INSOMNIACS place to talk in the wee hours

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited October 2015

    Yes... they ran all kinds of tests on her, both in re-hab and in the hospital... Then after the physical therapy, speech, etc. they released her, and showed he Son how to care for her... And her x-dil works with her daily with flash-cards, etc. Her fiance takes her for short little walks to the living room twice a day, with her walker... Then her Son takes over at noon, and lives with her.

    He takes her to plays! She always loved that! And to a relative's wedding! He posts pictures of that... Just that with all the tests, help, physical and speech therapy, it doesn't really help her too much.... Maybe it will someday.... Never say never.....

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    Sas this is a not so great pic of the festival at the big church up the street. Traffic on my street is awful. They make over 100k this weekend.

    image

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    Chevy if she can use her hands, use an iPad for her to type out her thoughts. Or just one finger.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    I think I got Zils kids ages wrong 3 and 6------however she has a handful right now .

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Spookie are you going?

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    OMD no. I don't do crowds, noise well. DAH was going to go, but when the boys got in trouble DD wouldn't take them so nobody went.

    I talk to Z on another forum, having her hands full is an understatement.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    She is the one who came up with DAH on the other forum. I love it!!! We all do.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Chevy, my sweet Chevy, actually you have said more than before. What I hear now is that the family has been taught about her aphasia and is working with it. She is communicating with them. They are communicating with her. The communication has changed, but they're is communication. She's in there. She's thinking. I have recommendations on what to do on a visit if you want them. Otherwise, I'll be silent.

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  • susan3
    susan3 Member Posts: 3,728
    edited October 2015

    anybody up for some good fun news

    Ok....my daughter is pregnant!!! They told us they were going to wait since hubby is starting medschool residency....they changed their mind. Never thought I would get a chance to see grandkids....she is 11 weeks. And feeling great :)

    I am praying all goes well.

    Night night all

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited October 2015

    Always up for good news!!! How exciting, Susan!!

    🎼🎶 Rocka my baby on the tree top🎶🎶.,.,......

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  • kathindc
    kathindc Member Posts: 2,042
    edited October 2015

    Yay Susan. Nothing like grandbabies! Wish mine didn't live 7,000 miles away. They're now 8 and 5. We Skype often so they have never been shy when they come and visit. As soon as they come out of Customs, they run to giveus with the best hugs ever!

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited October 2015

    Ms. CHEVY, I think what Ms. Spookie suggested is not a bad idea. Have you tried using pictures to communicate? I am sorry you are mourning her loss of independence and your relationship. Her fiancé sounds like a good man for committing to care for her. And it also sounds like she has a very loving son

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  • kathindc
    kathindc Member Posts: 2,042
    edited October 2015

    Chevy, your friend is well loved. How many boyfriends would stay around to be there for her and for an exDIL to come and help says so much about the kind of person she is. And to have a friend like you who still visits and is so worried about her. Love, ((((hugs)))) and prayers for all.

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  • mema4
    mema4 Member Posts: 574
    edited October 2015

    Happy baby, Susan! I've been busier than a pig in a bacon shop. Leaving tomorrow for a few fun days in NYC with my niece, she's my best friend too. I'm going to eat everything in sight and start Dr Phil's 20 day thing when I get home. Have a new Lifetime Fitness being build closeby too.

    Later girls....

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited October 2015

    Susan,

    image

    image

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited October 2015

    Thanks you guys! Yes, Carol is very fortunate to have that much love and care for her...! Margaret, he Xdil is using flash cards with her... but she seems to not be able to get thoughts "out" if she has any.... Yes, they have used an I-pad... and a lap-top, to show her the photo's I send to her on FB... but for her to "think" of something to say and then say it, is just not happening yet..... A thought seems to be with her for a split-second.... and then nothing..........

    Sass, if you have any suggestions yet, or a web-site, or even something I can copy and paste to her Son, I could do it.... But since I'm not over there all the time, I don't want them to think I am questioning what they are doing... How could I help when I go over? I've tried everything I know...

    She hasn't gotten any worse... in responding, since I first saw her in July at the Rehab center .... But I don't see that she has improved at all, from the first time we visited, either in mobility or speech. Her care-takers are always there for her... and Thank God for her Son.... He moved in with her, and left his home with his grown Son... they live close to her....

    She has 2 other Sons, who live out of State, and a Daughter, and Grand-kids, but she hasn't spoken to her Daughter in maybe 40 years... I never asked what happened there.....But they are of no help.....Just her Daughter's Daughter, will come see her once in awhile.

    They used up all of her insurance, maybe for the year? That's why she had to leave rehab... But at least she is home, with the ones she knows and loves.... Even the Day-Care providers only work for so long.... and then they leave......So it's up to the family (her Son, DIL, and Fiance)....... And Mike taking her out to plays, and dinners, is something she really enjoys....

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2015

    Good morning ladies!

    Susan- that is lovely news and thanks for sharing. Glad to hear your DD is feeling well and all is coming along nicely!

    Mema- enjoy your trip to NYC. This is great time of the year to visit!

    What does DAH stand for? I have a guess......

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    YAY SUSAN!!!!

    Dumb Ass Husband.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2015

    Spookie- LOL, that is what I thought!

    I saw this article in Parade today and although I am not fond of the Pinktober month, I have seen some better things being shared to actually help women who are dealing with a dx, going through treatment, on the other side of it. I did see the clip on the Today Show with Joan Lunden and the tatoo guy. And thank God for BCO too that helps us to keep up on the latest information and connects us to each other (making my donation to them today.....)

    I liked what this gal had to say here about looking for the support from your female friends. They have always been my life line, and were during the worst of it a few years back.

    http://parade.com/429878/lhochwald/5-things-sandra...


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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2015

    Them were the days!

    image


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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2015

    I read that too, was underwhelmed with it. They did speak with the dr who founded BCO, dr Weiss? And that was good.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2015

    Spookie- every article I have read gives me one good take away (not usually more).

    For the newbees out there, there are some good articles out there about what you won't be told when you get a cancer dx from people's reactions, to their advice on your treatment, to hearing everyone's cancer stories (ugh), to dealing with people at work. There was a great article I read during my rads treatment I need to find and repost for folks, I do so every year and it is time again!

    Sassy- made my donation today to BCO, as want to see this site continue to help all the women it helping through all this crap!


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  • kathindc
    kathindc Member Posts: 2,042
    edited October 2015

    I'm with you Spookie. Can't say I came away with anything from this article.

    We all handle our journeys differently, some of us more privately than others. We have to do what works for us.

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited October 2015

    kathindc- so true. There is no "one path" you do what works for you. Spookie I feel for you and your DD about the boys.

    Great day in clay class. Kids had so much fun. Heck I had so much fun. DD3 is having a ball with the Halloween Nightmare Factory they put on every year at her school. She is finally able to participate. The make-up is very professional and I was alarmed when I saw her come home! yikes scary ! This is great fun for the kids and a big community/ school fundraiser. Lots of work for everyone though.

    Susan how exciting!!! Grandma to be!! May it all go textbook perfect. Long day and I am tired. take care all.

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited October 2015

    congrats Susan, it's great to be a grandma the first time. I was a grandma at 39!

    image

    This is my gdaughter


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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited October 2015

    Dang, Ms. Smaarty....when I was 39 my older was only 10. You have a very creative granddaughter. I guess it runs in the family.

    Rose, still waiting to see your work of art. How is your friend doing

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited October 2015

    Good morning Early Bird(s). Hope your day is beautiful. Ha, I am awake before you.

    image

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    image

    Yay Susan -----Sends our congrats to DD and SIL--Awesome

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Jazzy Thanks about the donation.

    Invited dsgrl to come and join us :). She posted that she was able to donate to BCO when she purchases through Amazon. She posted it on Pinktober )

    HAVE A GREAT WEEK EVERYONE:)

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited October 2015

    No I was up....Ha! I woke up at 4 a/m.... but no-one was here, so I read & wrote email!

    Chicken neighbors are still in Hawaii... She SAID they would be home on Sunday the 23rd, but that is a FRIDAY, so they don't know, I guess. AND they left a "lunch-box" with lunch-meat in it on the counter, that they forgot.... PLUS his ID! So how they ever manage their lives, AND their Daughters is beyond me! I'm waiting to see if any of my suggestions would HELP them... or if they really can't get 2 brain-cells to rub together to figure out what they are doing.......At least the Chickens and Edith the cat are happy! Those Chickens only lay ONE egg... in a whole DAY! That's between 6 of those lazy girls! Hah! Good thing the stores still sell eggs!

    Girls......... write this down............. Do not EVER try and raise your own damn Chickens! They are expensive, are very un-tidy, and just don't make good "pets".... Little Ivy, the 6 year old, crawls up into their nesting area.... and that is her "play-house"... I'm not going to say it is dirty, because that isn't nice.... but it is DIRTY! I would give that kid a bath in Clorox when she came down! I would not let her PLAY in their hen-house/coop.... EVER!

    Look how cute THIS coop is!

    image

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