Starting Chemo March 2015

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    Katy!! That's awesome.

    Leigh: I have head magnesium helps. I don't know if it is true or not. I have noticed that I get chills, then bundle up and get a hot flash. The quicker I get all the blankets off me, the milder the hot flash seems to be. Are you taking Tamoxifen? I haven't started it yet.

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  • Leighrh
    Leighrh Member Posts: 317
    edited October 2015

    I am taking magnesium.... and not tamox yet.. i will start after rads! I guess I won't get a break from chemopause hot flashes and tamoxafin hot flashes....I just feel to young to feel this old.... LOL!!!

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    part 2-

    image

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  • DavisD
    DavisD Member Posts: 338
    edited October 2015
    • OMG Katy! I am so proud of you! You look totally badass but then you are!
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  • Italychick
    Italychick Member Posts: 2,343
    edited October 2015

    Katy, you are the best! You don't just talk the talk, you are walking the walk for all of us!

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  • pboi
    pboi Member Posts: 663
    edited October 2015

    Wow Katy, awesome! Thank you for speaking up!

    PB

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2015

    jackbirdie - awesome! So proud of you taking the bull by the horns!

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    I knew there must have been a bull around somewhere, with all the "bs" flying around this month haha! Thanks everyone. I just wrote a letter. When I was pissed off. SpecialK showed me the direction and others in my life gently suggested taking the power back by writing a letter. It's hard to believe it was just one letter that started this whole thing, but the outcome today is just a bonus. My real reward was the feeling I got standing up for myself and all of my sistas. It actually reduced my physical pain. Anyway, thanks for the support all.


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  • shaz101
    shaz101 Member Posts: 718
    edited October 2015

    katy, I am so proud of you. I've always known you were here to change the world. You inspire me all the time.


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  • slothabouttown
    slothabouttown Member Posts: 449
    edited October 2015

    we have a celebrity among us! Awesome work Katy!!

    AV rest up and best wishes while you heal from surgery

    Sharon your blanket looks so cozy and comforting!

    Eileen, the ad I keep hearing is that 71 women in the metropolitan Portland area are diagnosed with BC every week. One more week of pinktober.....

    Leigh the magnesium cut my hot flashes by more than half. I haven't had to get up in the middle of the night with them in over a week. If the magnesium isn't helping maybe you could try another type? I found a complex that has multiple types in one tablet. I learned what I know about magnesium from Theresa. Also, Hot flashes SUCK!!



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  • jumbledbamboo
    jumbledbamboo Member Posts: 158
    edited October 2015

    Katy that is so amazing! Thank you for educating me and letting me share this info. You look great and this is important

    Quick update. My breast reconstruction is red and very inflammed. Antibiotices. I am tired and my stupid lymphedema is up I have not heard yet if I can go for therapy. I am a dope and forgot to ask at my visit yesterday. I have had so many appointments I am wiped. Did I tell you the great news that my bone scan was clear? I have a lot of arthritis...is this normal at 35? Anyway. I am reading and trying to keep up. On a really cool note I have a great friend irl who knows the battle. I am grateful. I am also having my husband paint my kitchen cupboards a gorgeous sky blue. Its a nice change

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  • jumbledbamboo
    jumbledbamboo Member Posts: 158
    edited October 2015

    I would love to be a part of christmas cards too!


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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    Amber- awesome news on the scan! So happy! Doing the 💃💃💃💃💃💃💃 dance!

    The blue cabinets sound nice.

    Hope the infection resolves soon and you can get some PT.

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  • Italychick
    Italychick Member Posts: 2,343
    edited October 2015

    Amber, awesome news you had a clean scan! I thought that's what you said in an earlier post, but I didn't know for sure.

    Avmom hope you are doing okay, thinking about you!


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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    Amber: That's great you had a clear scan. What type of arthritis do you have?

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  • eheinrich
    eheinrich Member Posts: 792
    edited October 2015

    Go Katy!!!! I saw it on FB and couldn't stop smiling :)

    Allison, you described my nights exactly. Chills then ahhhhhhh I'm on fire. So annoying.

    Thanks for the magnesium tip. Mine was low at my last blood work.

    Amber, did you have TEs put in with ADM? I had a reaction to the ADM. They had me on iv antibiotics two days in a row to rule out infection. But it was an allergic reaction to the preservative used in the ADM. I hope yours resolves quickly & yay clean bones!


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  • ThePrincess
    ThePrincess Member Posts: 424
    edited October 2015

    Katy - I thank you and my daughter thanks you!

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    Eileen, I would be curious to see if the magnesium helps you with the hot flashes. I think mine are not terrible, relatively speaking. They don't seem as bad as they were in the beginning. And they don't seem to last all that long.

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  • shaz101
    shaz101 Member Posts: 718
    edited October 2015

    ok. I'm upping the magnesium. ..again!

    I love being warm but this is ridiculous

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  • Italychick
    Italychick Member Posts: 2,343
    edited October 2015

    Sharon, what form are you taking? I had to play around with different forms until I figured out what worked

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  • Meme117
    Meme117 Member Posts: 194
    edited October 2015

    Katy awesome job! You are making a real difference, way to go girl!

    I made it thru the cat scan, the barium made my stomach so upset and I almost burst out in tears on the table, almost. Now the wait for results....

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    I just Skyped with Shaz! What a gorgeous gal our fearless leader is! Highly recommended putting voices and faces with our words. Such a nice visit we had.


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  • Meme117
    Meme117 Member Posts: 194
    edited October 2015

    I for hot to post this link. Somehow I came across this program for those affected by cancer from 18-39. Check it out, adventurous programs for free.

    http://firstdescents.org

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  • eheinrich
    eheinrich Member Posts: 792
    edited October 2015

    I upped my fills today. 40ml instead of 25. Not so bad so far. I want to be fully expanded in 3 more visits, enough of this.


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  • shaz101
    shaz101 Member Posts: 718
    edited October 2015

    This one theresa

    image

    Sorry about the size of the pic. I pinched it from their site.

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  • shaz101
    shaz101 Member Posts: 718
    edited October 2015

    katy, that was fun talking and seeing you! It was a really good connection too.

    Eileen, I hope this fill goes without any pain. I'm sure it must feel like it's taking forever.

    Amber, I hope your breast has settled down now. Yep I hear you on the LE! So frustrating.

    I've started week 2 of my couch to 5km program. I'm feeling so much better for it.

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  • slothabouttown
    slothabouttown Member Posts: 449
    edited October 2015

    I didn't know there was magnesium powder! I should try to find that, I'm afraid one day they're going to find me collapsed in the kitchen having choked to death on my giant sized magnesium tablet. Seriously that's a thing I think about.. .its that huge.

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  • Italychick
    Italychick Member Posts: 2,343
    edited October 2015

    I know, the magnesium pills are huge. But I'm a complete wuss about drinking anything nasty, so I've never tried the powder.

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  • eheinrich
    eheinrich Member Posts: 792
    edited October 2015

    I started therapy this week to help me deal w/ all the stupid life changes. I'm not a therapy fan - tried it in the past - I think I just need to find the right person. This one seems ok.

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    I found magnesium gel caps at CVS last week. I haven't opened them yet but I think they will be easier to swallow. I haven almost choked on my magnesium more than once. (I know my husband could be in the same room and not notice so I had to do something).

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