New, scared, and sleepy

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    First thig doc said was come back monday to change dressing. I said no. then he said community worker come to my place to swab things; i said no. i feel well - ok, noticeably better.

    question: what day is it? Tues, Wed, Thurs, Fri?

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited October 2014

    It is Thursday. 

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    sorry - timie zone - ihave EST 2014 10 02 23:00 is thurs?

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    correction i was looking at september. today is indeed thursday.

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    because helper comes mondays and thursdays.

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  • Powermom98
    Powermom98 Member Posts: 9
    edited October 2014

    WT, you have made it this far through the process of your surgery. Please consider putting up with a bit more from the medical people so your recovery goes well.  Sending positive thoughts and concern your way.

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    Thank you both. Going to bed now. Ate nice dinner.

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  • Powermom98
    Powermom98 Member Posts: 9
    edited October 2014

    Good night!

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    Hi. It's 11am Friday. Nobody phoned which is good. 

    I was reading up on getting rid of drains and it seems they are stitched in. So I can't just leave them there?

    My doc wants me to go Monday and he'll remove the drains. It's too far.

    My "next of kin" left me a msg to talk to doc but didn't offer me a lift.

    I'm way full of pity party today.

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    Friday noon - I will go to hospital - surgeon is supplying taxi tickets. He says he'll speak to that rotten bath girl. Also I suspect a trick - he said today we could take out drains. I think he might be playing a trick on me - he might want me back on Monday to change bandage. But at least the drains will be gone. 

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited October 2014

    ok - remember he has your best interest at heart. He is your advocate. Help him help you. Take care and let us know how things go.

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  • Beatmon
    Beatmon Member Posts: 1,562
    edited October 2014

    White Tiger, do you live in OKC? I wondered because you said teaching hospital? If so, I would be glad to run over and help you with your bandages. As our friend a Farmer Lucy said, we sure don't want infection to set in. Did they teach you how to milk your drains? By the way, there us a great Face Book group called Flat and Fabulous for people who have decided against reconstruction. Best of luck to you. Please don't hurt yourself due to the crazy health system, even in private hospitals you never see the sane nurse!

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  • wrenn
    wrenn Member Posts: 2,707
    edited October 2014

    White Tiger is in Quebec....Canada.  

    WT I'm glad your surgery is done and you can move forward. I don't think fighting the system and all involved serves you well in the end. The system is far from perfect but recalcitrance doesn't really hurt the person you are angry at. It hurts you. If you reject their help they move on without looking back.

    Hopefully you can soon be done with this system and just enjoy life.

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    Friday 2:30pm - home at last with doc's blessing. Had transfusion last night. More later, bed now. Clawdia (cat) is happy;so am i.

    thank you for your support

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited October 2014

    Glad you're home. A transfusion?! Oh my. Sleep well.

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    Sunday, 5am - Clawdia (cat) discovered most efficacious way to wake me from a determined sleep is to bounce on my chest.

    Cheerfully,

    WT

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    Hi Beatmon, Thank you! 

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    Hi Wrenn, I wasn't fightiing the system, I was running from it. I tried to step in front of an on-coming truck on my escape from hospital but he slowed and slowed so I had to keep walking, regretfully. I'm over that now but it would have been such an easy way out.

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    Still a few more weeks until the hospital summit meeting where I will be told (and probably forget) how I am and what my future will be, if any. No, sorry, that was a cheap shot - lots of future. Just glum right now.

    Wouldn't it be lovely to be Sleepy Beauty for 100 years? And have a protective, impenetrable cover grow all around me? To be oblivious to everything? How foolish, for example, to care if my teeth are crooked! Or if my shoes are out of season.

    Or maybe I could be one of those heroic, magnificient beauties who suffer without showing it. Not really. I'm not suffering. I have a chronic ache on my chest; I take the occasional Tylenol. I'm annoyed and fed-up and short-tempered and lonely. There's nothing like cancer to garner dinner invitations!

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited October 2014

    Hi White Tiger - Good to hear from you. I see you still have your wonderfully, wry, writing abilities. Say that three times! I hope Clawdia is taking care of her momma post surgery. Sleep was my refuge when I was diagnosed. It was the only safe place. The only time I wasn't thinking of cancer. This is a hard journey for all and I imagine even tougher when you don't have much support. I hope your "summit" meeting goes well. You have been through a lot.  Hang in there. Take care! 

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  • Mary_g92844
    Mary_g92844 Member Posts: 8
    edited October 2014


    Hi White Tiger,

    I've been reading your story.  You've had a rough ride.  Do keep letting us know what happens.  Even if members don't post in your topic, there will still be many who will read and care. 

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    two days in a row a fell out of bed and could't get up. also ot coordinated enough to type

    et this\;surgery (2) on breeasts/ problems in legs, arms, barfing (no gag reflexor warning),dizzy, floor is swirling - but brests? they're okay, in a nagging sorta way.

    does anybody know anything about thsi kid of thing?

    i have exercise for breast surgery but la xxx all upper body - my problm is no muscles in legas and earsmsxx r arms and dizzy - my tits were connected to my brain? noody told me! although it explains Marilyn Munro.

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  • wrenn
    wrenn Member Posts: 2,707
    edited October 2014

    you need to call the doctor.  the dizziness could be from dehydration but you have to be seen.  post surgery patients can easily get pulmonary emboli as well because you aten't moving as much.  call a hospital emerg and speak to a nurse if there is no nurse hot line.

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited October 2014

    HI WT - I hope you are doing better. What you were experiencing sounds pretty scary. 

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  • Powermom98
    Powermom98 Member Posts: 9
    edited October 2014

    WT, how are you?

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    Sorry I've been in and out of hospital.

    New affliction: solid stool stuck in rectum, found by xray, consistency of rock, removed manually by doctor. It's a long, long, long story. Spent 9 hrs in hospital on Monday and got abandoned on a shift change and couldn't find any humans! So I escaped again. Wearing socks in the pouring rain. Dx given by girl who answers phone in ER: I'm fine. I need nothing further. I think she means her computer needs nothing further.

    Pardon my saying, but I haven't had any action down there since the digging and enema.

    Oh - and before that, I was leaning forward in a chair, blacked out for a second and woke on my back still in chair. Ambulance took me to hospital. Every muscle in my body was totally limp. They didn't tell me why but the lady with the computer says I'm all better.

    I did not have a stroke. They told me that. Also they told me it's not cancer. Who is they? The various white coated creatures that came by from time to time as I lay on a gurney in the hall.

    Back to cancer - chest healing nicely. I am waiting for call with appointment for summit meeting.

    My cat loves me. :)

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited October 2014

    Hi WT - Wow that has been an eventful few days. Keep taking those stool softeners. Meds and surgery do a number (no pun intended) on our systems. That is some weird stuff going on with the limpness and blacking out. I sincerely hope that is over. Girl, you're scaring me! Heal well. Let us know how things are going. Hershel, our baby goat, and Clairabelle, our donkey, say maaaaa and onnnnnkey (hello). 

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  • Powermom98
    Powermom98 Member Posts: 9
    edited October 2014

    WT, glad to hear from you.  Not so glad about what you have been going through. I was worried about you, too. Hope you get better soon in the "regularity department." There is no love like cat love. One of mine just gave me ear nibbles, licks and head-butts.

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited November 2014

    I refused to go to the summit meeting. I'm traumatized from last week in hospital, pursuant to blacking out - which culminated in Wed & Fri in ER and finally a psychiatrist who said "Prove that you have an emergency" and when I couldn't, he refused to have anything to do with me - after 5 hours sitting on a smashed coccyx in a straight chair.  ... erm ... where was I? So the lady phoned to give me an appointment for the Summit Meeting and I refused to go. I'm terrified and never going out again. We're talking serious trauma. I'm sorry I have nothing to tell you about cancer.

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  • wrenn
    wrenn Member Posts: 2,707
    edited November 2014

    i hope you'll stop getting in your own way soon WT.

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