INSOMNIACS place to talk in the wee hours

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2015

    Good morning ladies- waking up to t-storms this morning. Weather dude says it is going to rain off and on all week. El Ninjo is back and doing it's thang!

    Lots to get to today and wishing you all a good week!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Cute coop :)

    Chevy,rather than learn about all the different aphasias, try and have a chat with XDIL about Carol. Ask what type of Aphasia Carol has. Each has a different way to be managed. The XDIL and DBF would have been taught by the Speech Therapist about Carol's particular problem(s). Ask XDIL how she suggests you talk with Carol based on what she has been taught to do with Carol.

    The two easiest aphasias to remember are:

    expressive aphasia: patient understands what they hear, but they can't express(say) the words they want.

    receptive aphasia:patient doesn't understand the words they hear i.e they hear jibberish ---I say "dog", they hear @^&&$.

    1. When visiting talk in a normal tone. People sometimes raise they're voices thinking that will help. It does help with a hearing loss, but doesn't work with aphasia

    2. Sit at the same level as Carol within her direct line of sight. Sometimes stroke victims are left with visual disturbances.

    3. Talk without being overly animated. We do this with babies and it's a good thing, but with a patient that has a processing problem it's confusing. In being able to see your face she will get some cues as to what you are saying.

    4. using tools to communicate appropriate to the type of aphasia. Flashcards, writing instruments, pointing poster, sign language.

    Remember when you asked about whether she can think? Remember the story of Helen Keller. Thinking wasn't her problem. Communication was.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Chevy, speaking of sign language. Depending on Carol's processing problem, maybe sign language could help.

    http://www.babysignlanguage.com/


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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited October 2015

    Yeah, thanks Sass.... They have been using flash cards with her.... Same as in rehab... And yes, I do sit close to Carol, and look right in her eyes, like the rest do... Helen Keller lost her sight and hearing.... Her brain was still intact... Carol can maybe "think".... she just can't communicate.....

    Carol can hear very well, with her hearing aids... like I can.... It seems as though she hears what you are saying, but the thought to reply doesn't get to her brain.... it just stops there.... In other words, she "understands"... and enjoys her outings!

    She must have expressive aphasia.... because she can answer your question.... or laugh when we say something funny....

    Next time I go over, I'll talk to Margaret, without Carol hearing us.... and watch her with the flash cards, and see how she does.... Thanks Sass!


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  • magdalene51
    magdalene51 Member Posts: 2,214
    edited October 2015
    Hey Owlettes! Our cancer support group is having show and tell tonight. Trying to figure out what I should take but don't want to scare the newbies. Imodium, Gas-X, Prilosec, lemon drops, ginger ale, silvadene, boxes and boxes of gauze pads, eucerin lotion, and an iPad. What say you?

    Spookie, my dad used the buckle end of his Navy khakis web belt, my mom used a hairbrush or a long handle wooden spoon, or a ruler, and all six of us managed to survive. You do what you need to do.
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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2015

    Mags- hmm, show and tell. Well, I would share things you found were helpful to you/gave you comfort during treatment. Maybe something you discovered that helped you to get through? Anyone give you something special that helped you? Discover anything to eat you could eat when you are not feeling well? You don't want to scare them, but maybe share the things you might need handy (all those items listed above?)

    If I were to share, I would tell people having some good movie channels (I got into HBO during my rads treatment) was really great during all my down time. Netflix is good too! I also found a protein drink at Walgreens I could take in when nothing else worked. As we all know, getting nutrition is difficult during treatment. Maybe a favorite tea or other drink to stay hydrated?

    And a friend gave me a beautiful small quilt made by her church for cancer patients. I put it on top of me every night and felt the love of those people who cared to do such a thing. Comfort beyond anything I can even begin to express here.


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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    Mags, last year about this time, #1 kicked #2 in the head. I went after him. Got tangled up, went down. That's how I got my purple cast. Wrist still bothers me. I totally agree with your parents line of thought. Unfortunatly parents today, don't.

    #1 has has his Safety Patrol belt taken away. He was so proud of that. Both will miss the Halloween festivities at their school. Both grounded no electronics. There may be more to come.

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  • susan3
    susan3 Member Posts: 3,728
    edited October 2015

    mags, I would bring my dammit doll :) don't know if you have one. Mine was sent to me by a fellow cancer friend...after I bangedher around a bit I sent her to another fellow cancer friend. Hope she is making the rounds. If you don't know...it's a cloth doll, tag says beat it against anything while saying dammit :)

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited October 2015

    got Evie's quilt done.

    imageimage

    Front and back. I think I'll embroider her name on it.Now I need to decide what to do. Maybe read.

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  • susan3
    susan3 Member Posts: 3,728
    edited October 2015

    that's so pretty. They will love it :)

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Evie's quilt is sweet :)

    Mags, ice bags for the itchies.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Chevy, you state "sit close, and look right in her eyes". b/c I don't know how close you are describing, I have to caution you. Each person has a personal space. If someone enters our personal space it makes us uncomfortable. Sit only as close as if you are having a cup of tea during a regular chat. The key to the eye contact is if she does have a visual disturbance,. Double vision for example, looking at angles or up and down may distort the vision more. Plus, she will get cues from you facial expression, but if you are too close that won't work.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Loverly, How was work today? Did DH bring and gifts from Nepal?

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited October 2015

    Work has been very slow since we switched over to Affordable Care (which by the way is not affordable). I did mostly chart auditing today. Thank you for asking. No, hubby did not bring any gifts home because of the situation with petrol crisis. Most businesses were closed and taxi/bus services were scarce. Even if you have a car, you would have to stand in line for 3 days to buy limited fuel. DH was disappointed he couldn't get the girls anything. They, however, were not and told him that they were grateful that he made it home safely. He is planning to go again in April with a group of medical team. It is going to be a brutal winter for a lot of Nepalese. The price of everything has skyrocketed since the political crisis. We feel for the people.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2015

    Fun evening shopping at Kohls tonight. Ran into a shoplifter running like a bat out of hell out of the door with loot in hand. Nothing bad happened, but things like that make me nervous. When I saw him coming out the door, I froze in place to stay out of the way of what was happening.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited October 2015

    Fancy looking chicken coop!! It is more for the human eyes. I don't think the chickens care. They let the kids craw into the coop?? Yuck!! Have they heard of salmonella???Ms. CHEVY, are these people the same neighbors who planted the "wild flowers" on the parking strip?

    Mag, my dad used the fly swab and mom used the end of a feather duster and I turned out ok too....I think.

    Ms. Spookie, you might as well call the boys Thing 1 and Thing 2. Haha Community work suggested by Ms. CHEVY is a good idea. Maybe they can pick up trash around the school in addition to the other punishment??? It is sad and not fair to them that their dad does not have the tools he needs to be a loving paternal authority. I apologize for the blunt comment, but the children are ultimately the ones who will suffer.

    Ms. Smaarty, beautiful quilt. That baby is going to be spoiled. First great granddaughter???

    Jazzy, how scary...

    Long day for me today. 12 year old Dd2 woke me up at about. 3:30 am to tell me that she had a bit too much water to drink right before bed. Had to help her with the clean up...well, she did the cleaning and changing the sheet. I was there to hold the flash light for her. Then at 4:00 am the dog (adopted 3 weeks ago)needed to go pee because we had forgotten to let her out before sending her to her crate. Not her fault. Back to bed then I heard drip drip drip...the darn shower head in our master bathroom decided to join in with the daughter and dog.??!! No!!!Ahhhh!! My Monday morning story.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited October 2015

    Yes Loverly! Same neighbors! Hah! Weeds still there, along with a HUGE wooden partial swing-set, and play-house they drug down the block to put in their yard, probably within the next 15 years, I'm guessin'...... I wear my chicken-crocs when I go over there.... Then hose them off...

    They are coming home from Hawaii SOMEtime... I don't think they have it figured out yet... His ID is still in their house.... they couldn't come up with a plan as how or where I would mail it to them.... so they are on their own... they'd probably screw that up anyway........

    Eeeeeeeeks! Your water story is just too real to not BE real.... Ha!

    JAZZY! OMG! I would have froze too! But you COULD have jumped out in front of him, and threw down stop-strips, like the cops do, and then pounced on him and held him down with your High Heels till the cops came! THAT would teach HIM a thing or two!

    No Sass.... I'm not too close to her... But I'm not across the room either.... She doesn't seem to have any visual disturbance ... Because her eyes focus .... I'm always happy when I talk to her, and she smiles and laughs also..... And then I hug her and whisper in her ear that I love her, and she nods her head and says un-hunh! It's like we know what the other is thinking....

    I lived with her for 7 weeks one time.......... And we are just like Sisters... We know everything about each other... so we "communicate" without even talking....

    Smarty! You do such beautiful work! I know it isn't "work".... because you enjoy it........

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    Wow Jazzy! Good idea to freeze!!

    No offense taken Loverly, it's true.

    Hoping for a quiet day today.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Loverly, How insensitive of me. I forgot. Yes, just happy to have him how. So wish they had handled the medical through Medicare. The structure is there. It works well. Private companies contract with Medicare to provide care. To do so they must follow Medicares rules. I have 5 years experience now with my Health insurance that has a Medicare contract. I love them. Rarely a hitch.

    It's quasi privatization, bur someone is central to making rules. With ACA, that's not happening. Seems the ouside agencies are always looking for a hook. A way to still mess with folks and then cut them off.

    Chevy :) I forget the story of why you lived with her for 7 weeks. Would you please, share it again? It seems to me there was a story of you two getting into trouble? :)

    DB Charlie is home from the heart sx. Doing well. Happy it's over.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Many here have donated . Thank you !........Wandering around and cheerleading again :)


    Donate today, make a difference directly in all our lives. By supporting BCO, we support each other. Thanks and Hugs :)

    image

    https://community.breastcancer.org/forum/110/topic/834331?page=1

    Link to the mainboard donation page

    https://secure3.convio.net/bco/site/Donation2?df_i...


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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited October 2015

    No worries, Ms. Sas. No one can remember everything.

    Dental appt this afternoon. I don't know why I'm stressing because it's just a cleaning.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2015

    Chevy- that was a fun visual about me holding the guy down with my high heels. Especially because I can't wear those anymore (LOL).

    I learned the "freeze" move from my rabbits we raised growing up. They are amazing with finding ways to not draw attention when danger is around. My bunnies taught me well.


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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    Wasn't this bird, but saw one at the dog park tonight.

    Roseate spoonbill. image

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2015

    Nice bird spookie. Love the color!

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited October 2015

    Smarty love the quilt! You are certainly speedy at putting them together. Your Granddaughter to be will love it. Jazzy We had rabbits and they do freeze" when threatened and thump. My favorite is the "binky" where they leap and kick out their heals and twist up in the air. It's a sign of happiness. Rabbits are wonderful pets. Your story about the quilt given to you by church friends is so sweet. It reminds me of a prayer shawl we got from my cousins church given to my DD1 when her liver started to fail. she wore it to bed wrapped up in love and blue, yellow and green yarn. I wonder if that's one of the reasons her liver hit a level and she is skating now... medically managed. We met the transplant team and were pretty sure we were headed there. Nope she's looking good hope it lasts a lifetime. Love the bird Spookie. My Dad hit us with a belt and frankly no one 6ft 4 and 280 pounds should take a leather belt to a kid. I mean the marks lasted for weeks. We were scared to death of him. Taking electronics, TV, outings... house arrest works wonders.

    Youknow this last dose of herceptin went down without a chill or symptom. The last 2 drains were quite a bit lower than my average. Yesterday my legs started to ache relentlessly. My right one is so painful it's ridiculous. I am limping. I see the radiation onc tomorrow for possible rads to left arm. I didn't think Herceptin caused tumor flare type symptoms of bone mets. Does it? That' what this feels like the bone aching from neulasta shots.. no fun.Off to bed so I can drive there tomorrow... nite all

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  • susan3
    susan3 Member Posts: 3,728
    edited October 2015

    imagegood morning all . Hugs to all who need them

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2015

    Rose- sorry to hear you have such pain in your legs. I hope you were able to sleep okay and that the trip to the RO goes okay today. Hugs sister.

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  • magdalene51
    magdalene51 Member Posts: 2,214
    edited October 2015
    Rose, my dad was only 5'8" but he could give you a look that would make your blood run cold. He saved it for us, though, everyone else thought he was so charming and he had stories to tell. Pearl Harbor survivor. Two of my sisters made peace with him, two remained terrified and wouldn't see him after they were grown. They did just once. I found pictures the other day of our one get together in the 80's. But never again. I saw him in '08, we had lunch at his senior living place. I told him I loved him, his response was, "I'll just have to take your word for that." Scars.
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  • magdalene51
    magdalene51 Member Posts: 2,214
    edited October 2015
    I've been awake since two, got up at five, been sitting in my chair. Second cup of coffee. Don't know what this is about.
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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited October 2015

    Mags I am soory you could not sleep. I looked t the clock at 4 and went back to sleep. Thank goodness. My leg is less painful then yesterday yay. Mags my Dad had a voice exactly like the one for Frosted Flakes and Tony the Tiger... so deep that when he answered the phone folks were stunned silent. Between his sheer size and the deep voice he yelled at us and we would melt. Tears. We didn't get hit often with a belt but the times we did were so traumatic I never forgot them. I also won't forget pulling my shorts down over the strap marks to cover them in gym. I didn't want anyone to see and then have to explain. He could be nice but had an unpredictable horrendous temper and when he lost it look out.. the explosions of anger were just unacceptable. My earliest memory is him putting a hole in the drywall with his fist! For the first 7 years we were married I didn't see him and when he died there was a big part of me that felt relief. Luckily I married a guy the opposite. When my Dad can home one of my brothers would yell and we would run like crazy to our rooms and all you heard was doors slamming. Kids vanished- we came out for dinner. My DH comes home and the kids run to the door signing or shouting Dad's home! Hugs!

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