Tampa area BCO sisters get togethers

Lee7

ameron, I PMd FLWarrior last week and also didn't hear back. I hope everything is ok with her and maybe she's just not been on BCO to see the messages.  Does anyone have her number and could call her?  

I'm looking forward to seeing everyone!  Will certainly miss those that can't make it this time. 

linda505

Dang it - not going to make it this time - my daughter has a baby shower to go to saturday.   Next time!!!!

DLL66

Can I bring anything, MondaysChild? I have to work tomorrow at 5, but plan to visit with you all first.

ameron

I found FLWarriors phone no and just left her a message, all be it a bit late, hopefully will hear back from her.  Sorry you can't make it Linda505 I know we will all be looking forward to meeting you at a future meetup.

bobogirl

I really can't believe I am going to be seeing you all.  Beyond excited.

MondaysChild

Darn, Linda.  We will miss you.  I am looking forward to seeing the rest of you in a few hours!

Lee7

Good evening ladies,

I had a wonderful afternoon!  Enjoyed the delicious food and the great company.  Thank you so much Mondays Child for welcoming us into your home.  You made the day special.  It was great to see everyone and meet bobogirl!    I'll have to remember......Kir Royale = long nap in my recliner.  

  

Galsal

What a wonderful afternoon!  Kir Royale...yummy!!  It was great to see all of you again.  Thank you for opening your home to the group.

Anonymous

Wonderful spending time with everyone today! Thanks again MondaysChild for being an amazing hostess and opening your house to us!

Galsal

Ameron, I'd not thought of it but I do have Dr Khouri's book showing the entire process of Brava and Fat Grafting.  I would be more than happy to mail it to you.  Feel free to PM me your address if you wish.  Then you can review the entire process and visuals.

ameron

Thanks everyone for a great afternoon.  Great conversation and company as always.  And Monday's Child, thank you again for opening your home to us.  

Galsal

Monday's child is fair of face,

Tuesday's child is full of grace,

Wednesday's child is full of woe,

Thursday's child has far to go,

Friday's child is loving and giving,

Saturday's child works hard for a living,

But the child who is born on the Sabbath Day

Is bonny and blithe and good and gay.

^{I'm a Saturday's child btw.} 

Whomever wanted 6/9/1970 it was a Tuesday.

Galsal

Ladies, before I offer these else where I am offering you all first.  

I have brand new never used set of Sleeve and Gauntlet for Left and Right from Lymphedivas.  Unfortunately, the Regular length has never fit me properly.  I'm thankful they now have a Short length option.  

These are Regular length and sized Medium.  They are a solid color of Ebony/Black.  If any one wants them or knows of a good place to donate them, that's good news.  

Lee7

GalSal,

Oh I wish you'd brought them to the lunch (so I could try one on for size)  I love the sleeves from Lymphedivas but their sizing has been a problem for me too. The smalls I did buy are feeling too tight now but I've not wanted to order a medium to try and find it is too loose and lose that money.  They aren't cheap!   Wish they had them in a local store.

Galsal

Lee, I'd not even thought to bring them...wish I had done so!  Go to this and check our measurements would work for you or not.  Sizing for Sleeves

They have this too but it's for an iPhone so I can't use it - Fitters App

The new ones just ordered for me are either this one style or it might well be this one instead different style - I can't remember already.

Lee7

The midnight lace designs are really pretty!   I checked the sizing chart and that's where my trouble lies. I measure medium in the palm,  small in the wrist, very medium at "C" my forearm ) which is where I have always remained hard & swollen despite PT, and my upper arm measures the small end of small.  I've got an arm shaped like Popeye!    Well, that's why I am reluctant to buy another sleeve mail order.  Too risky in my case.

Galsal

Thanks!  Well that sure makes things difficult for you doesn't it, those sizes involved.  I can imagine it's best if you get fitted properly then, not by mail order.  Oh well, it was a good thought.

DLL66

MondaysChild, thank you so much for hosting such a lovely get together with some of the strongest women I know. Your home is beautiful and the food was wonderful. 

It was very nice to meet you, bobogirl and great to see everyone again. It was interesting to hear from someone with first-hand experience with the Brava device. I am so glad that there are options available for those that choose to reconstruct.

Thank you all again for such a nice afternoon!

bobogirl

Thank you Monday's Child for the beautiful lunch!  It was so good to see everyone. MC, your house is lovely, and so is your hardworking husband!

So hope to see more of you next time. XXB.

Lee7

Ameron - thinking of you and hoping everything went well. 

Galsal

Just a quick post - surgery that was on Tuesday went well.  The right TE was indeed damaged from the accident which was causing some leakage and had pulled most of the stitches.

Crazy as it sounds, TGH still has listed in the database for Rx discontinued combinations of Vicodin with Acetaminophine.  So, once again problem happened about getting the Pain med filled from being written from a combo dosage that no longer existed.  Thankfully, we'd gotten it filled there and hadn't left TGH yet and it was resolved.  One of the Nurses is who figured it out about the problem within the database.

DLL66

Glad to hear your surgery went well, GalSal! Hope recovery is going smoothly.

Anonymous

Galsal - Glad your surgery went well! 

Ameron - Thought of you all week. Hope everything went well!

Lee7

GalSal & Ameron.  Sending more healing  thoughts your way!  

I've been out of town staying with my DD who had surgery. She's on the mend now.

And it's definitely summer, or I'm just having more hot flashes these days.....

SpecialK

galsal - glad things went well!  Same to ameron - don't have the details, but sending the wishes!

Galsal

Let I forget, bobogirl we'll all be waiting with baited breath to hear how your reconstruction process goes and the end results!  It was a pleasure to meet you.

ameron

hi girls

Just got done with my partial thyroid removal. Serious nausea which they are having trouble resolving but mostly highly annoyed that my lymphodema Arm had swollen up bigger than it had ever been. Suspiciously there is a large blood mark on the arms vein where they tried to stock a needle in the arm (which I have no memory of) despite fact I'm wearing large red arm band that reads no needles or ivs .

Do you think the needle stock could cause this or just the fluids?

Thx girls

. 

Lee7

ameron ,  are you still in the hospital?  It sounds like they did use that arm if you can see a mark in spite of the arm band warning.  Can you ask about that and what they did?   I don't know what using that arm for an IV might do.   Maybe they can have a LE trained therapist look at it and wrap your arm for you to help it.  Hopefully it will all go down soon.    Hope you are resting and the nausea goes away soooon!!!

ameron

hi lee

Thanks for the response. Yes I am still in the hospital it was an overnight stay . However lymphodema seems to be a bit of an enigma here. They couldn't do anything until checking with surgeon as it's against protocol . Luckily I have a brave rn that agreed to go against protocol and wrap my arm before he was authorized to do so and hopefully stop the swelling from getting worse . The arm seems to take on fluid quickly buy can take weeks to get it out. They are skating around the needle Marin in the arm. Of course my rn doesn't know what happened before I got here or why they would stick it. 

SpecialK

ameron - ask for the a copy of the surgical report, it will indicate if they used your arm, with precautions on it, and you need to know.  I would arrange for your doc to write a prescription for some post-operative LE therapy, and possibly a low-dose diuretic..  I have had issues with swelling and discomfort in my LE arm, which had been doing great, with all three of these latest surgeries in Mar/April/May - the arm flared up a lot even though it was not stuck - I think it was just fluids and the chest trauma.  Hope things improve for you asap!