Here's what cheezed me off today

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  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited December 2016

    Rohanna, been there - not from rads, but from chemo. The stuff worked though, really good. Just be aware that it works really good, as I said, on all the hairs all over. Due to estrogen depletion and chemopause, unfortunately half of my eyelashes came back on my chin.

  • Kattysmith
    Kattysmith Member Posts: 738
    edited January 2017

    And my nom-de-grandma is Meme (May-May).

  • Rockym
    Rockym Member Posts: 1,261
    edited January 2017

    My lashes thinned tremendously after chemo. Not sure if that would have happened with age, but it feels like it wouldn't have. Also lost lots of hair down there :-). Now while some ladies (probably younger) don't mind that one I do. Not a darn thing I can do there, but for the eyebrows I have learned to use pencil and they probably look better then before. Legs and pits only need a shave every 2 months so chemo saved me time for that one.

    Happy New Year and here's to hair where you want it!

  • Goincrzy8
    Goincrzy8 Member Posts: 387
    edited January 2017

    feeling pissy today, I found a hardness in breast. When I went to Dr nothing showed on mammo, had US then Biopsy. So when people find out you have BC why do they say oh glad they caught it early? You dont know its stage III and it didnt show on mammo. No I didnt catch it early.

  • Freya244117
    Freya244117 Member Posts: 603
    edited January 2017

    Sitting here looking at boxes of 3 different oral chemo drugs, and I am about to dispose of them. Nearly a years worth of treatment in total. They are not out of date, nothing wrong with them at all, except that I am allergic to them. It is the waste that bothers me. They cost me next to nothing. Somewhere in the world they could save a life. It seems so wrong.

  • DeeDee45
    DeeDee45 Member Posts: 30
    edited January 2017

    Freya, Can you donate your unused chemo pills?


  • Juli24
    Juli24 Member Posts: 90
    edited January 2017

    I've tried without luck to donate mine. Does seem like a waste.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited January 2017

    Mom cheezed me off once again. When I told her that my older brother has to have his other knee replaced this year, she immediately tried to put me in a tough spot with my brother. They haven't talked to each other for quite some time and my brother doesn't want me caught in the middle. So my brother when he found out asked me for her address so he can write her and to tell her to leave him alone and to stop causing me to be put in the middle of her petty games because he said with what I am going through I don't need the hassle this causes. She knows that I am very loyal to my older brother and that he has always been very protective of me. I do keep them informed of things that I feel is important for them to know like health issues and this is as far as my brother wants me to go for him in regards to her.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2017

    seachain, thanks for the info. gonna give it a try and i don't care where the hair ends up. lol Heading out to the drugstore in a little while and I

    l'll see what I can find.

    freya, my onc.'s office takes back unused meds to give to women who can't afford theirs. Hope this is available for you.

    mommy, unfortunately family drama is a common thing and the only solution I've found is to make myself scarce. Yeah, I got bitched out for it at first but I just informed family members that after cancer, life changes and I needed more me time. After much time and bitching, my family came to realize they needed to value the time they had when i was available and that I would walk away when they started any drama. takes a while but they finally got the hint.

  • Freya244117
    Freya244117 Member Posts: 603
    edited January 2017

    I've tried every avenue to donate the drugs, but no luck. I can understand they need to be careful in case they are contaminated or whatever.

    One good thing about cancer is that it can help you see what is important to you and your life, and how much stuff is just scenery that blocks your view.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited January 2017

    Yep. My brother, his wife and most of my family have been super supportive since my cancer diagnosis

  • Lulu22
    Lulu22 Member Posts: 175
    edited January 2017

    Banning people who have lived and worked, and raised families in this country for decades from returning from abroad simply because they come from countries on an arbitrary list, one that doesn't include any of the countries from which the 9/11 terrorists came? Gee I feel a lot safer today.

    This executive order even covers AMERICAN CITIZENS if they hold dual citizenship. I thought I'd seen the height of insanity already, but apparently DT has a more vivid imagination than I do.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited January 2017

    Mom was at it again yesterday with trying to put me in the middle of her latest issue with someone in the family or friends. Not going to get involved. Need to preserve my sanity

  • Rockym
    Rockym Member Posts: 1,261
    edited January 2017

    Lulu, I can barely keep up on some of the other threads. I have been "cheezed" beyond belief with the situation occurring. My husband is Canadian and although he has lived in the states for 40 years, he never got his citizenship for the fact that he thought one day our kids (who weren't even born yet) might want to get out of here.

    Who thought that day would come? Of course we aren't going anywhere, but geez. When Reagan was president he did the amnesty thing. My husband and I were getting married anyway, but we had the option of him getting his green card though marriage (perhaps tougher) or simply paying a few bucks and showing documentation that he has lived in the states for years and was a good worker, etc. Heck, I think he even had an Social Security number back in the day when you just asked for one.

    Now I can't say if the states are any less safe now then 30 years ago, but I feel just as safe. I have watched many atrocities in my life and have suffered my own (hence being part of BCO), but now that Trump is sitting on the golden throne, that is making everyone I know feel very unsafe. All I can say is I hope this situation shakes things up and gets the people who had the majoprity vote ticked off enough to do something today, tomorrow and in the future.


  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2017

    Does anyone else have massive scar tissue under the skin where you had your lumpectomy? I've got a mammogram scheduled in a couple of months but I'm worried because the area under my scar seems to be getting bigger. Or am I just scaring the crap out of myself?

  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited January 2017

    You may be just scaring yourself. Some people are prone to keloid scars, and those WILL grow for a while. Myself, I'm Caucasian, over 50 (so not in the risk groups) and I have the tendency to get them if they use surgical glue instead of steristrips so I'm sure to make the surgeon know about this. I hope that's it.

    Keloid scars

  • Rockym
    Rockym Member Posts: 1,261
    edited January 2017

    My scar tissue feels like a round lump. It extends from my scar pit area to where the surgeon finished up his cutting.

  • Luckynumber47
    Luckynumber47 Member Posts: 397
    edited February 2017

    This didn't cheeze me off - it really made me laugh. I saw some old friends yesterday that I hadn't seen since my BMX (they're unaware of my diagnosis and surgery). They went on and on about how great I looked, so much slimmer (I've gained a few pounds) 10 years younger, etc. I did tell them I've managed to trim a little bit off. Tee hee. Guess all you have to do to look young and healthy is chop off those huge matronly boobs.

    I kinda felt bad I never told them about my surgery but I liked having an inside joke.

  • Rockym
    Rockym Member Posts: 1,261
    edited February 2017

    Lucky, that's funny... reminds me of those who used to compliment me on my hair (during chemo) and ask where I had it done, how I got such beautiful streaks, etc. It was an effing wig! Okay, sometime I just said thanks ;).


  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited February 2017

    Haha, when my hair started coming back after chemo, of course I first got the "peach fuzz". The first 3/4" that grew was kind of wispy and whitish looking. I did not cut it, however, hey, I wanted every little milimeter of my hair at that point. Anyway, when it got about 2" long I dyed it for the first time, especially because I'd had gotten a lot of grey hairs and also a strip of darker hair than before going from my forehead to the top of my head, right in the middle. So I dyed it my normal light ash blonde. The thing is, the color got a little different on those tips that were already whitish looking so it gave a very peculiar "frosted" effect, that looked very nice especially with the new ringlet-type curls. For a few months, until I got my hair long enough that I wouldn't mourn the loss of those 3/4" ends, I kept being stopped by women all over the place to ask me what salon I was going to because that "frosted" effect apparently was really nice. I'd always answer "I don't think you want to go to that salon, it's about $17k a pop and I had 4 treatments to get my hair like this."

  • Icietla
    Icietla Member Posts: 1,265
    edited February 2017

    Freya, sending you a private message.

  • Rockym
    Rockym Member Posts: 1,261
    edited February 2017

    seachain, I could imagine the look on their faces ;). I colored my hair when it was at about an inch. The thing is, the color didn't take the same and I ended up with orange hair... yikes. At that point I wasn't sure what to do. I didn't want to try and fix it, but I couldn't stand the thought of looking at it either. I ended up shaving it off figuring I would start fresh next time. I went to a salon when it grew back an inch or so for the first color and all was well again.

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited February 2017

    I have to vent.....

    Why is is so difficult to schedule surgery? My last chemo is valentine's day. I should have my mastectomy surgery the 2nd week of March. I started calling my surgeon office last week to make a consultation appt and to schedule surgery. When I call they either hang up or say that someone will call me back. If someone calls me back it's never the right person so again, someone else will call me back.

    Time is running out and I want my surgery scheduled. sorry, just have to vent.

  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited February 2017

    Honestly if it were me I'd look for another surgeon. Can you imagine how it would feel if after surgery you'd have any issues and try to get hold of him?

  • Wren44
    Wren44 Member Posts: 8,585
    edited February 2017

    If it's a HMO, go to customer service. Office folks don't like that.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2017

    seachain, they did use surgical glue on me and it was the devil to remove. I'll ask onc. about it. Thanks.

    rocky, mine is a round lump too and I'm probably scaring myself. seems like every little bump and lump scares me now. *sigh*

    bellasmom, I have had a terrible time with my onc.'s office too. Terrible time getting the nurse to call me back, getting rx's filled (happened again today, they called in the wrong thing again) brainless office staff and unanswered phones. I'm now on my 5th or 6th onc. since my dx almost 6 yrs. ago. Finally just found out that the dr's group was in the process of being bought out by a major hospital. I'm hoping this puts an end to all the chaos but I'm not betting the farm on it. I'd switch offices but it's a major hassle and I'm just not up to it. Fingers crossed. Keep us updated on your progress. You're in my prayers. Hugs1

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited February 2017

    My insurance is a PPO. I sent an email this AM to my "Nurse Coordinator" and within an hour I got a call from the "scheduler". The "scheduler" told me she can't do anything without an order from the Dr., but she will contact the Dr. (who is currently on vacation). At least I now know I'll be scheduled for surgery.

    If I have any other important issues, I'll go to my "Nurse Coordinator" first.


  • Goincrzy8
    Goincrzy8 Member Posts: 387
    edited February 2017

    So Cancer sucks big time.My DIL aunt who used to be my neighbor had ovarian cancer, she has been declared NED since Sept. We reconnected and she was going to come to chemo with me and be by my side. She just found out it has gone to her brain and she had brain surgery :( went to WINE with my BFF who has been by my side since my DX and every dr appt surgery etc support for my kids, her husband just DX with prostate stage 4. WTH? Sorry feeling kinda sad tonite and selfish.

  • magiclight
    magiclight Member Posts: 8,690
    edited February 2017

    I'm on your side, so OK to be sad and selfish. Cancer sucks on so many levels and you are just in the early stage of recovering from your own surgery.

    image

  • Rockym
    Rockym Member Posts: 1,261
    edited February 2017

    Goingcrzy, You have every reason to be ticked off. Sometimes it seems like there is cancer everywhere we look and go. You are still way too close to your treatment, etc. for things like that to not bother you. I would think you are emotionally healthy. Feel free to come here and vent. We are a pretty good group.

    BTW, I just found out my daughter's tutor died from cancer. He had it when I was going though treatment five years ago and we parted ways because he was getting weak and I didn't want my daughter to think everyone had cancer and that it was normal. Sad he passed and glad I didn't. Selfish?

    Rohanna, lump results?

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