New, scared, and sleepy

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  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited August 2014

    Hi ladies, 

    I have to thank you for your good advice. Since I agreed to let my family doctor get involved, I have now received an appointment with my new oncologist! I actually have the name and phone number. I'll have to write down all my concerns like you told me to.

    Ingrate that I am, I'm thinking, "Not *another* pre-op???" But one step at a time, right? That's hard for me to do. I'm usually several steps ahead, entangled in branches of conjecture. I'm so full of possibilities that I can't get anything decided.

    And now. After all this - I'm thinking of keeping my breasts as they are. I really don't understand the odds. The doctors are absolutely certain that I am "clear" in the breast area. Are they just being lazy? See, I didn't stop him (old doc, not new oncologist) to pin him down to how much it means that I'm clear today. I keep thinking of the women who get cancer twice.

    But it's summer and I'm going braless under summer dresses. It feels good. But will they sag? I am not putting on a bra again! I haven't hitched a strap across my shoulder in a couple of months now. That's what the freedom is.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2014

    Hi WT! You sound good! I'm so glad your doctor is taking care of you. From what I've read the odds are low that you'll have a recurrence in either breast. Even if you have a BMX you can still have a recurrence in the tissue that remains, so it sounds like good advice from your MD. Braless is good. I do it sometimes since I have implants, but after 40 some years of wearing a bra, it is kind of hard wired in my brain. I don't know about sagging since you had a reduction and not implants. Thanks so much for the update. 

  • wrenn
    wrenn Member Posts: 2,707
    edited August 2014

    you sound so much better. I'm glad your gp is helping you out of the nightmare.  I agree with farmerlucy. Big sigh of relief is needd. Ahhhh.

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited August 2014

    Hi Ladies.

    I met with my Surgeon-Oncologist (Head of Dept and Professor) with one female resident and one female nurse. This was at hospital #3 - the best. They were wonderful. Unfortunately, I blew it again. The need to control. The doctor was explaining absolutely everything - like you said a good one would - but I cut him off. I wanted a dm. He didn't argue but he did say that the success rate with the 2 modes of treatment was identical. I said I'm legally entitled to a dm. He agreed and said that his problem was that he was a doctor and unless I was going to refuse radiation altogether ... I cut him off and said I refuse radiation altogether. I had to control my treatment.

    He gave me time, there was no rush, but I stuck to it. I asked what's the fastest way to end this. He said dm, although the other way with radiation would give the same result but take longer. He also said that his hospital has its own bus that will come to my home, drive me to hospital, and bring me back (for radiation).

    I had the weekend to think about it and I think he's smarter than me. You see, the other doctor, the one before? I was right not to trust him. But now I think I've got a Surgeon-Oncologist that I can trust and I think I'll take his advice. So I tried to get back to him today but had to leave a message.

    And today the hospital called me for pre-op appointment, but I had to tell them I was changing the kind of surgery.

    The word I don't remember him saying is "lumpectomy" but that must be the one, plus radiation. No chemo.

    So I'll hope he calls me back tomorrow.

    I had a list of questions and he answered them before I asked them, except for one. "What did you find inside my bones?" He said they found some small activity and are going to call me in 3 months to ask me to come for another scan. Are we talking bone cancer?

    Oh, I have to correct the Dx. The left breast is correct but not the right. He wants to do a lumpectomy in both. The left has "invasive" and the right is contained (or something like that). And the + at the end of that line should be - . The resident crossed out the Phase bit and then stopped and said I should ask the Dr, which I didn't do.

    Chris

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited August 2014

    test

    I posted something 5 hrs ago, did it disappear?

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited August 2014

    Belay all that previous mess. I left a telephone msg and Oncologist just phoned. I was right the first time - dm + Sentinel nodes. I'm quite pleased. I won't type more because I don't know if these messages are going anywhere.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2014

    yeah - I thought I left a message - but I don't see it - will check back later. 

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2014

    Hi WT - So relieved that things are working out with your new doctor. He sounds like a good one. When is your surgery? Don't worry too much about the bone scan, they tend to pick up things that end up not being a problem. Thanks so much for checking in. Take care!

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited August 2014

    Is anybody here?

    Chris

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2014

    Hi Chris - I'm hear and I have read everyone of your messages. Thanks for keeping us up-to date-. When is your surgery? Do you know how long you'll be in the hospital? 

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited August 2014

    Sorry! How perverse of me. I ask if anybody's here and then I disappear. I apologize.

    I wanted to whine about having to go to my pre-op. I was really freaked out about it last night. But now it's 3pm the day after, the pre-op is over and I'm fine thanks.

    The new hospital is a really nice place with really nice people. 

    I was so terrified last night that I didn't go to bed until 4am. I woke at 7:40am. My appointment was at 8am. I didn't have time to shower but I did wipe myself down rapidly with Baby-Wipes. I put on a hat to hide my dreadful hair. I arrived in terrible disarray at 8:30am. But there were lots and lots of folks in pre-op and there weren't any doctors tapping their feet and looking at their watches on account of me. So all went reasonably well, except that I kept ending up in little offices, bare-breasted with my hat planted firmly on my head hiding my hair.

    Do you remember my new cat, Clawdia? This morning was the first time I left her alone - I'm retired so I'm mostly home. I don't know if Clawdia had separation anxiety but whatever it was she left it all over the carpet. And she clung to me for a few hours - a change from her usual elegant disdain.

    I don't want to put the exact date of surgery on-line but it's not real soon, so I'm going to put it out of my mind altogether.

    Oh, the surgeon has phoned me three times! He says, "I'm taking care of you." I was emboldened to mention lymph drainage which I have always felt I should have but can't find (it used to be available in beauty parlours with the massage stuff). The surgeon said he'd get me lymph drainage and I should remind him. What a friendly guy!

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2014

    You are such a good writer WT. In your words I can see exactly what is taking place. Funny about you hair - now you must have "hat hair"! I must have missed the spelling of little miss prissy kitty's moniker - Clawdia is an excellent name. I'm glad things are working out with her. I was loathe to ask since you'd mentioned some allergic reaction - I was afraid you'd had to take her back. I love that she clung to you when you got home - but sorry about the mess. This summer we've had two batches of barn cats that we got from the humane society. They are supposedly feral, they come spayed and vaccinated, and if kept contained long enough they are supposed to hang around the barn and help with the rodent population. In the last batch we got a dilute calico - we've named her Smokey. She is the farthest thing from feral I've ever seen. She is a tiny little thing but can back down our 40 lb dog with no trouble. However, she's decided she is no barn cat, thank you very much, so she lays around all day on the covered porch at the house, looking longingly in the window. 

    I'm glad your doc is taking such good care of you. Stay in touch! 

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited August 2014

    Nellieduck - good to meet you! Don't delete your posts! The point is that we meet others the same here, and it helps. So post lots!

    As for Dx, I haven't a clue. And they think they've told me (I think). I used to have a bit of intelligence lol. Maybe doctors should come equipped with translators, or maybe patients should have earphones to hear it in plain English, like at the UN.

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited August 2014

    farmerlucy - I love hearing about your adventures with the animals where you live! Barn cats! Oh my soul longs for all that room and place for animals to run around. Or are you exhausted from working the land? 

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited August 2014

    NellieDuck, I have played 9 holes (with a cart) a few times during treatment and have found a whole new range of excuses for why I whiff the ball off the first tee!! 

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited August 2014

    Hi Ladies,

    Here's something to make your day Happy

    image

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2014

    Hi White Tiger - Just checking in to see how you're doing. 

  • SummerSun
    SummerSun Member Posts: 91
    edited September 2014

    Hi White Tiger. I just read this entire thread and pray that all is well with you! 

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited September 2014

    Thanks for asking. Nothing's wrong. I'm miserable. Just took a swig of coffee and burst into tears. There's nothing new, just waiting, still waiting.

    I have autism and hang out at a great site http://www.wrongplanet.net - I've just had an all-day "discussion" with a 19yo kid who believes in science absolutely, as a 19yo boy will usually do. But I can't say that - "You young fool, just wait till you get sick, then say "double-blind" to me!" Nope, gotta stay nice.

    I'm still crying. What a stupid argument to cry about.

    My DN married a most wonderful woman who never fails to ... how shall I say ... bring me elsewhere emotionally - it's better than cheering me up, though it does that too. Anyway, this time she (Pippa) has got me into geneology. 

    You know what troubles me is that Doc#2 is obviously incompetent - he said "You are clear" and I am not. I'm glad to get booted to the top of the Department, who is a good doc but says the absolute opposite of what Doc #2 said, while skating around the difference as a doc must. Not to mention I'm still in a deep financial hole because of Doc#2's choice of hospital costing me a fortune in travel expenses.

    Thanks for listening! I've stopped crying now.

    p.s. Line 2 of my Dx is wrong but I don't know what to do. There is cancer there but it's "contained" so they thought I should keep it - dm, dammit, bunch of idiots!

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2014

    Hi White Tiger - I'm glad to hear from you. I realized (it took me a loooong time) I just need to trust my doctor (my oncologist now). I've second guessed and researched myself silly. Finally I've decided I'm just gonna trust her and do what she says. Geneology is lots of fun. I helped my aunt with it once. It is a lot easier these day with the internet. It really is a valuable tool also. When I was undergoing genetic counseling pre-diagnosis by GC had me go through my medical family tree. The one really interesting thing was that four generations ago nearly 50% of the family had breast cancer - and get this - both men and women had it. My brother who used to do genetic research said that may have been a BRCA mutation that in essence "burned" itself out. Anyway the doctor was quite impressed that I had all that information going back so many generations. You never know how useful that geneology research can be. 

    I wouldn't worry about the diagnosis line. I wonder if there are any grants you could apply for to help with the travel costs you've incurred? OK take care! "Talk" to you soon. 

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    Hi, WT - just wanted to thank you for the great morale booster, above. My cat's a bit larger (and older) than the kitten on the keyboard but has the same effect on my productivity at times :) 

    As to travel expenses, etc., do talk with the American Cancer Society and the Susan G. Komen foundation - I'm pretty sure they help fund such expenses. 

    Good luck with everything.

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited September 2014

    Hi SummerSun, Thank you!

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited September 2014

    Hi Hopeful, Aren't cats wonderful? I wonder if they do that adventurous stuff to take our minds off things. My cat recently took a walk across my keyboard and stepped on Airplane Mode, which took me off-line. But I didn't see that; all I knew was that I couldn't go on-line. What a fuss! And then I saw the red-lit Airplane button, pressed it, and went back on-line. The thing with a cat is that I am certainly not in charge of what I'm going to do today!

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited September 2014

    I'm going to have a dm and I'm starting to think of fashion. I don't intend to get a bra of any kind or to pretend I am anything but flat-chested. Especially since I've always wanted to get rid of my breasts I would feel oppressed if I had to pretend otherwise. 

    I threw out all my bras on Monday! Liberation!

    Would any of you have any ideas about what sort of thing looks good? I don't mean traditional; I'm a bit of a rebel anyway. Also I am size 4x. I suppose I could end up looking like a 64yo pregnant woman, but it wasn't what I had in mind.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2014

    Hi WT - That does sound like liberation. The no reconstruction forum has tons of great advice. This thread might be helpful https://community.breastcancer.org/forum/82/topic...

    Sounds like surgery is getting close. I hope all goes well!

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited September 2014

    Surgery is tomorrow. I have to leave here in ten hours, to be exact.

    Nobody is speaking to me. I've alienated everybody I know. All my relatives. Okay I'm isolated but I can usually manage an email. But not any more.

    Even the agency that was supposed to get me a nurse wants nothing to do with me. It's universal.

    Well, starting tomorrow I'll be New, Scared, and Sleepy all over again.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2014

    good luck WT! We're in your corner!

  • Powermom98
    Powermom98 Member Posts: 9
    edited October 2014

    Waiting to hear from you, WT. Hope your surgery went smoothly.

  • WhiteTiger
    WhiteTiger Member Posts: 116
    edited October 2014

    I think I'm healthy. Surgeon declared himself happy. But support staff horrible, abusive. Tell me I'm going home today, tell me I'm staying in residence for 2 weeks. Really rude bath person. All deals made before surgery trashed (I want my psych meds). Surgery was tuesday and today -- computer says 2014 10 02 is that wednesday??? well, today at 11am? I ran away from the hospital because of the bath bitch and also the unpredictability and unidentifiability of everybody -- so many titles !!! are they looking at my bandages -- dozens of people, all saying "this must be fixed" and i say "go ahead" and they refuse -- they have the wrong title to wipe blood and stick bandaid.

    so i put on my sweat suit, signed a paper, and stomped out. terrible to find taxi. got home puff pant.

    still wear hospital gown full of dry blood but i can empty drains. surgeon called and i was very rude. he said he would take care of me -- he kept saying that -- 10 mins per day and the rest of it he left me to barbarians.

    also it is teaching hospital so i never saw same person twice, but everybody had authority over me.

    doc wants me back on monday to change dressing, i said no.

    he phone Bro, next of kin, who was surprised to discover he is next of kin, and called me (left msg) that I should obey doctor. Blah.

    doc want to send community health  person to clean me up but i won't let her in. i hung up on her. and on doc.

    well, you see i can still type.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited October 2014

    Hi White Tiger. Oh no. I'm sorry things fell apart like that. It is a very difficult situation. The highest priority is your health. I'm very worried that you could be at risk of infection. Please, please let someone come over to check your bandages and such. Hopefully the doc will work out your med situation too. You have been through major surgery, you've been pumped full of drugs, and you are probably sleep deprived, and I imagine you are hurting. Please let the doctor help you. I am very worried about you. Please let them help. Sending you a gentle hug. 

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