The solution to painful intercourse!!!!!! Yipeee!

Hi, finally got in touch with OBGYN where does the SC go? does it go internally?

Thanks Janet

Thanks, my husband has outbreaks of herpes every once in a while would that

effect him. I'm ok.

Thanks for all the help, Janet

One of the ingredients used will cause Herpes/Cold sores breakouts if you have them. Its in a lot of creams and potions that brings blood to a certain area. its the Arginine or L Arginine.

Just wondering if anyone in the UK has managed to get Scream Cream... Here's hoping!!! ;0)

Angelfalls xx

Omfg this post rocks! I'm sitting here the day after my exchange surgery at 6 something in the morning wondering if my onc will prescribe this over the phone! Lol! That's ok, I have an appt with her on Tuesday and I will DEFINITELY be asking about this! Don't think I'll have trouble getting a script since she's already told me that she wants me to have a date night with DH once a week with candles and Barry White on. ;-)



Thanks so much for this post, and I was so sad to read that our sister Zoe who posted this originally passed on... Thanks girl, you've changed a lot of lives here!

I posted this last month, then never came back to follow up. Here it is again, and more below.

I ran the scream cream past my Dana Farber oncologist and the DF pharmacist (who is an expert researching drugs and sexual issues) and was told that the Scream Cream ingredients are safe and probably effective.

However, I got a stern warning that LIDOCAINE SHOULD NEVER BE USED "DOWN THERE" on any nerve endings! That's because lidocaine has been known to "burn out" nerve endings permanently and they never get their sensation back. That would be very bad thing on certain nerve endings.

The one thing I found worked WONDERS for my trashed genitalia was simply applying some melted cocoa butter (food grade) with my fingers on the vulva and a bit internally each night before bed. Within two days I was practically back to normal, plumped up and pain-free, whereas before the pain was so bad I could not even wipe with toilet paper.

Cocoa butter. Whoulda thunk it?

Here's the followup on cocoa butter to the questions asked a few pages back.

I couldn't get my onc to write me a script for scream cream, and lidocaine scares me --  not only because of the nerve ending thing, but because lidocaine is a carcinogen in its own right. (I'll post that info below.) So I got creative. Here's what I found:

* Cocoa butter plumps up the vaginal tissues and softens and warms things up
* It works much better than coconut oil
* It's not only a lubricant, but an mild aphrodisiac when applied topically
* It turned me from a bleeding, painful wreck into a normal woman again

Cocoa butter is thicker and has a more "earthy" texture than coconut oil. While coconut oil is a thin, runny liquid oil, like olive oil once it warms up on the skin, cocoa butter is thicker and more like a warm massage, i.e., lubricated skin that feels earthy and very erotic. All it takes is a bit of cocoa butter down there before I go to sleep, no matter how tired or un-interested I am, and the "interest" just starts to percolate through me on its own. (My husband is a big fan

Because cocoa butter is hard as a rock at room temperature, you have to warm it up before you use it. I put the jar in the bathroom sink and run the hottest water I can get over it, then I close the plug and fill the sink so the jar floats in the water. A few minutes later, the cocoa butter will still be a hard lump in the middle, with runny, golden oil around the sides. Being careful because it will stain, I pour a little out into the palm of my hand and use the fingers of the opposite hand to apply it externally and internally. You won't need a whole lot. It will be runny in your hand, but somehow it thickens up on the skin. Or maybe it just soaks in.

On those of you using frozen coconut oil suppositories, that sounds like a huge hassle. Plus it sounds like it wold be too thin and runny for the purposes of daily lubrication.

I am betting cocoa butter would make a much more effective suppository, and would be much easier to use. I would get one of those teeny ice cube trays or go to Michaels and find a candy mold that was the right shape. Then melt the cocoa butter by floating the jar in hot water and pour it into the molds. Once they cool, they will be hard even if you live in a hot climate, but will melt easily at body temperature. I just looked it up and the melting point of cocoa butter is between 93 and 100 degrees, which is perfect body temperature. 

Cocoa butter is pretty cheap. I got 8 oz of it for around ten dollars. That has lasted me months and is still half full. Be sure it says "food grade" on the label. It's also sold in a push up stick (I think it's Queen Helene brand, but not sure), but don't get that one. Because the cocoa butter is so hard and gummy at room temperature, trying to use the stick is like trying to rub an eraser on youself, which would be extremely painful. You have to melt it first.

One thing the stick might be good for would be to push it out and cut it with a knife into suppository-sized chunks. But I noticed the quality of the cocoa butter in the stick is slightly lower than the food grade jar. Probably close enough to still be okay though.

One more thing. You may be tempted to scrape the hardened cocoa butter out of the jar with your fingernails. Don't. It will wedge up under the nail where it connects to the skin and leave your fingernails very sore. It's like trying to scrape off chunks of a bar of soap with your bare fingernails. Ouch! Especially bad for ladies still suffering fingernail problems from chemo. If you're in an intimate situation and can't get up to melt it, in a pinch you can use a spoon to scoop it out. I keep thinking it will stain my sheets, but so far it hasn't been bad enough to say "Oops!"

One other thing - cocoa butter totally smells like chocolate, so you will feel like a melted Hershey's kiss when you use it. My husband thinks it's hot. 

Oh, and it's completely edible, too!

*wink*

Windlass, thanks for posting all that good info!  I am using a 1:1 mixture of cocoa butter and coconut oil daily right now, and I'm happier with that than I was with coconut oil alone -- the addition of cocoa butter raises the melting point enough to make applying it a bit less troublesome than with coconut oil alone. I haven't tried to go all cocoa butter yet, but you inspire me to try. 

I'm just mixing them together with a spoon in a little jar.  I get the jar and spoon hot first -- fill it with really hot water and then toss it out.  It takes a little stirring but it does blend.  Obviously you could melt them together on low heat on the stove, I just didn't bother to do that.  (I would NOT microwave them, no no no.)  So far I've just used this blend for daily moisture like you would use Replens or microbeads.  For that, at least, I think it is definitely an improvement over coconut oil alone, which I think melts a bit too thin and messy for daily use.  The cocoa butter helps it... umm.. stay put.  Haven't tried cocoa butter alone, either.  You make it sound tempting, though!

I'll tell my DH that we have some science experiments to conduct on our upcoming 25th anniversary trip.  :-)

I got cocoa butter at the local health food store in the skin care aisle. You can get it at Whole Foods, too. It comes in a squat, low, cylindrical white plastic jar. I can look up the brand if you'd like. I am betting you could also buy it at Michaels or another craft store, in the cake and cookie/chocolate molds section.

I use the Lidocaine very sparingly. A little goes a long ways, and it really helps. My onc is researching the SC ingr., and will have to order it in another town for me to pick up, because we don't have a compounding pharmacy here. I can't wait to try it.

i think i might have gotten a warning for that post.. ill see if i can't get a linky...later..

I got cocoa butter in Whole Foods today, in the skin care section. $7.99, I think. Not food grade, but pure organic cocoa butter. They also have the Queen Helene stick cocoa butter.

Just remember that cocoa butter is not a lubricant. You will still need Replens. (Which is a thousand times nicer than KY.)

I thought Replens was also just a moisturizer. My onc suggested the coconut oil becuase it is MUCH cheaper than Replens. She said you could use Replens every day, but that would make it seem even more expensive.

My PCP suggested a silicon (silicone?) based lubricant rather than water based, that they are more protective of the skin.