Calling all TNs

Lovelyface, I really have no idea about the Aridimex but if it's as bad as you say I don't see why it couldn't be.  It could very well be a mix of Aridimex and arthritis.  I'm sending positive thoughts to you!!!

Laura, my friend, I am so sorry to hear you are in such pain, and that you suffered so for a treatment that failed you. Screw the diet - eat what you want, when you want. There comes a time when simple pleasures are more important than a diet that likely won't do a darn thing for you. I hope your doctor is able to provide you with pain relief. If she doesn't, please seek out some palliative care - different from hospice in that they work to control your pain while you are still in treatment. Please do this, for your sake.



I am going to share this, even if I might scare the newcomers.



I know my time is short. Much shorter than I'd like. I am taking time now to come to terms with that, and finish/do the things that are important to me. I am cross stitching. Writing letters. Completing the book "The Story of a Lifetime". Getting pictures in order. And making sure I see those I love while I can. I have my trip planned in a few weeks, a cruise and Disney. I wish I felt well enough to eat the foods I want, and drink the wine I want, but this pneumonia still has me feeling like crap.



If the Halaven isn't working, I am going to seriously consider going into hospice. My biggest fear is cycling through chemos, feeling like crap, not having them work, when I can get the same result in time while feeling human. It is a hard choice, and I haven't made it yet, but i don't really relish the alternative.



Laura, please get some help with your pain, and then sit in the sun, wind, and rain with your loved ones, enjoying each moment you share with them. Eat, drink, dance, and know you fought with all of your heart and soul. I am so sorry you are suffering.



Susan

Susan, wow!  Yet again, I have to say this. You are an amazing woman, thinking the way you are doing right now.  Putting everything into perspective and this is nothing ordinary, this is your life you are putting into perspective, you are one heck of a strong woman!  While you are thinking on these lines, please don't ever forget to think that eventually, God or the higher power or whatever you believe in, is still the one who makes the final decision.  There are definitely miracles happening, not just in story books, but in real life. I have witnessed quite a few myself.  Believe in miracles, because they are for real and they do happen.  Pray with all your heart and soul what you want for yourself to spend more time on earth and then sleep with those thoughts that nothing will happen to you as it just possibly cannot happen. I am saying all this only because since 1987 I have been in search of spirituality taking at least 14 trips to India chasing holy men, gurus and this is what my life has been all about.  Therefore, due to their techings and my experiences of amazing miracles, I know that things don't happen only because  a doctor says so, it happens because the higher power or God or nature has it destined for you.  Just listen to your heart and get very close to your inner self, you will get your answers.  I think the pattern for me, in case this was to happen to me, would be sheer panic at first, then coming to terms with it, then looking forward to facing my creater, or at least feeling that there is always always a good reason for everything that God does.  I am sorry if my email offends anyone, talking about God and the higher power, but I feel like I want to say what I have learned from my experiences.  Susan, I hope you heal and get back to your wonderful life very quickly.  Remember this saying "With God, EVERYTHING is possible".

Lovelyface - the c-spine MRI shows the back of the brain. Do a google image search to see what I mean.

LJ - my heart hurts for yours. I'm sorry you are in such anguish. I hope you find your silver bullet.

----

I have a high hemoglobin. 15.9 - anyone else ever have this? Mote blood test to come, gave up after 4 sticks today.

Wishing everyone a bright tomorrow.

obxk, I have this as well..my primary doc discovered this, but was unsure about it. Did you get any advise from your doc??

This is very hard to read and experience. I have nothing but respect and love for the both of you.  

Obxk - thank you so so very much for telling me that the C spine MRI shows the back of the brain.  This helps me with one short doctor visit.  I am not sure why I did not think of googling in the first place.  Thanks again.

Hi Girls! I am happy to see some familiar avatars on here, as well as some new ones.
I don't get on to post as much as I'd like, but I'm still here. A year ago today I was going through my first chemo. It really is amazing the difference a year can make.

I am eternally grateful to all of you ladies and this board for the info, support and love that exists here.

Huge hugs to all our TNs currently in the midst of tx.
 

CLEAN PET SCAN!!!  Going out to celebrate with my family tonight.  Ca 27-29 slightly  elevated but doc says prob from chemo.  WOOT WOOT

LJ and Suze --you are both amazing.  Your courage and strength are a shining example of how we all should be.  I have followed you both since joining in August.  May you feel the love of the entire TN family right now.

Maggie

Mags - what great news! Congrats!

LJ and Suze:

My heart aches, truly aches, for being so powerless in being able to help either of you to attain what you, and what each of us profoundly wants, and that is health that will bolster decades and decades of more living and loving and sharing.  All I can do is to let you both know that I think of you daily, I pray for many, many more years for each of you, and I pray that the promise of hope sustains each of you.  While I well know that not one of us on the face of this earth is ever guaranteed of "tomorrow," and that my time will come as well when I will be faced with the very same issues you both have been forced to face, I only pray to God that I have the strength, the dignity, the beauty and the grace that each of you have been so imbued with.  I will never stop hoping and praying for you.

With love,

Linda

I am new to this, and although it was orig posted in May 2010, found very helpful. Dx 8/10/11 at age 46, Stage IIA, invasive, no node involivement, L mastectomy, no rads, DD ACx4, Taxol x3 as a blood clot was found in right atrium of heart and required open heart surgery,  Still new to all of this.

LJ, I hope you were able to get some relief for the pain today.

Susan, I am thinking of you daily.  Linda so eloquently stated what I feel, too - powerless and sad. I  admire you and LJ very much. You are both very bright, strong women.

Love,

Christina

Susan and Laura I hope and pray that you both have many, many more years ahead of you.  I admire both of you lovely woman!  You inspire me to stay strong and positive.  Praying that you find more strenght, peace and comfort with your decisions.  I hope and pray if the day comes that I am faced with the same thing you both are going through that I can be half the inspiration to someone  that you both have been to me!

God Bless!!!