Tampa area BCO sisters get togethers

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  • ameron
    ameron Member Posts: 98
    edited November 2014

    Agreed Galsal, glad to see all of you and those not attending were missed!

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  • Galsal
    Galsal Member Posts: 1,886
    edited November 2014

    Michelle did contact me yesterday evening, apologizing for missing the Luncheon. A dear friend of her's with BC had called her for a sudden head shaving party. She looks forward to the next time.

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  • MondaysChild
    MondaysChild Member Posts: 591
    edited November 2014

    I remember that day of my own and glad Michelle was able to be there to support her friend. We will look forward to meeting her next time.

    It was four years ago today, two days before Thanksgiving, that I had my first of seven surgeries. It was supposed to be a "simple" lumpectomy followed by 5 days of internal radiation and all done and over. Things changed based on the pathology report during the lumpectomy. I woke up looking at the ceiling of a hospital room I had been admitted into instead of the ceiling of my own bedroom.  And so began the Journey of the Damned.....

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2014

    MC - not the damned, just the somewhat unlucky...  but, I know what you mean :)  It has been a crazy ride, right?  I am just a bit ahead of you, my first surgery (of many, lol!) was Nov. 1 - this year I was busy enough that I actually forgot it was an anniversary of sorts! 

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  • Galsal
    Galsal Member Posts: 1,886
    edited November 2014

    These are never the anniversaries one wants to remember, but on the positive side of things You are HERE for which we are grateful.

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  • Bippy625
    Bippy625 Member Posts: 890
    edited November 2014

    hi gals! I am in Sarasota....anything in the new year for gatherings

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  • Jmo06
    Jmo06 Member Posts: 159
    edited December 2014

    Hi ladies moms having her mastectomy done in January. Can you recommend any local places to purchase bras and prosthesis. Thanks again!

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2014

    Jmo - All About You, here is a link.  This store is in South Tampa. I know they bill some insurance companies.  They spent a long time fitting me, since I was trying to match a flat side with a 650cc implant - it was a challenge.  They are very nice, and very patient! 

    http://aboutyoubras.com/

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  • Jmo06
    Jmo06 Member Posts: 159
    edited December 2014

    Thank you SpecialK =)

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  • Galsal
    Galsal Member Posts: 1,886
    edited December 2014

    Yes, that shop is quite nice and most patient too.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2014

    Jmo06 - I don't know what part of town you are in, but I go to West Coast Brace & Limb on Fletcher Avenue near Temple Terrace. They bill insurance, and have been great to work with.

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2014

    nbnotes - I was unaware that they carried mastectomy bra/inserts - I get my lymphedema sleeves/gauntlets from that location.

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  • Galsal
    Galsal Member Posts: 1,886
    edited December 2014

    Yes, that is where I was sent for bras/breast forms by the VA.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2014

    SpecialK - Yes, they have a nice room with samples, etc.

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2014


    nbnotes and galsal - thank you so much!  It is looking like I will be needing bras and prosthetics for a longer period than I originally thought so good to know there is another resource that is close to home! I only have two bras and one insert to date - and I am not that crazy about them.  PS wrote the prescription for that x 3, so I can definitely get more. Yay!

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  • Galsal
    Galsal Member Posts: 1,886
    edited December 2014

    Hooray for you! Wishing insurance paid for the bras to wear after exchange to implants. The ones that fit me are expensive - at least to me they are since usually I'd been a Playtex, Maidenform, Bali type gal.. :) I've hit the problem of fitting into Underwire ones well. If the band fits, the cups are too big. If the cups fit, the band doesn't. At least the Wacoal Awareness Soft Cup fits me once i figured out to adjust what size to try. Dillards and Nordstrom hadn't figured that out. Yep, feeling rather proud of myself on that score. One Chantelle

    Have been to Nordstrom, DIllards, Macy's, Nordstrom Rack, etc. So far, have a whole TWO bras that fit. One soft side and one Natori Sports Bra Underwire which isn't all that about all-day comfort. Since I need to have some underwire on hand in case Left tries to drop or too much, I'm heading to Her Room or similar website to deal with ordering and returning. what doesn't fit. There's worse things in life right.

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  • Jmo06
    Jmo06 Member Posts: 159
    edited February 2015

    Hi ladies can you recommend a place I can get mom a compression sleeve? Thanks again!!!

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2015

    West Coast Brace and Limb

    http://www.wcbl.com/


     

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  • Jmo06
    Jmo06 Member Posts: 159
    edited February 2015

    thanks SpecialK

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  • MondaysChild
    MondaysChild Member Posts: 591
    edited February 2015

    Also, Anderson Home Heath on Henderson Blvd. in South Tampa.

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  • Jmo06
    Jmo06 Member Posts: 159
    edited February 2015

    thanks MondaysChild

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  • Galsal
    Galsal Member Posts: 1,886
    edited February 2015

    Ladies, it's been almost Three months since the last get-together. Thoughts on scheduling another? I've a dear friend who needs to join us too. She was with me at all appointments after diagnosis for the first six months of my own BC journey. Sadly, now the tables are reversed and I'm there for her.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2015

    My next 2 weekends are packed, but I would definitely be interested in getting together sometime after that.

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  • Jmo06
    Jmo06 Member Posts: 159
    edited February 2015

    sorry 2 hear about your friend Galsal

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  • MondaysChild
    MondaysChild Member Posts: 591
    edited February 2015

    How does everyone feel about a Sunday afternoon?  Starting at maybe 1pm or 2pm? That allows for those who work on Saturday to join us (missing DLL66 too many times!) and afternoon will not interfere with church schedules.

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  • MondaysChild
    MondaysChild Member Posts: 591
    edited February 2015

    Thinking 3/8 or 3/15 if Sunday is good with everyone.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2015

    Either of those would work for me!

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  • DLL66
    DLL66 Member Posts: 700
    edited February 2015

    Oh, fun! Either of those days would work for me. Sorry about your friend, GalSal.

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  • Galsal
    Galsal Member Posts: 1,886
    edited February 2015

    I'm open....name a date and I'm in! Thanks for the good thoughts, Ladies.

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  • MondaysChild
    MondaysChild Member Posts: 591
    edited February 2015

    Let's go for March 15 at 1:30.   Does that time work on that day?  Place?

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