The Hermit Club

LL I saw u wavng--wavin back--Good luck wth this sinus thing 've been on antbiotcs and still sck like crazy--It's not a normal thing this year--it just zaps u bad and I know that feelin of xalling the Dr.-- wonder why--we see Drs. all the tme and yet to make that phone call s like OMG. LOL.My eyes get so tred I haven't been on here to much the last few days--I'm tryng to catch up.

Oh the Dr.s offce just called I have to see a new Dr. tomorrow ugh--Another new Dr., more fun in store--Oh well.

I hope u feel better soon LL.

So I have to unhermit myself tomorrow and t's cold out. hahaha

Camille and LL, hope you feel better soon. LL, I'm sorry that people are telling you that you look tired. I hate that. It's either the "oh you look so great" (total lie) or the "you look tired". Why do people have to comment on looks at all? I try to remind myself that, or complement people on their clothes, lol.



Welcome Lauren. Hope you are doing okay. I need to go back and catch up on your posts. My attention span has been terrible lately!



I start my job on Monday! Woohoo. I'm nervous.

Hi everyone -

PET Scan and Breast MRI are good; now he decides he wants an Echo doppler test and more labs.  Why didn't he just schedule them at the same time I had my MRI this morning, or schedule the blood test when they stuck me yesterday too.  Also, why did I have to ask him about my teeth being cleaned, and he said that is a good idea.  I called my dentist in the office (a friend of mine), and he said to ask the Dr. if dentist clearing is needed.  Doctor said no - Dentist said "find a new oncologist" - OY!!!  The MO has such a good reputation, but I'm not feeling the organization and info flowing.  So far I'm going to sit at Quest tomorrow without an appointment and ruin my Saturday for the labs I could have already gotten, Monday is a brain scan, Tuesday is teeth cleaning; wednesday is port placement, and Thursday is first chemo.  Somehow in between those I have to find a place to get an echo cardiogram test (MUST), and take off my nails (and get mani/pedi), pick up my prescriptions, and somehow fit work in too - Oh, I forgot to find a wig too.  I'm tired just thinking about it.  I'm up for any good tips.  Hope everyone had a great day.  I feel like a hamster in a cage; need a glass of wine now (while I still enjoy the tast) 

Lauren15,

Breath!   You're just starting BC journey.   Monday contact MO office, and have them schedule echo.   May end-up postponing 1st chemo treatment.   No big deal.   Happens all the time.   My 1st chemo treatment was postponed because the clinical trial drug hadn't arrived at the cancer center.   Dentist friend is unnecessarily adding to your stress.   

Lauren Teka's right--BREATH---As far as the dentst goes-(now remember ths is when u'r on chemo-not before)-some dentists don't like to work on chemo patients and the ones that will give u antibiotic before and after because of infections. I had a dentist that actually called my oncologist to tell her what he was going to do and what he was oing to give me and she told hime to give me a stronger antibiotic, then he worked on me. U'r tests sometimes get all scrambled up what makes perfect sense to us doesn't always go that way cuz they themselves take thing one at a tme if they feel t's needed--the blood test sounds like it should have been full paneled but maybe it wasn't (for some reasons)

Don't panic over the wig yet u usually don't loose u'r har immediately t takes maybe two chemos (normally) but I would go synthetic-they make really nce ones now, but don't forget scarves and hats are used alot too, and u can develop u'r own style with fun ones.

And somehow all this works out and u feel overwelmed with all these tests but it's done pretty fast. It's kind of nce to get it all done.

Now what  don't understand s what exactly type, stage or whatever cancer do u have--I'm confused on that one.???

Markat u have a big head?  I do too--I always had to get a large wig thing and the cancer society had all 3 sizes mor than other places, but like u I really wore more hats and scarves than anything--they were mor comfortable for me and when I did work at first I just matched my hat or scarf with what I was wearing and of course huge sparkly earrings, then after I didn't work I wore more scarves--it was just comfortable for me too. 2 more days and u start--this is exciting--when u get home get on tis computer and tell us exactly how the first day really went and how u felt.

I saw 2 Drs. yesterday and they ordered some tests, but This infection has to clear up and I had a fever yesterday so I'll see Monday how I feel.

The D Dr. wants to do down the throat and up the a$$ but he'll do it all in one day and he want a few biopsies from different areas- he was so excited cuz he said he never had a case like this???So he loves challenges and he going for it. All I said was the treasure of youth to him.I told him not to use the word biopsy to me cuz everytime they used that word from my hysterectomy to my BC it was always cancer--so I told him to use the words like cells--maybe it'll be better luck LOL

And the day after I et a heart scan, or ultra sound or something--I could care less as long as I don't have to walk a treadmill- cuz it seems like someone is there with a whip saying u can do one more minute and my legs can not do it. So since I'm still with an infection they're giving me 2 weeks---the D Dr. wanted me Monday--he acted like a kid in a candy store WTF am I in for. LOL

So that's been my time and if I told u this already, I'm sorry. hahaha

Teka---what is a D and U--I can't fiure it out.

I like what that woman said--ood for her.

Oh, and opposite some others, I found out I was quite the pinhead/egghead small head after my hair was gone! LOL! Sinead O'Connor, I ain't!

Hi all!  Didn't do much today except try to work and catch up since I'm missing so much office time.  I'm working on making my first chemo list.  So many things to make sure I have packed.  Camillegal, I have IDC, State IIa (so far) Grade 3, and the tumor is about 3 centimeters.  Oh, and I'm triple negative.  I think it says on the bottom of my posts.  I'm on the January chemo board as well, and everyone is having so many different reactions even with the same cocktail.  I don't want to get naseous, but hey, I wouldn't mind losing my appetite and some weight.  I found a really cute synthetic wig that I really liked.  I think I'll use it when I go out "formally" and t work, but with friends and local every day things , I'll wear a scarf.  I'm working on getting a prescription of ativan.  I heard you get a steroid high and can't sleep.  that's the last thing I need.  I love my sleep, and it's a time I don't think about this beast of a disease.  Gotta love those meds!  Have a great evening everyone : - ) 

Teka ---LOLLOLLOL---I like the way u put things--haha I'll have mine first.

Lauren I used xanax from day 1--for sleeping and it still helps me most of the time.So anything that helps use it--and don't forget the steroids usually only las a couple of days anyway, then u feel tired usually--I keep saying usually cuz everyone is different, completely different so just tell the Dr. how u feel and they're more than willin to give out meds to help u. And u have us too. hahaha

Sorry, I forgot about the (D)!

I've never been so overwhelmed with emotion ;o)

Oh Camille, they're putting you through it all I'll keep you in my nightly prayers (if that's okay). I hope the excited D doc figures out what's going on.



Lauren glad you found a wig you like. Ask for any med you want. Seriously. Not the time to tough it out.



Teka that sounds fun- the wine and cheese not the D and U



My new addiction is Downton Abbey, and fat free feta cheese I hope all are well.

So funny about Downton Abbey -- I have been trying to figure out how to watch that from the beginning.  Do you know if there is a way to get it "on demand" or how I can watch it?  I love series.  I'm obsessed with Newsroom, Homeland, True Blood, Game of thrones, Revenge and Once Upon a Time (and I don't even really like watching TV) -- Oh I forgot General Hospital :-)

  You can laugh at me.  Teka was talking about wine and cheese. Markat said her favorites are Downtown Abbey and fat free feta...so I was thinking hmm... Downtown Abbey must be a wine. Then I realize from Lauren's post it is a TV show...lol.  Is it a sit-com, soap or ???  What channel?