The solution to painful intercourse!!!!!! Yipeee!

Hi, I had asked my breast oncologist , OBGYN and GYN oncologist from Sloan Kettering. None of them would give it to me. They said vit. E and astroglide. I haven't had intercourse in two years because of the pain.

I don't understand why they don't come up with something. I feel like telling them not to have sex for a year they just don't understand.    The best to all.  Janet

Janetip? What two ingredients? Lidocaine supposedly can cause nerve damage and vitamin e is not supposed to be good for us ER + girls... And yet u were given the green light I. Those ingredients, but not scream cream.

I agree--- there should be something better. Is KY ok, ladies? Agh....

Both my MO and my GYN said scream cream is fine for me to use and I am ER+ (83%).  I also got the OK for Vag e Fem too.  I don't use the lidocaine though.

Janet - The online "no prescription" version does not have the exact same ingredients.  Just do an internet search and lots of sites will pop up.  Perhaps you can find one that comes close to the compounded prescription version???

I just called a compounding pharmacy and not only do they know how to make it, but they have six tubes sitting on their shelf.

OnePetie - I tried to go back through the posts, but got lost since this has been such an active thread.  I recall that some women's docs had concerns about the aminophylline and the L-argenine.  Not from a breast cancer standpoint, however. 

Aminophylline has "heart-lung" connections as it is used for its bronchodilator effects and IV as a resuscitation drug to restore heart rhythm or to relax blood vessels.  Different forms, doses, delivery systems (?), but it apparently makes some docs unwilling to prescribe the cream. 

One possible side effect of L-argenine is activation of genital herpes in patients with a history.  I seem to recall at least one poster here commented that she had an outbreak of coldsore(s) after she started using the cream.  She didn't know if there was a connection or not.

EDITED TO ADD:  I'm not an authority on this by any means.....these are just some of the reasons reported by some women on this thread on why their doctors weren't comfortable writing the prescription. 

Nope, nope, nope... I'm wrong! L-arginine can indeed aggravate herpes. My husband does take that supplement, however... But also takes Lysine to counter it.

I just hate my Arimidex driven brain stupids..... Sigh.

Update...my gyn & MO ok'd SC for me months ago. It has helped but hasn't resolved some issues. I still get some burning/discomfort during sex. I saw my MO today & asked again about vaginal estrogen cream for the vaginal atrophy. He will only OK it if I switch from letrozole to tamoxifen. I know a little estrogen cream will help those pesky issues. I want to get back to the satisfying sex life I had a year ago!!! Is there anyone out there has had any similar issues with switching drugs or vaginal cream use?

Astroglide was a big zero for me -- not to be confused with a big O.  

GYN recommended a paraffin-ish cream called Albolene; he said it has a light blue cover.  I am going to try to get that.  It always says it is a cleanser though.  Anyone ever hear of using Albolene?

http://sexualitytutor.homestead.com/lubrications.html 

My gyn. recommended Albolene. Yes, it is labeled as a moisterizer/face cleanser.   I have used it off and on for years.  It works well for us.  I also like the scream cream, but it has a pretty short shelf life.  I've tried the Slippery Stuff, but it seems to get sticky after a bit, so I'm not as crazy about it.  

Hello Screamers,

I looked up the thread because my dh and I had a really good saturday morning.  He never asks me so I just went ahead and prepared and surprised him.  I use only the SC but I do insert it all the way as well as externally.   Then wait 10-15 mins as women have recommended above.   It prepares all of the delicate tissues.... for me.

It may be that it is my wonderful GP  to thank for all of this.   I told him once that I shared the idea and he really got tickled.

But now you make me realize that I must tell my Oncologist.  she's a chick, too, but you are correct; we are the special population and just estrogen cream doesn't do enough.   You know, I worried that she would say, "THIS is what youre concerned about?"   But love is love.  And pleasure is pleasure!

Pleasure to talk with you.  :-)

Gave the list of ingredients to my ONC last Tuesday. Whan I met with her today, I was told no because she hasn't had a chance to look at the ingredients. Then they made an appointment for me to meet wih someone else in two weeks. Aren't these the people who told my I had less than a year to live and they just stopped me from having decent sex for a month !!!