2012 sisters

Options
11920222425184

Comments

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited July 2012

    Believe, I have been seeing my MO every three weeks since my BMX. I will continue see him every three weeks until I am strong enough to go back to work. Then he said I would see him every other month until I am done with Herceptin. he also said it could be adjusted depending on how I am doing so I am glad I really love him! LOL and just so you know, I too,.look for the new signals all through the day to try to stay caught up. I welcome all the newbies, pray for those undergoing tx, and enjoy meeting friends who get this. Much love

  • DianaPrince
    DianaPrince Member Posts: 21
    edited July 2012

    Hi!  Just joined this site, and happy (weird choice of words, I know...) to join this community of strong women who "get it."  The relevant details of my diagnosis and current treatment plan are in my signature.  Lots that I don't know right now, but more will known in the coming weeks.

     Good luck to everyone as we get through this first year of diagnosis together.

  • DianaNM
    DianaNM Member Posts: 281
    edited July 2012

    Wonder Woman, welcome. We need a super hero here.

    I am seeing my MO three months from our last appointment, must be standard. She didn't tell me that though. Said she wanted to check how I was doing with the Femara. Since I'm not planning on taking it, that might be an awkward meeting. 

  • teeballmom
    teeballmom Member Posts: 322
    edited July 2012

    Hi Everyone!

    I was away for a few days and wow, so much to read.

    Excited tonight.  I got the pathology results back from the radiologist and my BS and the 2 thyroid cysts that were biopsied last Thursday came back B9.  Yay!!  I'm doing the happy dance tonight.  Thank goodness for some great news (finally).

    Take care everyone and welcome to all of the newbies!

  • lostinmo
    lostinmo Member Posts: 922
    edited July 2012

    teeballmom-Yay on the test results, doing the happy dance with you!

    DianaPrince-welcome to the club no one wants to join.

    ramols-hope things get better for you

    3:30 and again I'm wide awake, someday sleep will come 

  • websister
    websister Member Posts: 1,092
    edited July 2012

    Hi all

    Welcome to everyone that is new, seems that status wears off very quickly, this is a very accepting group of ladies.

    Teeballmom - wonderful to hear, it must be such a relief.

    Ramols - last evening was not my best either, I was into the 'this isn't fair ' mode of thinking. I'd stupidly started reading about all the various chemo drugs, wondering what my pathology from surgery would show and which chemo I would get. Then, as if I wasn't scared enough, I went and watched a YouTube video of my surgery. I ended up nauseated and shaking and my poor husband was crying as he didn't know how to help me. Don't recommend doing this. Too much information all at once, still recovering from the surgery and fragile.

    Lesson learned - the hard way.

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited July 2012

    Good morning all. I am just getting the caffeine in and waking up. Trying to ge the energy to go out in the heat for a walk. I may even run a mile. 8 days PFC. Feeling good. Still waiting for my MRI results.



    I am working up the courage to start going topless soon, my mom thinks I am ready. My husband thinks a couple more weeks. I am not much into the accessories or make up but I think I will go get some big girly earrings to soften the GI Jane look. Though actually I don't mind that look. My head still looks and feels more like a six month old baby's head than anything.



    Ramols, I hope you are feeling better. I totally understand the anger. I have been angry a lot since all this started. The steroids don't help. But it does get better. Get outside and get some fresh air, do something you love doing and try to forget this breast cancer crap. It is all consuming sometimes. It is the first thing my brain goes to when I wake up at night. It has to fade. I also feel your pain with the childcare stuff. That is always a working parents major stress to make sure our kids our most precious things in our lives are safe and happy when we aren't there. We have used au pairs for the last 6 years. I work weird hours and my husband really long hours. With three kids It was more economical than daycares or nannies. We have had good luck with it but we did have one that didn't work out and had to leave. It was a major struggle to get that mess worked out. Good luck in finding a new nanny for your handsome little guys.



    Hope everyone is feeling better. Kill cancer!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    To all the new ladies - sorry you have to be here, but happy you found us.    This for me is a safe haven where you can laugh, cry, bitch, yell - whatever you need to share.

    Jpmom.   You look absolutely beautiful.  Yes, just some big funky earings.   Great news, the absolute best news about your results... doing the happy dance.

    Lisa - hope the taxotears clear up soon - I find that the most annoying SE.

    Websister - love your avatar - beautiful lady.    Dunno how you could watch a video of your surgery, yikes !

    And as for dense breasts... I had a 8cm+ tumor that hardly showed up in a mammo. They showed me the images and it was really hard to see.  

    I really think its a crap shoot about who gets cancer and who doesn't.   A colleague of mine at work - ate healthy, most probably drank the equivalent to a bottle of wine over a year - she actually completed Ironman 2 years ago that's how healthy she was, she got bc.    Remember, dont look back, you're not going that way.

    Lostinmo... see my thoughts for sending rain your way didn't work - sorry ! and sorry about the candy bar too.

    Cindy.. thanks for sharing.

    Ramols - sending {{{{{hugs}}}}}} your way.  

    Teeballmom... yay - happy dancing with you.

    Well last night must've been a "pity party" night... I had a major meltdown and all started when I pulled a closet door closed and caught my fingernail on the edge.  About a quarter of the nail pulled away - it bloody hurt too (and I wore frozen gloves during my taxotere tx).   So course everything  and anything made me cry or angry or both together.     Emotions seem so close to the surface these days.

    Today is a new day and yes we can kick cancers butt !!

    If I have missed anyone sorry but here's to positive vibes to you all. 

    Take care everyone and hope you are all managing to enjoy your days.

  • lisa2012
    lisa2012 Member Posts: 652
    edited July 2012

    Maybe doctors give you scans and checks at the end of chemo before surgery. I had my BMX and then chemo z (8mm IDC in one, other side preventative.) perhaps after that sequence of treatment here is nothing left to scan! Anyone know?



    Finally took an ambien at 1:30 am last night. Sleep would not come.

    Back on Prevacid, stomach settled back down. Plus careful eating- its worth it throw in a little Maalox as needed. Going for longer walks now !!



    I would have liked to work so much during chemo. I couldn't, though it would have been a good distraction. My job as school principal is so intense and in predictable, plus my school needs someone there every day. It was so hard for me to step aside.



    Now I am trying to see how/when to schedule the swap out surgery- if PS can't do it beginning of August I have to wait until October or November. Just can't be out for the beginning of the school year, and recovery is 2 weeks. I also worry, what if there is a complication? My entire last year was full of oopharectomy,MRIs,biopsies, mastectomies, and chemo. I want to get back into work, will be 3rd year, finally in this spot after 25 years of being a teacher and I love it.

    Cancer be dead, surgery be done

    PS hairless, TEs...I am having a hard time wanting to be intimate. Even occasionally. Anyone else deal with this?

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    forgot to mention (chemo brain Tongue out) I will be seeing my MO every 3 months too.  But mine is because I am taking part in a clinical trial for denosumab.  They are hoping that it is effective in delaying th spread of the cancer to the bones and if it delays relapse too.   Because I am at such a high risk of recurrance, I have to be honest, I was quite happy to be able to see my MO that often.   Plus I am lucky that I actually work at our local hospital and the cancer agency is attached so it is no inconvenience to me.

  • lostinmo
    lostinmo Member Posts: 922
    edited July 2012

    Tazzy- I put the candy bar soup in the refrigerator will see if it can be saved.

    My DS went to spend the night with his Grandma, love the fact that he send me a facebook message to tell me goodnight and a new one in the morning to say hello. 

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited July 2012

    I seem to have missed a bunch of posts, I must have forgotten to refresh. Dianaprince, welcome. You are so recently diagnosed, I hope you find this site as helpful as the rest of us. Your head must be spinning. I am glad you got on here so fast. It took me months to want to look and I wished I had done it sooner.



    Teeball, yay! I couldn't be happier for you!



    Websister, here you are feeling better. I definitely believe there can be too much information out there sometimes. We have those days. Vent away! Tie is all still so fsh for you too. You haven't had any time to process this information and have already had surgery. It's good that things move fast but it's hard to process. I hope it calms down for you!



    Hugs to all that need them!



    I just ran a mile. I might pay for it later, but it felt great. This stuff does get better. Fight on sisters!

  • lisa2012
    lisa2012 Member Posts: 652
    edited July 2012

    Ran a mile ! Wow! That is great. Good going!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    Way to go JP - a mile with a smile Smile 

    These is 11 days PFC for me and I feel really good today - will not be running a mile though Wink

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited July 2012

    Wow, a mile. Just can't wrap my head around that. I did three laps around the pt room, and walked to my car in the handicap spot, I didn't need them to bring the wheelchair this time. Does that count? LOL. Thats my speed nowadays. LOL

  • DianaPrince
    DianaPrince Member Posts: 21
    edited July 2012

    DianaNM...you so get a lot of brownie points for knowing who Diana Prince is!  Let your geek flag fly...right next to mine!

  • RosesToeses
    RosesToeses Member Posts: 721
    edited July 2012

    Just a quick hello to my 2012 sisters! I am recovering from my MX and reconstruction, soon to be followed by chemo and rads. Sorry we're all in this rotten boat, but glad to hear from some others in it with me!

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited July 2012

    Welcome to all the new folks that have to join us because of this stinky cancer crap and Hi to all my ol' buddies (I miss you!). I have company staying with me so I haven't had much time to get caught up but I hope there are lots of happy dances going on . OMG I am about ready to call it quits on these fills because they are starting to feel like Ostrich eggs have been squeezed under the muscle even though they aren't ostrich egg size yet. LOL the fills didn't hurt until now since I'm getting closer to the end. Infact I've actually taken more pain meds today and yesterday after yesterdays fill than I think I did after my dmx.Tazzy there is a price to pay for perky tofurky but I'm sure it will be well worth it! When my husband hugged me before going off to work this am he was afraid I was going to burst. Talk about hard, ouch. Well I'm going to go see if I can find a comfy way to sit for the next day or two. I'm getting so top heavy now in this "bra of steel" that I'm tipping forward at my desk. THose of you with TEs or getting TEs will be in my position before you know it! Fun fun. Take care all.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    To the 2 Diana's... thank you for explaining the Wonder Woman thing.   I kept thinking I had missed a post  by WW and kept going back to look and blaming chemo brain Laughing

    Hey 2Fried - was missing you as well sista.   Sounds really painful with the fills - I know nothing of this and to be quite honest I am happy about that reading your post.  Hope you can find some relief though.  Darn tofurkeys.

    OK to anyone feeling blerh or having a good day.  I hope this link works.  Make sure you have sound on too.   If you listen carefully you can here worman in the background filming this ssshhing to keep the kids quiet. 


    http://www.wimp.com/babymoose

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    So much going on, I had to take notes while reading all that I have missed today to remember what I want to write down! Smile

    To all the new folks joining - welcome. I am sorry you're on this journey - but you found the right place for relief and comfort. And about all that dense breast talk - what is it with dense breasts? I was told the same thing. And my tumor did not show on my mamo - only on the sono. So odd... Thanks all for your hugs -I felt them, I did. Sorry to hear others of you were in the angry club last night too. My poor husband took the brunt of it - but he's a trooper. Feeling much better today. Spent my entire morning doing pre-surgery and genetics stuff, and badgered the nurse for her version of my PET scan results since the dr. is on vacay. After stressing that she's not qualified to do this - she said she didn't see anything alarming or that would change the course of my surgery. I'll have to wait until Thurs or Fri for the dr. to confirm - but I'll do a mini happy dance for the moment.

    teeballmom - mucho congrats on your results, that's awesome!

    lostinmo - sorry to hear about your sleep woes. I'll admit these days i sometimes pop a 1/2 xanax before bed to shut my brain off and that lets me sleep. But then again - i have no SEs to deal with yet... Good luck tonight!

    websister - the anger and why me phase is so hard. i am newly diagnosed as well and it creeps up on me even though I try to push it away. let it out here whenever you need to. sending gigantic hugs your way.

    jpmom - you are a true rock star! I love that you're rocking your hair as is - you look beautiful. And you ran a mile - go you! And as for the nanny thing - you are right, it is the hardest part of being a working mom. I want to put a protective bubble over my boys - especially my smart and perceptive 4 year old - for the next 6 months to shield him from all that is going on. All I want to do is keep their lives normal - and so many things out of my control are not letting me do that. It's a crappy feeling. But kids are resilient and he will be fine. I know this - but in crashes the mommy guilt... Thanks for sharing your stories. Oh - and your earlier comments about your itty bitty titties had me cracking up. My mother-in-law keeps commenting how she can't believe two tiny little things are causing such big problems! Kiss

    tazzy - glad you're feeling better every day, but sorry to hear the angry bug bit you too yesterday. Sending gigantic hugs your way too. And good luck with that fingernail!

    2friedeggs - sorry to hear about all the TE pain. I'm gonna need your help with all this, as I'm getting TEs put in next week when I have my mastectomy. Both sides. Sounds like i'll be needing some major pain pills...

    Hope I didn't forget anyone. Feel good and rest up lovely ladies!

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited July 2012

    I really shouldnt complain about the te pain because I don't want you to get the wrong idea. The first ones weren't bad at all. It's just that I am real close to "full" (infact I feel like if I bump them they will burst now) lol. The one I had last week was a little tight but this one is ALOT tighter and makes sleeping tough. But it just means I'm lots closer to getting squishees. :)

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited July 2012

    Ramois Best wishes for a speedy recovery next week. I hope your dmx goes as well and as basically painless as mine did. I just really needed pain meds after the bmx for a couple days and I was out and about. I had an allergy to the steristrips which caused havoc with the skin and post poned the fills but once i got started on those, they weren't bad at all until these last two. (now I'm glad I didn't use up all my meds cause I am taking some now and sitting up to sleep) lol

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    2Fried... It is best to know the truth than have something sugar coated... methinks anyway.   And my reconstruction is at least a year off - and who knows what I will have done at the time.   I just hope you  can get some relief.  I can only imagine its quite a weird feeling.

    Ramols... that's what hubbies are for during these times Wink

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited July 2012

    Its weird because they are so dang hard! I'm afraid if someone runs into one I'm going to hurt them. LOL Man I'm starting to feel like one of those old movie stars that did the cross your heart bra commercials! If I could swim I sure as heck wouldnt need the scrubbies anymore but I would be afraid I'd sink and drown with these cement blocks on my chest!

  • DianaNM
    DianaNM Member Posts: 281
    edited July 2012

    Guess I am a little geeky. But I actually watched that show back in what, the 70s? I cannot always remember what I had for breakfast, but random facts like Wonder Woman's real name will pop into my brain now and then.

    I walked into the house from my car and am sweating heavily. Does that count as exercise? I think we might get some rain in a bit, if it doesn't evaporate before it hits the ground.

  • Soyaandpepper
    Soyaandpepper Member Posts: 368
    edited July 2012

    Teeballmom-Happy dance with you too!

    2FriedEggs-Missed you too! Glad to hear from you and sorry about your TEs trouble, I've heard a lot of ladies saying that their TE's are very uncomfortable at their last fills, hops yours will become a little more bearable until your exchange. 

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    So stupid question I am sure... do the hard perky tofurkey's 'soften' up.  And why are they so hard?  All new fascinating information for me.   Maybe you should be called 2hardboiledeggs Laughing

    DianaNM - I used to watch it as well, brain just never retained the name - and why can we pull those kind of facts from our brain but not what happened yesterday ??  In my mind, anything that creates a sweat is called exercise.

    I really feel as though I've missed saying hi or responding to some of you... must be the swiss cheese brain. 

    Take care.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    Wow - TE fills sound a lot like engorged nursing boobs. Hard as a rock and super duper tender to the touch. My first son used to flail his little legs on the changing table and kick me but good in my super engorged boobs and I'd double over in pain. I guess I could deal with that for a bit again if it means I get nice cancer-free boobs at the end...

    Sending you all good vibes for a long and restful night sleep. To those of you in the States - hope you have a lovely 4th of July tomorrow. We're going to a pool party and I realized it will likely be the last time I parade around with my old boobs in one of my old bathing suits. Very odd thought... 

    Oh - and do I really need to ready the 5 million pamphlets they gave me at my pre-surgical visit today???  Wink

  • Cindyl
    Cindyl Member Posts: 1,194
    edited July 2012

    So.  I went to the dermatologist today. She removed several Basel Cell Carcinomas.  When I think how freaked I was the first time I had one... But now it's just meh.  Not like it's scary cancer.  The doctor said to really watch the areas that were hit by rads.  Seems skin changes are quite likely especially when we already have a history of skin cancers.

  • lostinmo
    lostinmo Member Posts: 922
    edited July 2012

Categories