I say yes, you say no, OR People are Strange

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Comments

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited August 2012

    Exactly MOds.   All the lies affect my physical well being and I feel a need to discuss them among friends.  ThaNk you!!!!!!

  • kayfh
    kayfh Member Posts: 790
    edited August 2012

    But, Moderators, friends get together to share their opinions, moans and groans, outrage and joy. Politics is personal, they affects all aspects of who we are and how we move through this world. They shape the social, cultural and economic dimensions of health and we HAVE to talk about them. Kay edited to add, Blue you were posting while I was writing. Same response, different words.
    /p>

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited August 2012

    It's pretty difficult to eliminate all the things in any discussion that might irritate us, or cause us stress, or make us angry -- thereby affecting our health.  In fact, discussing certain issues such as politics with like-minded folk is a great stress reducer!

    As someone who is a former believer, I don't go near any of the religious threads at BCO for obvious reasons.  I'd suggest that BCO members who might find any of the discussions here NOT to their liking should simply ignore this particular thread. 

  • CLC
    CLC Member Posts: 1,531
    edited August 2012

    Mods...I am a newcomer to these parts, so I don't pretend to speak for everyone here, and I speak up with a little reserve.  However, I have to say that breastcancer.org is crucial for so many because it is a place where we can get support and give support related to breast cancer.  I continue to return in the hopes that I can pass on my own experiences this past year to other newcomers...just in line with the vision of bco, I believe.  To be able to continue to return, I have to feel connected to the community and I imagine that is true for most.  Politics is an integral part of many women.  How could someone feel connected if they have to leave an integral part of themselves behind?

    I imagine that the role of mods in these situations is tricky, but please don't see it in black and white.  This is all in the shades of grey and deserves a light touch, imho.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    And, Blue, Kay,  the people who are standing on a Party passed Platform stating they want a Constitutional Amendment to the US Constitution to be passed to prevent ALL abortion, with NO EXCEPTIONS even for rape, disease, or the LIFE OF THE MOTHER, are the people who we are reading about at this time.  Abortion has been legal in the USA for decades, what if a women, with children or not, finds she has Stage IV breast cancer and is in the first trimester of her pregnancy, and chooses for her own health, the health of her family, to terminate that pregnancy. As someone who has worked for years and years to give women the right to make these choices, with her family and her doctors, what is being discussed today is of vital importance to me.

    We are showing respect, helping each other to read what very prominent newspapers in the US are reporting. These issues are certainly important to MY health & well being.

    Wasn't there also some "rule" about if one doesn't like what is being discussed on a certain thread, to go to another thread, or to put the people with whom you "disagree" on IGNORE to prevent discord.  

    If there are people who do not "agree" with what these major US newspapers are reporting, they certainly are not being forced to read the links provided.  Others have posted appreciation for having the opportunity to read what is not in their local papers.

    Seems respectful to me.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2012

    Mods: Agreed. And the conversation here as far as I can see has been both respectful and convivial.

    I am an atheist. I don't go on any of the religion threads to disrupt conversations there because I respect that they aren't for or about me. I don't go on the palliative care forum because I am fortunate not to have an issue pertaining to that topic.

    IMO, important to clarify some things:

    --This is a "growing our friendships" after treeatment thread. Friendships are by nature a matter of individual choice. Anyone can certainly post on this thread, but she/they cannot expect to change those of us who come here often.

    We are who we are.

    Accept us and let us be. We've been taken off Active Topics, what more do the harassers want?

    Don't all of a sudden log in after months or days of absence to disrupt.

    There is infinite room in cyberspace for people of different stripes to form their own threads.

    Finally, mods, there is a BCO rule you don't mention, which is:

    You agree that if you find yourself at odds with another member, you will (i) use the "ignore" button, (ii) not respond to an offending communication or (iii) report the communication to a moderator via e-mail or the "Report This Post" feature (but will use this feature only to report communications that are truly offensive, not those which simply reflect a view different from your own).

    And a reminder to all of us here to use our settings and repect each others' silencer mufflers. :-)

  • pupmom
    pupmom Member Posts: 5,068
    edited August 2012

    Mods, as others have said why would anyone come to this thread who is in disareement with our, generally, liberal take on things? I am a believer and I avoid the atheist thread for that very reason. I feel they have a perfect right to discuss their points of view, but since I do not hold those beliefs, I choose not to even read the comments. The same thing is true for the lesbian thread. Those threads are clearly not primarily about breast cancer, yet they, unlike us, can be found on the Active forum. Do they get the same type of oversight we get here? If not, we are clearly more controversial, but few arguments actually happen on this thread. I think I am missing something here. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Indigo bunting back in my jerusalem artichoke garden.  If you haven't seen one of these glorious creatures, google it, really, just amazing. 

    Also, remember when Bren reported her fabulous weight loss - YEAH, my inspiration, and I can say I'm 20 lbs less than I was in May.  Secret, not really a secret, of course.  Went from gluten free, dairy free, to almost NO Carbs, except for veggies, fruit.  Even going to less Quinoa.  A friend visiting in June, who is remarkably naturally lean ( so I thought, I"ve known her for almost 30 years!) spent a few days with me.  I LEARNED, her style of eating, some call it "grazing" - a little bit, always including protein, several times a day.  NO "big" meals - we went out to dinner ( vegetarian) , and both took home portions of food (lunch the next day) - by the time she left, I SWEAR, I had my "appetite" so under control, it felt weird.

    SO...besides feeling GREAT, lighter, ok, not lean, I mean let's not talk miracles until we find a cure for BC, but so much better.  Bitter Melon is still the main factor keeping my blood glucose level low enough so I don't have to take meds.  A friend who DOES take meds ( pills, Type II diabetes) did a "test" of a week using just Bitter Melon, and said I was right, it WAS equal to his meds - think it's "metaformin" but not sure, still went back to taking the meds.  But it was an interesting ( tho definitely NOT scientific!!) test.   I also now take my thyroid meds at night - so I can start the day immediately with a protein breakfast.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited August 2012

    I think I feel nauseous.....not sure if it's a SE or the stress of knowing there are citizens actively interested in throwing health care under the bus that may save my life.



    You can't separate politics from our health.

  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2012

    What Athena said!  And I would add that we are not controversial on this thread UNTIL people with opposite viewpoints get on here periodically to harrass US!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Sandy - PLEASE just put the people who you find upsetting on IGNORE, don't even comment on their posts - JUST IGNORE.  Really - it keeps things so SO much more peaceful, tranquil, IGNORE, IGNORE, IGNORE. 

    There are enough stresses in life - we don't have to add to them. Wink

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2012

    I concur with all that has been said.  I'm not usually political but I have the same health care fears that most everyone here does and I need very much to get information, help and understanding of these views and ideas from my BC sisters and especially from the feminine viewpoint since I am in a family of mostly men.  Probably shouldn't say which side they are on.....thank goodness hubby isn't, so there is some sanity in our household. I need this forum/thread...just the way it is.  Thanks.

    Jackie

  • Wabbit
    Wabbit Member Posts: 1,592
    edited August 2012

    Healthcare is very much involved in politics at this point in time.  In a way that will have consequences to women with breast cancer.

    A woman who is diagnosed with breast cancer during pregnancy could be forced to delay treatment to continue a pregnancy if the health/life of the mother is not considered ... and if her cancer is an aggressive one could very well die as a result.

    Medicare replaced with a voucher to go buy private insurance will do nothing for someone with a history of breast cancer ... because no company will sell them health insurance if the prohibition against discriminating against those with pre-existing conditions is repealed.  Guess they could give you a paper voucher in a pretty color so you could use it as wallpaper maybe.

    Many women who go to Stage IV are going to hit lifetime maximums and find themselves SOL if that prohibition under the ACA is repealed.

    Uninsured women already are quite often having to delay treatment while they try to find a program or some source of funds to pay for it.

    Employer based insurance means if you are too sick to work you lose not only your job but your health insurance. 

    IMO ... if there ever was a time for women with breast cancer to pay attention to politics this is it. 

    So while I am most willing to be respectful of other's opinions I do not agree that their disagreement with our opinions should grant them the power to muzzle us and not allow us to discuss our concerns.  The Mods policy of 'ignore' is the solution IMO.     

  • gardengumby
    gardengumby Member Posts: 7,305
    edited August 2012
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Oh, those lips...those lips.....

    Rhetorical - don't even think of answering, but maybe ya'll wanna think about who could be SO UPSET about this thread, and how HAPPY and supportive we are of each other....

    Back to listening, and watching those lips, those lips...

    HUGS to Blue, gentle hugs, hope your back is feeling better?  YES?

    And Alexandris, what's with your hand/wrist???? wiggle, wiggle, wiggle?  In a cast???

  • CLC
    CLC Member Posts: 1,531
    edited August 2012
    I must confess, Blue, that I never appreciated Jim Morrison's (fill in the blank as you wish) until I "met" you...  EmbarassedSealedLaughing  He is dangerous.
  • Chickadee
    Chickadee Member Posts: 4,467
    edited August 2012

    http://www.youtube.com/watch?v=PojXf-spKKM

     A fitting theme for the conventions.

    Joe South "Games People Play"

    Oh the games people play now
    Every night and every day now
    Never meaning what they say now
    Never saying what they mean

    And they wile away the hours
    In their ivory towers
    Till they're covered up with flowers
    In the back of a black limousine

    [Chorus:]
    La-da da da da da da da
    La-da da da da da de
    Talking 'bout you and me
    And the games people play

    Oh we make one another cry
    Break a heart then we say goodbye
    Cross our hearts and we hope to die
    That the other was to blame

    Neither one will give in
    So we gaze at our eight by ten
    Thinking 'bout the things that might have been
    It's a dirty rotten shame

    [Chorus]

    People walking up to you
    Singing glory hallelulia
    And they're tryin to sock it to you
    In the name of the Lord

    They're gonna teach you how to meditate
    Read your horoscope, cheat your faith
    And further more to hell with hate
    Come on and get on board

    [Chorus]

    Look around tell me what you see
    What's happening to you and me
    God grant me the serenity
    To remember who I am

    Cause you've given up your sanity
    For your pride and your vanity
    Turns you sad on humanity
    And you don't give a da da da da da

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited August 2012

    I thought Mr. Spaghetti Western was funny, but I'm weird like that.  And I have news for him, one can do it to him/herself!  Has he never gone into a sex toy store?  Plus I think most of the speakers did it to themselves the last couple nights with those diluted speeches.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited August 2012

    CLC....MOST dangerous!

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2012

    We appreciate your sensitivity to the political (and religious) issue! Thanks!

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited August 2012

    good morning, greetings and salutations!

    also happy friday..... Cool

    i confess I did not watch the convention which I actually find a wierd position for me.  I was always VERY into politics, always knew what was going on, poly sci major etc.  But in conjunction with my diagnosis, i was told by my onco to avoid stress and I have come to realize that really paying attention to national politics (in the manner of my youth) is simply too stressful.  So much shear meanness and the lies ---I thought we were all supposed to learn not throw things (peanuts even) or engage in name calling way back in kindergarten.  So much hate against anyone who has a different view--I just can't handle it and so I practice the fine art of avoidance.

    And yet it creeps in during the morning shot of NPR. Can we as a nation really be rearguing the propriety of abortion so many years after legalization?  Why can't I get that image from Handmaiden's Tale out of my mind?  Listened to Bill Nye's video asking parents to support science and not to teach their children that the world is only 6000 years old ala creationism.  At one point in an interview he says how in a couple hundred years the creationist view will no longer be around--can he really be sure?  this morning I am not too optimistic.

    I have heard from a reliable source that the new strategy to try to scoop up the undecided/undeclared is to say well he tried but he didn't do it so we've been patient and now we need to try something different.  Part of the strategy is to avoid name calling (like declaring the President to be a socialist) and similar heavy handed stuff. 

    Mods Your repeated cautions puzzle me.  I have read nothing here that was disrepectful or out of line.  I'm sure if you read all the postings you would agree.  But then I do adhere to the advice in the rules about ignoring people you just never agree with so maybe I have not read everything.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    3moms - I find the comments of the Moderators mystifiying - certainly no one who posts regularly on this thread has complained.  If someone who doesn't post often here, reads the thread, and finds most of the points of view are not to her liking, this is a Friendship thread that is on page 895, it seems that person, or persons would want to follow the suggestions of the Moderators and start a Friendship thread to express her/their opinions.  Why would anyone read a thread, which is NOT ON THE ACTIVE LIST, and hasn't been since so many people using another website attacked the regular posters on this thread BY screen name, anyhow.

    It seems the Moderators were very happy to have these women posting here "associated" with BCO, when they even sent a BANNER OF BCO to a meeting last year, of most of the women who post on this thread.

    Many of the women also posting on this thread, have stopped posting on other threads, to avoid the conflict the Moderators seem so sensitive to.  That conflict is NOT HAPPENING on this thread.  Mystifying.  Comments on national television programs, and articles from some of the leading papers in the USA. Why the continual postings to request "sensitivity" which is constantly being practised on this thread?  Where are the "complaints" coming from to warrant these "cautions"  -certainly not from women who choose to participate in this 895 page and growing Friendship Thread?  The women with BREAST CANCER posting on this thread have been stupendously supportive of each other, and seem very happy to be posting here.

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2012

    We continue to encourage members to NOT read (ignore) those members and threads with which they disagree. We hope that all members can do that, especially during the political season in the US. 

  • RetiredLibby
    RetiredLibby Member Posts: 1,992
    edited August 2012

    Let me add my two cents' worth to the puzzlement over why cautioning is necessary, especially in light of the "Don't like? Don't look!" rule. If someone who is not a regular poster here is offended, then it means they actively sought this thread out, since we have been removed from the "Active Topics" list. So, if they are offended and actively sought us out, seems to me they are looking for something about which to BE offended. That is not only decidedly odd (really, there is plenty I find offensive in the world that I cannot avoid, including people demonizing teachers, police, firefighters and poor people, and SOME people thinking OTHER people don't deserve health care) but downright malicious. It seems as though they ride their (metaphorical internet) bikes around bco.org looking for things they think are offensive, which really is in direct contravention of the "Don't like? Don't look!" rule. I find people suggesting that very ill women forego conventional treatment to be alarming and offensive, but I DON'T GO THERE. I am not a religious believer, so I DON'T GO THERE. I don't like "Dancing with the Stars" or "Survivor," so I DON'T GO THERE. There are TV networks I find offensive, so I DON'T GO THERE. There are Certain Web Sites in which I find no "answers," only hate, so I DON'T GO THERE. Easy peasy lemon squeezy.



    And I wholeheartedly agree with WR a few posts upstream. Just because someone doesn't like our opinions, it doesn't give them the right to muzzle us. Don't like? DON'T LOOK! Better yet, put every single person whose opinions you disagree with on "Ignore" and never be disturbed again!



    And politics has everything to do with our health right now, with Medicare and the Affordable Care Act at stake. The elimination of the pre-existing conditions clause is crucial to the survival of EVERY SINGLE WOMAN ON THESE BOARDS. So is the elimination of the lifetime cap. And the ability to keep your children on your insurance until age 26 is a wonderful gift to parents already struggling with cancer bills. If Medicaid is cut, how many women on these boards will die prematurely? One version of the Ryan budget does away with Title X Family planning funds, including the breast and cervical cancer screening program. Women on these boards were SAVED by those programs. So this election is crucial to the very survival of women here.



    Ok, I'm done. Went to the dentist and got a clean bill of dental health. He started to talk about politics (he is a Republican) and my husband yelped from the next room, "For God's sake, Bruce, DON'T get her stirred up again! I just got her calm enough to leave the computer and come to the dentist, and she still put her shirt on inside out!" (true -- I was reading the paper and didn't notice). Everyone laughed.



    Cheers!



    L

  • RetiredLibby
    RetiredLibby Member Posts: 1,992
    edited August 2012

    Sorry, mods, i was composing my epistle when you posted. I had to re-do twice because the damn iPad has an "undo" button that UNDOES YOUR TYPING. So every time DH said something and I paused to look up, I inadvertently hit the damn UNDO. And REDO doesn't seem to. redo, that is.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited August 2012

    Sunflowers, we know where they're coming from.  There must be a fear factor involved or else why try to shut us up.  Afraid of the trith maybe?  I think the mods are being diplomatic and for that I thank them.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Happy Healthy teeth, HL.  Inside out clothes are good luck, at least underwear was supposed to be.  Shirts apply.

  • CLC
    CLC Member Posts: 1,531
    edited August 2012
    Mods...I am so confused. Why this latest post again? I think everyone posting here read your other reminders....and expressed uncertainty why it was necessary. Now, again, with no further clarification. Just a reminder to ignore (which so many here are highlighting all by themselves).  Undecided
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Thanks Blue, maybe the Moderators could also use the Ignore Button, and stop "cautioning" us.  Seems to be placating those NOT obeying the Don't Like, Don't Look rule.

    I didn't think anything could be more frightening than breast cancer, until I heard what some people think about sharing the resources to provide health care for all....

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