In shock
Comments
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Queen Edi...YOU ARE BEAUTIFUL! WOWZER!!!! I hope DH realizes he found royalty when he found you!!!!!!!
FYI - Exchange means when the tissue expander is taken out, and replaced with the permanent implant. Wish we all could be ignorant of those kind of details, but on the other hand, we can be grateful for the things that PS can do to restore our bodies, as it goes a long, long way in "healing the soul" too.
65 - don't waste time and energy with the "second thoughts". It is very important to be comfortable with your surgeon, and I'm sure if she thought it would jeapordize your health, she wouldn't have let you wait so long. Be at peace.
OMG ---Thank you so much for all the pocket people today. Hope the emotional rollercoaster wasn't too rough on you all. I went from doing good, to completely devasted, and back to good! You couldn't see much from back there, so here are the details. Roads getting in to Calgary were not in good shape, so a very stressful drive in. Got to the ps office......no hubby in sight....call him on the cell phone, he's waiting for me AT THE WRONG ADDRESS! Men-directions-need I say more. Soooo. Get into the office with hubby (finally), and meet the surgeon, who has a resident with him. Oh joy! I get to "expose myself" in front of not just one, but 2 strangers (both male of course). Deep breath.....Ok, surgeon and resident turn out to be very nice, easy to talk to, good listeners, and answered every one of my many questions. I did play the "I've worked with people you're working with ----- I have a healthcare background----I know surgery" card, early in the discussion, and they responded terrifically, got even more comfortable and informative. They've got all the info they need, I've got all my questions answered, got my clothes back on, consents signed, things are looking good! Go out to the desk to arrange the surgery date.....WHAM....first available date is sometime after January 2014!!!!!!!!!!!!!!! WHAT THE F**K!!!!! Tears start dripping down my face, lips starting quivering, hubby makes me sit down cause he thinks I might drop to the floor. I wasn't expecting date next week, but sure wasn't prepared for another whole year of this painful implant!!!!!!! Can't get upset at the office gal, not her fault, so pulled it together enough to get out that if you have any cancellations I'm available on short notice, and left. Told hubby to get back to work, then sat in the car in the parking lot and cried for at least a half hour. Pulled it together to be able to drive home and said "screw this, I'm eating junk food for lunch". Got home with my bag of greasy hamburger and fries, the phone rings, it's the ps office calling. The patient he saw just after me, has cancelled her surgery, and would I like to take that OR date. YES!!!!!!!!!!!!!!!!!!! So, started crying (this time happy tears) on the phone, managed to blurt out thank you, hope the other patient is going to be ok, thank you, thank you, thank you. Now have a pre-op appt booked for Feb 27, surgery booked for April 12 OF THIS YEAR!!!!!!
Sorry for the long post, just had to say thanks for being there for me.
Love ya all
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Hi girls, I'm also in the April/May group for reconstruction. We can talk each other through it - will be fun. In the beginning when I was diagnosed, I did not know about these forums thanks to being so computer illiterate. Only found them after chemo when my hair would not grow, and I was looking for some consolation in my angst over that. Eight weeks after chemo ended I finally had some stubble . . . such a relief.
Had a good friend over for lunch today. Fed her bean soup and wholegrain scones which tasted good because I had stuck to the recipes - lol. She had the exact same recon surgery in November that I'm getting (DIEP flap where the tummy fat is used to make a new breast). She showed me the results, and I'm blown away. That new breast looks and feels soft and warm just like a real one, and her tummy is so flat - oh my goodness, I'm downright excited now - never thought I would say that about surgery!
Edi, you look amazing and have a great smile. The colour of that wig is so nice and natural. If I was not so lazy, I would post pictures too, but it is too much hassle to learn how. Will wait till one of my sons are home again, then they can show me. Yes, the dog is still smiling from ear to ear. It's not every day that he gets such a windfall. The birthday cake turned out great too. So special that you could make it for your GD!
Websister, sorry to hear about the hot flushes. I find that hot beverages definitely bring mine on, and that a glass of cold water/juice really helps to cool me down. Also whenever I have on makeup, I feel hot and uncomfortable the whole time. So these days I'm just wearing some eye makeup and lipstick, no foundation, powder or anything else. On Saturday night when we went out, I showered, and decided to put on my regular makeup for a change. Within 15 minutes I had a sizable wet spot on my top between my breasts - had a huge hot flush, and had to wipe myself down with a wet facecloth. Had to put on another top too. Once the makeup was off, I felt much cooler. It is almost as if my face needs to breathe. This is too weird. I also get a flush when I'm excited, rushed or a little nervous. What fun!
Bearcub, hope you have something special organized for tomorrow when rads end for you. It sure is a great feeling. Got my last rad the day after my daughter's wedding in July 2012. All through the months of planning and excitement leading up to the wedding I was in treatment, so I celebrated the end of my ordeal as well as the wedding. 2012 was indeed a special year in my life.
To all the other people here, hope you are having a good day with minimal SE's.
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Nihahi, what a rollercoaster! But it all worked out well in the end, right? So happy for you! I'm seeing my PS next week, and hopefully she won't pull that trick on me. I've had this TE in for almost a year now, and I'm so ready to get rid of the rock on my chest.
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NIhahi, you are very kind
it is a happy photo so that helps.
Wasn't going to log back on until the morning then suddenly had the urge to do so.Really glad I did ! Wonderful news for you after a rather traumatic start.
Someone up there is looking after you.
All you girls doing this have got to post pics of the amazing figures you will all have.liefie, you too ! it is such a lovely start to this year, will be fascinated to hear all about the procedures. Never realised that such wonderful things could be done to put our warrior sisters back to their full glory.
Going to catch up on last nights lost sleep.
Happy thoughts to all of you. Edi x
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Hi everybody....Inhope you all are well.....just popped in to check on Bennymuffin....was wondering how she is doing???? Unless I missed it, I see she hasn't posted today!!!!
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That's right Dakota, how could i forget, Valentines Day..well not that it means much, my hubby soooooooo not romantic....lol....
So you having the exchange, well I'll be doing the full double masectomy ... had lumpectomy but because of my history doc recommends BMX with silicone implants straight away...I can't spare my right nipple because the lump was right under, so I may as well get them both off....out with the old and in with the new .... thinking of tattoos, what you doing if you don't mind me asking?
Edi, your gorgeous thang.....love love love the wig.....
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Nihahi, wow, roller coaster of a day, but glad you ate that greasy food to make you feel better, where you eating a fry when the ps receptionist called you back too...lol, exciting news, April 12th same day as Dakota!!!
Now I want mine on the same day too, just after Easter !
Lifie, wow all 4 of us in the April / May group....well Nihahi and Dakota 100% in the April group.....regardless we can be there for eachother

Well I should get back to some work, half hour to go today then no work for 4 days as it is 'Australia Day' on Monday so public holiday !!
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Benny, we are missing you. How are you doing?
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I don't mind u asking. I will have nipples made out of the current breast skin I have and then they will do the tattoos 3 months after that. I have read the only thing with the three d tattoos is they are flat so from the side still flat. I want to appear like I have them... Although lol since its cold here I don't have to worry without them...lol
Nihahi-
Do glad u ate that burger. Good for U and even better good thing u got ur date changed!!!!
Edi- get some sleep
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You've just gotta love this thread, yesterday it was mooseballs, today it's nipples! There is not a man in the world, and most of the women also, who would have any idea what to do with us! I don't care....I have found "my people"!
so...nippletalk. I have gone 20years without one on the recon boob, and will not even consider not getting one "made" this time around. It makes the new girl seem much more natural. Easier to wear certain clothes too, as you look like a unicorn otherwise. There are silicone ones you can use, similar to the breast prosthesis if you don't do recon. but my skin doesn't tolerate them well. Edi, the new nipple is made out of your own skin, usually from the same area, kind of like a sewing project, cut, fold, stitch, TADA! They usually make the new nipple at least 3 months, sometimes longer after the breast recon is done, so that any swelling is gone. That way they can put them in the right spot. Tattooing is the very last step, again, I am going for it all this time around, since after the diep stages, I'll be "done" forever with recon surgery. I have seen photos of the 3D tattoo, and it does look amazingly realistic (includes a 3d nipple), but only from a straight on view. I would think if you didn't have a really skilled person doing the 3D, it would look like a bad night in Las Vegas souvenir!
Benny.....we are all getting worried again. Websister....hope the work return timing gets sorted out the way it SHOULD!
Bearcub....one more to go!!!!!!!!!!!
Can't wait to read what tomorrow's topic is

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Lol from Moose Balls to Nipples, gee we are a classy bunch of girls...lol...

Ive not seen the 3d nipple... I'm going to look into that and speak to the plastic surgeon.....hmmm, yes skill is another thing, god forbid it would look like a bad night in Vegas souvenir...lol....
Benny, how are you going this evening ? hope you've had a good day.
Edi, get back to sleep girl......bet that steam train of yours is in full swing....lol.....when I wake during the night I come on here ... have my phone on my bedside table and before I know it my fingers do the walking to the phone and I'm on bc.org...lol....(well you girls are up when I'm sleeping, its only fair I come play too ) ! though I don't tend to join in as i'm half dillusional and my words might not come out right.....

Bearcub, 1 more to go, whoo hoo then we will need Edi to make a 'NO MORE RADS' cake for you
I'm going to my auntys tonight, 36 degrees and windy here

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Nihahi, I was in tears reading your post... so glad you got it sorted XX
Benny - How you doin'?????
Bearcub - YAY XXX I'm so happy for you XXX
Edi, Hello scouser!! XXX Hope you're well... you mentioned 'the red devil' ... what is that?
Is anyone taking calcium and vitamin D to help the bones cope with chemo?
I'm trying all sorts...
Feeling a little frantic on the inside today !!!!!!
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Hi ladies-
Good to know we have everything covered 😄
Traii-
I think a no more rads cake by edi is a fabulous idea!!!
Bevlee-
Sorry ur feeling that way.
Hope all u ladies have a great day.
Oh got an antibiotic for my cold on the upswing from yesterday !!! -
Page 58??!! Oh my, I'm behind again! I had no internet yesterday! It was down all day so no BCO and no YouTube videos to keep me going. Needless to say my house is cleaner today. I am doing okay so far.... still powering down Glucerna and peas/potatoes. Can't talk long as I'm off this morning to see the doctor at BCSCF as they moved my appointment up one week. I think she's sending me to a nutritionist/dietician. I weighed 119 this morning! I'm okay tho.
Will be back later to catch up. Have a great morning everyone! ♥
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Benny so good to hear from u!!! Please do update !!
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Bevlee, we scousers don't do frantic, we are hard remember ! Sorry you feel that way love but you will be fine. We are here for you just come on and be as frantic as you like, someone will sort out any fears. I don't do any supplements but sure they can't do any harm. Just eat well and pamper yourself.Keep in touch we worry when we don't hear from you.
xDakota, I hear you and it is in hand. So glad you got antibio, mine has stopped now must have been an allergy maybe.Hope you not working too hard. x
Benny, no internet, not funny. Just as long as you are still home we are all rooting for you. Did you ever do the egg custard or risotto ? mash and peas must be soo boring, hope you are putting butter and milk in the mash at least. My boss puts squirty cream in and it makes it really soft and smooth.
Good luck with appointments, 8 1/2 stone ? now that is mega skinny.Hope they sort you out. xNihahi li,efie,dakota, info on breast replacement fascinating, nipple replacement and tats, sounds really great. I have none existent nipples, TMI I know but once was told by a nurse as I tried to breast feed they were the crapest nipples she had ever seen in her whole career. Thought everyones boobs looked like mine til then.
It was in the days before topless and I led a very sheltered life. lol x
You girls rock !!back later DH needs feeding AGAIN worse than a toddler.

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Edi- should be interesting to say the least!!! Oh what fun we get to have!!! Glad u fed DH. I hate thinking of things to make. Everything I do my DS says I don't like that. God bless him if he could live forever on chicken nuggets. 😍😍😍
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Bearcub, What a happy day for you. This is from us all, for our BRAVE Warrior sister. Well done xxxx
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Edi- U r too cute!!!!
Congrats bearcub!!!! -
Bevlee....It is so good to have you pop up again on the thread. Like Edi says, we were getting quite worried about you. The "frantic" feeling I think is pretty darn typical. BC is such a huge spin from what we think of as normal, and for awhile it's like you wakeup not having the faintest idea of what you'll feel like on any given day. Part of your brain/emotions are going full speed ahead determined to fight "something", while your other emotions/body gets so exhausted it just can't keep up. It is so, so, so hard to keep in mind that it's ok to just be "in the moment" instead of constantly looking days, months, years ahead. Have you ever tried meditation techniques? Even at my lowest moments yesterday, I kept reminding myself that I don't have to "deal with" next year, next month, next day, I just have to be "here" and get through this moment. (((((((x))))))))
Bearcub....that ground shaking you're feeling is all of us doing the happy dance for you. YOU'RE DONE GIRL!!!!!!!!!!!!!!!!!!!!!
Benny...so glad your starting your connection with the support centre today. AND that you're feeling not too bad!!! Good news all around!
Dakota, keep feeling better, but do so by looking after yourself too. Even the energizer bunny takes a well deserved break now and then.
Off to Physio, hope everyone has a blue skies-sunny day!
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Another crossing in cyberspace of messages.......EDI, great cake girl. I'm still full from the coffee, sandwiches and s'mores I found in my pockets yesterday, but that looks too good to pass up!

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Hi Everyone,
I've been reading all the post and the 3D nipples are amazing. I was going to do recon when I had my BMX but decided to wait until after Chemo, now I wish I would have just started the process..
I have been feeling great,hair shedding so buzzing it soon.. Edi, I have the self-tanner ready for my head.
Traii- dryness is getting better, but I will get hit again next Thursday, I sure hope the headache stays away this go round...
nihahi, loved the pictures...
benny, stay strong!
Dakota, glad you got put on antibiotics
Bevlee, yes I am taking D3. It is also supposed to be very good for us fighting BC. I have been feeling a little frantic too!
Websister, hope you are doing better.. Hope Mom is good..
Bearcub, yay!!
Everyone else have a great day..
Love you all,
Carla
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Good morning, hard to keep up with everything, I know I will miss some things
Congratulations, Bearcub!!!
The cake looks very yummy. Looks like I will soon be following along the radiation pathway, then hopefully on to reconstruction.
Nihahi - I am so glad you were able to get a closer date. So hard to build yourself up and be prepared and then find out the wait would be that long. I think I might want to get myself started in the queue soon. I appreciate the information you gave Carlads about being in the moment, good reminder
Edi - now that you can post pictures, there will be no stopping you! GD's cake is adorable, you are beautiful and Bearcubs cake is a work of art. The icing is delicious, BTW

Dakota - very happy to hear you got on top of the cold quickly
Bevlee - I take Vitamin D and a Calcium/Magnesium supplement, my oncologist approved me taking it all through chemo, I have taken for quite some time prior and continue now.
Benny - I am looking forward to hearing about your morning at the foundation
Traii - enjoy your Auntie's today, hope you sleep better tonight
Things are progressing re: equipment for Mom's discharge and all the other details; I am quite pleased
Re: insurance company saying they felt I was capable of returning Feb. 1st; my oncologist's office is sending them a letter and documentation to support my planned return of April 1st. I am so glad.
Today is my herceptin treatment so need to get some stuff done around here before I leave. Have a good day everyone!
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Hi Benny! Glad to hear you're doing well under the circumstances. Are you on full strength Glucerna yet?
Bevlee, the 'red devil' is Adriamycin, the chemo drug so many of us have to face. Good to hear from you too. Yes, I'm taking Vit. D3. Should probably take calcium too.
Carlads, good luck on the head shaving. Self-tanner for the head? Now that's an idea. Why didn't I think of that? Best wishes for the next chemo!
Nihai, if I have learnt one thing from this ordeal, it is that I have to live now, here, in this moment, because tomorrow everything can change dramatically. It is actually very liberating, and I think that is how we are supposed to live. We have this 24-hour instalment, so make the best of every one.
Websister, I sincerely hope you can get your return to work postponed to April. February is just too soon for you, as you are still recovering from chemo, and also getting used to Herceptin. Best wishes for today!
So I was supposed to see the ob/gyn for a follow-up today. Have to see him every 4 months for 6 years because of the endometrial cancer I also had last year. When I phoned just now to make sure what time the appt was, I was told that it was yesterday. I had arranged my week around this appt, because it is in another town, and I have to drive there and back. Oh my goodness. I could have sworn that the date was today. Chemo brain? This sucks, because now he can only see me on Feb. 27. Too bad. Last night I also got the bad news that a cousin of mine had been diagnosed with breast cancer. She is just 36 years old, and the mother of two toddlers. Why are so many women getting this disease? They also seem to get younger and younger when diagnosed. What is going on?
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I just picked up my i-pad...I am on my way....will post when I get home...
OMG I am crying seeing that cake, thank you.....you are all in my pocket...xoxoxo..luv you all my worldly friends!! -
Lifie- sorry to gear about ur cousin. Send her over we will take care of her.
Web sister - I am glad too. Feel so much better than yesterday. Will be back by the weekend for lacrosse, hockey, and soccer !!!
Carlads- maybe u would not have been ready then. Everything happens for a reason. Right ???
I am totally convinced being on the pill for I don't know 18 years helped my BC Along -
YIPPEE YIPPEE KY EH!!!!!!!
I am done rads, it kinda went fast and it was not bad at all.
Thank you for the cake warrior girls, it is delicious!!! Make sure you each grab a slice..
Bevlee I take vit D3 and calcium 1500 mg., I have been taking them since 2007, still got BC, go figure!
Nihahi wow so glad things turned out, 2014 I would have been hyperventilating too!! So glad April is the month and you will have your fipples soon..(fake nipples)
Edi I almost fell off my chair laughing at your description of what the nurse said about your nipples....the crappiest she had ever seen, boy I think I would have needed therapy after that comment....oh well your babies grew up to be healthy and DH didnt complain..lol. that's all that matters.
Liefie the news about your cousin is so sad, make sure she knows about this forum. It is just me or does it seem the women are getting this disease younger? Very scary stuff, I pray she will be around for many years. Chemo brain sucks....I need a list and a calendar on the fridge to keep me straight.
Websister glad things are going well with your mom. Hope you get the insurance company straightened out, April will be soon enough. Hope things went okay with the herceptin. What #is that for you? I have number 4 on feb 6.
Carlads hope you are feeling fine.
Dakota hope you feel better, you are way to busy to not be a 100 percent....colds yuk.
I only ever took the pill for about 3 months.
Just wondering if any of you have thought about what contributed to your cancer? I had been taking a lot of supplements a few years back and wondered if it did more harm than good...
I talked to the nurse today, as I feel at two and a half months out from chemo my hair is growing at a snails pace....it is a short crew cut look still...her comment when I took my hat off was , two and a half months, WOW, ya that made me feel better. I asked about biotin as I have read some take that, she didnt think i should add any more drugs to my body, she said to be patient it will come back, that it looked soft....ya I felt better....not!
Benny, if you had energy to houseclean your place up you must be feeling better. Good to hear, hope appt. went well. Try to maintain that weight.
Everyone take care........going to have steak and shrimp tonight! -
gosh you lot, I pop out for a few hours and so much happens !!
Bevlee, going to look at this D3 stuff, sounds good
chin up chuck, you will be through this journey before you know it. Can't believe I am halfway through chemo now. XDakota, told you I would sort out the cake, glad of the heat from the oven as flippin perishing here. lol.
DS and chicken nuggets my GD just the same !
Please don't overdo it at the weekend x
Nihahi, you are spot on again about the frantic feeling.
I just do one day at a time like the song says. Everyone of them is a bonus.
Hope physio was young handsome and did his job beautifully
xCarla, one step at a time, no regrets, you have the rest of your long life to sort out your boobs.
Let us know how head shave goes.
Enjoy everyday until next Thursday. Then hopefully all will be better this time, at least you know what to expect and are prepared.
Let me know how fake tan goes. Lots of lovely moisturising cream first. xWebsister, working on design for your end of rads cake as we speak. An artist needs plenty of time for a masterpiece lol.
Glad you like icing, pearls on the cake are edible too.
Hope things keep moving in the right direction for Mum.
April soon enough to return to work !
My BC pal on herceptin, she seems to be breezing through it, hope you do too xLiefie, Chemo brain, don't start me off. Ask DH" tea or coffee ?" walk few feet to kitchen then start doing something completely different ! In he comes looking deprived to ask whe"re is it "? wheres what Edi replies lol.
Heaven help me as far as appointments are concerned. Notes stuck everywhere and rings around dates on calendar and still miss them too.
So sorry to hear about your cousin, so young too. My BC nurse says it is almost reaching epedemic proportions, don't think she is far out.
I was on HRT until they linked that to it and like Dakota says, what about the pill.
We just swallow these things and heaven knows what they are doing to us,
xBearcub, tears make dents in fondant icing ! As it is your cake will forgive you. Icing will be a bit salty tho lol.Bet you will be lost with no up and down everyday for treatment x
Benny, u ok ?
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Back from physio. Sadly, I wouldn't describe him as young and lovely, but he's great fun, and good at what he does, so it works for me. Shoulders are getting so much better, so no complaints.
Websister, glad to hear things are falling into place on all fronts for you. Goodness knows, we don't need extra hurdles to deal with at this point! I certainly would encourage you to get your name on the "list" re: reconstruction consult. Doesn't commit you to anything, you can change your plans at any time, but the wait is long just to have a consult appointment and won't get shorter. How long the wait is for surgery is more dependant on the type of recon you want. I would HIGHLY RECOMMEND either Dr. W. deHaas, or Dr. D. Mckenzie. Both have wonderful, compassionate personalities, are highly skilled and have wonderful patient reviews. They also both are highly respected by the nursing/ rehab staff which to me, says alot also. Both have very, very long wait lists. My doc is McKenzie, but on the more lengthy surgeries like the one I'm having, they actually work together in the OR, and take turns in assuming the pre and post followup care.
Carla...(and others) don't waste a breath thinking I should have, I shouldn't have, yadayadayada. None of us have a crystal ball to know what the future will bring. Personally, even though dealing "emotionally" with a mastectomy was so very hard, I know I could not have physically handled chemo and recon surgery decisions and recovery at the same time. Just couldn't have done it. My belief is the fight to kill the cancer should always be the priority. You can't make your choices based on what "phase" others may be at.
I think cancer is being caught earlier, which is why it seems there is more of it, and in younger women. The upside of that is that earlier catch usually means greater survival rates. Not going to waste a minute thinking "if only".
Off to another qigong class tonight. Take care everybody......Benny, hope you had a good day and now have lots more support people and tools in your pockets.
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Hey girls..... For those of you considering 3D tatoos. Or nipple tats....google Vinnie Myers. He works out of New Orleans and Baltimore and is certified by the National Breast Cancer foundation as a supporter and partner. Work runs around $400 and he will file insurance for you. His photos on his site are amazing. I found out about him on the reconstruction board. Haven't used him but seriously considering ......
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