you don't date men!!" I was absolutely appalled!


    My brother decided to take it upon himself to tell her about me anyway against my wishes. But fortunately for me, her memory is really bad now so I have escaped her craziness for the most part. In fact, in the few months since, she has never once asked me how I was doing, if I had surgery, what treatments I am getting, etc. I think she completely forgot. So that's actually been a huge relief. Not sure I could have dealt with her stupid comments on top of everything else.

    On a different note - my son is getting married soon and his future mother-in-law emailed me when he told her I was diagnosed. She said "I heard you have breast cancer. I assume you are having a lumpectomy since that's what all my friends are doing these days!" As if it is the latest hairstyle or something!! I wrote back and said actually, no, I was having a bilateral mastectomy. She wrote back and said "that's awfully drastic since I assume it's not that bad." What a ridiculous comment. I had only met her once before at a dinner several months earlier - which makes it crazy that she would comment at all. And to make it even WORSE, she is a nurse practitioner!

  • llamalady
    llamalady Member Posts: 47
    edited July 2017

    After finding my lump in March, sent for mammogram and ultrasound. Did the tests and told to wait in lounge. Got called into the radiologist office about 30 minutes later for his review and findings. He told me there was something there suspicious and he was concerned and wanted me to have a biopsy. After that the went on to say that the good news was I probably just had a "little cancer" to which I replied "oh, is that like being a little pregnant?". He went completely silent.

  • Labtech47
    Labtech47 Member Posts: 16
    edited July 2017

    when I first told friends....you should just get them both taken off!

    When I told family....it must not be that bad since you don't have to have chemo!

    Lastly, a family member asked how RAD was going....said I am blistered and burnt. Family member replied....suck it up buttercup! Hmmmm

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited July 2017

    I just love the looks on people’s faces in my gym’s locker room when I pull off my sleeve and gauntlet after a workout—they totally freak out before realizing that no, I am not flaying my skin to remove my tattoos.

  • Louise50P
    Louise50P Member Posts: 2
    edited July 2017

    Ok. I found out two weeks ago and here are some of the dumb comments thus far. Several friends have very flippantly told me that I should get them both off and be done with it! One told me how fabulous her friends fake boobs are... she said that they felt like marshmallows...so incredible!

    Another friend text me that her cousin had a bilateral mastectomy and her reconstructed boobs are WAY better than her real ones were.

    Next friend says that I should just forget about reconstruction because it's SO fabulous to rock one of those low, open neck T-shirts with no bra...so 2017!

    My husband hasn't made any dumb comments about the choices ahead...he's been concerned about my health and well being. It's like my female friends are so fixated on what I'll do about my boobs....more so than concerns about the future of my life! Most people would think it's the guys that put the attention on the boob issue...?

    Seeing what my "friends" said in print makes it seem strange to consider them friends. I guess it goes back to remembering that we have all said dumb things to people in situations where we felt uncomfortable and were just trying to be nice, (without understanding how to do so in that given situation).



  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited July 2017

    Yeah, all my friends assumed I’d get chemo and mastectomy; and even two of them who had DCIS 20 years ago were surprised I didn’t follow their example and get a bilateral mastectomy. One told me her 80-yr-old mom had bc 20 years earlier, and “You’ll have a really shitty year and then you’ll get on with your life.” I dropped out of the cast of an annual musical I’ve done since 2002, because I still hadn’t gotten OncotypeDX or genetic test results when I had to make my decision—and decided I didn’t want to either leave the show in the lurch after being cast, or turn in a half-assed performance. (I ended up doing some writing instead). I went to the wrap party, and everyone was surprised: “You have hair! You have both your breasts! So it wasn’t cancer after all?"

  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited July 2017

    A well-meaning friend asks me - Twice - what stage I was dx'd with.

    Each time - I said "Stage II" only because she kept saying how bad it would be to be "Stage III".

    Why in the world would anybody ask that question - if there's a chance someone has more than Stage II?????

    Glad I lied about it...would hate to have to reassure *her* that I'm Okay.

    When - I already have a hard time reassuring myself that I'm Okay!!!!!

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited July 2017

    My dentist’s receptionist had chemo for IDC years ago, and decided she looks great in a buzz cut (and she does). She knows what not to say.

    When my friend down in the south exurbs had to go back after her first mammo to the professional bldg. in her town for followup diagnostic imaging, the reception said “flunked your mammogram, huh?"

  • Tappermom383
    Tappermom383 Member Posts: 643
    edited July 2017

    KB - that's hysterical! I can just imagine the look on the receptionist's face!

    People keep telling me how great I look (thank you) - and comment on how I haven't lost my hair (I'm having radiation treatments, not chemo). I've decided the best thing is that all evidence of my unasked-for adventure is hidden by my shirt (unless I randomly whip it up one day!).

    MJ


  • gb2115
    gb2115 Member Posts: 1,894
    edited July 2017

    I got that...it must not be that bad if you don't need chemo. Like my cancer isn't real cancer or something because I didn't get chemo. I went through some pretty difficult things with surgery and radiation, wouldn't have been bad if my body hadn't decided to become a ticking time bomb of weird allergy (still going on too), but I was pretty miserable there for awhile. People also don't seem to understand that there's no real way to tell if the cancer is gone---I'm asked if I'm done with treatment...well, sort of but not really (do I try to explain 5-10 years of hormone therapy), and am I cured...well, hope so?! Beats me!! Um...I never know what to say.

    I am also tired of people asking me when I'm going to have more kids, and telling me I should have another kid. Stop the madness!!! I don't want to give my medical history out and watch people's eyes glaze over (TMI). But that ship has sailed...I'm not going to skip the tamoxifen with 100% estrogen receptor cancer to have another kid at pushing 40...but people are relentless with telling you what they think you should do!

    Ugh.

  • Matryoshka
    Matryoshka Member Posts: 35
    edited July 2017

    Worst comment I heard was just three days ago, "Why are you taking time off work, when your chemo does not start until Friday?"

    Erm, cos I am feeling like an emotional wreck? Cos I am exhausted from the ovary suppression shot which also makes me feel like crying one moment and laughing the next? Cos I need time to just feel as centered, calm and rested as I can before I go get some liquid fire pumped into my veins to burn the bad bad cells away?

    Although "If I am you, I would just cut everything off and not worry about it," and "You have such nice hair! What a pity!" are both close second place contenders

  • kathindc
    kathindc Member Posts: 2,042
    edited July 2017

    image

    I think this should be printed and handed out to those who make stupid comments!

  • coachvicky
    coachvicky Member Posts: 1,057
    edited July 2017

    First time posting here.

    My first Primary Care emailed me when I requested a breast MRI, "why bother since your are having them cut off anyway."

    My Surgeon insisted. The MRI showed a 4cm lobular carcinoma in what was to be the prophylactic breast not shown on mammogram or found by physical exam.

    Fired the Primary Care. Got a new one.

    Another comment came from my Oncologist who said he was "uncomfortable prescribing Lattise" for my diminishing lashes. Uncomfortable? That was having my breasts amputated. He changed his mind about the Rx.

    Coach Vick


  • HelloSweetie
    HelloSweetie Member Posts: 4
    edited July 2017

    about a week or two after I was diagnosed I ran into a friend, she already knew about my cancer from another friend. She says "oh husband and I were doing research last night and more women in this country die of heart disease than breast cancer so I think we should really be focusing more on heart disease and not so much on breast cancer "

    I just stood there like a deer in the headlights. OK, I heart disease is a killer but I'm not dealing with heatdisease I'm dealing with breast cancer and I just wanted support from a friend

  • Beatmon
    Beatmon Member Posts: 1,562
    edited July 2017

    HelloSweetie: I think she could be a freenamie. Who needs friends like that

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2017

    wow hellosweetie, with friends like that? wow.

    here's one: a what i thought was a good friend pulled me to the side and asked me how do i think i caught breast cancer?? she said from what she could see i was a healthy weight etc and wants to know if i was told how i caught it? i told her from a toilet seat. sad thing is she was serious.. this is an educated woman of some age...whew.

  • Ruby3813
    Ruby3813 Member Posts: 96
    edited August 2017

    Just found this thread and I must say, some of the things people say are just mind boggling! Wow!!!!

    Here's mine.....I was diagnosed back in February. Had my surgeries and 4 weeks of radiation. Last day of radiation was April 21st, then my husband and I were getting on a plane to Vegas for a celebration of sorts. I had only told my closest family, friends and co-workers about my situation, but while sitting in the airport waiting for our plane, I decided I would go on Facebook and share my good news (radiation done; heading out for some fun after dealing with all of this....) with friends and family I hadn't already told. For the most part, every response was very uplifting and positive. Except for a message I received from a former co-worker. "Ruby, did you really have cancer, or were you just joking?"

    WHAT???? Who would joke about that?? I like a good joke just as much as the next person, but seriously?? Needless to say, I haven't had much contact with her since.

    Edited to add: MsPharoah, if you're still on this thread, I just want you to know that I will be keeping your "junk punch" phrase alive and well from here on out! :-)

  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited August 2017

    I get tired of first being asked: "How are you?"

    Then I try to say that I'm Ok, but then I get asked again "how arrrrrrrrre you???" Like they don't believe when I already said I was Ok. And, this makes me feel like I'm not actually Ok!! grrrrrr....

  • Siciliana
    Siciliana Member Posts: 127
    edited August 2017

    You nailed it, Scared67! I absolutely hate that and I have had it happen too many times.

    Another thing that bothers me is if I happen to mention some stressful situation I'm going through at the moment, such as with one or more of my adult children, someone will say, "You know, stress isn't good for your cancer." Well, duh! But is there anybody out there who can just turn off their stress levels at will?

  • solfeo
    solfeo Member Posts: 838
    edited August 2017
    Yesterday a doctor asked me if the tamoxifen is working. What kind of question is that from a medical professional? I said, "You don't know it's not working until it is too late, and I wouldn't still be taking it if that had already happened!" Hopefully he will refrain from asking similar stupid questions of others.
  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2017

    A corollary to the “how are you?” question: if I happen to be going through a rough patch (like a pulled muscle, sprain, cold, anemia, etc.) that has nothing to do with cancer, and I answer truthfully, people are taken aback. Apparently they only want to hear about breast cancer; anything else is TMI.

  • solfeo
    solfeo Member Posts: 838
    edited August 2017
    Good gracious KB870! I have heard lots of stupid comments but that one takes the cake.
  • Ruby3813
    Ruby3813 Member Posts: 96
    edited August 2017

    Wow, KB, that's not only stupid, it's rude, disrespectful and evil !

    Singing

  • MeToo14
    MeToo14 Member Posts: 493
    edited August 2017

    KB, a similar thing happened to me. A friend of mine who is a pediatric oncology nurse, was telling me how much she loved her patients and and that she was always happy when they got to go home but she didn't get too upset because she knew most of of them would be back. She said that's always how it is but then caught herself and said, " but not you, I'm sure you'll be fine". It hurts to be reminded of the fact that we not cured.

  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited August 2017

    KB - WOW. That would make me want to scream. Why don't these people realize - that cancer can happen to them???? No one is immune. 10 years ago - a friend of mine was diagnosed with an aggressive form lymphoma - at age 28. But, before that - he was the picture of health. Ate exceptionally well, worked-out all the time and even rock climbed. NO history of cancer in his family - whatsoever!

    Me-Too - Yup...it sucks that we can never feel safe that it won't come back. I feel like I can never move on because the threat of mets will always be there...

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited August 2017

    So a group of 'friends' was gathered, due to the loss of a mutual friend. Conversation went to death and you never know etc. Then a friend who is an internal med physician turned to me and said 'at least you know what will kill you" just hope it's one of the 'kinder' mets. WTF??? Also, our mutual friend was an 8 year BC, TN survivor, died of an aneurysm.. Others tried to 'clean' it up. She did not. She went on to explain what 'kinder' mets were. I left as did a few others.

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