What is Offensive?

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1Athena1
1Athena1 Member Posts: 6,696

This is just a comment - not a suggestion. Thought I'd start a separate "stage-neutral" thread not because I am being picky but because there are some things that seem to cut across all of BCO.

What do you (the Every-you out there) find offensive? In several threads discussing Stage IV, the diversity of opinions by stage IV sisters have been laid bare on what they each consider offensive/not offensive by nonmetsters. So I thought I would expand the exercise to BC generally, and any one who cares to join me please do. I will list the BC-related issues that "offend" ME. Then I will list BC issue that do NOT offend ME but offend others. I still don't know what my list will look like as I write this, so it will be interesting. Here goes....

WHAT DOES OFFEND ME IN THE BC WORLD:

--Being labeled a warrior, a fighter or someone who has "battled" BC. I'm just a patient.

--The pink movement - all of it. Makes me puke, starting with the color.

--The web sites, brochures and literature that treat women like little children with all these phrases of reassurance. Just the facts ma'am - or sir, as the case may be.

--Susan G. Komen

--Tying BC to the women's movement or feminism and using the illness to claim victimhood rights, or to rail against men.

--The treatment protocols and fear that dominate the medical and patient community which consistently opposes change or innovation, favoring treatment-heavy options over scientific findings at times. This explains the unending defence of frequent mammography, chemo and other barely useful tools (my words).

--Hearing from NON-metsters that they do not want to hear about people from different stages. Rude, insulting and unbecoming in a public forum. Metsters, IMO, are the only people who are allowed to say such a thing if they wish (and none has).

--Hearing people say "fight on, fight on" when someone is clearly suffering.

WHAT DOES NOT OFFEND ME (BUT MAY OFFEND OTHERS)

--Being told that I am brave or strong (I'll take any compliment I can, true or not. :-) )

--Losing my breasts - hurrah for my new ones!

--Having surgery, anesthesia or being pricked by needles. Couldn't care less, as long as they get the damned tumor out. Also, I find that my skin looks great several days after surgery - yey! If my chest weren't being ripped apart, it would be the perfect time to go on a date. :-)

--Being called a "patient" - I am one. No problem with that. In all senses. Still waiting to see whether I recur, for one. Waiting and waiting on that one.

--Discussing the real possibility of death from this disease. We early stagers tend to shun the topic and that should not be so.

--A gloomy outlook. Blind hope turns me off. A gloomy outlook can at times be empowering. It can prompt one to action. A mixed outlook is the best.

--Hearing someone say that she will not take conventional treatment.

Anyone else care to join? It will be interesting to see how different we all are. Maybe this will teach us that the experience doesn't make the person, that we don't "know what it's like" because the person always prevails over the experience, even if the end result is death. We only know what we are each like as individuals with BC.

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Comments

  • JoanQuilts
    JoanQuilts Member Posts: 633
    edited March 2012

    What offends ME?

    Anything - a teeshirt, bracelet, baseball caps - that refers to "saving boobies," "second base," or "the tatas."

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    What a great idea!  Thanks Athena!  

    What offends me?  People who join a support site and then offer anything but.  We're all in the same boat- some just have a better window seat.

  • Denise2730
    Denise2730 Member Posts: 648
    edited March 2012

    Maybe I'm just laid back these days but nothing has really offended me. I have overheard relatives say "she looks good" and even that hasn't bothered me too much. I could have overheard "man, she looks like crap".

    IMO we all make choices based on what we feel is right for us. For me, that might be not doing conventional treatment, for you, it might be the exact opposite.

    I think if we treat everyone the way WE would want to be treated, everything would work itself out.

  • changes
    changes Member Posts: 622
    edited March 2012

    I don't like the "warrior" metaphor, although I wouldn't say it offends me, either. What DOES offend me is people implying I did something wrong to get cancer, or people stating that a positive attitude will somehow cure cancer.

    Strangely, what offends me the MOST is when a fellow cancer patient tells me I should not worry about a recurrence (I have a friend I made here who does this all the time). I don't mind so much from other friends, because I don't expect them to know better. But this particular friend copes via denial, and thinks everyone else should, also. I am more of a hardcore realist, and I want the facts, statistics and all. I  wouldn't mind it that she copes via denial, if she would respect that my way of coping works for me.

  • Kadia
    Kadia Member Posts: 314
    edited March 2012

    Eh, not much offends me short of a personal attack. Things irk me, sure, but offend seems too strong a sentiment. To me it implies both intent and a personal aspect.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2012

    Duplicity offends me. Naïveté makes it worse.

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited March 2012

    Things that offend me:

    People who think that breast cancer isn't that big a deal.  You get chemo, you lose your hair, it grows back, and life goes on.  NOT.

    People who think we should just "get over it."

    I often offend myself, just talking about it so much.  I need new topics to discuss!

    Things that don't offend -

    "But you look so GOOD!"  It's nice to hear and I don't blame them for being tongue-tied in the face of cancer stories.

    Save the TaTas, boobies, second base, etc....humor helps people cope with serious topics.  

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited March 2012

    I don't get too bothered by things people say about B/C, as misguided as it might be.  STICKS & STONES.  If I feel up to it, I might try to correct a false perception if I can.  (That includes friends misinformation; or this week, my GYN nurse that did not know that Tamox. has a weak estrogen agonist effect on the uterus. Geez!  Maybe she thought I just liked TVUS and endometrial biopsies.)

    I don't like doctors that are patronizing, or act condescending; or ones that have their hands on the door when they ask, "Do you have any questions?"  That's across the board, tho', not just having to do with B/C.

    p.s.  Not bothered by pink. Various labels, no big deal to me.

  • perky
    perky Member Posts: 241
    edited March 2012

    I get offended when someone tells me how I should feel or should react.

    I get offended when I am told that others have it so much worse. It isn't a competition! I am going through something which should not in any way minimize what someone else is going through. It all sucks!

    I get annoyed when someone says "but your cured right?" I don't want to get into the answer of what NO CURE means.

    I get offended when I am told I am lucky to have new boobs. Seriously. Reconsctuction is NOT enhancement.



    Thanks! That felt good!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    Thank you athena. I have felt the same way as you, long before I was dx  with bc. I thought describing bc women as survivors or fighters was stupid. What else are we supposed to do? I just live my life the best I can. I have been in a near state of panic (barely contained) since I was dx. Of course to the world I seem calm. I found that the world doesn't want to hear my sad story - not really. Anyone who hasn't had the bc dx doesnt get it. I have stopped telling people because the reactions piss me off. Usually. I have had people (my own daughter also) say, 'well you're not having any more kids you don't need your boobs'' WTF??? So, at some undetertimed age, it's ok to lose your boobs?

    What is offensive also are doctors who patronize women - men docs who have NO idea what we are dealing with.

    Anything pink. Yeech!!

    The fear factor and pushing everyone into chemo ASAP. I was not given any alternatives. No one mentioned CAM. I found that out LATER, after chemo. To be honest, I would not do chemo again. Why should I if the first round of poison fails?

    Responses of some people who say, 'breast cancer is so curable these days. blah blah blah.' I have her2+. How curable is that?

    People who don't understand that yeah, I had chemo 3+ years ago and yeah, I still get really tired sometimes. If I can't keep up with you, feel free to go ahead w/o me.

    Ah. I feel better :)

    tucker

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited March 2012

    While just about to start tx, what bothered me was a sales clerk telling me about her sister who had a "dreadful" time with chemo, and a family member who told me about a colleague whose BC had just recurred.....didn't want to hear either of those stories!

    What didn't offend me when I was bald was the same comment by a few family members:  "You have such a nicely shaped head"! 

  • leaf
    leaf Member Posts: 8,188
    edited March 2012

    perky said:

    I get offended when someone tells me how I should feel or should react.
    I get offended when I am told that others have it so much worse. It isn't a competition! I am going through something which should not in any way minimize what someone else is going through. It all sucks! 

    Perky read my mind-thanks perky!

    The only other thing I could add is that I get offended when someone (who is not my doctor) tells me how I should treat my condition.

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited March 2012

    I guess I'm pretty laid back as well, or maybe I'm just still too much of a newbie.

    What HAS been frustrating is the amazing number of people out there who all have known "someone" with some "hideous form of cancer", of which they feel the need to go into great detail with me....

    My usual answer is "Hmmmm.....and this is helpful to me HOW?"

    Funny how that ends the conversation right there....Cool

  • leggo
    leggo Member Posts: 3,293
    edited March 2012

    I don't know how exactly we're going to define "offensive" and in what context, but the thing that practically brings me to my knees with rage is seeing a child with cancer. It's an offence to my heart and soul.

  • petjunkie
    petjunkie Member Posts: 317
    edited March 2012

    I hate the term "survivor." It just seems to perpetuate the myth that with early stage cancers, once you're done with main treatment (surgery, chemo, rads, etc.) you're somehow "done" and it's all over/youre cured. And for us Stage IV gals, the term "survivor" doesn't seem to fit, at least in my opinion. We're patients, we're in treatment, we're still alive, but I don't feel like I've survived anything.

  • thatsvanity
    thatsvanity Member Posts: 391
    edited March 2012

    What I found offensive within myself and my own actions as the caretaker of my sister during her illness with breast cancer, was not allowing her to talk about dying and her fear of dying, her fear of certain treatments and drugs and not allowing her to express herself about her fears about the treatments and drugs. The blindfold I put on during her demise that she wasn't going to die and she didn't want to be alone. The fear of asking questions about death and how death would unfold and what to expect when someone is dying and not listening to my sister's plan for herself until she had four days to live. Shoving my sister's impending death away from our relationship, but encompassing the oncologists, radiologists, pathologists, trips to the hospital treatment rooms, but not looking into her eyes and encompassing her in all her beautiful living glory with the acceptance of the ultimate goodbye of death imminent and real--- accepting her impending death would've made our relationship that much stronger and connected so I find it offensive that I didn't accept her as a dying woman. I love you Kara for ever and ever and ever I miss you so so much every tiny thing about you. I find it offensive too when people make you go to funerals when you don't want to.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited March 2012

    What REALLY gets my back up is when someone from a higher grade tells someone from a lower grade that they have NO idea what the "real" journey is like!!! I get VERY offended when I hear someone who had IDC and maybe rads or chemo tell a DCIS gal that she is "lucky" to "just" have DCIS, when the poor DCIS gal has had a double mastectomy AND rads!!! I didn't have DCIS myself, but have found out that some higher grade women who DON'T check out all the threads have no idea that a huge % of DCIS ladies get at least one breast taken off!!

    Like someone said, this isn't a competition and for some people out there, a diagnosis of breast cancer IS the worst thing in life that has happened to her!! Doesn't matter what stage at that point as ANY of us are just one test away from stage IV. I'm known for saying that, and I'm known for getting my back up regarding the "stage" issues, but quite a while back, a stage 3 lady wondered why lower grades checked out the stage 3 threads and thought it was because we were ghoulish. Um...no. It's because it was a topic that popped up in Active Topics that DID relate to anyone!!

    I gotta stop now, you can tell I REALLY get offended.

    Love and luck to us ALL!!

  • bak94
    bak94 Member Posts: 1,846
    edited March 2012

    barbe-I agree! I don't like it when a lower stage is made to feel that her fears are not valid, they are valid, and cancer is scary!

  • Beesie
    Beesie Member Posts: 12,240
    edited March 2012

    Thinking about some of the threads that have been very active of late, what I've found disturbing and offensive is when someone who is upset (or offended) is told that she should "just get over it". The attitude too often is "I don't agree with you so your concern isn't valid and doesn't need to be addressed". To me that is insulting and narrow-minded and completely lacking in empathy. 

    I'm also offended by the reinforcement of fear that we see so often on this website, particularly in the "Not Diagnosed" forum and the "Just Diagnosed" forum. Validating someone's feelings is important ("of course you are scared and worried") but encouraging an unreasonable level of fear is something completely different. Someone with a BIRADs 2 cyst should not be told that she needs to insist on a biopsy. Someone with a very favorable diagnosis should not be encouraged to believe that her risks are the same as someone with a more advanced cancer. Of course we all face some level of risk but that level of risk is not the same for someone with DCIS or early Stage I BC as it is for someone with a more advanced BC. I don't see any benefit in leading someone to think that her risk is higher than it is, thereby increasing her long-term fear. 

    Barbe, just as an FYI, a study of over 50,000 women diagnosed with DCIS between the years of 1998 and 2005 showed that 30.1% of the women had mastectomies, while 69.9% had lumpectomies. I don't know what percentage of those mastectomies were considered medically necessary but I would guess that probably 60% - 70% were (i.e. 18% - 21% of women with DCIS), with the rest being in a sense prophylactic, since a lumpectomy would have been an adequate surgical treatment from a medical standpoint. In recent years the percent of mastectomies vs. lumpectomies has increased among all women diagnosed with BC in North America so I would guess that the percent of women with DCIS who've had mastectomies has probably also increased, with more women choosing to have a prophylactic mastectomy (or BMX) rather than a lumpectomy. Still I doubt that the percent of women with DCIS having mastectomies is anywhere near 50%. And the percent who have to have a breast removed because of their DCIS diagnosis is probably still in the range of 20%, not the 99.9% that you state.  http://www.medscape.com/viewarticle/591170 

    Edited to clarify the data and wording in the last paragraph. 

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited March 2012

    I'm in the laid back camp. I don't get my feathers ruffled over much but I have always been that way. Hope bc doesn't change that. Caryn

  • SeasideMemories
    SeasideMemories Member Posts: 3,194
    edited March 2012

    Beezie,



    Thank you for your post and I agree... I also have checked some studies and, while mastectomies for DCIS, as well as other early stage cancers, is on the rise, lumpectomy with radiation is, at this point in time, what many (the majority by far, really) have opted for with equal survival rates... I don't mean to step on anyone's toes but also wouldn't want any new DCIS person to think it is a done deal that they will lose one or both breasts! Each case needs to be considered onnit's own merit...



  • thats-life-
    thats-life- Member Posts: 1,075
    edited March 2012

    Athena!...what a great post..I agree with 90% of your do's and donts!!!

    should I list a few more of mine?....

    What does offend me:

    Sympathetic conversation with oncologists when I want informative conversation

    That in my town there is FREE massage available for CARERS through palliative care services, but NOT for the person with cancer

    The Cancer Council of Australia (private non profit) telling me I dont qualify for their assistance. I asked, 'what the hell do you have to do to qualify, be dead?' They claim they help people with cancer on their website. Their directors earn between $150,000.00 and $250.000.00 per year,  they sell heaps of sunscreen :)

    My 'friends' bailing, I hardly see them

    Pity

    Graphic attention seeking post titles on the stage IV forum by non metsers

    Palliative services recommending to me that I tick the Do Not Resuscitate box on my Advanced care directive, which would be effective immediately!

    What Im not offended by:

    Being considered a non compliant patient :)

    Questions about BC and MBC by those who want to learn

    Offers of information on Diet, exercise etc

    Discussion on the 'how and why' of developing Cancer

    Discussion on the possibility of reversing the process of Cancer

    Debate, Discussion,

    Cancer jokes...Last year my brother said in response to my musings on the mistakes I have made in my life.."OH well, at least you have your health'.....we both just looked at each other, me in shock, then we burst out laughing, the roll on the floor type laughing...but maybe that's a family thing.

    Signs that my daughter is building resilience and a life without me, finding comfort and support elsewhere.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited March 2012

    What a great post, that's life...

  • Racy
    Racy Member Posts: 2,651
    edited March 2012

    I am offended by the spammers who post here. What a nerve! - trying to take advantage of cancer patients.



    I am offended that we have to lose our hair (if not able or willing to successfully use cold caps). Can't 'they' develop an alternative to the current chemos that take our hair?

  • Leah_S
    Leah_S Member Posts: 8,458
    edited March 2012

    Oh, but Racy, didn't anyone tell you it's just hair?

    Yeah, that's one that offends me. Shave your head, eyebrows, body hair, pluck your eyelashes and then tell me it's just hair.

    Leah

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2012

    Racy, we're offended by spammers too, and happily hunt 'em down.

    .

  • jennifer1
    jennifer1 Member Posts: 185
    edited March 2012

    Friends have bailed, at first blamed myself (not) 

    Have stage 3a, havent changed it yet, but had the option to have lump removed so did so and omg the people who throught I was wrong.  Was informed and surgeon talked to me a long time about it, my decision to make.  These people didnt have bc but knew someone and since they had mx, that is the only treatment.

    Get over it, well I will in my time, not yours (talking about outside world)

    The best time is when I read the You know you have cancer when stuff.  Made me laugh

    You are fine, the se's are in your head.  LE, then 2 bouts of cellutitus and now thyroid problem, sure they are in my head.

    I read the stage 4 forum because one never knows when they will need the info provided there.  They are great women.

    Also read stage 1 and 0 because their fear is no less than mine was.  They are great women.

    My personal dr who I love but says I am 15 months out and I consider myself almost two years out, this is important to me, no one else. 

  • greenfrog
    greenfrog Member Posts: 269
    edited March 2012

    Not offended but certainly irritated by ....

    - the copious charlatans and snake oil vendors that peddle their various bonkers theories to women whose lives may be at risk. Include in that category anyone who attempts to persuade another cancer patient to quit traditional treatment in favour of alt twaddle.

    - any medical professionals who treat me like a moron. I had my breasts removed not my brain.

    - the pressure to reconstruct my breasts.

    - pink.

    - anyone who truly thinks that having a fairly easy time on chemo is somehow linked to strength of character rather than biological good fortune.

    - the notion that having a cancer diagnosis suddenly turns someone into a saint. Deeply obnoxious bigots get cancer too.

    - the sisterhood thing. Cancer is cancer. Whether it is in the testicle or the breast, bowel or brain is irrelevant to me.

    - I am most offended by cancer itself. Indiscriminate, unfair, unpredictable killer that has robbed me of family and friends.

  • thenewme
    thenewme Member Posts: 1,611
    edited March 2012

    Offensive?

    Spammers. Misinformation. Poseurs. Quacks.

    ETA:  ...and Fearmongering.  Baseless Conspiracies.  Chicken-little (chickensh##!) terms like "what your doctor won't tell you" or "Obamacare" or "Big Pharma."

  • Omaz
    Omaz Member Posts: 5,497
    edited March 2012
    greenfrog - most offended by cancer itself - I second that with all my heart.  

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