The solution to painful intercourse!!!!!! Yipeee!

janetlp

Hi, does the Dr just write scream cream or the ingredients. thanks Janet

Pennythoughts

Hello Ladies . . . I haven't been on the forums for quite a long time, but this issue brought me back.  I didn't even take Chemo, but I might as well have, for the way I feel down there.  It's absolutely horrible.  Problems actually began pre-Breast Cancer with generalized pain of the vulva, and painful intercourse.  I was diagnosed with vulvodynia, for which there is really no generally prescribed treatment.  A lot of physicians still believe that all physical sexual problems are in your head and emotionally related.   That was about age 45.  Then at 48, ER+ BC, treated with two lumpectomies, radiation & Tamoxifen.  Then 6 mos later, 10cm ovarian cyst.  Finally got hysterectomy and BL oopherectomy & cervix removed in June.  Instant menopause . . . gotta love it.  Hot flashes went from 2 or 3 a day to 40 or 50, and are still terrible, although maybe only 10 or 20 a day now, and night sweats.  I'm on Effexor and Gabapentin to try to control the hot flashes - not working.  Vagina and vulva went from mild discomfort to something I can't even describe.  Burning?  Stinging?  Itching?  Tearing?  Like a ring of fire?  Like a knife stabbing?  Do any of these come close?

None of my docs had anything to offer for relief.  They're just like, too bad, so sad - - you'll just have to live with it.  Finally my naturopath wrote me a prescription for a compounded Vitamin E vaginal suppository.  I alternate that with Replens every other day.  But it does not solve the pain and discomfort issue . . . only makes it marginally better and sex is still an experience that I am avoiding because of the memory of the previous painful encounters.  Libido is non-existent.  Now that might be in my head, but who can blame me after the last 5 years?  It's just so disappointing.  It just feels like I'm finished, at age 50.  Now that really sucks.  And believe it or not, the only thing I have found that gives me some relief during the daytime, is . . . wait for it . . . Penaten Cream - - the stuff I used to put on my babies bums when they had diaper rash.

So . . . I said all that to say this . . . thank you for this thread!  It gives me hope.  I'm going to see what I can do about getting someone to write me a prescription for the SC and probably the lidocaine too.  Although, I've tried testosterone cream (just a little dab) and I can't use it because it stings so badly.  Is this really worth a try?  Does the initial stinging or discomfort go away quite quickly?  If this works, I will do the happy dance and so will my DH!  He has been so patient and understanding, but we are both so frustrated!!!!

jancie

Penny - the SC does not burn at all.  The lidocaine cream will burn just a little bit for about 4 min - at least that is my experience.  No different than getting a lidocaine shot to numb you - burns at first and then all is ok.

If you are having pain issues then I would recommend the lidocaine cream along with the SC.  What I found out works best is to put the SC on/in me -wait 15 minutes - put the lidocaine where you are experiencing pain - wait 5 min and then you are ready to go.  Takes some timing to get it all right.

jancie

Janet - since the SC formula is long and some pharmacies don't even know what it is yet - I went to the compounding pharmacy with the formula and got them to send an approval to my oncologist.  I already had the talk with my oncologist as I brought the formula with me so that he could see the ingredients.  My oncologist had never heard of it and didn't know how to write it up so he told me to go to the pharmacy and have them send a fax approval form.  Worked just fine!

We checked out the meds in the system at the next visit and it did list SC as a med that I am on.  I just wish they would come up with a better name.

janetlp

Thanks Jancie, I spoke with my oncologist yesterday. They said the ingredients were fine but said I should buy it on line. Would I look up compounding pharm ? They didn't want to give me the lidocaine. They are afraid if I don't feel pain I could hurt myself. Not sure what to do. maybe I should call my OBGYN.

 Thanks Janet

tenaj

I posted before about something new my gyn suggested to me a few weeks ago. She suggested massaging olive oil on your lady parts during your shower. I was using replens with some relief but not great. I have found the olive oil to be helping and I'm not using it very long. Less burning to touch & feels smoother.

suz45

Janet, My Doctor wrote out the ingredients exactly as it was on the pdf sheet then wrote under it times 30 doses. The pharmasist did the same thing on the jar.. just listed the ingredients without the name.

jancie

Janet - you need a prescription for the SC.  What is offered on-line is totally different.  Your onc needs to get screen shotted - talk to scootaloo about that.

lulubee

Okay, I'm behind the curve again.  What the heck does it mean to get screenshotted?

Please don't laugh at me.  Just laugh near me. 

jancie

lulu - I don't think I could explain it as well as Scootaloo so I will let her do so.

zumbagirl

I gave my ocologist the list of ingredients in scream cream, but it is the one I got off line, and he said the primrose and vitamin E oil would effect the arimidex I am taking. He did call in the Lidocaine ointment though, and I picked it up today, will try it tonight  I was wondering about the compounding pharmacies you are talking about, and if the it was only two of the list of ingredients that concerned my oncologist, maybe those two items could be left out of the recipie?

jancie

Zumba - the list of ingredients is totally different in the on-line SC versus the ONE we are talking about.

Here is the pdf file for the pharmacy compounding formula.

http://compoundingtoday.com/CNLSharedInfo/DownloadPDF.cfm?Item=Scream_Cream_Handout.pdf

And a printout of the pdf file:

Scream CreamWho can benefit from using Scream Cream?

Studies have reported that over 43% of the women in America experience little or no sexual

satisfaction from clitoral orgasm and only 25% achieve orgasm with intercourse. In fact, according to

studies, numerous women between the ages of 18 and 80 do not even know what an orgasm is or how it

is achieved. Whether someone is multi-orgasmic or among the 43% of women who are sexually

frustrated, any woman who desires maximum sexual fulfillment, greater intimacy, and enhanced

relationships stands to benefit from regular use of Scream Cream.

Description:Scream Cream contains a combination of prescription and non-prescription components described as

blood flow enhancers and vasodilators. Each ½ gram dose contains Aminophylline 15-mg., Isosorbid

dinitrate 1.25-mg, Ergoloid mesylate 0.25-mg, Pentoxifylline 25-mg. and L-Arginine 30-mg. Dissolved in

a water based hypoallergenic transdermal vehicle. The vehicle is designed to enhance the rate of

absorption and to cause the medication to be retained locally in order to maximize local effects and

metabolism while minimizing the potential for systemic side effects.

Use:Scream Cream should be applied directly to the clitoris at least 30 minutes prior to anticipated

sexual relations and gently massaged in. Duration of effect ranges from 30 minutes to 2 hours and

heightens both ease of stimulation and intensity of orgasm.

Contraindications:

Patients with a history of sensitivity to any of the listed ingredients should not use this product.

Patients with a history of genital herpes should use this product with caution as L-Arginine may

facilitate reproduction of the herpes virus. Scream Cream is available without L-Arginine upon

request. Onset is identical to the complete product but duration may be reduced.

How supplied:

Scream Cream is packaged in 30 dose multi-dose tubes.

References:

Dr. J. Kaminetsky, New York Univ. College of Medicine; Univ. of Chicago College of Medicine; J

Berman, M.D., I. Goldstein, M.D., Boston Univ. School of Medicine, Dept. of Urology/Continence

As you can see there is no primrose or vitamin E in this formula.  I don't know if the stuff you get OTC on the internet really works but the formula above is what the ladies are using and they are all vounching for it as being totally awesome.

cfdr

Question for those of you who had herpes outbreaks while using SC: were any of you on acyclovir for preventing outbreaks? I take acyclovir regularly (herpes is the lovely legacy from a fiance from 1988...the gift that keeps on giving). I'm wondering if I should order the SC with our without the arginine.

zumbagirl

thank you Jancie  That is wonderfully helpful

zumbagirl

I must share that the lidocaine worked great . I was anticipating the usual intense pain at the start, but it numbed the area enough to be pleasant. Thank you for mentioning this on here. Hubby is very happy that I am not wincing for the first several minutes, and so am I .

jancie

Zumba - welcome to the SC team!!  So glad it worked for you!  Another happy customer!

abetterme

I've read this whole thread and have to give this a try.  I mentioned it to my BS today and she said she'd look over the recipe and let me know.  She sounded really positive about it and so I have my fingers crossed here.  I'm mailing her the recipe tomorrow.  Thanks for a great and fun thread

Anonymous

I ran this past my Dana Farber oncologist and the DF pharmacist (who is an expert researching  drugs and sexual issues) and was told that while the Scream Cream ingredients are safe and probably effective.

However, I got a stern warning that LIDOCAINE SHOULD NEVER BE USED "DOWN THERE" on any nerve endings! That's because lidocaine has been known to "burn out" nerve endings permanently and they never get their sensation back. That would be very bad thing on certain nerve endings.

The one thing I found worked WONDERS for my trashed genitalia was simply applying some melted cocoa butter (food grade) with my fingers on the vulva and a bit internally each night before bed. Within two days I was practically back to normal, plumped up and pain-free, whereas before the pain was so bad I could not even wipe with toilet paper.

Cocoa butter. Whoulda thunk it?

janetlp

I told my husband about the lidocane and he does not want me to use it. He feels there is a reason for the pain and it may cause tearing. Has anyone had problems after?

suz45

I use so little lidocaine that Im not sure if it would be an issue & I dont use it anywhere that would be pleasure sensors. Im nor a Dr so that definately gives me food for thought... Lots of girls are using just the scream cream.

cfdr

Windlass, where do you purchase your cocoa butter? Is it completely solid at room temperature? My onc has suggested making/freezing suppositories out of coconut oil, which is semi-solid at room temp. Seems like being able to just slice off a chunk of solid cocoa butter would be a lot easier.

Asked my PCP about scream cream yesterday...she also said it looks safe to her and is going to call it in to our local compounding pharmacy. I'm excited to try it!

tenaj

A bit of input... I finally tried the SC & it really did help. Like I said before I recently have been using olive oil & that has helped also. But I am interested in the cocoa butter. Yippe to less pain!!

zumbagirl

suz45, I also use very little lidocaine, and not in the sensitive areas, just the opening edges, and it helps so much. I am very thankful for it

3jaysmom

haven[t tried the sc yer, but did add ky suppositories there, for daily use.. not the jelly, which is YUCK.. they're calledKY  "liquid beads" and are working well for daily dryness,  better ( and cheaper) than replens, for me... just a thought...

  i'll start there, and work my way up, after the gyn appt..!....3jays

cfdr

I made my own coconut oil suppositories yesterday. Took my old applicator from Premarin, opened it, stuck it into the solid coconut oil, then pushed out about an inch of oil onto a 2" square of cellophane. Wrapped it up in the cellophane. Did about 10 of these, stuck them in a plastic container in the freezer. Used the first one last night. It didn't fit perfectly back in the applicator, but close enough to work. Will report in 10 days on how well it works.

3jaysmom

let us know, thats something i'd try, too.. the ky beads are fine, but are turning out to be over 15.00 a week, i tried to skip a day, but ouch.. so back to everyday........3jays

lulubee

There has got to be an easy, clever way to make these suppositories.  We just need to think think think...

::taps her head and says hmmm:: 

lulubee

A melon baller?  If they turn too big, you could let them get just cold enough to cut them in half...?

Or...

What about a ziplock freezer bag with the corner clipped, to use like a pastry bag?  If the coconut oil was just slightly chilled (and you worked fast) I bet you could squeeze dollops onto a plate and then stick the plate in the freezer for five minutes or so to firm them up, and then pop them into a jar...? 

The melon baller sounds easier.

3jaysmom

im a little worried for me, with the coconut oil, as im allergic to so many fruits.. does vit E  freeze? i gotta try that.. (just for lube daily) 3jays

cfdr

My onc also suggested Crisco instead of coconut oil. Somehow that seemed ickier to me, but worth a try if you can't do the coconut oil.