Cancer Envy?
Hey Stage 1 Sisters!
Have any of you experienced others down playing your diagnosis because it's only a 1 or because chemo and/or radiation is not part of your initial treatment? I know I have,,,,, by other breast cancer survivors who are a higher stage or have had a much rougher road, treatment wise, than I do. It isn't fair. It's almost a form of discrimination.
I almost feel guilty. Notice I said almost. We all go through the roller coaster ride, the worry and waiting when tests are done, the sigh of relief when results are good, the near panic when something different pops up, either a pain or a rash or a lump.
How would you/do you handle this and still remain caring and sympathetic?
Comments
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vbishop I'm pooping in here, I agree and I have heard that, but in my mind I rarely think of stage I just hear the word cancer and that's enough. It is emotionally, mentally, and physically a roller coaster ride that no one bought a ticket for and it's terrible for all of us. So if I were u I would ignore anyone who does that, but if I were me, which I am I would tell them to keep their opinions to themselves cancer is cancer and that's it.
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Camillegal
LOL - I am more like you, but I bite my tongue ... most of the time. I agree - cancer is cancer. And our cancer can recur just as well as anyone else's.
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I totally agree that STAGE I BC is totally discriminated most everywhere
Unfortunately including on BCO ( By some members )
We are all sisters
♥
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someone else on here posted something I have carried with me throughout my treatment. " The worse thing that has happened to you, is the worse thing that has happened to you!" I have tried to keep this in mind when dealing with friends that are going through their own troubles...even if no where near as troubling as mine. Everyone has their own issues to deal with.
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I have not experienced it, except in a funny way when I told my PS about it and she just waved her hand and said "psssst" . Made me feel a little less scared actually. (Love her!)
The title of this thread did catch my eye though - tumor envy - I had/have a real bad case of it. Oh why oh why couldn't it have been DCIS??
I've been visiting other ladies in my area who have cancer dx - it doesn't matter how old you are, what stage it is, what treatments you get, it is still terrifying. It was really important for me to have people meet me where I was emotionally speaking. I try to do that with others now by really listening to them and not down playing their fears.
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i have triple positive envy or triple negative self pity but i agree that cancer is cancer. It is a death threat at any stage and when i hear or read about someone with any type i know they are experiencing terror.
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Thanks all for responding. I can tell by your responses that you are all caring and empathetic women. I agree that we all have the same fears and anxieties. But I also agree that there are some, even on these boards, that ignore us Stage 1'ers because we're "cancer babies" compared to others.
We are in this together!!
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Amen vbishop. And yes, cancer is cancer. Although my survival rate is excellent, my oncologist will not tell me that I am 100% cured. Her words to me, "As far as I'm concerned, all traces of cancer have been removed". While I did not go through what others have gone through on these boards, I am reminded each day how B/C has changed me. All I have to do is catch a glimpse of myself in the mirror.
What I don't understand is the reaction I get when I answer the question, "Did you have chemo?" When I say, no, I almost feel like my cancer really didn't count. I want to lift my shirt up and say, "This was part of my treatment". It's important for me to let you know that these comments came from people who've never had a diagnosis of cancer. I let it roll off my back because I know they meant well. I personally know ladies in various stages of cancer, and they've all been supportive of my journey. For me, it's just those that have never been diagnosed. They simply don't understand.
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Ann -
Your experiences are similar to mine. At first I thought I was being overly sensitive, but the responses tell me I am not alone.
I think all Stage 1s know how blessed we are to have a good prognosis. But you are correct, Ann, in that cancer changes us all, some more than others. We need to find our new normal post diagnosis and treatment. I am still searching for mine, but I'm getting there.
Maybe this thread hits home to some of the lurkers.
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Any bc dx is scary and it is true that we all have bc in common. Different stages require different tx and have different challenges, which often can't be compared despite the fact that we have the same disease. Clearly, some have a much more difficult fight than others. I'm not sure what discrimination you've faced, since I'm in the elite stage IV group, but to be a higher stage definitely is not the same as stage I ( and I hope you never have to understand that). BTW, I've never had chemo either!
Caryn
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I have also felt the guilt of ONLY HAVING stage I bc. That guilt, together with the Arimidex and the reality of sacrificing a breast to beat bc, all hit me at the same time. I was almost finished an appointment at my MO for a follow up, and as he was closing the door to leave, I dissolved into tears. I couldn't stop. I felt SO stupid. There in the Cancer Center where there are kids getting chemo, I felt so guilty for ONLY LOSING A BREAST and taking Arimidex!!! He came back and sat with me and told me every cancer patient fights their own battle , and they are all difficult battles. Depression became part of my battle, and fortunately I've gotten help for that too. It frustrates me tho, how people assume that reconstruction is a breeze - like "aren't you lucky to get a perky new boob!" I liked my old one better. Thanks for letting me vent here. Bc sucks no matter what stage you are. J
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cancer is cancer. There is no prize for having a higher stage. U just have to remember some people are idiots. At least we don't grade or stage idiots or those discriminating would def be a 10. So very happy for u that u found it early. Jealous yes but discriminating no. Hang in there.
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Caryn -
Thank you for your response. I don't pretend to know the challenges you face every day and how they may differ from mine. I wish you the best of luck with your treatments and that NED is in your future.
That being said, there are a lot of things we do have in common:
- We all experience anxiety while we wait on the latest test results
- We all worry that the cancer will spread
- Many of us make changes in our lifestyle, either through diet or exercise or both, in attempts to minimize the risk of recurrence
My diagnosis is down played and/or ignored by some with a higher stage; it's like I have "cancer lite". I have even had women imply that I have no right to share my story or offer advice. I quit going to a local support group because of it. I almost felt guilty for having a good prognosis. But even though I have "baby cancer" (according to a co-worker), I know the first few weeks post diagnosis are crazy and move very very fast. I know what its like to deal with insurance companies and fight for coverage on some tests. I know what its like to have a medical team that communicates vs one that doesn't. I know what my diagnosis has done to my family and how, in my opinion, families have a harder time of it sometimes than the patient themselves. And I know that attitude is everything..it is for me anyway.
Regardless of the stage, there are some things that we ALL go through.
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You have DCIS and you need surgery and maybe radiation and/or years of tamoxifen/AI. You have stage 1 and you need surgery and maybe radiation and years of tamoxifen/AI and maybe chemo. It most likely won't metastasize. You have stage 2 and you need all of the above and you have a higher risk of recurrence. You have stage 3 and you need all of the above and your risk is even higher. You have stage IV and you're most likely in treatment for the rest of your life. I know that stage isn't the only indicator for treatment and there is a lot of individual variance, but you know what I mean. It's a continuum of crap that starts out bad with a DCIS diagnosis and just gets crappier as you go to higher stages, more invasive treatments and worse prognoses. I know I was fortunate to have a stage 1, grade 1 tumor and to be spared chemo and rads. I have an estimated 9% risk of mets in the the next ten years which is really low (but my odds of breast cancer at 42 were less than 5% and my risk of a malignant colon polyp at 30 was less than 1% so I don't take as much comfort in the 9% as maybe I could). I had 4 surgeries in 9 months and will be on endocrine therapy for years. Nothing about this has been easy, but I know it could've been worse.
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Agree Jay and Patty. Cancer is cancer, regardless of the stage. We all need to be there for each other, every step of the way.
I see these blogs as a safe place to vent, to learn, and to support one another.
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Lekker -
Well said. Thank your for your perspective.
I have a 7% chance of recurrence, but it doesn't give me a warm fuzzy that all is good either. I feel blessed every day that it could be worse. And maybe one day it will be.
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vbishop, thanks for starting this discussion. I've been wrestling with this issue for a year. Feb 5th last year was my UMX. Lately I decided to open up more when those close to me ask how I'm doing, because they don't understand. Usually I would put my strong face on and say I'm good. Even though I'm battling SE of the HT and recovering from the latest reconstruction and agonizing over how much more surgery to undergo and fretting now that I know I CAN GET CANCER. I did such a good job of being positive and strong for my family that now they don't realize how much I still struggle. Having said all that, I do know that I am very lucky that I had stage I BC. I remind myself of that when the other stuff gets me down. We all have a story and the best thing we can do is listen to each other. And acknowledge the battles. J
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How would you/do you handle this and still remain caring and sympathetic?
Somtimes this is just plain hard to get but the most caring thing you can ever tell someone is the truth, sometimes gently sometimes more forcefully, even though it usually doesn't win brownie points. Whatever, it is what it is.
"I'm in the elite stage IV group,"
By your own words youve spoken it and if you think your superiority gives you a free pass to put everyone else in their place, well Im sorry you might be selling but I'm not buying. Theres other Stage 4s that despise this elitist attitude ... thankfully, one of them WAS my sister.
Here's some things to consider. BC is a tricky proposition at best to bag up and put in a box. For example, Ive seen women on here who have had small tumors and low staging only end up to be St4 and pass in a shorter time than some stage 4's who've been that for a good while and are still here.
The line between stages can be more pronounced than what the reality is and NONE of us knows who this applies to or in what quantity.
BC isnt all there is. Just because it came along, it doesnt suddenly negate other health issues we may have had or may yet get. All it does is exacerbate them.
I would suggest to ANY of you that when you are waiting in that room to hear the path report, you DONT know what your outlook is at that point. That is equally frightening to every single person who goes through a BC dx and everyone of us knows what it's like to wonder if that other shoe is gonna drop.
BC is not a competition. Even though Im St2 done chemo RT and suffer other horrible things I can do without, I personally don't like separating myself from those of lower stages. I like to converse with all as long as I'm able.
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Musical, where is the LIKE button!?! I LOVE your response.
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i think the person who said she was in the elite stage 4 group was being facetious. She was stating what people think stage 4's think of themselves is the way i interpreted her comment.
But, i'm usually wrong.
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Musical -
Thank you for your response. I was looking for the like button myself!
Jay -
I am only six months into my journey and still feeling my way. So far I have been extremely blessed, as I have had few complications. When you're feeling a bit down, check out the "Cuz I'm Happy" thread I started (I think in the feelings forum - the one about depression, anxiety, etc). I have a daily play list of songs that inspire me, make me smile, or get my feet moving. I posted a link to one that is guaranteed to make you smile.
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Wrenn -
I think you're right. I don't think she was being condescending or disrespectful. She was just providing us with another way to look at things.
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We all know, in a forum setting such as this, the printed word is all we have. We generally don't know peoples character, intentions, inflections, sarcasms and insinuations. As such, I take words at face value. Besides, theres always an intended point behind being cryptic. Sticking to my guns on this one.
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gotta say u r wrong on this one musical. I don't think she meant she was superior at all. Sounds like she meant she isn't stage 1 so haven't felt what the same kind of discrimination. I am stage 4 also. It is a smaller group of people. No denying that. It really doesn't matter the stage everyone is on their own journey. So who is discrimatjng against who ? In the printed word you don't always know many things like character so why not give the benefit of doubt and simply say thanks , ok, or nothing at all. Whatever happened to if u don't have something nice to say about someone (especially someone u don't know) them don't say anything at all. Back to vbishop - hoping your journey will be as easy as possible and u have great support
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Thanks to all for the comments and discussion. I think its one that needs to happen to build common understanding. At the end of the day, we all face the demon that is breast cancer in one form or another. And it sucks. But at least we can lean on each other, learn from each other, support each other, and grieve for each other. We're an amazing community.
Now it's time to get happy!!! http://youtu.be/y6Sxv-sUYtM
"Clap along if you feel that happiness is the truth"
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I disagree with you Patty. What size Stage4 group is isnt the point, but since you mentioned it I always hope it will be smaller. As for saying something nice, you might apply that in both directions.
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vbishop, sorry our posts crossed and. didnt see your last one. Yes it is good when we ALL can learn from one another.
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musical I didn't say anything I shouldn't have to you. I love your scripture you posted. Lets remember words bring life or death. Why not use the power of the tongue for uplifting not discouraging ?
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Patty bless you, but with respect I disagree with you. (The 1st sentence above and most of your post before that.) Yes death and life is in the power of the tongue, with qualifiers, one of those is not cherry picking verses without taking the whole revealed truth on that subject into account. Again, but said in a slightly different way... at the end of the day, Id sooner have the hard truth than a soft lie. I can't think of anything more encouraging than the truth, even though sometimes its hard.
I don't want to hi-jack or take this thread in a direction that the OP doesn't want. She seems more jovial now and I don't want to take that from her. I'm happy for you to PM me or just leave it at that.
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Musical and Patty -
I think the discussion and the different perspectives is healthy. It helps us understand one another and brings us all closer together.
I suspect that others had no idea that there are people out there that "dismiss" those of use with Stage 0 or Stage 1 breast cancer. Nor do they understand the damage that attitude can cause.
I was just trying to lighten the mood a bit, which is why I posted the link to my best mood lifting song. Check it out....it's a toe tapper for sure! At the end of the day, we all have a choice. I chose happy
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