Starting Chemo March 2015

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  • shaz101
    shaz101 Member Posts: 718
    edited October 2015

    Great charm Carrie. The bracelet must be getting heavy now. I have days when I miss my hair. Other days I just miss everything.

    I have managed to keep to my couch to 5km program. I'm so pleased about that. It helps me to know that I will become strong again.

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    Here's something to put things into perspective. I was at my Jazzercise class yesterday and saw a woman I hadn't seen in over a year. She approached me and asked how I was doing and then told me her daughter who is 24 was dx with st 4 melanoma on her scalp. She has had surgery and many lymph nodes removed and is now undergoing chemo for a year and has to get moles removed from her body every three weeks. She was offering to do something for ME. I was like, no way. I should do something for you. She just broke my heart. I couldn't sleep last night because I kept thinking about her.

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  • Leighrh
    Leighrh Member Posts: 317
    edited October 2015

    Hi All.... Just checking in! I go for my Rad sim today and start my 6 beautiful weeks of it tomorrow! I am sort of sticking my head in the sand about rads! I am not looking at the rads board and I am not looking up what can or will happen. I am just going into it as it's no big deal... and hour out of my day..... I will of course follow all protocol of lotions and such but I just need this to be a non event so I am making it one! :)

    I am still reading everyday even though I don't post!

    Would anyone be interested in setting up an address list? I don't know if any of you do Christmas cards, but I would love to be able to send everyone one.

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    Leigh: I was thinking the same thing about the Christmas cards. Good luck with your rads. I am on day 4 today. So far nothing. But I am reading the boards and taking some preemptive suggestions. It think the cooling towel is worth getting. You can get it at Bed, Bath and Beyond. It's cheap.

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  • slothabouttown
    slothabouttown Member Posts: 449
    edited October 2015

    Leigh, you deserve a non event. Rads were unremarkable for me, just a slight hiccup in my day, so I think your approach is realistic!

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  • molly1976
    molly1976 Member Posts: 403
    edited October 2015

    I had an easy time with rads, also! Hope that will be true for you too.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    Leigh- great idea about the Christmas cards! I'm in! Where to I sign! And I too hope rads will be a total non-event for you.

    Allison- that certainly does put things in perspective. As I think I've mentioned before, I had a very personal loss with this. Scary aggressive. How kind of her to do something for you. Somehow when that kind of tragedy/chaos comes along, I think intellectually that you would be so spent, one would have nothing left to give. But it seems to work in the reverse.


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  • pboi
    pboi Member Posts: 663
    edited October 2015

    Leigh...aside from a lot of fatigue towards the end rads was mostly a non-event for me too. Hope the same for you. Drink lots of water, eat protein, moisturize, and exercise.

    PB

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  • eheinrich
    eheinrich Member Posts: 792
    edited October 2015

    I'm in for an address list! What's the best way to do that

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Many here have donated . Thank you !........Wandering around and cheerleading again :)


    Donate today, make a difference directly in all our lives. By supporting BCO, we support each other. Thanks and Hugs :)

    image

    https://community.breastcancer.org/forum/110/topic/834331?page=1

    Link to the mainboard donation page

    https://secure3.convio.net/bco/site/Donation2?df_i...

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  • DavisD
    DavisD Member Posts: 338
    edited October 2015

    Sharon-I'm so happy you're posting and proud of you for pursuing an exercise program. You are an inspiration:)

    Allison-You really did remind me how fortunate I am. I can't imagine what that woman is going through when her daughter is suffering so. Every time I hear stories on NPR about the Syrian refugees I just can't believe I could complain about my little problems. Thanks for sharing.

    Katy and Theresa-The Naltrexone is going to be around 64.00/month. I know that isn't huge but we're on a really tight budget and I have a good Rx drug plan. I'm going to make a call to the company tomorrow because several years ago I had a compounded Rx and they paid a portion but I had to submit. If that's the case I'm going for it. My rheumatologist stated it would take a few months before I would know because it's such a small dose. I'll keep you posted. Thanks for the support!

    Leigh-You have the right outlook about rads. My experience wasn't good but that wasn't until the 4.5 week mark and it got better quickly. No matter what your experience, the skin recovers amazingly well:) I love your idea about a Christmas card list, sign me up!

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  • Italychick
    Italychick Member Posts: 2,343
    edited October 2015

    Diane, try that Skips pharmacy place if all else fails. I think they are cheaper

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  • SueH58
    SueH58 Member Posts: 632
    edited October 2015

    Hi guys. Remember that I am forgoing my visit with the bracelet so that it can make it expeditiously to Sharon. We love you, Shaz!!!

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  • Meme117
    Meme117 Member Posts: 194
    edited October 2015

    ThePrincess with regards to cording, I had it where I could not bend my arm completely. It took about a month before my arm had full motion. My PT did stretching, massage and used a cool laser treatment. When she worked on my cording it hurt just enough if you know what I mean. I did stretching every day. Maybe you should check with a different PT.

    Allison what a story, I always think it could be worse. Wow a year of chemo, no words.

    Diane I'm at 4.5 weeks rads and now I feel it. Right above my boob is tight pain and I get redder each day. Today was my second sim for the boost, dr said changing to 8 boosts and 2 less whole breasts due to skin reaction., whatever I just want to be done.

    Attended wellness class tonight thru BS office. Focus was on eliminating sugar from your diet. So I'm starting a 30 day challenge, reading all labels and adding more whole foods. These past few days I was on a binge eating cookies and ice cream every day, awful and I couldn't stop myself. I think because it was so cold for a few days, my house was 59 one morning, my body wants to hibernate.

    Tomorrow is my cat scan for NED, fingers crossed.

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  • slothabouttown
    slothabouttown Member Posts: 449
    edited October 2015

    Oh wow Maryellen tomorrow is a big day for you! NED! NED! NED! (Chanting and fist pumping)

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  • DavisD
    DavisD Member Posts: 338
    edited October 2015

    good luck Maryellen! I'll be thinking of you

    Theresa-I just watched some YouTube videos on naltrexone and I'm going to give it a try no matter the cost, I'll get the first one here since they already have it but I'll call skips and if it's less I'll get another rx from the doc. I'm feeling really hopeful now!

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    Maryellen- thinking of you and waiting for the all clear.

    Sue- I won't forget. After Avmom it is supposed to go to Arlene/Greenae, but it might be easier to send it directly from Canada to Oz since they are part of the same Empire, sort of.

    Arlene- if you are reading, is this ok with you?

    I have a BIG HUMONGOUS SURPRISE for all of you tomorrow!


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  • shaz101
    shaz101 Member Posts: 718
    edited October 2015

    Sue, that so kind of you. It really touched my heart. Thankyou

    Allison, how horrible. It does put things into perspective.

    Christmas? What! Already! Where has the year gone. Yep I'm in.

    I have finally finished my blanket that I started crocheting when I started rads. I'll post this and then upload a photo from my phone.

    Here I am... don't ya love technology.

    image


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  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited October 2015

    Sharon, this is one beautiful blanket. It looks like it took a lot of work. Great job!

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  • KBeee
    KBeee Member Posts: 5,109
    edited October 2015

    Maryellen, thinking all good thoughts for you. Hoping you do not have to wait long for results.

    Sharon, beautiful blanket!!!!!!

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  • eheinrich
    eheinrich Member Posts: 792
    edited October 2015

    Great blanket - I like the color combo.

    Maryellen - hugs and good mojo headed your way.

    Katy? Surprise? I love surprises.

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  • eheinrich
    eheinrich Member Posts: 792
    edited October 2015

    So one think about BCA month that's making me a little crazy is how many times I've heard that >40k women will die of BC this year. It makes me a little sick inside every single time.

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  • pboi
    pboi Member Posts: 663
    edited October 2015

    Thinking good thoughts for you tomorrow Maryellen!

    Beautiful blanket Sharon!

    What a teaser Katy, we have to wait till tomorrow?! 😊

    PB

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  • avmom
    avmom Member Posts: 324
    edited October 2015

    Hi, everyone,

    I'm checking in after my prophy mx yesterday. My surgeon will do rounds today so I will get to ask him about what he found in there (if anything). I don't remember much of yesterday, but pain management is going ok today. More later - I'm pretty tired

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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    Take it easy, Avmom!

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    Avmom- thinking of you.mrest easy and stay ahead of the pain. Mojo drip has been installed and I think the bracelet is on its way. Hugs but gentle ones.

    Sharon- GORGEOUS!

    E- I get sick too.

    Surprise is coming....stay tuned.

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  • pboi
    pboi Member Posts: 663
    edited October 2015

    Avmom...so glad to hear you are doing ok. I have my prophy mx and oophorectomy in 3 weeks, Nov.11. Get some rest and hope you're able to stay ahead of the pain.

    PB

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    Surprise Part 1

    http://bcaction.org/2015/10/21/im-outraged-i-was-g...


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  • Leighrh
    Leighrh Member Posts: 317
    edited October 2015

    Sharron, what a pretty blanket!!

    GO Katy!!! I saw that on FB... you are making things happen!!!

    Can we talk HOT FLASHES????? When are these gonna go away? NEVER???? Is this just something we have to live with for the rest of our lives? I get them at night and that is bad enough but now just in the middle of the day for no particular reason.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited October 2015

    yes the hot flashes suck. I think magnesium is helping. And I sleep with s fan on so I can cool down fast.

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